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Board: Multiple Sclerosis 05-19-2015, 05:46 AM
Replies: 8
Views: 476
Posted By gillila
Re: And now I know!

Thanks for the hint- i have been getting cramps a lot. Some are in strange places - like the top of my foot, going into my ankle. I also have been getting a strange sensation in the back of my...
Board: Multiple Sclerosis 04-21-2015, 09:55 AM
Replies: 5
Views: 367
Posted By gillila
To stop Avonex or not...

I was diagnosed in 2011 when optic neuritis finally brought me to an MS specialist. I had various symptoms in years prior to diagnosis, but never viewed them all together. Looking back, it all...
Board: Multiple Sclerosis 01-09-2015, 05:28 AM
Replies: 4
Views: 457
Posted By gillila
Re: Checking In, Weird sensation

I have experienced that sensation of "brain shifting". I couldn't put into words what it felt like, but you hit the nail on the head. To date, I've only experienced that one time. Aside from...
Board: Multiple Sclerosis 03-28-2014, 10:38 AM
Replies: 11
Views: 489
Posted By gillila
Re: entire body is kinda numb

Prior to my diagnosis i had a similar sensation. I was pretty numb from the waist down. This happened when i started taking an antibiotic for another issue (no idea what it was). It took a few days...
Board: Multiple Sclerosis 02-21-2014, 08:44 AM
Replies: 4
Views: 382
Posted By gillila
Re: lightheaded -

I've always been able to handle stress. Usually when it gets too bad I get giggly - very professional! I'm on my way to rec ctr to check BP
Board: Multiple Sclerosis 02-21-2014, 06:37 AM
Replies: 4
Views: 382
Posted By gillila
Re: lightheaded -

Thank you for your thoughts/suggestions. My level of stress has been heightened because my department of 5 is about to be 2. Lost one to budget cuts, my right-hand man is leaving for greener...
Board: Multiple Sclerosis 02-21-2014, 05:02 AM
Replies: 4
Views: 382
Posted By gillila
lightheaded -

I was driving to work this morning and suddenly felt like I was about to pass out. thankfully my son comes with me (I work at a University and he is a student). I pulled over and asked him to drive...
Board: Multiple Sclerosis 01-14-2014, 09:03 AM
Replies: 3
Views: 1,363
Posted By gillila
Keybiotics and MS

My husband recently learned about keybiotics and how taking them can control/eliminate the candida fungus and it all made sense until it said this fungus in your digestive system has been linked to...
Board: Multiple Sclerosis 08-19-2013, 06:49 AM
Replies: 5
Views: 364
Posted By gillila
Re: 51 today

Happy Birthday! Keep up the great attitude - that is priceless. Enjoy your day and keep smiling.:)
Board: Multiple Sclerosis 08-09-2013, 10:19 AM
Replies: 9
Views: 403
Posted By gillila
Re: Limboland

It sounds like we have the same issue. I also wonder if it is stress, the MS, or just age (I'm 50).

Hang in there. You are not alone!
Board: Multiple Sclerosis 08-09-2013, 08:40 AM
Replies: 9
Views: 403
Posted By gillila
Re: Limboland

When you say you couldn't speak, do you mean you physically could not make a sound, or that what you wanted to say just got lost before it could be said?

I often have an issue where my brain...
Board: Multiple Sclerosis 06-03-2013, 11:22 AM
Replies: 6
Views: 1,689
Posted By gillila
Re: Pain in neck/between shoulder blades

Thank you.
I think it makes it more bearable if I know/understand the source of the pain or discomfort.
Board: Multiple Sclerosis 06-03-2013, 10:15 AM
Replies: 6
Views: 1,689
Posted By gillila
Re: Pain in neck/between shoulder blades

It actually isn't too bad today - unless i'm just getting used to it. Other than the weekly Aleve (after my Avonex injection) I don't normally take anything for pain. It got to the point saturday...
Board: Multiple Sclerosis 05-31-2013, 12:42 PM
Replies: 6
Views: 1,689
Posted By gillila
Pain in neck/between shoulder blades

