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Board: Blood and Blood Vessel 11-14-2012, 04:36 PM
Replies: 1
Views: 591
Posted By Pottsey1
Re: Still having High white blood cells

Hey Gal!Long time no hear!I'm doing fairly well.December 2010 my spleen enlarged and had it radiated (15 times).I recently had a malano removed from my head and go for radiation on my head this...
Board: Blood and Blood Vessel 10-03-2012, 04:11 PM
Replies: 8
Views: 2,289
Posted By Pottsey1
Re: polycythemia vera

Hi!My name is Randy and I was diagnosed with PV in 2000.My first symptoms were red face,blood shot eyes,itching in the lower legs after hot shower,itching on arms and legs,anxiety,and extreme...
Board: Blood and Blood Vessel 09-11-2012, 06:00 PM
Replies: 3
Views: 749
Posted By Pottsey1
Re: PV suffer, have troubling eye problem?

Hi again.I am retired for almost 3 years.I see my hem every 2 months have not had any blood taken off in 3 years and like U;wake up tired.I was diagnosed by bone marrow biopsy.I just live day to day...
Board: Blood and Blood Vessel 09-10-2012, 05:31 PM
Replies: 3
Views: 749
Posted By Pottsey1
Re: PV suffer, have troubling eye problem?

Hi!My name is Randy and am 64 yrs old.I have been PV for 12 years now.I do suffer many of the symptoms as U have listed.I do suffer headaches but not to the point of calling them migraine.My most...
Board: Blood and Blood Vessel 09-07-2012, 05:45 PM
Replies: 2
Views: 2,830
Posted By Pottsey1
Re: 15 year old high HEMOGLOBIN 20 & HEMATOCRIT 55.8

Hi.I was diagnosed at age 52 with Primary Polycythemia and will be 64 this month.The high Hemoglobin and high HTC are certainly indicators of Polycy.I experience extreme fatigue,random itching...
Board: Blood and Blood Vessel 08-20-2012, 05:21 PM
Replies: 7
Views: 2,155
Posted By Pottsey1
Re: polycythemia?

About the bruising.U need to be really careful about bumping ur arms and legs.I too had a bruise appear on the back of my knee and was sore and hurt for a couple of weeks.And also;I hit my lower leg...
Board: Blood and Blood Vessel 08-19-2012, 04:43 PM
Replies: 8
Views: 5,453
Posted By Pottsey1
Re: Polycythemia... What foods are you avoiding?

Hi Deb.I eat rather poorly! I can eat anything I like and all I want;but,do try to curtail my red meat intake.I used to stay at 170-175 pounds and now I can't get to 160.I take 1.5mg hydroxurea,162mg...
Board: Blood and Blood Vessel 08-19-2012, 10:59 AM
Replies: 7
Views: 2,155
Posted By Pottsey1
Re: polycythemia?

Hi!Name is Randy and I'm PV for 12 years and live fairly normal life.The real bad thing for me is lack of energy and severe fatigue.I have a Hem appointment tomorrow.
Glad U got diagnosed and...
Board: Blood and Blood Vessel 08-08-2012, 05:48 PM
Replies: 2
Views: 1,734
Posted By Pottsey1
Re: CBC results - RDW Way high, all else in range

Hi.I just wondering what your hematicrit (HTC) level is.Should be between 37 & 42 for female.
Take care & God bless;
Randy
Board: Blood and Blood Vessel 07-29-2012, 03:38 PM
Replies: 7
Views: 2,155
Posted By Pottsey1
Re: polycythemia?

Hi.My name is Randy and I am Primary Polycythemic for over 12 years now.I am almost 64 (Sept.)Your Htc is definitely high.I was diagnosed in 2000 by bone marrow test.I think the normal htc for...
Board: Blood and Blood Vessel 07-20-2012, 10:02 AM
Replies: 3
Views: 2,998
Posted By Pottsey1
Re: high blood platelet count

Hi AnneRob!I would think it most pertinent for U to see a doctor that specialize's in Oncology/Hematology.I wonder do U feel extreme fatigue,anxiety,tightness across ur chest at times,random...
Board: Blood and Blood Vessel 07-02-2012, 12:21 PM
Replies: 9
Views: 2,161
Posted By Pottsey1
Re: We are tyring to educate ourselves about polycythemia

