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Board: Multiple Sclerosis 06-30-2015, 07:13 PM
Replies: 16
Views: 251
Posted By MSJayhawk
Re: New Diagnosis, lots of questions...

Ms Merry,

No worries with the questions because you deserve some answers. A B12 deficiency in RARE cases can cause Optic Neuropathy but not ON. With what the ophthalmologist saw, this was more...
Board: Multiple Sclerosis 06-30-2015, 06:49 PM
Replies: 2
Views: 133
Posted By MSJayhawk
Re: Plasma exchange for MS treatment

Amberjoy,

:wave: Welcome!

Sorry to learn of your current situation. I hope you can get better. My MS Specialist shared that she usually gives her MSers a 3 year window to make a recovery. ...
Board: Multiple Sclerosis 06-30-2015, 04:24 PM
Replies: 16
Views: 251
Posted By MSJayhawk
Re: New Diagnosis, lots of questions...

Ms. Merry,

Under the Revised McDonald Criteria, the lesions found in your son's MRI need to have objective evidence of two separate CNS lesions compatible with MS and separated both in space and...
Board: Multiple Sclerosis 06-30-2015, 03:34 PM
Replies: 16
Views: 251
Posted By MSJayhawk
Re: New Diagnosis, lots of questions...

Ms Merry,

A relapse of MS varies, but generally, if over 30 days has elapsed between the initial onset and the next symptom or next attack, then it is considered separate. This is where a symptom...
Board: Multiple Sclerosis 06-30-2015, 03:30 PM
Replies: 16
Views: 251
Posted By MSJayhawk
Re: New Diagnosis, lots of questions...

Ms Merry,,

A long term study of MSers showed that ON patients with lesions at the time of their ON diagnosis were at risk for developing MS. After 15 years, 50% of those who had lesions at the...
Board: Multiple Sclerosis 06-30-2015, 03:25 PM
Replies: 16
Views: 251
Posted By MSJayhawk
Re: New Diagnosis, lots of questions...

Ms Merry,

I do not know if the doctor is an MS Specialist. I know that my neurologist has her sole field in MS, although she does help ALS when needed.

As to your results, there are no...
Board: Multiple Sclerosis 06-30-2015, 02:49 PM
Replies: 16
Views: 251
Posted By MSJayhawk
Re: New Diagnosis, lots of questions...

Ms Merry,

I would add that the MS clinic where I go is part of the Neurology Department and is staffed by neurologists of many specialties as well as general neurologists. While I would not...
Board: Multiple Sclerosis 06-30-2015, 02:44 PM
Replies: 16
Views: 251
Posted By MSJayhawk
Re: New Diagnosis, lots of questions...

Ms Merry,

Given the Vitamin D deficiency and the lack of symptoms, I would doubt the diagnosis. MS symptoms do not come and go but persist for 24+ hours. Your son can track possible symptoms...
Board: Multiple Sclerosis 06-30-2015, 02:15 PM
Replies: 16
Views: 251
Posted By MSJayhawk
Re: New Diagnosis, lots of questions...

Ms Merry,

:wave: Welcome.

If your son's symptoms have only been ON, it would not necessarily mean MS. ON used to be considered MS, but no longer. About 20% of MSers will experience ON. ...
Board: Multiple Sclerosis 06-30-2015, 10:41 AM
Replies: 5
Views: 155
Posted By MSJayhawk
Re: Sneaker/sock recs for crazy tingling feet, please!

Grozer,

I do not recall if you shared before, but have you seen a cardiologist or vascular specialist? If it starts when you are on your feet, I wonder if you do not have some kind of vascular...
Board: Multiple Sclerosis 06-29-2015, 12:40 PM
Replies: 5
Views: 155
Posted By MSJayhawk
Re: Sneaker/sock recs for crazy tingling feet, please!

Grozer,

My doctor provided me with a rehabilitation nurse who fitted me with a pair of cross trainers. These were the kind which fit just above my ankle joint. Since 2002 I have given up on...
Board: Multiple Sclerosis 06-28-2015, 04:19 PM
Replies: 4
Views: 162
Posted By MSJayhawk
Re: Struggling with symptoms of ON

fairy77,

That is good. If you have a diagnosis of MS, you can continue to work with your neurologist. An MS Specialist is good to have. A referral to an Ophthalmologist or a ...
Board: Multiple Sclerosis 06-28-2015, 02:38 PM
Replies: 4
Views: 162
Posted By MSJayhawk
Re: Struggling with symptoms of ON

fairy77,

:wave: Welcome.

