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Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-14-2012, 12:17 PM
Replies: 8
Views: 2,253
Posted By Imamooch
Re: RSD and high blood pressure w/ heart palpatations?

I have always had low BP. I am diagnosed almost 5 years now. There are times when my BP is soooo high. I have other cardiac issues so this is not the exact same situation, but related. I have...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-05-2012, 10:38 AM
Replies: 12
Views: 1,943
Posted By Imamooch
Re: Am new on here and very frightened of my spread.

I've been dealing with it for almost 5 years. I was lucky in that I got what everyone calls a quick diagnosis. I have had it spread throughout the entire left side of my body. It started in my...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 12-16-2011, 09:05 AM
Replies: 3
Views: 1,094
Posted By Imamooch
Re: Officially Diagnoised with RSD

Being a fellow New York-er, I know how frustrating it can be to get a proper diagnosis, questions answered and treatment. I ended up going to the Hospital for Special Surgery for treatment and am so...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 11-10-2011, 05:51 AM
Replies: 7
Views: 2,937
Posted By Imamooch
Re: CRPS and weight gain

I have had several inpatient infusions here in the US. I found them to be great. I just had one at the end of August and I am still doing well. I am no longer pain free but the level of pain is...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 11-03-2011, 11:26 AM
Replies: 4
Views: 1,645
Posted By Imamooch
Re: Has anyone tried Mirror Therapy for RSD?

Kevscar, thanks for the response. I understand that remission is a long shot. I am not looking to be pain free, I am looking for relief. Over 4 years of constant, debilitating pain, that has...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-29-2011, 08:41 AM
Replies: 7
Views: 1,926
Posted By Imamooch
Re: Coping with RSD

I thought they had also, but as I understand it; it is a issue of protocol.
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-29-2011, 08:39 AM
Replies: 4
Views: 1,645
Posted By Imamooch
Has anyone tried Mirror Therapy for RSD?

I have RSD on the entire left side of my body. Right now the pain is bearable but is creeping back. I have been doing traditional therapy on and off for the past 4 years. Recently, a recent PT...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-29-2011, 08:32 AM
Replies: 3
Views: 984
Posted By Imamooch
Re: At my pain ceiling; looking for advice...

Look him up on the Hospital for Special Surgery website. His initals are D I R. If you choose to go to him tell him Lisa and Maggie sent you. They all know me and my little service dog ;)
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-29-2011, 08:28 AM
Replies: 2
Views: 1,797
Posted By Imamooch
Re: RSD & Itching of extremeties

This might sound crazy and when I heard it I thought it was but this has helped me. It is topical and should not be used when the pores are open. Get UDDER CREAM & PURE PEPPERMINT OIL. In NY they...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-22-2011, 05:03 PM
Replies: 7
Views: 1,926
Posted By Imamooch
Re: Coping with RSD

Right now I am in very little pain, but I was put into the hospital in late August. My PM doc does ketamine comas for 5 days. You have ketamine epidurally infused 24/7 for 5 days. When you are...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-22-2011, 03:53 PM
Replies: 8
Views: 1,033
Posted By Imamooch
Re: Pain when exercising

Have your PM send you to a Physical Therapist who works with RSD patients. I have it on my entire left side and with the PT have been able to incorporate more exercise into my day with less stress...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-18-2011, 04:53 PM
Replies: 7
Views: 1,926
Posted By Imamooch
Re: Coping with RSD

I have RSD on the entire left side of my body from toes to shoulder. At one point, after the sympathetic nerve blocks were failing, I had epidural blocks with intrathecal baclofen. In the event you...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-18-2011, 04:41 PM
Replies: 7
Views: 2,937
Posted By Imamooch
Re: CRPS and weight gain

I have had RSD for 4.5 years and have gained 100 lbs. It is horrible! I can not take neurontin or lyrica, or most of the rest of the meds because of severe allergies. The weight gain I think is...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-13-2011, 02:13 PM
Replies: 9
Views: 1,416
Posted By Imamooch
Re: Shoes and pants!

I wear crocs year round when I can wear shoes. The lined cros bought bigger sometimes work. The lining is soft enough for me that if I can wear a shoe it is not irritating. As for pants, Around the...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-12-2011, 03:24 PM
Replies: 3
Views: 984
Posted By Imamooch
Re: At my pain ceiling; looking for advice...

Ok, I was where you are at the end of July. My RSD is on the entire left side of my from my toes to my neck. My doc did a popilteal block which turned the nerves off in the lower portion of the leg,...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-11-2011, 08:24 PM
Replies: 13
Views: 3,055
Posted By Imamooch
Re: Can u wear shoes?

I have RSD in the left foot and ankle. I can only wear shoes after I have had an inpatient ketamine infusion. Most of the time I am bear foot and a lot of the time I can't bear weight on the foot...
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