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Board: Lyme Disease 03-26-2013, 10:37 PM
Replies: 7
Views: 710
Posted By annalisa9397
Re: Lyme questions. Scared.

Your symptoms and experience sound identical to mine. I had your symptoms plus more. I was dx with atypical ms. I was in and our of hospital and saw too many drs to count.
I've been in treatment...
Board: Lyme Disease 02-08-2013, 09:23 PM
Replies: 6
Views: 1,142
Posted By annalisa9397
Re: Lyme herx lasting months

I have been on abx for 14 months. I was deathly ill. I herxed for a year. I was so sick and bedridden. I am on so many supplements and abx. Do not give up. I am so much better. I have healed my...
Board: Lyme Disease 12-14-2012, 09:49 PM
Replies: 1
Views: 480
Posted By annalisa9397
Re: 2 weeks of doxy enough?

If I were you I would explore the possibility of lyme. I had minor symptoms for a few years. Then my immune system couldn't fight it off anymore. Literally overnight it disabled me. I would see an...
Board: Lyme Disease 12-08-2012, 09:54 AM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

What are the new abx you are starting? At least you are able to get some work done. Lyme disease throws our whole life for a loop!
Hopefully you will do ok on the new ones.
Board: Lyme Disease 12-06-2012, 06:32 PM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

Wow - that is great you don't feel too bad :)
I don't think it matters when you take your abx. I take so many throughout the day so prob doesn't matter what time. Just as long as away from...
Board: Lyme Disease 12-01-2012, 06:49 AM
Replies: 7
Views: 878
Posted By annalisa9397
Re: cb1220

I would listen to your llmd and follow his protocol. I would also research taking natural supplements. The combo of both of these should help. It takes a very long time though. I would drink lemon...
Board: Lyme Disease 11-29-2012, 12:29 PM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

It's weird how our bodies know how much we can take. There have been days when I literally prayed that I would die :( Then the next day I would wake up and be a little better.
I am out of those...
Board: Lyme Disease 11-29-2012, 10:14 AM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

Music mafia
I got a message that we can't post emails on here. So I sent you a friend request and added you to my contacts. I don't know how that works. Anyways, I will just keep
Checking in to...
Board: Lyme Disease 11-28-2012, 07:59 PM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

Oh - I'm so glad you are getting started on abx. I was given a zpack before I knew I had lyme. I had so much eye and head pressure so I had gone to my eye dr thinking it was something with my vision....
Board: Lyme Disease 11-27-2012, 01:58 PM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

I know exactly what you are talking about. I was so sick and couldn't imagine being sicker. I did get sicker, but then I started to get better. I had the exact symptoms as you. I thought my eyes...
Board: Lyme Disease 11-27-2012, 01:41 PM
Replies: 10
Views: 3,984
Posted By annalisa9397
Re: anyone misdiagnosed with MS???

When I first got so sick last year (Oct 2011) I thought I was dying. I was in the hospital twice. They ran every test under the sun. They did a spinal tap, mri's and ct scan looking for MS. The...
Board: Lyme Disease 11-27-2012, 01:35 PM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

MM,
Please keep me posted on what your llmd says in SD. Hopefully they will be able to help you. Hopefully he/she can get you on a protocol that will help you. All I can say is that it is a long...
Board: Lyme Disease 11-26-2012, 08:01 PM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

I will give you a list of some of my supps. I have lyme, Babesia, and bartonella. So my supps help with all of these. I did have ebv but I don't anymore. I've also had parasites, but was on an rx for...
Board: Lyme Disease 11-26-2012, 07:25 PM
Replies: 2
Views: 1,042
Posted By annalisa9397
Re: Lyme disease - healing can happen!

I just wrote back to you on another post. Please let me know if I can help you in any way.
Board: Lyme Disease 11-26-2012, 07:18 PM
Replies: 24
Views: 4,034
Posted By annalisa9397
Re: Lyme Treatments - What has helped you?