OTC pain meds and even prescription pain meds do nothing for ON pain. For me, it is 3-4 days of pain followed by vision problems. If you see a doctor, their remedy...
Board: Multiple Sclerosis 06-28-2015, 01:37 PM
Replies: 2
Views: 128
Posted By MSJayhawk
Re: Invisible string on leg

Amy822,

:wave: Welcome.

Quite often for me. I also have other sensations. With tick season here, I have had to check quite often to confirm if it is a sensation or a tick. :angel:
Board: Multiple Sclerosis 06-27-2015, 10:26 AM
Replies: 2
Views: 194
Posted By MSJayhawk
Re: MS Symptoms

Anderson8212,

:wave: Welcome.

For me, Optic Neuritis (ON), causes pain for 3-4 days and then the vision problem follows. About 20% of MSers will experience ON, but ON does not equal MS. At...
Board: Multiple Sclerosis 06-27-2015, 07:31 AM
Replies: 2
Views: 129
Posted By MSJayhawk
Re: question about MS eye issues

Knot2fear,

:wave: Welcome.

With several relatives with MS, you might be in a group predisposed towards the risk of developing MS, BUT studies have yet to learn the cause, trigger, or other...
Board: Multiple Sclerosis 06-26-2015, 05:15 PM
Replies: 7
Views: 282
Posted By MSJayhawk
Re: In a huge panick! Help!!!!

erinbraasch275,

No worries. A lesion that small would more than likely be migraine or non-MS related. You would need 2 lesions and MS clinical presentations (symptom presentations). I think...
Board: Multiple Sclerosis 06-25-2015, 06:32 AM
Replies: 5
Views: 248
Posted By MSJayhawk
Re: Officially diagnosed and medication

sarabeach123,

JC Virus is found in 70-90% of the world population. The virus has been known to exist since it was discovered in 1965. It is a simple virus which seemingly does no harm With...
Board: Multiple Sclerosis 06-24-2015, 11:23 PM
Replies: 12
Views: 549
Posted By MSJayhawk
Re: Really Scared...

VHDud78,

All in all not a bad update.

Prolonged difficulty with tightness of muscles can spread like a wave and affect additional muscle groups. It can require time for this muscles to be...
Board: Multiple Sclerosis 06-24-2015, 08:28 PM
Replies: 7
Views: 282
Posted By MSJayhawk
Re: In a huge panick! Help!!!!

erinb275,

Head trauma could certainly be considered. Migraines can cause lesions, but the migraine lesions are consistently smaller than the average MS lesions. An MRI with contrast will "light...
Board: Multiple Sclerosis 06-24-2015, 02:12 PM
Replies: 5
Views: 248
Posted By MSJayhawk
Re: Officially diagnosed and medication

sarabeach123,

:wave: Welcome "officially".

The JC Virus is responsible for progressive multifocal leukoencephalopathy (PML), a rare brain disease that typically affects AIDS patients and other...
Board: Multiple Sclerosis 06-23-2015, 06:32 PM
Replies: 11
Views: 310
Posted By MSJayhawk
Re: And the saga continues...

firemom31,

Intuition can be accurate. A second opinion will likely benefit you greatly and confirm your intuition. Given that MS is chronic, other ailments need to be prioritized accordingly....
Board: Multiple Sclerosis 06-23-2015, 01:55 PM
Replies: 14
Views: 340
Posted By MSJayhawk
Re: Help me understand

cricket85,

You have to do what is best for yourself. Just take a day at a time. :) :angel:
Board: Multiple Sclerosis 06-23-2015, 01:34 PM
Replies: 6
Views: 282
Posted By MSJayhawk
Re: Looking into my symptoms and I have came here...

