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Board: Neuropathy 12-13-2011, 06:48 AM
Replies: 7
Views: 1,968
Posted By RisingParrot
Re: Concern Auditory hallucination Neuropathy related?

Did you Neurontin cause you to not be able to sleep?

I'm on the max dose of it and w/in the past year or so I've have MAJOR issues sleeping.



You ask a GREAT question that I'm interested...
Board: Neuropathy 12-13-2011, 06:45 AM
Replies: 6
Views: 1,256
Posted By RisingParrot
Re: Is there a point to more testing?

This is an excellent question.

My PN attacked me in 07..in the next 3yrs or so saw 4 different Neurologists and had zap/blood tests, MRI, Spinal Tap and an Ankle Nerve Biopsy...all to tell me "I...
Board: Neuropathy 12-09-2011, 08:03 AM
Replies: 11
Views: 2,650
Posted By RisingParrot
Re: Is it possible to find out why you have neuropathy?

Have you seen a Neurologist? Who diagnosed you with Neuropathy?

I have had a right ankle nerve biopsy...it can prove why you have Neuropathy in some people just as a spinal tap can...I had both...
Board: Neuropathy 12-07-2011, 06:55 AM
Replies: 7
Views: 1,545
Posted By RisingParrot
Re: ulnar neuropathy

WOW!

Seems some back surgery are for the good....


MAYBE after the first of the year I'll go see a Neuro Surgeon...guess that can't hurt and see what they thing.

Hope you are having a pain...
Board: Neuropathy 12-05-2011, 06:52 AM
Replies: 10
Views: 1,636
Posted By RisingParrot
Re: WHAT THE HECK "p n why do we have to chase "

captinsane1, Thanks for the advice and kind words.
J
Board: Neuropathy 12-05-2011, 06:44 AM
Replies: 7
Views: 1,545
Posted By RisingParrot
Re: ulnar neuropathy

VERY interesting...

Have you had spinal surgery to try and fix the issues?

Even thinking about having that done freaks me out.
Board: Neuropathy 12-02-2011, 08:28 AM
Replies: 7
Views: 1,545
Posted By RisingParrot
Re: ulnar neuropathy

Interesting...I did NOT know this...

I have Spinal Stenosis of my IIRC L3/4 or 4/5...and could be the issue w/my left elbow.

They want me to see a specialist for my back issue but I'm not...
Board: Neuropathy 12-02-2011, 06:27 AM
Replies: 10
Views: 1,636
Posted By RisingParrot
Re: WHAT THE HECK "p n why do we have to chase "

Great to hear.

I even mentioned to K last night about adding my "notes" w/your information.

I like that it is both cheap and like you said I don't need to add a major drug like ambien to my...
Board: Neuropathy 12-01-2011, 08:45 AM
Replies: 7
Views: 1,968
Posted By RisingParrot
Re: Concern Auditory hallucination Neuropathy related?

Could still be him stopping the alcohol that is causing the hallucination from what I experienced seeing.

Is he being treated by any doctor?
J
Board: Neuropathy 12-01-2011, 08:42 AM
Replies: 10
Views: 1,636
Posted By RisingParrot
Re: WHAT THE HECK "p n why do we have to chase "

Hey captinsane1,

I just added your suggestion to my notes in iPhone about the 25mg of Elavil and Benedryl for sleep to talk w/my doctor about....seems my pain level has sadly increased...so will...
Board: Neuropathy 12-01-2011, 08:04 AM
Replies: 7
Views: 1,968
Posted By RisingParrot
Re: Concern Auditory hallucination Neuropathy related?

He used to drink a lot and has now quit for 36hours?

IF so he for sure could be having auditory hallucinations...I know someone that drank a lot and quit...was in the hospital and during that time...
Board: Neuropathy 12-01-2011, 07:35 AM
Replies: 16
Views: 2,552
Posted By RisingParrot
Re: Bad Days...

No, I've never heard of that before.

What kind of drug is it/does it do?

Thanks cocoa...I appreciate any help I can get.
J
Board: Neuropathy 12-01-2011, 07:32 AM
Replies: 16
Views: 2,552
Posted By RisingParrot
Re: Bad Days...

Yes they are a BIG pain...I stay far away from sharp things...and the testing SUCKS!! I have been tested daily for weeks before..I'm now every 2-4 weeks...still sucks!

I hope you guys have a great...
Board: Neuropathy 12-01-2011, 07:15 AM
Replies: 16
Views: 2,552
Posted By RisingParrot
Re: Bad Days...

