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Board: Addison's Disease 12-18-2014, 08:21 PM
Replies: 2
Views: 643
Posted By luvthesun
Re: Too much steroids??????

I have NEVER in my life heard of such a high dose of steroid for Addison's Disease!! Pleeeeeeease find yourself a new endocrinologist as soon as possible.

Most sincerely,
Mollie
Board: Addison's Disease 08-13-2014, 06:42 PM
Replies: 1
Views: 3,263
Posted By luvthesun
Re: cortisol normal range

Hi there -
I'm sorry that you're having such a hard time. If your cortisol is in normal range, you do not have Addison's, however, you may have a degree of Adrenal Fatigue or Adrenal Insufficiency....
Board: Addison's Disease 06-01-2014, 08:18 PM
Replies: 2
Views: 469
Posted By luvthesun
Re: Malabsoprtion Due to Extreme Anxiety period ?

Hi there - wow.. I'm sorry to hear you're having such a difficult time. You clearly have some digestive problems going on, and digestive problems are always worsened (if not caused) by extreme...
Board: Addison's Disease 05-19-2014, 07:00 PM
Replies: 2
Views: 550
Posted By luvthesun
Re: Distraught and deflated

Wow .. I'm sorry you're having such a difficult time. You clearly haven't found the right help. I would find a good endocrinologist or a good "hormone" doctor and have EVERYTHING looked at. An...
Board: Addison's Disease 03-31-2014, 12:10 PM
Replies: 10
Views: 926
Posted By luvthesun
Re: ALWAYS thirsty & craving salt

Chem1 - Thanks very much for your reply.. excuse my ignorance, but what would be the difference? If I have a sodium/potassium ion imbalance, how is that different from just a sodium/potassium...
Board: Addison's Disease 03-29-2014, 10:59 AM
Replies: 10
Views: 926
Posted By luvthesun
Re: ALWAYS thirsty & craving salt

Mothero2 - Thanks so much for replying. I'm going to increase to .1 twice daily and see if it helps. Obviously need something. I'm thirsty all day & night.

Take care,
Mollie
Board: Addison's Disease 03-21-2014, 09:14 PM
Replies: 10
Views: 926
Posted By luvthesun
Re: ALWAYS thirsty & craving salt

Jay,

Thanks so much for responding. I'm going to up my dose, and see if my thirst and need for salt diminishes. Something is sooooo not right. I'm drinking all day long and craving salt like...
Board: Addison's Disease 02-21-2014, 06:29 PM
Replies: 10
Views: 926
Posted By luvthesun
ALWAYS thirsty & craving salt

I'm wondering what the "typical" dose is for fludrocortisone? I've been taking .1 mg for past several years, but doesn't seem like it's doing anything. I'm thirsty all of the time, and am consuming...
Board: Addison's Disease 02-02-2014, 07:05 PM
Replies: 4
Views: 633
Posted By luvthesun
Re: What is wrong?

Hi Elena -

I know you say you feel better on the 15 mg of hydrocortisone, but you may be undertreating your condition, as I've never heard of anyone feeling good on such a low dose. And often...
Board: Addison's Disease 02-02-2014, 06:39 PM
Replies: 8
Views: 700
Posted By luvthesun
Re: Has anyone developed food allergies/intolerances?

Hi there...

I strongly believe that food allergies/sensitivities are tied to adrenal (hormone)function. I never had food sensitivities until my adrenal gland function weakened. However, it's...
Board: Addison's Disease 01-25-2014, 05:53 PM
Replies: 7
Views: 770
Posted By luvthesun
Re: Cushing's or Addison's?

I'm sorry you're having such a difficult time with your health ... do you have a Primary Care Physician? You clearly need to be referred to an Endocrinologist. You have many symptoms presenting as...
Board: Addison's Disease 01-24-2014, 09:38 PM
Replies: 6
Views: 1,020
Posted By luvthesun
Is it normal to feel awful/lifeless in the morning??

Just wondering if it's a fairly normal part of this condition to feel pretty horrible and lifeless in the morning? Sad to say, but I've gotten "used to" feeling so awful every morning that I've come...
Board: Addison's Disease 01-11-2014, 11:48 AM
Replies: 3
Views: 547
Posted By luvthesun
Addison's and Pre-Diabetes/hypoglycemia

Hi there...

