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Board: Lupus 05-29-2015, 07:55 AM
Replies: 2
Views: 98
Posted By ladybud
Re: Help!

Your symptoms sound more localized to me-perhaps chronic muscle strain/spasm in the trapezius muscles or possible rotator cuff problems (which the MRI should show). Lupus should cause many other...
Board: Lupus 05-28-2015, 12:35 PM
Replies: 2
Views: 119
Posted By ladybud
Re: Fybromyalgia or Lymph nodes

Hello and welcome to the boards. The areas you mention do have lymph nodes with the following exceptions: shoulder-only above collarbone, knee-only behind knee, elbow-only on crease side. It is...
Board: Adrenal Disorders 05-28-2015, 09:07 AM
Replies: 1
Views: 79
Posted By ladybud
Re: Could I have Addisons?

YES these symptoms do sound like Addison's. You really should get a serum cortisol level done ASAP (just a blood test) at 8:00 AM and 4 PM, if possible. Your salt craving and water craving, with...
Board: Autoimmune Disorders 05-28-2015, 08:58 AM
Replies: 1
Views: 90
Posted By ladybud
Re: Positive ANA

A positive ANA can mean several things, but in general it relates to autoimmune disorders, of which there are many. The degree of positivity is important, so hopefully your next one will show how...
Board: Vitamins & Supplements 05-28-2015, 08:26 AM
Replies: 1
Views: 117
Posted By ladybud
Re: Vitamin D Deficiency and Endocrine Issues

Hi Vicksburg,
First let me say that yours is a complex problem, and it seems your Drs. are on the right track with the investigation. Neuroendocrine tumors are uncommon, lupus is common but less so...
Board: Lupus 05-22-2015, 08:34 AM
Replies: 1
Views: 230
Posted By ladybud
Re: Strep infection and Lupus

There are a couple of ways this might be related. First, lupus patients are more prone to infections in general, including strept. It usually starts in the throat and can spread from there. The only...
Board: Autoimmune Disorders 05-21-2015, 04:08 PM
Replies: 4
Views: 244
Posted By ladybud
Re: Help! ANA 1:2560 (Speckled) and many symptoms....diagnosis?

It isn't unusual for some people with lupus to present with mainly neuro symptoms. Some people present with things like seizures, aseptic meningitis, migraines, psychosis, cranial neuropathies like...
Board: Lupus 05-21-2015, 03:55 PM
Replies: 2
Views: 210
Posted By ladybud
Re: meds that can help

If your Dr. thinks you may have lupus, perhaps he/she is willing to give you a trial on either Prednisone (works fast and is used by some docs as a "test") or Placquenil (the first step drug for...
Board: Family & Friends of Cancer Patients 05-19-2015, 07:39 AM
Replies: 3
Views: 308
Posted By ladybud
Re: Waiting on Mom's DX...questions

You can have bloating without ascites from pressure on the bowel causing gas and stool to build up, plus the distention from the enlarged ovary. I do hope that the enlargement is benign, such as a...
Board: Heart Disorders 05-19-2015, 07:30 AM
Replies: 2
Views: 170
Posted By ladybud
Re: PVC'S To medicate or Not?

There are lots of factors that go into this decision. I would assume you are controlling all the lifestyle factors that can cause PVCs. (no smoking, no caffeine, stress reduction) and have had your...
Board: Sjögren's Syndrome 05-10-2015, 12:02 PM
Replies: 1
Views: 208
Posted By ladybud
Re: What does high RNP antibodies mean?

Welcome to the boards Angel Lady. The RNP antibodies are markers, when elevated, for autoimmune disorders. They are sometimes elevated at lower levels in lupus, and at higher levels, are often seen...
Board: Lupus 05-09-2015, 07:40 AM
Replies: 2
Views: 226
Posted By ladybud
Re: Nasal Passage Sores

My nasal sores act just like yours, are painful, but eventually heal. They are like canker sores in the mouth.
Board: Autoimmune Disorders 05-06-2015, 05:21 PM
Replies: 4
Views: 231
Posted By ladybud
Re: Positive to Negative Smith & ANA antibodies

It is common for antibodies to fluctuate and go from positive to negative or one level to another. Anti-Smith antibody is specific to lupus and having one positive is significant. I think the...
Board: Autoimmune Disorders 05-06-2015, 05:14 PM
Replies: 4
Views: 231
Posted By ladybud
Re: Positive to Negative Smith & ANA antibodies

So this is all fairly new to me. Long story short last year I was referred to a Rheumatologist after experiencing a plethora of strange symptoms. Her bloodwork showed POSITIVE Smith & ANA...
Board: Lupus 05-04-2015, 04:17 AM
Replies: 8
Views: 337
Posted By ladybud
Re: Rash in Groin?