I think all of us on this board look to each other for answers and support. It always helps me to know that I'm not the only one trying to get through this. It is a very long journey. We all have...
Board: Lyme Disease 11-26-2012, 07:07 PM
Replies: 8
Views: 1,217
Posted By annalisa9397
Re: Newly diagnosed with Lyme - Question regarding natural remedies

Go with your Igenex results. I would start seeing a dr asap. It is horrible to let it go on day by day. If you can't find an llmd, a naturopathic dr would be able to help you. Do not let regular...
Board: Lyme Disease 11-25-2012, 06:29 AM
Replies: 4
Views: 394
Posted By annalisa9397
Re: How reliable is the Western Blot?

I don't understand how all of the testing works either...someone else not if you look it up online will be able to explain how the tests come back negative even though you do have it. When you start...
Board: Lyme Disease 11-24-2012, 09:59 PM
Replies: 4
Views: 394
Posted By annalisa9397
Re: How reliable is the Western Blot?

I would get bloodwork done thru igenex. My elisa and western blot were negative. It took three mos for my tests to react - once I was started on abx.
Board: Lyme Disease 11-23-2012, 11:13 PM
Replies: 2
Views: 474
Posted By annalisa9397
Re: Lyme Test Positive

I can't help you with names of drs. However, I do think it is very important for you to see an llmd or naturopath. I would definitely explore possibility of lyme in you and your baby as soon as you...
Board: Lyme Disease 11-23-2012, 11:03 PM
Replies: 7
Views: 1,077
Posted By annalisa9397
Re: Potential Lyme Disease - Northeast Pennsylvania

I concur with everything that everybody replied with. I would find an llmd ASAP. Your symptoms are identical to what mine were. The drs thought I was crazy. Do not let anyone tell you that you are or...
Board: Lyme Disease 11-23-2012, 10:55 PM
Replies: 3
Views: 764
Posted By annalisa9397
Re: Diagnosed Lyme but not sure

I would get to an llmd ASAP. Lyme is very tricky to deal with- I would not try to figure it out with anyone other than that. Your symptoms are very similar to mine, and the only way I finally got an...
Board: Adrenal Disorders 11-23-2012, 08:32 AM
Replies: 181
Views: 30,626
Posted By annalisa9397
Re: Invisible illness, very sick.

Lyme can affect every system in your body. My heart was affected very badly. It doesn't affect me anymore now that I've been in treatment. My heart used to feel frozen. As in cold
Frozen. Sometimes...
Board: Adrenal Disorders 11-23-2012, 07:30 AM
Replies: 181
Views: 30,626
Posted By annalisa9397
Re: Invisible illness, very sick.

An llmd is a lyme literate md. They really are the only doctors who can help you in an effective manner. Other drs do not have knowledge of what to do. My Lyme disease is not cured. I am in healing...
Board: Adrenal Disorders 11-22-2012, 06:15 PM
Replies: 181
Views: 30,626
Posted By annalisa9397
Re: Invisible illness, very sick.

My blood tests were negative too. I was diagnosed based on clinical symptoms. After being on antibiotics for three mos my tests were positive.
Board: Adrenal Disorders 11-22-2012, 06:14 PM
Replies: 181
Views: 30,626
Posted By annalisa9397
Re: Invisible illness, very sick.

I really would get to an llmd. Look up how many people have POTS but really have lyme. My llmd saved my life. I really think I felt like you when I was at my worst. It was beyond description how bad...
Board: Lyme Disease 11-21-2012, 08:19 AM
Replies: 12
Views: 1,083
Posted By annalisa9397
Re: Pain

My entire area around my mouth would be numb and tingly as well as around my eyes. I would get electrical shocks in my eyes and my heart. I didn't have tingly stuff on top of my head. Just extreme...
Board: Lyme Disease 11-21-2012, 05:17 AM
Replies: 12
Views: 1,083
Posted By annalisa9397
Re: Pain