Does anyone else suffer with severe hypoglycemia? I would imagine I'm on the way to diabetes. My blood sugar readings are not diabetic in range, but I have every symptom of diabetes,...
Board: Addison's Disease 10-06-2013, 11:46 AM
Replies: 0
Views: 382
Posted By luvthesun
2 issues: sleep and tinnitus

I have 2 issues that are becoming harder and harder to live with; sleeping through the night and tinnitus. I've had problems with both for quite awhile, but both have recently become horrific and I'm...
Board: Addison's Disease 08-27-2013, 08:29 PM
Replies: 3
Views: 954
Posted By luvthesun
Re: Blood Work, Addison's?

Hi there...

I'm sorry you're having such a difficult time.. nonetheless, you will get better at this because as you embark on this journey into the world of Addison's Disease/Adrenal...
Board: Addison's Disease 07-27-2013, 08:51 PM
Replies: 1
Views: 885
Posted By luvthesun
cannot gain weight :(

Does anyone else have this problem?? Inability to gain weight. It's both frustrating, and a bit frightening. I only weigh 80 pounds, yet I consume plenty of calories. In fact, I feel like I'm...
Board: Addison's Disease 07-13-2013, 06:14 PM
Replies: 13
Views: 2,219
Posted By luvthesun
Re: middle of night low cortisol, lifeless in morning, and extreme dehydration

Kate,

Thanks so much for responding. It really helps to hear from others who are also faced with the challenges of this condition. You asked if I take Fludrocortisone, and yes, I take it twice...
Board: Addison's Disease 07-13-2013, 11:57 AM
Replies: 1
Views: 370
Posted By luvthesun
increase meds for twilight (light) anesthesia??

I need a little advice on increasing cortisone. I'm having a surgical procedure on my eyes which requires twilight anesthesia, which is light sedation, completely awake, breathing on my own, etc. My...
Board: Addison's Disease 07-03-2013, 08:40 PM
Replies: 13
Views: 2,219
Posted By luvthesun
Re: middle of night low cortisol, lifeless in morning, and extreme dehydration

Hi Elena,

I do remember that I felt better while taking DHEA. Can't exactly put my finger on what it was, but better. Then again, could've been something else as I've tried many different...
Board: Addison's Disease 07-01-2013, 08:35 PM
Replies: 13
Views: 2,219
Posted By luvthesun
Re: middle of night low cortisol, lifeless in morning, and extreme dehydration

Elena,

Thanks so much for all of your suggestions. I used to take DHEA & stopped because I was taking so many meds and supplements, and just felt like I needed to cut some things out. However,...
Board: Addison's Disease 06-21-2013, 12:34 PM
Replies: 13
Views: 2,219
Posted By luvthesun
Re: middle of night low cortisol, lifeless in morning, and extreme dehydration

Elena & Emma,

Thanks so much for your responses. I'm already doing what both of you suggested.. I do the before bed snack, and I also take prednisone for my last dose, given it's longer acting...
Board: Addison's Disease 06-21-2013, 12:23 PM
Replies: 2
Views: 745
Posted By luvthesun
Re: Addison's Disease

Your doctor is crazy!! How can he expect you to go off Cortef for two weeks, when you've been on it for years. Because you've been on it for such a long time, your adrenal glands are completely...
Board: Addison's Disease 06-13-2013, 07:54 PM
Replies: 13
Views: 2,219
Posted By luvthesun
middle of night low cortisol, lifeless in morning, and extreme dehydration

Hi there,

So the Title of this Thread pretty much says it all, as these are the things that are standing in the way of my functioning, and have resulted in my inability to commit to any sort of a...
Board: Addison's Disease 06-13-2013, 07:24 PM
Replies: 2
Views: 729
Posted By luvthesun
Re: Trying to understand low cortisol

Hi there,

It's been awhile since your post, and I've been wanting to respond to your concerns, but I ran into my own health challenges over the past few weeks so didn't have it in me to write to...
Board: Addison's Disease 04-20-2013, 08:03 PM
Replies: 3
Views: 2,754
Posted By luvthesun
Addison's & tinnitus/ringing ears... anyone?