Hi! my name is Randy and I have been PV for 12 years. I too have severe fatigue, numbness and at times tingling of my fingers toes. I still experience random itching (usually in my lower legs and...
Board: Blood and Blood Vessel 06-22-2012, 09:39 AM
Replies: 9
Views: 1,885
Posted By Pottsey1
Re: Update

Hi;My name is Randy and I am 63 years old.I was sent by family doctor to an hematolgist/oncologist in summer of 2000.I had been sick for 3 to 4 years and didn't know what was wrong.After a bone...
Board: Blood and Blood Vessel 06-21-2012, 06:07 PM
Replies: 9
Views: 2,161
Posted By Pottsey1
Re: We are tyring to educate ourselves about polycythemia

Hi! My name is Randy and I have been being treated for Primary PV for 12 years now.My symptoms started around 1994;but,didn't really know what was wrong with me until I was diagnosed by bone marrow...
Board: Blood and Blood Vessel 04-29-2012, 02:20 PM
Replies: 4
Views: 951
Posted By Pottsey1
Re: Possible ET?

Good deal!Hope everything works out for U!
God Bless & Take Care;
Randy
Board: Blood and Blood Vessel 04-28-2012, 05:04 PM
Replies: 4
Views: 951
Posted By Pottsey1
Re: Possible ET?

Hi Rayon! U might want to take a look at Polycythemia Vera symtoms;which are sort of similar to Et in a way.I was diagnosed with PV in 2000;but,systoms dated back to 1994.I had a red face,bloodshot...
Board: Blood and Blood Vessel 03-12-2012, 03:07 PM
Replies: 8
Views: 2,091
Posted By Pottsey1
Re: Polycythemia-early symptoms

Hi Joanne! I wish I could find something to boost my energy level. I drink a protein drink called (Boost) every morning;doesn't seem to do much.Yes the Dr. may have to adjust UR meds a bit.I remember...
Board: Blood and Blood Vessel 03-11-2012, 12:08 PM
Replies: 8
Views: 2,091
Posted By Pottsey1
Re: Polycythemia-early symptoms

I know what ur saying. I wish I didn't have to take meds;but U know Joanne, I would venture to guess 65% of our population is on some kind of med. Like U have said;at least we have a treatment method...
Board: Blood and Blood Vessel 03-10-2012, 11:07 AM
Replies: 8
Views: 2,091
Posted By Pottsey1
Re: Polycythemia-early symptoms

I know...now that I look back on some of the symptoms I had been having over the past few years..it all makes sense.
Glad I caught it when I did.


I'm glad U did too Joanne! Left untreated this...
Board: Blood and Blood Vessel 03-10-2012, 09:56 AM
Replies: 8
Views: 2,091
Posted By Pottsey1
Re: Polycythemia-early symptoms

Hi Joanne. Thank U so very much. I too am glad we were able to find each other. I was like a zombie while I was waiting on my test results. I remember thinking that it would be Lukemia and I was...
Board: Blood and Blood Vessel 03-04-2012, 09:26 AM
Replies: 8
Views: 2,091
Posted By Pottsey1
Polycythemia-early symptoms

Hello All. My name is Randy and I am 63 yrs young. My PV experiences started in the mid 90's. I started itching severely in my lower legs (from knees to ankles) for about 45 min. after showering. My...
Board: General Health 03-01-2012, 06:28 PM
Replies: 6
Views: 7,474
Posted By Pottsey1
Re: First trip to the hematologist tomorrow...

Hi. My name is Randy and I am 63 yrs young. I experienced the same syptoms as U have described starting along about 1997.My family Dr. did a blood panel test on me in 2000 and found all my blood...
Board: Blood and Blood Vessel 02-15-2012, 06:08 PM
Replies: 8
Views: 5,453
Posted By Pottsey1
Re: Polycythemia..What foods are you avoiding?

Hi Jo!Thanks for all the nutritional tips.We people with PV need to keep our blood thin and flowing good.I talked with my Pharmasist today and he said no problem taking the co Q 10!
GB &TC;...
Board: Blood and Blood Vessel 02-13-2012, 07:35 PM
Replies: 8
Views: 5,453
Posted By Pottsey1
Re: Polycythemia..What foods are you avoiding?