I struggled with this pain 2 years ago shortly before I was diagnosed and it is back. Very difficult to explain - sometimes if feels like a hot knife in the lower part of my neck, between my...
Board: Multiple Sclerosis 04-30-2013, 07:31 AM
Replies: 6
Views: 469
Posted By gillila
Re: Newly Diagnosed and Terrified

Welcome to the family. I'm glad you've found your way to this board. There are a lot of very inspirational stories here - As you know, everyone is different and experiences different symptoms - but...
Board: Multiple Sclerosis 04-25-2013, 01:54 PM
Replies: 9
Views: 462
Posted By gillila
Re: "pedal foot" anyone?

Actually - my foot did something similar last weekend. Out of the corner of my eye, I saw my foot move - when I know I didn't voluntarily move it. I tried to recreate the action, and if I moved my...
Board: Multiple Sclerosis 04-23-2013, 05:38 AM
Replies: 3
Views: 4,806
Posted By gillila
Re: Tingly numbness waist-down

Before I was diagnosed with MS, I had that exact sensation. Tingly/numb from the waist down. It was a reaction to Cipro (ciproflaxin?). Have you taken any medications recently? When I had the...
Board: Multiple Sclerosis 03-29-2013, 01:24 PM
Replies: 3
Views: 374
Posted By gillila
Re: Started Avonex tonight

I have to agree with Nikki. I, too, am using Avonex. It has been over a year and a half. My husband gives my the injections every week. I think it is important to him to feel like he is helping...
Board: Multiple Sclerosis 03-21-2013, 10:19 AM
Replies: 3
Views: 370
Posted By gillila
Re: ms and a summer glow?

I, too, love the summer trips to the beach. While I'm not one to tan (a lot of skin cancer in my family), I enjoy the beach all day long. We go to a beach that is not very crowded and have room for...
Board: Multiple Sclerosis 03-18-2013, 05:23 AM
Replies: 13
Views: 1,261
Posted By gillila
Re: I have on and off sweating bad

In regards to college courses, check with your local institutions. Seniors may be able to audit courses at no cost. I'm not sure what defines a senior, but it could be an opportunity to exercise...
Board: Multiple Sclerosis 02-14-2013, 12:56 PM
Replies: 3
Views: 411
Posted By gillila
Re: different pains - MS related?

Thank you - my mid-year appointment with my MS Neuro is in a few weeks. I will certainly be adding these to my journal. I love my doctor, and it saddens me to hear all of the horror stories of...
Board: Multiple Sclerosis 02-14-2013, 11:47 AM
Replies: 3
Views: 411
Posted By gillila
Question different pains - MS related?

I was diagnosed less than two years ago and i've been pretty symptom-free since then. However, two new types of pain have recently started and i'm wondering if they could be related to MS, or just...
Board: Multiple Sclerosis 01-08-2013, 10:41 AM
Replies: 2
Views: 1,304
Posted By gillila
Re: MS and Rosacea

Thank you. I discussed the antibiotic concern with the dermatologist and she said that the prescribed drug was a low dose antibiotic directed toward the specific infection that causes the skin...
Board: Multiple Sclerosis 01-08-2013, 10:04 AM
Replies: 2
Views: 1,304
Posted By gillila
Question MS and Rosacea

I have MS and Rosacea. I've been trying to settle on the best treatment for my rosacea and i thought I had finally found the answer. I have tried several topicals and several oral therapies but...
Board: Multiple Sclerosis 10-24-2012, 01:58 PM
Replies: 8
Views: 1,004
Posted By gillila
Re: Flu shot: preservative-free or not?

Thank you - they are actually coming to my work to administer the shot to willing employees (free of charge - covered by our insurance). I was planning to go, but wanted to make sure it was ok. ...
Board: Multiple Sclerosis 10-24-2012, 07:02 AM
Replies: 8
Views: 1,004
Posted By gillila
Re: Flu shot: preservative-free or not?

