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Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-26-2013, 02:54 PM
Replies: 6
Views: 807
Posted By jewlz67
Re: Family and caregivers

Snowman,I don't know if you realize it or not, but you have come so far since we started talking on here. I'm proud of you that you are recognizing your wife's need in wanting to be there for you!...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-22-2013, 07:18 AM
Replies: 11
Views: 1,329
Posted By jewlz67
Re: Awaiting diagnosis, could this be RSD/CPRS?

It, unfortunately, sounds like RSD. Did you bring that up to your ortho? It's really sad to say how many doctors aren't knowledgeable about RSD. It's really sad actually. What you have described...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-11-2013, 12:00 PM
Replies: 2
Views: 538
Posted By jewlz67
Re: RSD or not RSD?

Fillycat3, I really find it hard to believe that, after being diagnosed numerous times, that you don't have RSD. The hospitalist doctors don't have it all together. I just had a doctor today talk to...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-11-2013, 11:53 AM
Replies: 3
Views: 482
Posted By jewlz67
Re: Diagnosed with RSD/CRPS..I need comforting words ..

Hello Tattooedmadam, I'm sorry that that is the diagnosis you received and that you are in so much pain. It's tough and scary getting the diagnosis and realizing what you are and will be going...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 10-04-2013, 06:45 PM
Replies: 5
Views: 1,105
Posted By jewlz67
Re: 13 year old with bad foot bone bruise

Couple things, I have badly bruised my knee before and it is very painful. I was on crutches for about three or four weeks. I do have RSD, started out mild but has gotten worse. I had physical...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-12-2013, 09:40 PM
Replies: 6
Views: 709
Posted By jewlz67
Re: RSD and medication for the first time!

Hi and welcome to the board. Well, I have never tried that medication but they do use antidepressants like Cymbalta to help for pain. Don't ask me how it helps but it does for some of us. What other...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-10-2013, 09:23 PM
Replies: 38
Views: 1,936
Posted By jewlz67
Re: RSD/CRPS and isolation

Johnathan, that is hilarious!!!! I literally laughed out loud!!! Laughter is the best medicine. A cheerful heart is good for the soul.
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-09-2013, 11:37 AM
Replies: 2
Views: 530
Posted By jewlz67
Re: Back to Work... FINALLY!

In one sense, yes, be glad that you are able to go back to work. On the other part, I would be very hurt that this, not only being your employer but friend as well. I would first find out what the...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-08-2013, 09:02 PM
Replies: 3
Views: 405
Posted By jewlz67
Re: RSD stinks

For me, the first block helped but the 2nd and 3rd made it worse. If they treat it aggressively when they first catch it, it does have a better chance of going into remission than if it were left...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 09-08-2013, 01:59 PM
Replies: 1
Rsd
Views: 405
Posted By jewlz67
Re: Rsd

I feel your pain cheribmc! Have a lot of sleepless nights. I'm glad you have a good husband that you can speak to. One of the many bad things of this stupid disease is that we all have a tendency to...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-30-2013, 08:17 PM
Replies: 38
Views: 1,936
Posted By jewlz67
Re: RSD/CRPS and isolation

Snowman, this site has been a real blessing and talking to you as much as I have has also been a blessing! I found out that taking a 600mile drive is MURDER!!!! I was in tears! I prayed, and had...
Board: Arachnoiditis 08-19-2013, 06:42 PM
Replies: 22
Views: 1,520
Posted By jewlz67
Re: Sooo many questions!!!

Gmak, it was your post that made me look into this!!! I am so glad that you are one who replied to this! The bottom of my feet hurt all the time! My feet change colors, it gets a grayish color like...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-07-2013, 09:10 AM
Replies: 33
Views: 3,574
Posted By jewlz67
Re: RSD and chronic pain syndrome

I think what Painman2009 is saying is that CPS is the same as RSD and is questioning why your doctor would put it as a separate diagnosis. Hurting24, I'm with Snowman2, it's just easier to say RSD...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 06-07-2013, 05:42 PM
Replies: 6
Views: 583
Posted By jewlz67
Re: RSD and sedation

Snowman, I really think they should just use an anesthesiologist and knock you out completely with anesthesia to do the blocks. A block wont work if you are feeling the pain while they do it. I don't...
Board: Health Insurance SSDI Issues 06-05-2013, 04:27 AM
Replies: 7
Views: 496
Posted By jewlz67
Re: still waiting

Kee4short, age is not a reason for denial but it makes them not want to do it that much more because they know they will be paying out for a long time. I have heard from many people that it can take...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-15-2013, 06:47 AM
Replies: 3
Views: 924
Posted By jewlz67
Re: Nucynta??

