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Board: Kidney Disorders 11-22-2012, 01:29 PM
Replies: 2
Views: 1,180
Posted By debnz
Re: can anyone help me out on Kidney Dehydrated?

thanks for that Deanne1962, I'm going back to My GP today, to have another blood test, I be having a good chat with him about my results I have from the hospital, I lte you know what he has to say,...
Board: Kidney Disorders 11-21-2012, 08:09 PM
Replies: 2
Views: 1,180
Posted By debnz
Question can anyone help me out on Kidney Dehydrated?

I was put into cardio ward, about a week ago or so, spent 4 days terribly sick. Thank God that it wasn't my heart, but what they did find was my kidneys were badly dehydrated, Blood pressure...
Board: Heart Disorders 11-21-2012, 07:23 PM
Replies: 7
Views: 1,286
Posted By debnz
Re: Can you help me? swollen ankles and legs - doc say heart problem.

Well I went back to my doc,cos the swelling was getting really alarming, My GP put me into the hospital, into the cardio ward. they did all sorts of test, and thank god it wasn't my Heart, they found...
Board: Rare Disorders 11-07-2012, 03:40 PM
Replies: 3
Views: 1,310
Posted By debnz
Re: My painmanagement DR told me that it looks Essential Benign Blepharospasm.

[QUOTE=August59;5084894]I believe a fully credited eye doctor, which I geuss is an opthamologist would be the one to go to on that. It sounds like something that would at least need to be accessed...
Board: Blood and Blood Vessel 11-01-2012, 08:42 PM
Replies: 6
Views: 726
Posted By debnz
Re: Iron Overload

Yeah they were doing that with me, then my levels red blood cells dropped back to normal or around normal range, which was great, I have never been told to stop eating red meat or anything, at the...
Board: Blood and Blood Vessel 11-01-2012, 03:45 PM
Replies: 6
Views: 726
Posted By debnz
Re: Iron Overload

Yeah My blood is thick, because of the PV, with too much red blood cells, mine is very red almost black like you say yours is, what treatment are you having, what are your diet requirements?
Board: Blood and Blood Vessel 11-01-2012, 03:22 PM
Replies: 6
Views: 726
Posted By debnz
Re: Iron Overload

Hi there I have too much Iron in my blood, I have PV, my hematologist tells me that I have high in Red blood Cells, White cells, Low in Platelets, MY Iron levels were high also. Not6 really sure why...
Board: Heart Disorders 10-31-2012, 03:43 PM
Replies: 7
Views: 1,286
Posted By debnz
Re: Can you help me? swollen ankles and legs - doc say heart problem.

Thanks for that cathy I will ask my GP next time i see him, hope your mum in law doing better?
Board: Heart Disorders 10-30-2012, 06:45 PM
Replies: 7
Views: 1,286
Posted By debnz
Re: Can you help me? swollen ankles and legs - doc say heart problem.

Oh thanks for that Cathy, I sure will check that out, I got a very swollen stomach, look like i'm 6-7 months preg. swollen legs, ankles,I'm surely not that for sure, my poor Gp is bashing his head...
Board: Heart Disorders 10-28-2012, 03:20 PM
Replies: 7
Views: 1,286
Posted By debnz
Question Can you help me? swollen ankles and legs - doc say heart problem.

HI there can anyone offer me any kind of help, I'm 44 years lass, that have a blood condition Called POLYCYTHEMIA VERA,where my bone marrow making too much red blood cell, high in the hematocrit...
Board: Blood and Blood Vessel 10-23-2012, 05:04 PM
Replies: 8
Views: 2,280
Posted By debnz
Re: polycythemia vera

Hello Ron,
Nice to meet another PV patience, Yes I totally agree that the Itching is so annoying, and drives ya up the wall, My Gp has put me on Promethazine HCL it work like a treat, I sleep really...
Board: Blood and Blood Vessel 10-22-2012, 06:40 PM
Replies: 8
Views: 2,280
Posted By debnz
Cool Re: polycythemia vera

Hi there 24sissy24
My name Is Deb, I live in New zealand, Christchurch, yeah where we had huge earthquakes just over two years ago. I was diagnosed with Polycythemia vera just over year ago, it has...
Board: Arthritis 10-12-2012, 04:11 PM
Replies: 35
Rheumatoid Arthritis Foot pain
Views: 4,265
Posted By debnz
Re: Remicade Infusions

hi there Ladies
Yes my GP tells me that I have Carpal tunnel in my hands, and he also seem to think that it in my legs as well Tarsal tunnel syndrome, he put me back on the gabapentin, that I was...
Board: Carpal Tunnel Syndrome 10-07-2012, 06:46 PM
Replies: 2
Views: 4,115
Posted By debnz
Re: Doc tell me that I have carpal tunnel in hands and legs?