Yeast (monilia, candida) rashes are common in the groin. If it is bright red or itchy, you might try an OTC yeast cream like Monistat or the generic version to see if it helps. Otherwise, I would see...
Board: Lung & Respiratory Disorders / COPD 04-29-2015, 03:41 PM
Replies: 6
Views: 573
Posted By ladybud
Re: Bronchiectasis ?

To me, this sounds like good news, as the strept should clear up with antibiotics. It is the most common organism that causes bronchitis and pneumonia in adults. It is prevented by the pneumonia...
Board: Lupus 04-29-2015, 03:31 PM
Replies: 3
Views: 207
Posted By ladybud
Re: Burning shoulder pain (BOTH)

Ginlyn, there are several bursae that lie along the inner edge of the shoulder blade, and those can get inflamed in lupus, as well as other conditions or from athletics like tennis and golf. They are...
Board: Arthritis 04-27-2015, 04:22 PM
Replies: 2
Views: 335
Posted By ladybud
Re: New with questions

I am traveling taking care of my elderly parents and usually respond quickly to posts of your nature. Sorry for my delay. Your noticeable response to prednisone is sificant, and many people who have...
Board: Lupus 04-25-2015, 07:06 AM
Replies: 5
Views: 381
Posted By ladybud
Re: Now Shrinking Lungs???

Helen, I am sure our paths crossed in co I am sorry you have been thru so much pain and now surgical complications. I have seen people who have been on 5mg prednisone get cushingoid, especially after...
Board: Autoimmune Disorders 04-25-2015, 06:49 AM
Replies: 3
Views: 254
Posted By ladybud
Re: advice please

A sed rate of 41 is significantly higher than it should be and indicates inflammation. This level will go up during flares, so since you were feeling not that bad, it is probably even higher during...
Board: Autoimmune Disorders 04-25-2015, 06:48 AM
Replies: 3
Views: 254
Posted By ladybud
Re: advice please

A see rate of 41 is significantly higher than it should be and indicates inflammation. This level will go up during flares, so since you were feeling not that bad, it is probably even higher during...
Board: Liver & Pancreas Disorders 04-23-2015, 11:55 PM
Replies: 7
Views: 332
Posted By ladybud
Re: I have a liver cyst and i am so scared it is cancer

Simple explanation possible-many Drs who do a lot of procedures have their office in the hospital. So it is the same as going to any Dr. office, just the location is a hospital instead of office...
Board: Hair Loss / Alopecia 04-23-2015, 09:00 AM
Replies: 2
Views: 284
Posted By ladybud
Re: What could be causing my head and eyebrow hair loss?

I would think the iron deficiency is the most likely cause. Next, be sure you are not hyperthyroid from your thyroid replacement, as that causes hair loss too. I would not stop any medication. You...
Board: Bowel Disorders 04-23-2015, 08:52 AM
Replies: 2
Views: 363
Posted By ladybud
Re: Been having involuntary bowel moments in sleep for months now!!

Minime, this is definitely a problem, and hard to believe your Dr. is just dismissing it. I think if you were having seizures in sleep, you would urinate as well. I wonder if you have a milk or...
Board: Fibromyalgia 04-23-2015, 08:42 AM
Replies: 2
Views: 324
Posted By ladybud
Re: Differential Diagnosis

I think with elevated liver enzymes, sed rate and copper levels, there is more to this than fibro. These are suggestive of an autoimmune disorder, and I would see a rheumatologist and ask for more...
Board: Liver & Pancreas Disorders 04-23-2015, 08:28 AM
Replies: 7
Views: 332
Posted By ladybud
Re: I have a liver cyst and i am so scared it is cancer

On ultrasound, a simple cyst looks entirely different from cancer which would be described as a solid mass. Just the fact that the radiologist called it a cyst means it is just that, and cysts are...
Board: Cancer: Colon 04-23-2015, 08:17 AM
Replies: 3
Views: 289
Posted By ladybud
Re: Hey all- some questions.