Great idea Joanne!I hope U get some good response's.My favorite meat is serloin steak (well done).Don't get that often.
I don't eat enough.Appetite is a bit on the poor side.
God Bless:wave:
Randy
Board: Blood and Blood Vessel 02-05-2012, 04:41 PM
Replies: 1
Views: 1,214
Posted By Pottsey1
Re: I need help figuring out whats going on with me

Hi!I'm not familiar with any of the tests U have listed including the ITP.I am polcythemic and that is a bone marrow disorder where the bone marrow produces too many blood cells total.I was diagnosed...
Board: Blood and Blood Vessel 02-05-2012, 04:19 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

I was diagnosed in 2000 and had several phlebotomies (taking off blood.I haven't had any blood taken off in about 3 years now.I take two 81 mg aspirin a day;3mg anagrilide,3mg xannax and 50mg of...
Board: Blood and Blood Vessel 01-20-2012, 06:13 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

I have had blood shot looking eyes since 1997.It's worse in the mornings.When I was working;I can imagine people thinking I was probably a heavy drinker.The dry eye and itching really aggravates me....
Board: Blood and Blood Vessel 01-17-2012, 10:47 AM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Sounds "GREAT" Joanne!Have a glass for me too.I'm really happy 4U!Have a great day Joanne.
GB & Take care;
Randy
Board: Blood and Blood Vessel 01-16-2012, 05:16 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Whoop-pee!I am sooooo really HAPPY 4 U!!!!!!Now U can put UR mind @ ease for a little while.I tell ya Joanne;this stuff is just like life,one day @ a time.
My best wish's;
Randy
Board: Blood and Blood Vessel 01-15-2012, 03:12 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Best wishes on UR visit tomorrow Joanne!I pray U want have to have the phleb!Sorry U had to return to work.It's hard to deal with the work environment when UR sick URself.Take care and don't get...
Board: Blood and Blood Vessel 01-14-2012, 11:15 AM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Joanne,I got a reply form Karen and she says she does not have internet right now;but hopes to have it back soon.

Karen also says she and Bren (plyn) are doing Ok.

Randy:)
Board: Blood and Blood Vessel 01-14-2012, 09:49 AM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Hey Joanne.I Know when U mention PV to regular medical people most do not have knowledge of this disease.While not rare;it is not a real common sickness.I haven't had a phleb for almost 3 years.I had...
Board: Blood and Blood Vessel 01-13-2012, 09:28 AM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

I will send Karen another message and tell her to look for UR posts.That's a real shame U only have the one hem and U have to drive so far.There R several Dr,'s in the practice with my Dr. and it's...
Board: Blood and Blood Vessel 01-12-2012, 07:14 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Hi Joanne!Thanx for finding me.I lost me a few years back!I sent Karen (UK) a message too see if she will post again.Maybe if we post long enough others may join in.On the anemic issue,I lost my...
Board: Blood and Blood Vessel 01-11-2012, 04:14 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Hi Joanne.The last one of the girls I heard from was Karen (kmarshy) and she was doing fine at the time.THere was another young girl;I think in her early 20's (PV) that was worried about having...
Board: Blood and Blood Vessel 01-09-2012, 02:09 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Hi Joanne!Yepp;my eyes still stay dry and itchy.The pv will also affect ur vision;gradually.U asked about Plynn in UR last message and yes she and Karen and Megan and others were in here regular...
Board: Blood and Blood Vessel 01-08-2012, 06:18 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Hi!Yes;at first I was on phlebs only and then went on four mg anagralin and hydrea (don't remember hydrea dosage).I got totally anemic in the summer of 2008 and was taken off the hydrea.I started...
Board: Blood and Blood Vessel 01-08-2012, 04:59 PM
Replies: 33
Views: 6,328
Posted By Pottsey1
Re: Polycythemia Newbie

Bless UR heart and don't worry;life goes on.I was diagnosed with PV in 2000 @ age 52.The phleb's will eventually slow down and U may have to take some meds.I haven't had a phleb in 3 years and see...
Board: Blood and Blood Vessel 10-05-2011, 10:55 AM
Replies: 4
Views: 977
Posted By Pottsey1
Re: Is this a crazy idea? polycythemia