I guess my question is - is it bad to have the preservative? Don't know if I should go that route and does it make a difference? Is MS an issue with it either way?
Board: Multiple Sclerosis 10-24-2012, 05:34 AM
Replies: 8
Views: 1,004
Posted By gillila
Flu shot: preservative-free or not?

I must admit - I am one of those people who doesn't believe everyone should get the flu shot. I never did until my MS Specialist said I really should. I got my first one last year and it was...
Board: Multiple Sclerosis 10-08-2012, 05:16 AM
Replies: 2
Views: 2,472
Posted By gillila
Bee sting sensation

Wimpurr mentioned the "bee stings" - I have that exact sensation occasionally. It truly feels like a sting - i've had it in my arms and legs on various occasions. It looks like I'm crazy when I...
Board: Multiple Sclerosis 10-01-2012, 06:38 AM
Replies: 16
Views: 1,857
Posted By gillila
Re: Wondering if these are MS symptoms?

I had numbness and tingling in my left hand that lasted for about a year and a half. The doctor said I was overweight (5'7'' and 150 at the time). He said a nerve was getting pinched in my armpit. ...
Board: Multiple Sclerosis 09-25-2012, 09:06 AM
Replies: 10
Views: 1,247
Posted By gillila
Re: Swank Diet

OK - Almond Joy, White chocolate macadamia nut cookies, pecan pie and Nutella - I'm on my way to the store...

No, really. Thank you.
Board: Multiple Sclerosis 09-25-2012, 04:59 AM
Replies: 10
Views: 1,247
Posted By gillila
Re: Swank Diet

Thank you. I might read up on it a little more. I will take from it what I can, as far as reducing fat and sugars. I'm not a huge red meat eater, nor do I have a real sweet tooth. I've pretty...
Board: Multiple Sclerosis 09-24-2012, 09:48 AM
Replies: 10
Views: 1,247
Posted By gillila
Re: Swank Diet

Thank you both.
It is difficult to change eating habits - primarily because I never know who will be eating dinner at my house. After working all day, i get home and start thinking about dinner -...
Board: Multiple Sclerosis 09-24-2012, 08:35 AM
Replies: 10
Views: 1,247
Posted By gillila
Swank Diet

I was diagnosed with MS about 18 months ago. Other than random mental fog, I've been fairly symptom free for over a year (currently using Avonex and happy with it).

I've slowly gained weight and...
Board: Multiple Sclerosis 07-26-2012, 10:23 AM
Replies: 13
Views: 1,359
Posted By gillila
Re: Hello

I have the exact balance and memory issues. Just 5 minutes ago I was walking from the parking lot and "listing" to the left. It is always to the left for me, don't know what that means, but it is...
Board: Multiple Sclerosis 07-17-2012, 05:01 AM
Replies: 4
Views: 948
Posted By gillila
Re: Side Effects of Avonex/working full time

I've been using Avonex for just a year and I work full time. I must say I feel pretty fortunate - I inject it Wednesday morning before work and take 2 Aleve about 2 hours later. For about 6 months,...
Board: Multiple Sclerosis 06-19-2012, 05:39 PM
Replies: 5
Views: 1,311
Posted By gillila
Re: weight loss surgery and Avonex

Just curious - did your weight gain occur after starting avonex? I've gained 15-20 lbs in the past year since i started avonex. No changes in diet, and i actually tried to exercise a little more...
Board: Multiple Sclerosis 06-19-2012, 05:22 PM
Replies: 6
Views: 1,237
Posted By gillila
Re: 1 yr "anniversary" questions

MRI today - preliminary reading by MS neuro was great. She prefaced her comment with the official reading comes from the radiologist - but she compared to prior results and no changes. i haven't...
Board: Multiple Sclerosis 06-18-2012, 12:09 PM
Replies: 6
Views: 1,237
Posted By gillila
Re: 1 yr "anniversary" questions