First, remember that lyme tests don't always come back positive. So don't base your treatment on your results...
My pain is gone. I've been on abx and supplements for a year. My pain is gone. One...
Board: Lyme Disease 11-20-2012, 10:09 PM
Replies: 12
Views: 1,083
Posted By annalisa9397
Re: Pain

Your back and neck pain sound just like mine was. I have no idea if fibro causes that kind of pain. I have lyme, bartonella and Babesia and my pain that I used to have sounds like what you have.
Board: Lyme Disease 11-18-2012, 07:30 AM
Replies: 2
Views: 740
Posted By annalisa9397
Re: Lyme, Depressive Relapse, Both, or Hypochondria in No.VT

Your experience is sounding a lot like lyme. Some of your symptoms are similar to mine. I would highly recommend an llmd. They will be able to help you much more than regular dr.
Board: Lyme Disease 11-18-2012, 07:25 AM
Replies: 5
Views: 2,007
Posted By annalisa9397
Re: Natural Treatment without diagnosis? Oil of Oregano?

Have you looked up the salt/c protocol? I hear people have great success with that. Also cats claw, yucca are good natural supps.
Board: Lyme Disease 11-15-2012, 09:00 AM
Replies: 8
Views: 1,217
Posted By annalisa9397
Re: Newly diagnosed with Lyme - Question regarding natural remedies

My tests were negative for three mos even thru igenex. Took three mos for it to turn positive. Do not go off of test results!
Board: Lyme Disease 11-14-2012, 02:55 PM
Replies: 3
Views: 484
Posted By annalisa9397
Re: do i have lymes? i got the symtoms...

Let me know if you want more info specifically and I am more than happy to write you :)
Board: Lyme Disease 11-13-2012, 07:52 PM
Replies: 3
Views: 484
Posted By annalisa9397
Re: do i have lymes? i got the symtoms...

Your symptoms are very similar to mine. I would definitely google lyme symptoms. I would also track down an llmd. The sooner the better. If you want more specifics, I would be happy to share. I have...
Board: Lyme Disease 11-13-2012, 07:43 PM
Replies: 14
Views: 1,724
Posted By annalisa9397
Re: My Long, Weird, Confusing Story...Help, Please!

Hi - this is Annalisa - I have been on abx for one year and so many supplements (92 pills a day. I am so much better than I was when I collapsed last October. We don't know if my mom transmitted it...
Board: Lyme Disease 11-11-2012, 09:20 PM
Replies: 8
Views: 1,217
Posted By annalisa9397
Re: Newly diagnosed with Lyme - Question regarding natural remedies

To those of you included on this thread: your stories are similar to mine. Basically down the same road as you describes. Doctors thought I was crazy! I was so sick I wanted to die.
I found an...
Board: Lyme Disease 11-11-2012, 09:08 PM
Replies: 3
Views: 1,075
Posted By annalisa9397
Re: Eye and head pressure

How are you doing lately? I've read so many of your posts and I think we have corresponded before.
Yes - I think I was having a flare up of one of my infections. The pressure has cleared up again....
Board: Lyme Disease 11-10-2012, 09:22 PM
Replies: 14
Views: 1,724
Posted By annalisa9397
Re: My Long, Weird, Confusing Story...Help, Please!

Sounds like my lyme story...
Had very bad electrical shocks, numbness, tingling, eye issues... Went to dr and he thought I might have a sinus infection because of such bad eye, sinus, head pressure....
Board: Lyme Disease 11-01-2012, 07:15 PM
Replies: 4
Views: 339
Posted By annalisa9397
Re: Scheduling Appt with LLMD?

The llmd will know what tests to run. When you call just make your appt. When I saw my llmd the first time they listened to my story. From there they figured out the tests to run.
Can't wait to...
Board: Lyme Disease 11-01-2012, 07:13 PM
Replies: 4
Views: 339
Posted By annalisa9397
Re: Scheduling Appt with LLMD?