When I read the beginning of your post, I was thinking diverticulitis all the way through. The only way to diagnose it is with a CT scan. You only have to worry about CT radiation if you have...
Board: Autoimmune Disorders 04-22-2015, 08:09 PM
Replies: 2
Views: 405
Posted By ladybud
Re: Could my symptoms be indicative of an autoimmune disorder?

With numbness anywhere I would want to check for B12 and folate deficiency. Leg aches can certainly occur with Vit D deficiency, but fingers and wrists are usually more joint related, as with...
Board: Autoimmune Disorders 04-21-2015, 08:41 AM
Replies: 2
Views: 249
Posted By ladybud
Re: Dealing with Fatigue

First off, be sure you haven't developed anemia or low thyroid levels (Blood tests). If those are all ok, try to reduce any inflammation. Inflammation releases cytokines that cause fatigue, so if...
Board: Anemia 04-20-2015, 07:25 PM
Replies: 2
Views: 261
Posted By ladybud
Re: GI bleed work up

Esophageal ulcers and Crohn's and celiac can ALL cause iron deficiency anemia, so the GI seems on the right track for checking out the possibilities. Whatever turns out to be positive can all be...
Board: Thyroid Disorders 04-20-2015, 07:09 PM
Replies: 6
Views: 339
Posted By ladybud
Re: Has anyone ever heard about FDA Approved low-dose naltrexone for Hashimoto's?

I agree that thyroid treatment is what you need and not LDN. Some people get on a bandwagon and feel that what helps one thing will help everything, like a panacea (that doesn't exist). So best to...
Board: Lung & Respiratory Disorders / COPD 04-20-2015, 06:56 PM
Replies: 25
Views: 1,367
Posted By ladybud
Re: Abdominal distention and breathing discomfort

No that is not too much to ask for. So if you feel this sick, and feel no one is listening to you, and feel you have no more time or energy to deal with another outpatient physician appointment, I...
Board: Lupus 04-20-2015, 06:31 PM
Replies: 5
Views: 381
Posted By ladybud
Re: Now Shrinking Lungs???

Hummerbird, I am in CO too, so always good to know a fellow Coloradoan not too far from Littleton. Please do let me know how your pulmonary appointment goes. Because I have SLE and pulmonary issues...
Board: Lymphomas 04-20-2015, 09:20 AM
Replies: 2
Views: 347
Posted By ladybud
Re: Anyone had this same experience?

Unfortunately, the node cannot be identified as to benign vs malignant by looking at it.
The wait for pathology results is a long anxious one, but if the node comes back as lymphoma, it is...
Board: General Health 04-20-2015, 08:20 AM
Replies: 2
Views: 164
Posted By ladybud
Re: I am always hot and need help

If you are of normal weight, I would ask for a 24 hr urine test for catecholamines. This is a way of measuring your adrenalin output, as excess adrenalin makes you sweat, feel exhausted and raises...
Board: Crohn's Disease / Ulcerative Colitis 04-20-2015, 08:09 AM
Replies: 6
Views: 354
Posted By ladybud
Re: Blood and mucus in stool for past 8-12 weeks.

I would also avoid roughage, like salads, raw veges, nuts and high fiber foods. I would stick to soft, bland uniformly textured foods, like soy yogurt, noodles (rice would be good), applesauce,...
Board: Urology 04-19-2015, 06:52 PM
Replies: 2
Views: 211
Posted By ladybud
Re: Honeymoon cystitis

I think so, and that would be fine, but in addition, be sure to urinate before and especially soon after sex to flush any bacteria out of the bladder. This will help a lot. Drinking cranberry juice...
Board: General Health 04-19-2015, 04:37 PM
Replies: 15
Views: 493
Posted By ladybud
Re: Interesting Lab Results ... Need guidance.