Over the past several months, I've developed ringing in my ears, but for the most part, I've been able to deal with it. However, it now is waking me up in the middle of the night, is very loud, high...
Board: Addison's Disease 04-05-2013, 09:30 AM
Replies: 3
Views: 1,480
Posted By luvthesun
Re: Constipation

I believe that constipation can definitely be related to Addison's Disease. People with Addison's tend to dehydrate VERY easily, and when your're dehydrated, especially within your gastrointestinal...
Board: Addison's Disease 03-03-2013, 07:08 PM
Replies: 9
Views: 1,552
Posted By luvthesun
Re: Could it be Addison's? Desperate for Answers!

I would absolutely avoid all gluten and dairy for awhile and see how you feel. They are two of the most common food sensitivities, and most people with digestive complaints feel much better, and...
Board: Addison's Disease 01-28-2013, 08:22 PM
Replies: 3
Views: 987
Posted By luvthesun
Re: What does this sound like?

I'm sorry to hear that you are having to live with all of this. You really have a lot going on. However, it sounds like you aren't getting the right medical care, attention, testing, etc. First...
Board: Addison's Disease 09-29-2012, 03:21 PM
Replies: 0
Views: 754
Posted By luvthesun
addisons and perimenopause

I'm looking for any input regarding Addison's/Adrenal Insufficiency and Perimenopause. I'm 42 years old and my hormones are definitely imbalanced and in decline. I have severe PMS - to the point of...
Board: Addison's Disease 09-11-2012, 02:25 PM
Replies: 5
Views: 1,889
Posted By luvthesun
Re: Dead Tired

Are you taking enough replacement steroid? Your symptoms indicate low cortisol ...

there might be another "stress" in your body (or mind) that you're unaware of and it's eating up your cortisol...
Board: Addison's Disease 08-27-2012, 07:32 PM
Replies: 5
Views: 1,730
Posted By luvthesun
Re: constant thirst

thank you both very much for your replies. Ladybug, I will check with my doc about the testing you suggested. Funny I've told him frequently about the constant thirst and he just blows it off....
Board: Addison's Disease 08-26-2012, 08:25 PM
Replies: 5
Views: 1,730
Posted By luvthesun
constant thirst

Is it normal/common to constantly feel thirsty? I feel like I drink all day long. I get PLENTY of salt and I take .1 mg Florinef, but I feel like I'm always dehydrated. And I don't drink...
Board: Addison's Disease 08-17-2012, 08:56 PM
Replies: 4
Views: 1,475
Posted By luvthesun
prednisone instead of HC

Has anyone switched to prednisone from hydrocortisone, and feels better?

I burn through hydrocortisone so quickly and am aware of symptoms several times everyday. Also, I wake in the middle of the...
Board: Addison's Disease 08-01-2012, 01:26 PM
Replies: 0
Views: 869
Posted By luvthesun
soooo awful upon waking

I'm just wondering if most others with Addisons/Adrenal Insufficiency feel absolutely awful in the morning? Actually, I don't even see the mornings anymore as I'm in bed until atleast 11 waiting for...
Board: Addison's Disease 07-29-2012, 05:35 PM
Replies: 1
Views: 1,281
Posted By luvthesun
Re: Diagnosed today

you haven't posted anything in awhile... just wondering if you're feeling any better since starting the Prednisone?

I hope you are well..

Sincerely,
Mollie
Board: Addison's Disease 07-25-2012, 09:05 PM
Replies: 11
Views: 2,309
Posted By luvthesun
Re: PLEASE help with test results

The weak, dizzy and faint thing is definitely related to your aldosterone levels. Are you thirsty a lot? Do you crave salty foods?