Oh thanks so much for your reply Johands, I know what you mean, when it come to high blood pressure pills, My GP has given me different meds to try and does no good for my poor head, Yes I too have a...
Board: Carpal Tunnel Syndrome 10-06-2012, 12:35 AM
Replies: 2
Views: 4,115
Posted By debnz
Doc tell me that I have carpal tunnel in hands and legs?

I have heard of carpal Tunnel in the hands, but in the legs/feet as well? I am PV(polycythemia vera) blood condition suffer where my blood makes too much red blood cells, I also have Copd , suffering...
Board: Arthritis 10-05-2012, 10:37 PM
Replies: 35
Rheumatoid Arthritis Foot pain
Views: 4,265
Posted By debnz
Re: Foot pain

Hi there sherry, sharon, Gugulimo,
On thursday I went back to my GP, as I was having problems with my hands and fingers felt like someone was squeezing with plyers, swelling was problem, so he put...
Board: Arthritis 10-04-2012, 02:43 PM
Replies: 35
Rheumatoid Arthritis Foot pain
Views: 4,265
Posted By debnz
Re: Foot pain

you to all the best Sherry, I Hope the Remicade IV therapy goes well for you, and that thing settle down, I know what its like to try and accept all of your problem, I seen My counselor yesterday,...
Board: Arthritis 09-28-2012, 04:49 PM
Replies: 35
Rheumatoid Arthritis Foot pain
Views: 4,265
Posted By debnz
Re: Foot pain

wish ya all the best sharon, man I hope you get answer soon, It is all to much at times I know, but hang in there I know how you feel your not alone I have the same problem when walking, my feet...
Board: Arthritis 09-27-2012, 07:39 PM
Replies: 35
Rheumatoid Arthritis Foot pain
Views: 4,265
Posted By debnz
Cool Re: Foot pain

Hi Mimi Oh thanks and hug back, Yes the rain may have something to do with it, mine always seem to show more when it cold, Thank goodness it coming into summer here, and try and get a lttle sunshine...
Board: Arthritis 09-27-2012, 04:54 PM
Replies: 35
Rheumatoid Arthritis Foot pain
Views: 4,265
Posted By debnz
Re: Foot pain

Hi there again, I have a blood condition, called Polycytheamia Vera, It where my blood make to much Red blood cells and Iron, and not enough Oxygen. I never heard of it before until I was diagnosed...
Board: Arthritis 09-26-2012, 05:55 AM
Replies: 35
Rheumatoid Arthritis Foot pain
Views: 4,265
Posted By debnz
Re: Foot pain

Hi there Ladies, sorry to but in here but have a question for you both, I to Have RA, and Fibromyalgia, some sort of Nervous disorder, which I think my Gp is still having a problem diagnosing, I also...
Board: Brain & Nervous System Disorders 09-22-2012, 12:11 AM
Replies: 6
Views: 1,416
Posted By debnz
Re: Do i have nerves disorder

Oh thanks so much Nelda, Yeah your right, some people don't seem to understand, I have some really weird sensations, like my hands, my palms of my hands are red, and I get a strange sensation when I...
Board: Brain & Nervous System Disorders 09-21-2012, 04:23 PM
Replies: 6
Views: 1,416
Posted By debnz
Smile Re: Do i have nerves disorder

Oh thanks so much Nelda, the doctor that diagnosed me was pain specialist, he thought that I had benign essential blepharospasm, essentially focal dystonia, when I seen the consultant...
Board: Brain & Nervous System Disorders 09-16-2012, 08:59 PM
Replies: 6
Views: 1,416
Posted By debnz
Re: Do i have nerves disorder

Hi there, NeuroMedAsst
Oh thank you so much for your reply, I going back to the see the Opthalmalogist in October, and he will hopefully tell me what is happening, I'm still having trouble with this...
Board: Headaches & Migraines 09-12-2012, 02:47 PM
Replies: 3
Views: 875
Posted By debnz
Re: Not sure whats going on with my chronic migraines.Can you help me other suffers?

Hi there,
Yeah sorry Tingles, it sure is a lot to digest, I guess that why I also got a digestion problem as well, um yes I slowly coming back of the gabapentin, as its not working, I have the...
Board: Headaches & Migraines 09-12-2012, 02:44 PM
Replies: 3
Views: 875
Posted By debnz
Re: Not sure whats going on with my chronic migraines.Can you help me other suffers?

Hi there,
Yeah sorry Tingles, it sure is a lot to digest, I guess that why I also got a digestion problem as well, um yes I slowly coming back of the gabapentin, as its not working, I have the...
Board: Blood and Blood Vessel 09-11-2012, 04:00 PM
Replies: 3
Views: 749
Posted By debnz
Re: PV suffer, have troubling eye problem?

thanks Randy, so you had this disease for a number of years, how have you managed it? do you work? Do you have regular vensections? how often do you see your haematologist? I have seen mine a couple...
Board: Blood and Blood Vessel 09-09-2012, 03:54 PM
Replies: 3
Views: 749
Posted By debnz
Unhappy PV suffer, have troubling eye problem?