Minnie317,

Dr. Internet and Dr. Google run on algorithms which leave room for much error. There are specific websites which deal with MS and you have found us here too. If you share a symptom...
Board: Multiple Sclerosis 06-23-2015, 01:31 PM
Replies: 14
Views: 340
Posted By MSJayhawk
Re: Help me understand

cricket85,

A university with a teaching hospital may work. You can also check with the MS Association or Society local office as they often have a list. I have been going to the same clinic...
Board: Multiple Sclerosis 06-23-2015, 12:44 PM
Replies: 14
Views: 340
Posted By MSJayhawk
Re: Help me understand

cricket85,

"She told me that she prescribed it as a sort of "test" because if it didn't help completely, it isn't M.S."......another piece of evidence for firing this doctor. Neurontin can...
Board: Multiple Sclerosis 06-23-2015, 12:30 PM
Replies: 14
Views: 340
Posted By MSJayhawk
Re: Help me understand

cricket85,

Neurontin can help some with nerve pain. There is also diabetic nerve pain. If your pain is MS related, the Neurontin may need to be increased, but for most over time the...
Board: Multiple Sclerosis 06-23-2015, 12:17 PM
Replies: 6
Views: 282
Posted By MSJayhawk
Re: Looking into my symptoms and I have came here...

Minnie317,

:wave: Welcome.

If MS is a possibility, please make an appointment with an MS Specialist. Your GP can eliminate many of the possible causes which are known MS mimicries.

Your...
Board: Multiple Sclerosis 06-23-2015, 12:06 PM
Replies: 14
Views: 340
Posted By MSJayhawk
Re: Help me understand

cricket85,

Spinal cord lesions can be found due to diabetes mellitus. It is more common in diabetics who also have a spinal cord injury. Your stroke could also have caused lesions in your...
Board: Multiple Sclerosis 06-23-2015, 08:34 AM
Replies: 4
Views: 269
Posted By MSJayhawk
Re: MS symptoms

CI1967,

If I have an 80% chance of being right, I can make a broad statement and come close if not being on target. MS is indeed a chronic condition which can cause lesions, but it is not the...
Board: Multiple Sclerosis 06-23-2015, 08:21 AM
Replies: 14
Views: 340
Posted By MSJayhawk
Re: Help me understand

cricket85,

If your nerves do not transmit, you do not have pain......this is a myth. As my MS has progressed, I have endured more pain than in the beginning of my journey. Other MSers may...
Board: Multiple Sclerosis 06-22-2015, 06:49 PM
Replies: 14
Views: 340
Posted By MSJayhawk
Re: Help me understand

cricket85,


:wave: Welcome.

Fire the neurologist and find an MS Specialist. There is a methodical process to diagnose MS which removes subjective thoughts with objective evidence. I have...
Board: Multiple Sclerosis 06-22-2015, 06:38 PM
Replies: 11
Views: 310
Posted By MSJayhawk
Re: And the saga continues...

firemom31,

I would also add to my previous reply to tell you that there are no "set symptoms". If you look online or in MS informational brochures, you can find "common" symptoms as well as less...
Board: Multiple Sclerosis 06-22-2015, 06:15 PM
Replies: 11
Views: 310
Posted By MSJayhawk
Re: And the saga continues...

firemom31,

Sadly your neuro is not doing right by you. The use of the LP as a decisive factor is totally wrong. The LP is not a required part of the Revised McDonald Criteria and shows an overly...
Board: Multiple Sclerosis 06-22-2015, 09:24 AM
Replies: 22
Views: 983
Posted By MSJayhawk
Re: New here -- dropped big toe/tingling/more

Grozer,

The MRI image can change in a short period of time. My MRIs had always been from my head through my c-spine, but now are through my t-spine.

If you are having an MRI, I think I would...
Board: Multiple Sclerosis 06-22-2015, 08:17 AM
Replies: 21
Views: 767
Posted By MSJayhawk
Re: Sudden onset MS possibility - mystery illness

Amberasylum1981,,

You have done much already. I would encourage you to enjoy your summer one day at a time. There is much to be made yet of your recovery from Vitamin D deficiency.

By the...
Board: Multiple Sclerosis 06-21-2015, 08:30 PM
Replies: 3
Views: 234
Posted By MSJayhawk
Re: Undiagnosed ... thoughts?

CamMin,

:wave: Welcome.

A bulging disc could be just enough to put pressure on a nerve fiber. When I was driving long road trips I found myself in a similar pain. What I found was that the...
Board: Multiple Sclerosis 06-21-2015, 04:46 PM
Replies: 4
Views: 269
Posted By MSJayhawk
Re: MS symptoms

CI1967,

:wave: Welcome.