Thank you.
And, yes - i have a list of my issues. I felt funny bringing them up at my initial appointment and i still feel funny because they aren't painful, don't really bother me, but just funny...
Board: Multiple Sclerosis 06-18-2012, 11:46 AM
Replies: 6
Views: 1,237
Posted By gillila
1 yr "anniversary" questions

I was diagnosed roughly 1 year ago. I am currently using Avonex and I'm relatively symptom-free. I have a 6-mo MRI tomorrow followed immediately by an appointment with my MS neuro. We will review...
Board: Multiple Sclerosis 06-05-2012, 08:03 AM
Replies: 44
Views: 4,510
Posted By gillila
Re: Spasticity related to MS?

My double vision was the final straw that led me to an MS specialist. I had been having odd things happen for years, and doctors pretty much ignored, and i wrote off as old age (I'll be 49 this...
Board: Multiple Sclerosis 05-23-2012, 10:56 AM
Replies: 7
Views: 802
Posted By gillila
Re: MRI results

Is that really a lot of MRIs? I'm new to this and my neuro wants one every 6 months.
Board: Multiple Sclerosis 05-22-2012, 12:47 PM
Replies: 5
Views: 1,290
Posted By gillila
Re: Introduction & Questions

Welcome to the Board...
Just a note to say that you have plenty of time to document your situation - I believe it is helpful to the doctor if you have a list of the symptoms even if they seem...
Board: Multiple Sclerosis 05-21-2012, 11:02 AM
Replies: 4
Views: 1,734
Posted By gillila
Cipro and MS

If this is a duplicate post I apologize. When I tried to post the first time, it locked up - when I refreshed, it disappeared (so it either posted, or deleted)

I noticed a recent thread that...
Board: Multiple Sclerosis 05-03-2012, 02:22 PM
Replies: 4
Views: 1,110
Posted By gillila
Re: is it my MS or my weight?

Thank you for the suggestions. I actually tried walking at the local indoor track. I was aiming for 20 laps (2 miles) and at 15, i was so dizzy i had to stop. My pace was slow, but better than...
Board: Multiple Sclerosis 05-03-2012, 01:50 PM
Replies: 4
Views: 1,110
Posted By gillila
is it my MS or my weight?

I'm fairly new to MS and trying not to point to that as an excuse for aches and pains. I am recovering from a broken foot that healed very slowly - I was in a cast and/or walking boot from December...
Board: Multiple Sclerosis 02-06-2012, 05:04 AM
Replies: 1
Views: 1,011
Posted By gillila
Do MS or Avonex slow healing?

I was diagnosed with MS in June 2011. I've been relatively symptom-free since the initial diagnosis and steroid treatment for double vision.

In November I got a stress fracture of my 2nd...
Board: Multiple Sclerosis 01-30-2012, 10:54 AM
Replies: 9
Views: 1,979
Posted By gillila
Re: Is it vertigo?

Thank you - I have my blood checked every 3 months but not specifically for that. I guess I won't worry for another 4 1/2 yrs.
Board: Multiple Sclerosis 01-30-2012, 10:21 AM
Replies: 9
Views: 1,979
Posted By gillila
Re: Is it vertigo?

Also - I'm using Avonex. "Turns out I had built up antibodies to the interferon, and was poisining myself with each injection." - how common is that and how can it be detected before it's too late? ...
Board: Multiple Sclerosis 01-30-2012, 10:16 AM
Replies: 9
Views: 1,979
Posted By gillila
Re: Is it vertigo?

Thank you for your response. And you make a good point - the last thing that I wrote off as and MS issue was a series of pains in my foot. My husband and I went to the beach for Thanksgiving and...
Board: Multiple Sclerosis 01-30-2012, 10:02 AM
Replies: 29
Views: 9,916
Posted By gillila
Re: Just diagnosed with MS. Should I take medication?

To treat or not to treat is definitely a personal choice. If you aren't already seeing an MS specialist (neurologist) do that. Mine was wonderful and talked to me about all of the available options...
Showing results 1 to 50 of 53

 








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