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Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-26-2012, 07:49 PM
Replies: 4
Views: 1,024
Posted By Hushie
Re: 3 wks post RFA

Hi, Mia. I'm so sorry you're in so much pain. My RSD is in my left leg, too, so I can only use my right one, like you. I do have an implant in my spine. I haven't suffered from much back/hip pain,...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-26-2012, 07:42 PM
Replies: 4
Views: 1,200
Posted By Hushie
Re: Searching for doctor in southwest Virginia, western Tennessee, or North Carolina

Hi, Trophy. I'm so sorry to hear of your daughter's RSD. Virginia Tech's PM department has RSD docs (as of a year ago). I'm sorry, but I don't have their names. I hope that helps! Good luck to you...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-26-2012, 07:35 PM
Replies: 11
Views: 1,774
Posted By Hushie
Re: Spinal Cord Stimulation

That's wonderful!! I've been checking back now and again to see how it went. I'm so happy to hear that it worked for you, but I'm so sorry to hear of the spread. I'll be thinking good thoughts for...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-21-2012, 08:47 PM
Replies: 11
Views: 1,249
Posted By Hushie
Re: MEDTRONICS pain stimulator

Audrey's Dad, I have the same results from my implant, ranging around 15% to maybe 50% pain reduction, but it never takes all the pain away. For me, it seems to reduce some of the constant sharpness...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-20-2012, 08:39 PM
Replies: 11
Views: 1,249
Posted By Hushie
Re: MEDTRONICS pain stimulator

I'm so glad your trial went well. I'm glad to hear that things are moving forward for you. Good luck on your permanent implant. I'll be sending good thoughts your way. Let us know how it goes! :)
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-18-2012, 02:50 PM
Replies: 11
Views: 1,249
Posted By Hushie
Re: MEDTRONICS pain stimulator

Hi, Audrey's Dad. Rant as much and as often as you need to. We all need to sometimes. If your doc is not a PM doc and does not understand your medical issue and the chronic pain associated with it,...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-08-2012, 05:22 PM
Replies: 11
Views: 1,249
Posted By Hushie
Re: MEDTRONICS pain stimulator

I see your predicament. I would express your concerns to your family doc and ask if (a) they would be willing to provide you with pain meds if you need them post-implant and/or (b) if they could...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-08-2012, 01:48 PM
Replies: 11
Views: 1,249
Posted By Hushie
Re: MEDTRONICS pain stimulator

Hi, Audreys Dad.

I'm assuming that you're talking about the spinal cord stimulator? My ailment is different from yours (I have late-stage RSD), so I can only speak for my particular disease....
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-01-2012, 04:36 PM
Replies: 5
Views: 1,274
Posted By Hushie
Re: RSD or not?

ddarken, I'm sorry for all that you're going through. The only recommendation I can offer is in the way of an RSD/PM specialist in your area. Dr. Michael Rock at Our Lady of Resurrection in Chicago...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-31-2012, 04:27 PM
Replies: 11
Views: 1,774
Posted By Hushie
Re: Spinal Cord Stimulation

Hi, Afb. I know what you mean about all the questions about the foot. It seems you can't leave the house without every stranger you meet asking you what's wrong with your foot. I just tell them it's...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-29-2012, 07:02 PM
Replies: 11
Views: 1,774
Posted By Hushie
Re: Spinal Cord Stimulation

Hi, Afb.

I can't speak for the overall success rate, only my own experiences, which have been positive. I was dx over a year ago with RSD in left foot/calf shortly after foot surgery. It spread...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-13-2012, 06:35 PM
Replies: 3
Views: 656
Posted By Hushie
Re: hey all.

Hi, Jason. I'm so sorry to hear of your RSD spread. Mine started in my foot post-surgery about a year ago and spread to my knee. Unfortunately, it's "late stage" RSD, so walking is permanently...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-02-2012, 05:12 PM
Replies: 9
Views: 2,500
Posted By Hushie
Re: Swelling of Foot with RSD

Ben,

Please don't apologize for feeling (or sounding) bitter, and I'm so sorry that you felt abandoned by the board. I just joined yesterday specifically to respond to your question (although I'm...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-01-2012, 03:23 PM
Replies: 10
Views: 2,271
Posted By Hushie
Re: Wearing pants

Hi, Abf. I have severe RSD (late stage) in my left foot to knee and struggle with the whole "shaving the leg" issue. It's a catch-22 situation, right? The stubble is painful, but shaving can be...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 07-01-2012, 02:07 PM
Replies: 9
Views: 2,500
Posted By Hushie
Re: Swelling of Foot with RSD

Hi, Ben.

I'm so sorry to hear about your recent painful flair-ups. I was diagnosed with RSD in left foot/lower leg about a year ago, but had such an aggressive case, that the disease took off from...
Showing results 1 to 15 of 15

 








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