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Board: Neuromuscular Diseases 06-25-2012, 06:53 PM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

I am slowly getting some relief. My therapy is going good. The Balocophen is helping. I am
wearing a brace 5 hours a day and it seems to help. Some good days and some bad days!! One day at a...
Board: Neuromuscular Diseases 05-25-2012, 05:54 AM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Hello Amanda:

So sorry that it has been a while since I have posted to you!! I had a doctors appointment yesterday. The doctor wants me to see a physocologist. He said that they work close with...
Board: Neuromuscular Diseases 04-23-2012, 03:46 PM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Hello Amanda: So sorry that I have not gotten back to you. I have been in the hospital last week! My appointment with the movement doctor went well. He diagnosed me with Rapid Onset Dystonia! He...
Board: Neuromuscular Diseases 03-22-2012, 04:30 AM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Hey Amanda:
Just wanted to check in with you to see how your mom and you are doing?? I about the same, just wanted to check with you hope all is well!!

Lee
Board: Neuromuscular Diseases 03-14-2012, 11:31 AM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Amanda:

I am so so glad to hear some good NEWS for you and your Mother!! I am so glad to hear that the injections are helping!! I am about the same and NO changes since I finished the...
Board: Neuromuscular Diseases 03-08-2012, 08:57 AM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Hey Amanda:

Thank you for listening to me. I hope that when I go to see the Movement doctor he will give me a little insight. They have checked my heavy metals, and thyroid. It is so fustrating...
Board: Neuromuscular Diseases 03-07-2012, 01:15 PM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Hey Amanda:
I am glad that your mom is doing some better. I hope the the new meds and going to see the doctor will help her feel better. I go and see the movement disorder specialist on April 4,...
Board: Neuromuscular Diseases 02-28-2012, 04:19 AM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Amanda:

Just wanted to check in with you and see how your mom is this week? I hope she is doing better!! I have had a not so good week after 2 falls this weekend. My "good" leg has been hurting...
Board: Neuromuscular Diseases 02-23-2012, 11:05 AM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Good Afternoon Amanda:
I am having a better day today thankfully!!!! I feel better today from yesterday. Did not sleep good last night from the pain in my leg and the twisting and turning. This...
Board: Neuromuscular Diseases 02-22-2012, 04:38 PM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Amanda:

No we have not joined any support group and to tell you the truth we haven't tried. I thought that when I went to the movement doctor I would ask if there were any in our area. I have...
Board: Neuromuscular Diseases 02-22-2012, 12:31 PM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Amanda:

I am so sorry to hear the terrible things you and your family are having to go through. I am only 31 years old and was in the prime of my life until three months ago and this dystonia...
Board: Neuromuscular Diseases 02-21-2012, 03:40 AM
Replies: 27
Views: 3,947
Posted By Stonewall1
Re: Dystonia: Help

Hello Momwithdystonia:

I have an update on my condition. I had a trial run with sinment and NO results. I have had another MRI last week and still NORMAL. My neurologist is Finally sending me...
Board: Neuromuscular Diseases 12-30-2011, 04:14 PM
Replies: 27
Views: 3,947
Posted By Stonewall1
Dystonia: Help

I have been sick for the last 2 months. In and out of the hospital and am being put on medication for dystonia. I cannot walk with out a walker and most of the time I am in a wheelchair. I have...
Showing results 1 to 13 of 13

 








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