Well, you know there will come a day when we will have no more pain or sorrow and the Lord will wipe away all our tears! Never apologize for rambling....we need to be able to do it because this is...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 05-03-2013, 07:11 PM
Replies: 7
Views: 965
Posted By jewlz67
Re: Rsd/crps

Flaminghands is right, if you have the burning pain or pins and needles pain, ask about taking Gabapentin or Lyrica. I take Gabapentin and it works great for me. It had to be built up in my system...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 04-08-2013, 08:44 PM
Replies: 48
Views: 6,158
Posted By jewlz67
Re: RSD/crps flare ups

We are supposed to be buying a swimming pool this year but unfortunately, I don't have the funds to buy a heater to go with it! I don't think I will be using it this year...or until we buy a heater...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 04-08-2013, 08:14 PM
Replies: 2
Views: 505
Posted By jewlz67
Re: RSD and Nerve pain

I have the TENS unit and LOVE IT!!! I am looking into getting an H-Wave. It's like a TENS unit except it has eight leads. They used it on me in physical therapy and the leads went from my lower back...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 04-05-2013, 05:50 PM
Replies: 12
Views: 1,334
Posted By jewlz67
Re: Rsd/crps

Painman, I am so glad you said something about back pain. So I take it you get bad back pain and back spasms? Since I did my last nerve block and have been out of work since...they keep telling me...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 04-01-2013, 07:34 PM
Replies: 26
Views: 2,751
Posted By jewlz67
Re: Rsd/crps

I understand completely!!!! I was gonna tell you, I'm like Cyndel, I didn't think the Gabapentin was working until I missed a dose. I was out all day today (unplanned of course) and I didn't have my...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-31-2013, 06:57 PM
Replies: 26
Views: 2,751
Posted By jewlz67
Re: Rsd/crps

Happy Easter Snowman!!!
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-17-2013, 12:00 PM
Replies: 9
Views: 2,356
Posted By jewlz67
Re: RSD and a Lumbar Sympathetic Nerve Block

So sorry to hear of your diagnosis...it stinks!!! I have had three nerve blocks. The first one I did was WONDERFUL!!!! It lasted three months! That was the best three months since my diagnosis 10...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 03-08-2013, 09:45 PM
Replies: 1
Views: 1,131
Posted By jewlz67
Re: Burning leg, new symptom area goes blotchy.

Everything you have described so far sounds like RSD. Do you ever get the "pins and needles" feeling? Also, have you experienced pain as if you have a bolt of lightning shoot through your leg? I have...
Board: Back Problems 03-03-2013, 09:10 PM
Replies: 3
Views: 606
Posted By jewlz67
Re: Not sure where the pain is coming from ????

I'm with Teteri on that one! I do understand what you are going through though. I get the back pain and it goes from my lower back, my butt, down to my toes! The entire left side from my lower back...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 02-02-2013, 08:42 PM
Replies: 6
Views: 991
Posted By jewlz67
Re: Advice on Correct Diagnosis?

I would just about bet that if you bring her the information on RSD, she will still reject it. Nobody, especially doctors, like to be shown that they are wrong. I have heard people going to...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 01-15-2013, 09:54 PM
Replies: 6
rsd
Views: 1,086
Posted By jewlz67
Re: rsd

Yes, RSD can spread to other limbs. Mine actually started in my left ankle and now it has affected my entire leg. Yesterday, the skin sensitivity started in my left arm. RSD can pretty much spread to...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 12-24-2012, 08:57 PM
Replies: 3
Views: 466
Posted By jewlz67
Re: Can RSD affect both limbs?

RSD can affect any limb besides the original site of injury. Don't look at just pain only because you do have a limb that is injured and also has RSD so that does change the way how you walk. Anytime...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 12-01-2012, 08:36 PM
Replies: 36
Views: 4,730
Posted By jewlz67
Re: RSD diagnosis without pain

I will continue to pray for you. If you ever need to talk, I can always send you my email address of FB if you are on there. I know first hand how hard the physical therapy can be but it really does...
Board: Reflex Sympathetic Dystrophy (RSD) (CRPS) 08-06-2012, 08:50 AM
Replies: 10
Views: 1,523
Posted By jewlz67
Re: Crps/rsd

Crano, this message board has been extremely helpful to me!!! I've even read posts in here that were done in 2006 and gained some helpful information! I am learning to take this one day at a time....
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