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Board: Crohn's Disease / Ulcerative Colitis 01-12-2012, 11:19 AM
Replies: 4
Views: 1,065
Posted By Lindy77
Re: Feeling a lil down

Lol. VERY true, SickinNJ. Some great advice there. Hope you're doing well :)
Board: Crohn's Disease / Ulcerative Colitis 10-10-2011, 08:19 AM
Replies: 19
Views: 6,083
Posted By Lindy77
Re: UC story

Yes, the blood can be completely stopped, that's when you go into a remission. And usually prednisone or IV steroids are used to induce remissions. As I'm finding out, sometimes even during remission...
Board: Crohn's Disease / Ulcerative Colitis 07-29-2011, 09:47 AM
Replies: 19
Views: 6,083
Posted By Lindy77
Re: UC story

Quincy,
I was wondering why you said don't take the oral Prednisone?


As for Gucci- sorry you're having a difficult time. What the others are saying is helpful. You should be on a mesalmine...
Board: Pain Management 07-27-2011, 03:47 PM
Replies: 11
Views: 3,479
Posted By Lindy77
Re: ATT: Fentanyl/Dilaudid/Oxy users... please help w/?'s!

Hey Kat :wave:,

There is no confusion between my PM Doctor and me. Iíve told him everything (in MUCH more personal detail than I have here on the boards) and this is how heís instructed me to...
Board: Pain Management 07-27-2011, 03:22 PM
Replies: 11
Views: 3,479
Posted By Lindy77
Re: ATT: Fentanyl/Dilaudid/Oxy users... please help w/?'s!

Thanks for your detailed response. Interesting on the Fentanyl. As for my Dilaudid, my PM doctor wrote it as take it 3 times a day. So, my case is a little different in that aspect. I'm just thankful...
Board: Pain Management 07-26-2011, 12:00 PM
Replies: 11
Views: 3,479
Posted By Lindy77
Re: ATT: Fentanyl/Dilaudid/Oxy users... please help w/?'s!

Thank you all, I appreciate your responses... they're helpful. I have been on the patch for about 2 weeks now, and I am finding that by the 3rd day (afternoonish) I am in more pain. I might bright it...
Board: Alzheimer's Disease & Dementia 07-19-2011, 10:28 AM
Replies: 37
Views: 18,417
Posted By Lindy77
Re: My father has early onset alzheimer's

:wave:
You're welcome. Alzheimer's is an awful disease, on both sides- for the one who is suffering, and for the people that have to watch their loved ones slowly decline.

But you're right, it is...
Board: Pain Management 07-19-2011, 10:23 AM
Replies: 11
Views: 3,479
Posted By Lindy77
Re: ATT: Fentanyl/Dilaudid/Oxy users... please help w/?'s!

I'll go hunting this afternoon. Thanks!!
Board: Pain Management 07-19-2011, 10:06 AM
Replies: 11
Views: 3,479
Posted By Lindy77
Re: ATT: Fentanyl/Dilaudid/Oxy users... please help w/?'s!

Hi Kat :wave:
Thanks for your reply. I believe weíve talked before, but I havenít been back on here in a while. I appreciate the tip on hot showers/bathsÖ I found that one out the hard way when I...
Board: Alzheimer's Disease & Dementia 07-18-2011, 12:39 PM
Replies: 37
Views: 18,417
Posted By Lindy77
Re: My father has early onset alzheimer's

Hi Potfla, :angel:

My father had Early onset Alzheimerís. He was diagnosed at age 52 and passed away at age 60. I was 20 when I lost my Dad, and I'm 23 now. Every step in Alzheimerís just about...
Board: Pain Management 07-18-2011, 11:01 AM
Replies: 11
Views: 3,479
Posted By Lindy77
ATT: Fentanyl/Dilaudid/Oxy users... please help w/?'s!

This might be a dumb question, but I canít find much info on the web regarding this. My PM Doctor switched me to the Fentanyl patch, .75, along with my Dilaudid 4mg. I was on Oxy 20mg 3x along with...
Board: Crohn's Disease / Ulcerative Colitis 07-06-2011, 09:52 AM
Replies: 2
Views: 1,268
Posted By Lindy77
Re: I Could Sure Use Some Assurance...

Hi,
Sorry to hear of your condition and that you're experiencing horrible pain (is your pain constant or only when your disease is active?). I have UC and it's accompanied by extreme pain, in which...
Board: Crohn's Disease / Ulcerative Colitis 07-06-2011, 09:08 AM
Replies: 4
Views: 1,914
Posted By Lindy77
Re: Remicade & Immunosuppreaant users

Hi FaeFever,
I couldn't help but notice your name; I'm a huge fan of the series as well. I'm in the middle of reading the last book. It's a great series!