Should you have MS, moderation in diet and low impact exercise will take you far, BUT diet is not an MS cure. The one thing to think about is a symptom journal wherein...
Board: Multiple Sclerosis 06-21-2015, 04:05 PM
Replies: 7
Views: 282
Posted By MSJayhawk
Re: In a huge panick! Help!!!!

erinb275,

Let not your heart be troubled. Panic and anxiety are not your friends. Were there a seriousness to your current situation, you would be in the hospital being treated or prepped for...
Board: Multiple Sclerosis 06-21-2015, 06:28 AM
Replies: 11
Views: 310
Posted By MSJayhawk
Re: And the saga continues...

firemom31,

The LP can be negative and it does not change anything regarding MS. 15% of MSers who have opted to have an LP have negative results. I had 2 LPs 20 years apart. Both times I was in...
Board: Multiple Sclerosis 06-20-2015, 09:26 AM
Replies: 21
Views: 767
Posted By MSJayhawk
Re: Sudden onset MS possibility - mystery illness

Amberasylum1981,

FYI, I do not think that an accurate Lyme Test would come back so quickly.

It may take up to 2 months after becoming infected with one of the bacteria which causes Lyme...
Board: Multiple Sclerosis 06-20-2015, 09:01 AM
Replies: 21
Views: 767
Posted By MSJayhawk
Re: Sudden onset MS possibility - mystery illness

Amberasylum1981,

The additional tests are a good thing. I would also like to touch on what you shared regarding anxiety and depression. These too are MS mimicries. If you are taking meds or...
Board: Multiple Sclerosis 06-19-2015, 09:21 AM
Replies: 2
Views: 157
Posted By MSJayhawk
Re: Tecfidera

Rose,

Staying positive and optimistic in your MS journey goes a long way to helping your body be able to battle with MS. Thanks for your update. :) I am sure that there are others who will...
Board: Spinal Cord Disorders 06-18-2015, 07:28 PM
Replies: 2
Views: 205
Posted By MSJayhawk
Re: Exercise after acdf surgery

capatga,

Stretching can help strengthen your calf muscles. Stretching can help with muscle cell memory. You might want to "live" on your first floor while you recover. :) :angel:
Board: Multiple Sclerosis 06-18-2015, 06:52 PM
Replies: 21
Views: 767
Posted By MSJayhawk
Re: Sudden onset MS possibility - mystery illness

Amberasylum1981,

MS Specialists often work with Ophthalmologists or Neuro-Ophthalmologists regarding any vision problems which are medical rather than an Optometrist. The Optometrist is not a...
Board: Multiple Sclerosis 06-18-2015, 12:33 PM
Replies: 21
Views: 767
Posted By MSJayhawk
Re: Sudden onset MS possibility - mystery illness

Amberasylum1981,

September is not too bad. The wit time to see an MS Specialist can be 3-6 months. If there is something to your condition, you will see the Specialist more often during the...
Board: Multiple Sclerosis 06-17-2015, 09:57 AM
Replies: 38
Views: 1,623
Posted By MSJayhawk
Re: Symptoms

Seamonkey1976,

Thank you for your update.

Overall, you appear to have received some sage advice from your doctor. If the thoracic MRI is a missing gap, I would think that it would be...
Board: Multiple Sclerosis 06-17-2015, 07:35 AM
Replies: 3
Views: 189
Posted By MSJayhawk
Re: Tecfidera

Rose,

Best of luck :) Hope you have an easy time without problems. :angel:
Board: Multiple Sclerosis 06-17-2015, 07:18 AM
Replies: 21
Views: 767
Posted By MSJayhawk
Re: Sudden onset MS possibility - mystery illness

Amberasylum1981,

When my MS hit me, that is the first time I finally noticed it, was when my right arm went limp. tingling, numb, and then without use. This was in 1982, but I had had MS since at...
Board: Multiple Sclerosis 06-16-2015, 05:53 PM
Replies: 3
Views: 213
Posted By MSJayhawk
Re: iv infusion steroids

jaimea,

:wave: Welcome.

Prednisone withdrawal can be a difficult time lasting up to 3-4 weeks or more depending on the individual. Your description fits with the withdrawal problems.

If...
Showing results 1 to 50 of 500

 








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