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Board: Cancer: Bone 08-26-2011, 09:19 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Trying to find someone who has a child with CRMO.

She is getting the Humira shots biweekly. However, my parents delay the injections before any camps or when she might be getting sick. Last time she took a 4 week break from the shot and still felt...
Board: Cancer: Bone 08-25-2011, 07:08 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Trying to find someone who has a child with CRMO.

I still lurk around here. my little sister who is 13 years old was finally diagnosed with CRMO last fall after almost 5 years of ALOT of pain and useless surgeries and so on...

she is on Humira...
Board: Birth Control 07-04-2011, 10:21 AM
Replies: 8
Views: 6,478
Posted By ovt22
Re: anyone still taking yasmin?

I just went back to my normal self ad soon as I got off... I don't remember awkward bleeding... But having a light period makes sense for a couple of days after you get off the pill. I guess hormones...
Board: Cancer: Bone 06-14-2011, 11:08 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Trying to find someone who has a child with CRMO.

How is your daughter doing? It's been almost a year! :) I hope good!
Board: Cancer: Bone 01-24-2011, 03:44 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Trying to find someone who has a child with CRMO.

How long have you been diagnosed with it? Did it take a very long time to diagnose?
It took my little sister nearly 5 years to get diagnosed, and now she is being treated at Stanford (about half a...
Board: Cancer: Bone 01-13-2011, 07:34 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Trying to find someone who has a child with CRMO.

and no she did not experience flu like symptoms but she did have to get a flu shot before she started the shots
Board: Cancer: Bone 01-13-2011, 07:33 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Trying to find someone who has a child with CRMO.

my sister has been going through this since 2006 summer, she has been misdiagnosed countless times. until she went to UCSF, who then sent her to a world renown facial radiologists who diagnosed her...
Board: Cancer: Bone 01-13-2011, 01:13 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Trying to find someone who has a child with CRMO.

My sister is on Humira shots one every two weeks seems like it's helping her. Ask the dr about that. She is also on sulfasalazine and cultrazine. The pamidrate medication would be used if humira...
Board: Cancer: Bone 12-06-2010, 01:34 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Trying to find someone who has a child with CRMO.

why is this message board in cancer???!
Board: Cancer: Bone 12-06-2010, 01:32 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Crmo

I wish there was the same answer for every child/patient with this condition!
So there was a treatment plan that would help everyone... it seems like no one's treatment are alike, they are similar,...
Board: Cancer: Bone 12-06-2010, 01:28 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Crmo

Thank you! Stanford said that they have a good record with Humira, they have had children go into remission on it. I can't wait til this condition burns itself out already! And they have not had any...
Board: Cancer: Bone 12-03-2010, 09:16 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Crmo

Today we administered the first shot of Humira she is also on cultrazine and sulfasalisine and prednisone. She is in so much pain right now :-(.
Board: Cancer: Bone 12-02-2010, 03:38 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Crmo

is your daughter still on enbrel?
my sister has CRMO and we are so nervous about starting Humira (which is similar to enbrel).

did it treat CRMO for your daughter?
Board: Cancer: Bone 10-21-2010, 11:31 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Crmo

MamaM have you been to Stanford?? i think it might be worth your while to go there to their pediatric rheumotology dept. my sister who has been misdiagnosed for the past 4 years is finally getting...
Board: Cancer: Bone 10-18-2010, 09:47 PM
Replies: 59
Views: 27,782
Posted By ovt22
Re: Crmo

Just returned from Stanford University...in the process of making sure my little sister indeed has CROMO the doctors are reviewing all of her history and are coming up with an aggressive treatment...
Board: Orthopedic 10-13-2010, 05:49 PM
Replies: 3
Views: 1,337
Posted By ovt22
Re: CRMO in a 4 yo boy

here's a link to my full thread:
http://www.healthboards.com/boards/showthread.php?t=769698&highlight=chronic+multifocal+osteomyelitis