Thanks for taking the time to reply. I...
Board: Pain Management 06-23-2011, 08:46 AM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Hi,
Thank you! I'm glad your medications are working for you. Everyone on here has been very supportive; I appreciate it. Hope things continue to go well for you :)
Board: Pain Management 06-21-2011, 11:07 PM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Thanks! :)

And Kat, I don't know. I'm just going with what he says, especially since this was my first appt. Right now I'm in a lot of pain, but I believe his hopes (and mine) are that by...
Board: Pain Management 06-21-2011, 05:08 PM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Hi all :wave:

(I have been switched to Dilaudid. Been on it for a couple weeks now. It helps me a lot more than the IR)

Just wanted to give a quick update since everyone on here has been so...
Board: Pain Management 06-21-2011, 04:56 PM
Replies: 1
Views: 3,790
Posted By Lindy77
Re: your thoughts and experience with dilaudid vs roxicodone

Hi :wave: ,

Sorry youíre in pain. I was on the Oxy IR for a couple of months having to take 20mg every 4 hours and I was still experiencing pain, plus the side effect of constipation wasnít...
Board: Crohn's Disease / Ulcerative Colitis 06-21-2011, 04:22 PM
Replies: 4
Views: 1,914
Posted By Lindy77
Re: Remicade & Immunosuppreaant users

Hi :wave:
Thank you for your reply. That eases my apprehension about these drugs. I'm glad it's worked so well for you!
Board: Crohn's Disease / Ulcerative Colitis 06-17-2011, 12:00 PM
Replies: 4
Views: 1,914
Posted By Lindy77
Remicade & Immunosuppreaant users

What can you tell me about your experiences on these types of drugs?

I had a visit with my GI yesterday. My body is not responding to steroid treatments or most mesalamine drugs. My GI doctor and...
Board: Addiction & Recovery 06-10-2011, 01:38 PM
Replies: 9
Views: 1,980
Posted By Lindy77
Re: fentanyl Patch withdrawls

I completely agree with Kat. Pot is not the way to go on this. To ease withdraw symptoms, you should talk to your doctor about what the best possible way would be. A lot of them will write you a Rx...
Board: Bowel Disorders 06-10-2011, 08:45 AM
Replies: 41
Views: 38,917
Posted By Lindy77
Re: Chronic Constipation for years

Hey,
I just ran across this thread; I didn't read all the responses so I apologize if this has already been recommended. I have issues with constipation despite having UC. I can definitely...
Board: Addiction & Recovery 06-10-2011, 08:16 AM
Replies: 42
Views: 8,862
Posted By Lindy77
Re: Xanax loves me!

Well, congrats to you! Keep up the good work.
Board: Addiction & Recovery 06-09-2011, 11:47 AM
Replies: 42
Views: 8,862
Posted By Lindy77
Re: Xanax loves me!

Hi Timobee,
You should look into and research Effexor XR. It affects both serotonin and norepinephrine, which works well in reducing GAD (general anxiety disorder.) I know you're apprehensive about...
Board: Crohn's Disease / Ulcerative Colitis 06-09-2011, 11:01 AM
Replies: 4
Views: 1,065
Posted By Lindy77
Re: Feeling a lil down

:wave: Thanks jujumcm; I appreciate it.
Board: Crohn's Disease / Ulcerative Colitis 06-09-2011, 10:58 AM
Replies: 11
Views: 2,651
Posted By Lindy77
Re: just diagnosed

Thanks :)

And if you continue to lose blood and mucous, have your GP or GI check your CBC and SED rate to make sure your body is replacing the blood you're losing.

I love spicy food as well; I...
Board: Crohn's Disease / Ulcerative Colitis 06-09-2011, 12:24 AM
Replies: 11
Views: 2,651
Posted By Lindy77
Re: just diagnosed

Hi,
Quincy gave you a lot of good advice.

As for food during a flare up, you generally want to stick to things that your body can easily digest. Soft, bland food. Stay away from too much fiber...
Board: Crohn's Disease / Ulcerative Colitis 06-08-2011, 11:53 PM
Replies: 4
Views: 1,065
Posted By Lindy77
Feeling a lil down

Iíve been having a flare up for almost 2 months now. I spent 2 weeks in the hospital, then Iíve basically been in bed since Iíve gotten out. I still have your typical symptoms, including active...
Board: Pain Management 06-06-2011, 08:03 PM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Thanks guys!

Kat,
No. I met with my family doctor. I missed my pain management appointment due to my first ever horrific migraine. I'm rescheduled in a few weeks, so I needed something to last...
Board: Pain Management 06-06-2011, 01:27 PM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Well, I just got back from my doctor's appointment. He wants to send me to Emory in Atlanta to see what is going on, and he switched my BT meds to Dilaudid instead of the Oxy IR. So let's hope this...
Board: Pain Management 06-04-2011, 11:45 AM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Katlin,
Wow, my heart goes out to you. Youíve been though a lot; I canít even imagine. Iíve had 2 knee surgeries from sports injuries (2 lateral releases) which hurt and my knees still arenít right,...
Board: Pain Management 06-04-2011, 11:29 AM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Katlin,

Sorry, I didnít see your response when I hit the post reply button.