And have you had your thyroid checked out? How are all of...
Board: Addison's Disease 07-25-2012, 12:44 PM
Replies: 11
Views: 2,309
Posted By luvthesun
Re: PLEASE help with test results

I cannot imagine how aldosterone could be "0" and be "in range"... that makes no sense to me. We have to have aldosterone. I think you want to be somewhere in the middle of the reference range. ...
Board: Addison's Disease 07-25-2012, 11:38 AM
Replies: 11
Views: 2,309
Posted By luvthesun
Re: PLEASE help with test results

Doesn't look like you have an adrenal issue. Your ACTH & cortisol levels are fine.. these would be the two that would clearly indicate adrenal insufficiency. Also, there is usually very low sodium...
Board: Addison's Disease 07-13-2012, 11:43 AM
Replies: 4
Views: 1,041
Posted By luvthesun
Re: new, been sick, need answers, thanks

Hi Terry,

I'm so sorry to hear what you're going through...in some ways i can completely relate. I understand the crashing horribly during the night and feeling awful in the morning, and I also...
Board: Addison's Disease 06-07-2012, 07:58 PM
Replies: 10
Views: 2,634
Posted By luvthesun
Re: 1st Post for me. I need advice please.

I'm exhausted, having a poor health day so am going to be kinda brief. Craving salty food is almost always low adrenal function, and you should NOT take any sort of diuretic to eliminate the...
Board: Addison's Disease 06-07-2012, 04:55 PM
Replies: 10
Views: 2,634
Posted By luvthesun
Re: 1st Post for me. I need advice please.

the low blood pressure situation is hard to know as you had high BP as a kid, and with Addison's or Adrenal Insufficiency, there is almost always a tendency towards low BP. So that's a bit...
Board: Addison's Disease 06-06-2012, 10:07 PM
Replies: 10
Views: 2,634
Posted By luvthesun
Re: 1st Post for me. I need advice please.

I am so sorry you are living this, but do NOT give up hope. I'm not a doctor, but I have multiple health issues myself (Addison's being the most serious), and you clearly are in need of some...
Board: Addison's Disease 05-27-2012, 10:40 PM
Replies: 1
Views: 1,118
Posted By luvthesun
increase meds and working out??

Hi there..

I'm wondering what others do about increasing cortisone when exercising/working out? I've had a very rough year with my health and am in sort of a fragile state, but am really wanting...
Board: Addison's Disease 05-23-2012, 11:24 AM
Replies: 3
Views: 2,255
Posted By luvthesun
Re: constant thirst... dehydration

Hi "Syvia"...

Thank you for responding. I know we all have different needs, but I'm curious.. how much prednisone do you take daily? And what time in the afternoon or evening do you take your last...
Board: Addison's Disease 05-10-2012, 05:18 PM
Replies: 4
Views: 1,339
Posted By luvthesun
Re: Hoping for help and advice on what is happening to me

this may seem like a very insensitive response to your post, but the answer seems quite simple... DON'T FORGET YOUR AFTERNOON DOSE OF CORTISONE!! It really is that simple. In fact, I don't know how...
Board: Addison's Disease 04-16-2012, 07:49 PM
Replies: 0
Views: 876
Posted By luvthesun
To Steven/ Veno0881

Hi Steven ..

I find it interesting that you've had Addison's your entire life. I'm wondering if you've felt any sort of a negative progression with this illness as time has gone on? Have your...
Board: Addison's Disease 04-14-2012, 02:26 PM
Replies: 3
Views: 2,255
Posted By luvthesun
constant thirst... dehydration

I have a couple of different questions..

Does anyone take prednisone instead of hydrocortisone? I was diagnosed in 2007 and began taking Cortef. Over the past couple of years I began to need...
Board: Addison's Disease 04-05-2012, 12:21 PM
Replies: 9
Views: 3,242
Posted By luvthesun
Re: middle of night/4am cortisol call

Hi Steven .. thank you so much for your incredible kindness and concern. I just wanted to drop a quick line to thank you very much for your responses to my posts, and let you know that I will write...
Board: Adrenal Disorders 03-16-2012, 12:32 PM
Replies: 5
Views: 1,842
Posted By luvthesun
Re: Please help Saliva test results

This makes no sense to me.. you are completely out of range LOW for cortisol, yet your doctor does not want to treat it?? Time to find a new doc.

You are in need of replacement cortisol .. this...
Board: Addison's Disease 03-11-2012, 02:16 PM
Replies: 0
Views: 1,499
Posted By luvthesun
hydrocortisone resistance?

Has anyone experienced a gradual decline in hydrocortisone's effectiveness? Or developed a resistance to it? I was in and out of adrenal crisis for 3 months and felt very close to death on a few...
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