I've posted others but.... yeah today my little sister was...
Board: Neuropathy 10-13-2010, 05:43 PM
Replies: 2
Views: 1,285
Posted By ovt22
Re: Facial Pain

no one has posted on here yet but i will continue to add to this just in case anyone who needs help ever comes across this...

got a reading from a world known facial radiologist after a very cool...
Board: Infectious Diseases 10-13-2010, 05:41 PM
Replies: 5
Views: 6,774
Posted By ovt22
Re: Osteomyelitis

so! after seeing a world known facial radiologist my little sister is diagnosed with:

chronic multifocal osteomyelitis

so back to UCSF next week hopefully we can finally get this solved.
Board: Birth Control 10-07-2010, 02:42 PM
Replies: 8
Views: 6,478
Posted By ovt22
Re: anyone still taking yasmin?

Caree8,
wow! I'm sorry you had to deal with that. I was on Yasmin for about 5-6 months. as soon as I started taking it, in a few days i became SUPER moody and mean.... and then it felt like the...
Board: Neuromuscular Diseases 10-04-2010, 06:14 PM
Replies: 19
Views: 19,236
Posted By ovt22
Re: Facial pain, muscle spasms

they help out tremendously for about half a year... but then they hit a wall.... of not knowing what else to do.....

but speaking of starting over:

last week on wednesday we went to the...
Board: Neuromuscular Diseases 10-02-2010, 04:25 PM
Replies: 19
Views: 19,236
Posted By ovt22
Re: Facial pain, muscle spasms

Yeah she has been hurting for 5 years already.
Board: Death & Dying 10-01-2010, 11:29 PM
Replies: 7
Views: 6,085
Posted By ovt22
Re: My friend died of unknown illness....

did you find out what it was?!
Board: Neuromuscular Diseases 10-01-2010, 09:53 AM
Replies: 19
Views: 19,236
Posted By ovt22
Re: Facial pain, muscle spasms

Payne,
How long did it take you to finally start figuring things out?
sounds like things are looking up for you?
i CAN'T wait til I can say that for my little sister, I am on here for her.
Board: TMJ Disorder -TemporoMandibular Joint 09-30-2010, 03:54 PM
Replies: 29
Views: 9,517
Posted By ovt22
Board: Neuropathy 09-30-2010, 03:17 PM
Replies: 2
Views: 1,285
Posted By ovt22
Re: Facial Pain

So my sister has been seen by a doctor in UCSF and now she will be getting some MORE ct scans... the Cone Beam ones (3d imaging) and those will be read by not a medical radiologist but by an...
Board: Neuropathy 09-24-2010, 04:35 PM
Replies: 2
Views: 1,285
Posted By ovt22
Exclamation Facial Pain

I am just hoping to find somebody that can relate and talk to me about this, give me advice, and maybe share what they have seen or heard or experienced.

in 2006 my little sister got a bruise on...
Board: Neuromuscular Diseases 09-24-2010, 04:20 PM
Replies: 19
Views: 19,236
Posted By ovt22
Re: Facial pain, muscle spasms

My little sister who is 12 is told she has muscle spasms that cause the ache.
it all started in 2006 when she got a dark spot on her cheek (bruise) out of no where... and doctors couldnt diagnose...
Board: Dental Health 06-10-2010, 04:15 PM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

syndi has DR Huggins helped you yet?
Board: Birth Control 03-10-2010, 04:21 PM
Replies: 1
Views: 838
Posted By ovt22
Re: yasmins pills

i stopped my pills! and WOW! i feel GREAT!.... it took my period two days to start.... and good good good.
Board: Dental Health 03-10-2010, 04:14 PM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