With these results, and with fever and chronic abdominal/flank pain, I would see a hematologist. These are not the kind of results that a kidney infection would produce. With reactive lymphocytes and...
Board: Lung & Respiratory Disorders / COPD 04-19-2015, 04:18 PM
Replies: 25
Views: 1,367
Posted By ladybud
Re: Abdominal distention and breathing discomfort

You can try printing up this thread and ask your Dr. to read it (or excerpts from it). You could also go to a new Dr. and get a fresh start with someone who hasn't labeled you as anxious, and doesn't...
Board: Lupus 04-18-2015, 05:40 PM
Replies: 5
Views: 381
Posted By ladybud
Re: Now Shrinking Lungs???

Hummerbird, I have had SLE for 33 years or so, am 65, and have heard of "shrinking lung syndrome" in SLE, but do not have it (to my knowledge) and although I know a fair number of people with SLE, do...
Board: Lung & Respiratory Disorders / COPD 04-18-2015, 01:05 PM
Replies: 25
Views: 1,367
Posted By ladybud
Re: Abdominal distention and breathing discomfort

Is your COPD related or associated with asthma at all? It may be that the breathing trouble has more than one cause and you need treatment for the COPD separate from figuring out what the abdominal...
Board: General Health 04-18-2015, 12:50 PM
Replies: 3
Views: 251
Posted By ladybud
Re: Bizarre

Welcome and I am sorry you have such health issues with disagreement from your Drs. I can only give you my opinion as someone who has autoimmune diseases. Your list of symptoms could fit well with an...
Board: Irritable Bowel Syndrome (IBS) 04-17-2015, 02:19 PM
Replies: 7
Views: 562
Posted By ladybud
Re: What is wrong with me?

Personally I would see a different Dr., a gastroenterologist if you can. Viral infections don't last 3 months. Otherwise, be prepared to go to emergency room where you will get the attention you need...
Board: Lupus 04-17-2015, 10:50 AM
Replies: 5
Views: 391
Posted By ladybud
Re: Test results

So blood clots in the leg cause pain and swelling in one leg/foot. Clots in the lungs cause shortness of breath, chest pain (sharp on inspiration), fast heart rate (sometimes), dizziness (sometimes)....
Board: Lupus 04-17-2015, 10:45 AM
Replies: 5
Views: 391
Posted By ladybud
Re: Test results

Yes, it is somewhat like having too thick blood, only in that your blood may clot too easily inside a blood vessel. There may have been clues during the pregnancy or birth or with the placenta that...
Board: Lupus 04-17-2015, 09:23 AM
Replies: 5
Views: 391
Posted By ladybud
Re: Test results

Lupus anticoagulant is one of the anti-phospholipid antibodies, and when elevated means there is a tendency for your blood to clot too easily, which can lead to blood clots in legs, lungs, etc. This...
Board: Endometriosis 04-17-2015, 09:15 AM
Replies: 3
Views: 373
Posted By ladybud
Re: Someone please help

Yes, endometriosis can cause cysts, sometimes called "chocolate cysts" because they can be brown in appearance from blood in them. However, many ovarian cysts develop from either follicles (before...
Board: Ear, Nose & Throat 04-17-2015, 08:20 AM
Replies: 2
Views: 242
Posted By ladybud
Re: Odd heaviness in my throat for past 3 years

I would wonder if your thyroid is enlarged, although the ENT should have felt that if so. I would ask for anti-thyroid antibodies to be checked on blood and an ultrasound of your neck, since that is...
Board: Endometriosis 04-17-2015, 08:11 AM
Replies: 3
Views: 373
Posted By ladybud
Re: Someone please help

Elainab, I am so sorry you have such problems and no one has suggested endo as a possibility. I assume you have been working with a GYN, not GP. I would flat out asked to be checked for...
Board: Osteoporosis 04-17-2015, 07:45 AM
Replies: 7
Views: 371
Posted By ladybud
Re: Metatarsal Stress Fracutures

That extra info makes sense and I am glad you had these workups already. MCTD can be related to osteopenia, as many with autoimmune disorders have low Vit D levels and develop osteopenia. So you...
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