Hi other PV suffers, I'm hoping you could help me out, I suffer from chronic Migraines on a daily basis, and went and seen a consultant Ophthalmologist and sub specialist in Neuro Ophthalmology,I...
Board: Headaches & Migraines 09-08-2012, 05:25 PM
Replies: 3
Views: 875
Posted By debnz
Question Not sure whats going on with my chronic migraines.Can you help me other suffers?

Hi there, I'm a 44 year old, and feel like 144. lol As a youngster I suffered from headaches very really, but as I grew and went through that puberty, I started having more headaches manly around the...
Board: Eye & Vision 08-29-2012, 07:46 PM
Replies: 0
Views: 476
Posted By debnz
Question Confused with an eye problem

Hi there I a patient that suffers from PV, (idiopathic Erythrocytosis) Polycythaemia Vera, and My Pain Management Doctor, tells me that I have Fibromyalgia,I suffer from chronic Migraines, with or...
Board: Brain & Nervous System Disorders 08-29-2012, 07:39 PM
Replies: 6
Views: 1,416
Posted By debnz
Question Do i have nerves disorder

Hi there I a patient that suffers from PV, (idiopathic Erythrocytosis) Polycythaemia Vera, and My Pain Management Doctor, tells me that I have Fibromyalgia,I suffer from chronic Migraines, with or...
Board: Rare Disorders 08-25-2012, 11:51 PM
Replies: 3
Views: 1,310
Posted By debnz
Question My pain management Doctor told me that it looks Essential Benign Blepharospasm.

Hi there I a patient that suffers from PV, (idiopathic Erythrocytosis) Polycythaemia Vera, and My Pain Management Doctor, tells me that I have Fibromyalgia,I suffer from chronic Migraines, with or...
Board: Blood and Blood Vessel 08-20-2012, 03:04 PM
Replies: 8
Views: 5,432
Posted By debnz
Smile Re: Polycythemia... What foods are you avoiding?

Hi Joanne, Yes I am also a newbie of this Polycytheamia Vera (PV) Was Diagnosed I think Last September 2011, at first they weren't sure what was wrong they did all the test, Bone Marrow Biopsy, Jak 2...
Board: Blood and Blood Vessel 08-20-2012, 02:27 PM
Replies: 7
Views: 2,150
Posted By debnz
Smile Re: polycythemia?

Oh thanks so much Randy, nice to meet you I've have readied a lot about you and few others have gone thru and I do My friend send you a hug to, sounds like PV has it good days and bad days to, Yes I...
Board: Blood and Blood Vessel 08-20-2012, 02:13 PM
Replies: 7
Views: 2,150
Posted By debnz
Smile Re: polycythemia?

Oh thanks Xanzaba, It was lovely to get your reply, and reading your letter, I got My teeth out when I was in My early 20s, cos I had gum Disease, they use to bleed, and swollen gums, I use to hate...
Board: Blood and Blood Vessel 08-19-2012, 02:48 PM
Replies: 8
Views: 5,432
Posted By debnz
Re: Polycythemia... What foods are you avoiding?

Hi there I am also a suffer of PV, Like you guys, what we eat is very important, Unfortunately I can't take anything like grape fruit Juice, as I'm On blood Pressure Pills, that reduced the blood...
Board: Blood and Blood Vessel 08-18-2012, 10:13 PM
Replies: 7
Views: 2,150
Posted By debnz
Re: polycythemia?

hi there, My name is Debbie from New Zealand, Christchurch, Firstly want to send you both Big hugs as I too am a suffer of Polycytheamia Vera ( sure it Primary) as I have Low erythropoietin, they say...
Board: Blood and Blood Vessel 08-18-2012, 03:35 PM
Replies: 2
Views: 933
Posted By debnz
Re: Does anyone have an Idea about what is idiopathic erythrocytosis is?

oh thank- you suisse85 for replying on my message. In reply of your question, I was having chronic Migraines, high blood pressure, not sure about clots I have a couple of small clots in my left leg,...
Board: Blood and Blood Vessel 08-18-2012, 12:57 AM
Replies: 2
Views: 933
Posted By debnz
Question Does anyone have an Idea about what is idiopathic erythrocytosis is?

Hi there is there anyone that can give me some clue what Idiopathic erythrocytosis, low erythropoietin, I was diagnosed with Polycythaemia Rubra Vera around the begin of the year, so if anyone can...
Showing results 1 to 39 of 39

 








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