Thanks for informing me on this, like I saidÖ Iím new to all this stuff. I thought it was unusual to be taking my...
Board: Pain Management 06-04-2011, 11:18 AM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Thank you for your insight. I was in the hospital when they switched my medications around from the Dilaudid/Fetynal/Percocet. The PM Dr was willing to give me all that in pill forms so I could go...
Board: Pain Management 06-03-2011, 11:33 AM
Replies: 23
Views: 5,472
Posted By Lindy77
Re: Experience with OxyIR v Dilaudid???

Oxycontin 20mg 2 x daily and Oxy IR 20 mg as needed or every 4-6hrs.

I used to be on Dilauded, Fetynal and Percocet, but when I was hospitalized, the pain management doctor thought this might be...
Board: Crohn's Disease / Ulcerative Colitis 06-03-2011, 11:26 AM
Replies: 6
Views: 1,599
Posted By Lindy77
Re: Drugs- UC ppl.

Thank you; I'll look into those.
Board: Pain Management 06-03-2011, 05:13 AM
Replies: 23
Views: 5,472
Posted By Lindy77
Experience with OxyIR v Dilaudid???

Hi all,
Oxy IR v DilaudidÖ what seems to work better for people (for breakthrough pain)?

My severe pain seems to have come back and Oxy IR isnít really taking much of my pain away. I have been...
Board: Crohn's Disease / Ulcerative Colitis 06-03-2011, 04:51 AM
Replies: 6
Views: 1,599
Posted By Lindy77
Re: Drugs- UC ppl.

Hi!
I have tried a butyrate enema, it just seems all of them irritate me and cause me pain.

No, I have yet to start any probiotics. I was considering Align. I donít know much about them.
...
Board: Hair Loss / Alopecia 05-29-2011, 09:20 AM
Replies: 4
Views: 1,526
Posted By Lindy77
Re: hairloss

Start taking Biotin and Vit. A 2x daily. It aids in promoting hair growth. I hope this will help you. Sorry for your situation.
Board: Crohn's Disease / Ulcerative Colitis 05-28-2011, 10:07 AM
Replies: 6
Views: 1,599
Posted By Lindy77
Re: Drugs- UC ppl.

Hi,
Thank you for responding. So thatís what you take during a flare? What do you take as maintenance medications to prevent flares? Iíve tried Asacol, but I had a bad reaction to it.

I have...
Board: Crohn's Disease / Ulcerative Colitis 05-27-2011, 05:00 AM
Replies: 6
Views: 1,599
Posted By Lindy77
Drugs- UC ppl.

I was wondering what drugs people take for their UC? I currently take Dipentum (250mg 8 pills daily) because it's the only one that my body will accept, so I'm curious as to what else is out there...
Board: Pain Management 05-26-2011, 06:05 AM
Replies: 6
Views: 2,812
Posted By Lindy77
Re: Oxy/OxyIR questions. Help, please?

Back,
Thank you so much for all the information you have provided. Everyone I have encountered on here has been more than gracious in providing guidance and answers. You've been extremely helpful....
Board: Crohn's Disease / Ulcerative Colitis 05-25-2011, 08:23 PM
Replies: 1
Views: 905
Posted By Lindy77
Re: UC or What?

Hi,
I have. I was diagnosed with UC in May/June2010 and with it was horrific pain. I have been hospitalized twice now for the UC and pain. It perplexes the doctors because normally UC patients...
Board: Pain Management 05-25-2011, 06:22 PM
Replies: 6
Views: 2,812
Posted By Lindy77
Re: Oxy/OxyIR questions. Help, please?

Wow, sorry to hear the extent of your situation :( . A constant 5-7 level of painÖ canít imagine. Itís good though that youíre doing other things to help with pain than just loading yourself full of...
Board: Pain Management 05-25-2011, 04:04 PM
Replies: 6
Views: 2,812
Posted By Lindy77
Re: Oxy/OxyIR questions. Help, please?

Hi,
Sorry to hear of your fusion surgeries. Does not sound like something I would want to experience! But seems like youíve gotten through things pretty well. I hope all your issues are better.
...
Board: Pain Management 05-25-2011, 02:09 PM
Replies: 6
Views: 2,812
Posted By Lindy77
Oxy/OxyIR questions. Help, please?

Hi,

Iím new to this site, so please excuse this post if this type of question has been asked before. I recently was released from the hospital 2 weeks ago. I was in there for 2 weeks due to my...
Board: Crohn's Disease / Ulcerative Colitis 05-25-2011, 01:37 AM
Replies: 0
Views: 943
Posted By Lindy77
New to site and have questions. Help, please?

Hi,
I recently joined this site after doing a lot of reading on it. I have UC; however, the doctors are perplexed on my case due to the extreme amount of pain I experience.

I'll try to tell this...
Showing results 1 to 45 of 45

 








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