Mike,something U may think about is going to a local "blood Mobile" drive.They usually test UR iron level and U can confidentially say whether u want them to use UR blood or not;and of course they...
Board: Blood and Blood Vessel 09-28-2011, 05:50 PM
Replies: 3
Views: 5,800
Posted By Pottsey1
Re: my wbc is 16000 im scared

Hi Courtney!Glad to hear the mammogram came back good.I think going to a hem is a real good idea.U can get all of UR blood values checked see that all are as they should be and maybe find out why UR...
Board: Blood and Blood Vessel 09-27-2011, 04:12 PM
Replies: 3
Views: 5,800
Posted By Pottsey1
Re: my wbc is 16000 im scared

I'm wondering if U have noticed any itching (especially after hot shower),fatigue,tightness across the chest,red face,tingling in fingers & toes,blood shot eyes,anxiousness,restless sleep? If u have...
Board: Blood and Blood Vessel 09-06-2011, 01:25 PM
Replies: 1
Views: 1,114
Posted By Pottsey1
Re: Is this normal?

Hi!My name is Randy and I have Polycythemia Vera.THis is an illness which causes the bone marrow to produce too many blood cells total.A normal person has about 400,000 blood cells and when diagnosed...
Board: Blood and Blood Vessel 09-06-2011, 01:08 PM
Replies: 1
Views: 2,274
Posted By Pottsey1
Re: Polycythemia Diet

Hi! My name is Randy (w/PV) and soon to be 63 yrs old.I have had PV going on 15 years.I usually eat what I have always eaten.U do need to stay away from anything that has a lot of iron in it;because...
Board: Blood and Blood Vessel 08-17-2011, 05:12 PM
Replies: 4
Views: 1,364
Posted By Pottsey1
Re: Polychythemia Vera

Hi!I am so sorry to hear of UR son being diagnosed with PV and so many strokes at such a young age.As far as I have been able to find out PV is not hereditary and as U probably already know;no...
Board: Blood and Blood Vessel 08-14-2011, 10:43 AM
Replies: 1
Views: 2,901
Posted By Pottsey1
Re: Splinter hemorrhages, please I am scared!

Hi Mrs Boston.I have been doing some searching on the internet and found a vast amount of material on UR issue.They list things like fungal infection to meds that U may be taking (ie:aspirin and...
Board: Blood and Blood Vessel 08-04-2011, 04:06 PM
Replies: 4
Views: 1,364
Posted By Pottsey1
Re: Polychythemia Vera

Hi Mo!Nice to meet U.Quiet frankly;I was worried to death the week I had to wait for test results to come back.It's one of those things U just learn to live with and live life the best U can.I...
Board: Blood and Blood Vessel 08-03-2011, 12:41 PM
Replies: 1
Views: 893
Posted By Pottsey1
Re: Donated Blood

Hi! My name is Randy and I had a similar incident donating platelette's and it soon got better.If U have serious concerns I would definitely consult with my family physician.
Good Luck & God Bless....
Board: Blood and Blood Vessel 07-28-2011, 05:21 PM
Replies: 9
Views: 1,885
Posted By Pottsey1
Re: Update/ Polyc/Kmarshy

Hi again Megan!WOW!!!Sounds like things are really going well for U!Congratulations on the new addition to the family.I can tell by UR words the happiness and joy U R experiencing.U'll have UR hands...
Board: Blood and Blood Vessel 07-27-2011, 07:50 PM
Replies: 9
Views: 1,885
Posted By Pottsey1
Re: Update/ Polyc/Kmarshy

Hi Megan!Great hearing from U!!!!!!I had not been on for a while and Karen sent me a message checking on me.I just visited my hem last week and all is going good with my PV.
How have U been doing...
Board: Blood and Blood Vessel 07-27-2011, 04:50 PM
Replies: 9
Views: 2,729
Posted By Pottsey1
Re: Essential Thrombocytosis (high platelets)

Hi!I completely agree with U.I have PV and taking Agrylin for 11 years.I take two mgs in the morning and one at night.I also take two 81mg aspirin every morning.
Take care and God Bless;
Randy
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