The llmd will know what tests to run. When you call just make your appt. When I saw my llmd the first time they listened to my story. From there they figured out the tests to run.
Can't wait to...
Board: Lyme Disease 10-30-2012, 07:37 PM
Replies: 3
Views: 1,075
Posted By annalisa9397
Eye and head pressure

Hi everyone,
I've been in treatment for lyme, Babesia, bartonella for a year. I have been having great success w antibiotics and supplements. For the past six weeks though I have had a tremendous...
Board: Lyme Disease 10-25-2012, 06:51 PM
Replies: 13
Views: 1,817
Posted By annalisa9397
Re: Heading in the right direction?

How are you doing hunter 4545?
Annalisa
Board: Lyme Disease 10-25-2012, 06:48 PM
Replies: 2
Views: 898
Posted By annalisa9397
Re: New Lymie, new here. On Bart treatment

Hi! I have lyme, Bart, Babesia. I have been in trtmnt for just about a year. I was on rifampin for four months and my joint pain cleared up, as well as my anxiety and crazy brain. They took me off...
Board: Lyme Disease 10-25-2012, 06:09 AM
Replies: 8
Views: 942
Posted By annalisa9397
Re: Does this sound like Lyme?

I don't know what tests for you to order. If you contact igenex maybe they can help you. My llmd ordered mine. I would do whatever I could to try to find an llmd. You re***y don't want this to...
Board: Lyme Disease 10-24-2012, 03:09 PM
Replies: 8
Views: 942
Posted By annalisa9397
Re: Does this sound like Lyme?

I had electrical shocks in my eyes that literally would electrocute me. My face was numb. I had pressure in my head that made me feel like I was going to explode. My ears buzz and ring still.
I...
Board: Lyme Disease 10-24-2012, 03:06 PM
Replies: 8
Views: 942
Posted By annalisa9397
Re: Does this sound like Lyme?

I had electrical shocks in my eyes that literally would electrocute me. My face was numb. I had pressure in my head that made me feel like I was going to explode. My ears buzz and ring still.
I...
Board: Lyme Disease 10-24-2012, 02:19 PM
Replies: 8
Views: 942
Posted By annalisa9397
Re: Does this sound like Lyme?

Your symptoms are the same ones that I had. My story is just about like yours. However I had extreme muscle weakness and lost my memory too. I got sick in November 2011. Mine started out very...
Board: Lyme Disease 10-23-2012, 08:57 PM
Replies: 6
Views: 1,337
Posted By annalisa9397
Re: Anxiety, panic, etc, not sure if lyme

I didn't have anxiety or panic attacks until I contracted Lyme disease. I don't remember getting bitten by a tick, but we hiked the redwoods in del Norte county (next to humboldt) and also have been...
Board: Lyme Disease 10-20-2012, 04:14 PM
Replies: 28
Views: 3,250
Posted By annalisa9397
Re: Going on 14 yrs of problems, Derealization, fibromyalgia, chronic fatigue

My mom has sjogrens disease and Lyme disease. She has very dry brittle hair. I have lyme - no sjogrens. But when my symptoms first started two and a half years ago the first symptom was hair loss....
Board: Lyme Disease 10-20-2012, 03:16 AM
Replies: 28
Views: 3,250
Posted By annalisa9397
Re: Going on 14 yrs of problems, Derealization, fibromyalgia, chronic fatigue

Let me know your search results. I'm curious to know if your symptoms relate to lyme.
Board: Lyme Disease 10-19-2012, 08:24 PM
Replies: 28
Views: 3,250
Posted By annalisa9397
Re: Going on 14 yrs of problems, Derealization, fibromyalgia, chronic fatigue

Hi - I have Lyme disease. My mom has Lyme disease. We both have whitish deep vertical ridges in nails. My toenails have been yellow.
My naturopath said her lyme patients all have vertical ridges. ...
Showing results 1 to 50 of 92

 








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