I am from California. my mom sent all of my sisters files to a doctor in Colorado! I am not sure it's the doctor you are talking about BUT! wouldnt it be interesting if it was? my mom will get his...
Board: Dental Health 03-02-2010, 09:23 AM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

i wish someone comes back here after they have been helped.
Board: Dental Health 03-02-2010, 09:21 AM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

it took one doctor to finally REALIZE what was going on and then finally another one to agree to operate (they were afraid of liability).
this doctor is in Sacramento CA. Dr. Heir. if you need more...
Board: Dental Health 03-02-2010, 09:18 AM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

is there a light at the end of this tunnel? does your doctor have a "plan" or has he given up. with my little sister it seems that doctors grab on to her for about 6 months and then they see the pain...
Board: Dental Health 03-02-2010, 09:15 AM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

where is your pain? my little sister (12 yrs old) has had it for 3 years already :(. hers is on her right side (bottom)... she was diagnosed with osteomylitis about a year ago, has had 2 surgeries to...
Board: Birth Control 01-15-2010, 09:19 PM
Replies: 1
Views: 779
Posted By ovt22
Reduces the effectiveness of BC

does sudafed reduce BC effectiveness? or what drugs do?
Board: Birth Control 01-15-2010, 09:17 PM
Replies: 8
Views: 6,478
Posted By ovt22
Re: anyone still taking yasmin?

yeah i am actually on it...
Board: Dental Health 10-21-2009, 10:09 PM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

1113cf,
my do I hope you find relief soon! dont give up, find that doctor that wont want to give up. stir up compassion in them for you.
I cannot imagine facial pain, the most I have felt was from...
Board: Dental Health 10-21-2009, 10:04 PM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

dale,
she has been diagnosed with primary ostemyeltis, she got it from trauma that was over looked and there was restricted blood flow to her bone. Her muscle spasms, and right now she is on...
Board: Dental Health 10-19-2009, 01:41 PM
Replies: 88
Views: 27,276
Posted By ovt22
Re: Osteomyelitis - To Susan and Trying to Feel Good

where is this specialist you are talking about? help...
Board: Dental Health 10-19-2009, 01:39 PM
Replies: 88
Views: 27,276
Posted By ovt22
Re: Osteomyelitis - To Susan and Trying to Feel Good

where is this specialist you are talking about? please please please share
Board: Dental Health 10-19-2009, 01:12 PM
Replies: 72
Views: 169,390
Posted By ovt22
Re: Jaw bone infection... Some info please :)

sc guy... what medical center did you go to? my sister needs help. morphine barely helps her :(. it's been a week of pain 24 hours a day non stop crying. she is only 11, this problem has been with us...
Board: Dental Health 10-19-2009, 01:07 PM
Replies: 88
Views: 27,276
Posted By ovt22
Re: Osteomyelitis - To Susan and Trying to Feel Good

where is your doctor? what is the name? my sister needs help :(
Board: Open to All Other Health Topics 10-18-2009, 02:27 PM
Replies: 3
Views: 1,151
Posted By ovt22
Re: Osteomyelitis :(

oleander,
do you have the doctor's name?
Board: Open to All Other Health Topics 10-17-2009, 10:58 PM
Replies: 3
Views: 1,151
Posted By ovt22
Re: Osteomyelitis :(

oleander,
they did biopsies and they believe it's chronic because this has been going on for about 4 years almost.... she is on the second month of taking oral antibiotics. her jaw bones are messed...
Board: Infectious Diseases 10-17-2009, 03:05 PM
Replies: 5
Views: 6,774
Posted By ovt22
Re: Osteomyelitis

i sit here and and cry as I read these posts about osteomyletis my 11 year old sister is suffering terribly from it and doctors seem to be puzzled. she has gone to the ER for the past two days for...
Board: Open to All Other Health Topics 10-17-2009, 01:20 PM
Replies: 3
Views: 1,151
Posted By ovt22
Angry Osteomyelitis :(

does anyone currently know anyone that has it? or do you have it?
my little sister is currently suffering from it, and doctors seem to be puzzled, so they just stuff her with pain killers...

any...
Showing results 1 to 46 of 46

 








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