It for sure if more rough the older we get...K's hospital visit for almost 2 weeks was the first time she has been "sick" so was for sure hard for her....and since I've been the unhealthy one it...
Board: Neuropathy 11-30-2011, 01:37 PM
Replies: 16
Views: 2,552
Posted By RisingParrot
Re: Bad Days...

:) K does the same for me...she has been through all my zap tests/spinal tap and apts w/me...she is my rock!

We don't have kids but or Cat and Parrot keep us busy enough ;)



I too work...I'm...
Board: Neuropathy 11-30-2011, 11:41 AM
Replies: 16
Views: 2,552
Posted By RisingParrot
Re: Bad Days...

Are those the only 2 meds he take for his PN?

They wanted to put me on Cymbalta...but got home and read WAY too much about it and got concerned about taking it. BUT after reading so many posts...
Board: Neuropathy 11-30-2011, 10:18 AM
Replies: 16
Views: 2,552
Posted By RisingParrot
Re: Bad Days...

Thanks so much for the nice thoughts and hugs...it means a lot to me.

I'm usually pretty upbeat/glass is half full/can only deal w/what we can type of guy...not so much right now and between that...
Board: Neuropathy 11-30-2011, 08:10 AM
Replies: 16
Views: 2,552
Posted By RisingParrot
Bad Days...

I've had them the last few days...

My PN is really bad, esp in the evening...not sure what is going on..last night I actually took a pain pill along w/my 600mg of Neurontin before I went to...
Board: Neuropathy 11-23-2011, 06:43 AM
Replies: 10
Views: 1,636
Posted By RisingParrot
Re: WHAT THE HECK "p n why do we have to chase "

Daisy...Thanks for your post...I too have a major issue w/sleep...I can only sleep for an hour or so before I wake and that goes on all night...rarely can I get a good nights sleep which sucks and...
Board: Neuropathy 11-22-2011, 09:13 AM
Replies: 10
Views: 1,636
Posted By RisingParrot
Re: WHAT THE HECK "p n why do we have to chase "

VERY sorry you have been going through all this....

Around 07 my Feet started to hurt...since then it has moved up to mid calf and started to affect my hands...

I've had a few Zap Tests(as I...
Board: Neuropathy 11-22-2011, 06:26 AM
Replies: 6
Views: 967
Posted By RisingParrot
Re: Answers?

It for sure is not something to take lightly. Hang in there and stay positive.

Thanks, I'm doing ok...I take my Neurontin and hope for the best ;)

Hoping you have a pain free day and that your...
Board: Neuropathy 11-21-2011, 07:44 AM
Replies: 6
Views: 967
Posted By RisingParrot
Re: Answers?

Sorry to hear...BUT glad you are calling...sadly we need to fight for our own behalf a lot of the time. I'm on Neurologist #4 and will probably see #5 for my next apt. We deserve the best treatment...
Board: Neuropathy 11-21-2011, 07:31 AM
Replies: 25
Views: 5,280
Posted By RisingParrot
Re: vitamin b12 can help anyone know?

After reading this thread and thinking about it..

K picked up some IIRC 1000mcg Vitamin B12 pills which I have started to take one in the am. Figure it can't hurt me and MIGHT help me.

Thanks...
Board: Neuropathy 11-21-2011, 07:24 AM
Replies: 6
Views: 967
Posted By RisingParrot
Re: Answers?

Hey Blueskeys,

I thought about this post over the weekend...Have you heard back from your Neurologist?

Hope you have a great week.
J
Board: Neuropathy 11-18-2011, 06:11 AM
Replies: 6
Views: 967
Posted By RisingParrot
Re: Answers?

For sure see your Neurologist when they get back to you.

Are you currently taking anything for your PN?

Hope you find your answers and today is a pain free day for you.
J
Board: Neuropathy 11-16-2011, 02:21 PM
Replies: 25
Views: 5,280
Posted By RisingParrot
Re: bull353

I'm very sorry you can relate...as I've told people I wouldn't wish this condition on my worst enemy.

It for sure is unlike any pain I've ever had...even my 3 blood clots in 3 yrs weren't as...
Board: Neuropathy 11-16-2011, 07:27 AM
Replies: 9
Views: 14,417
Posted By RisingParrot
Re: Any ideas why a burning nerve pain in hands and feet

You sound a LOT like me...in 07 my feet just hurt...then went to mid calf a while later and the burning/numbness started....and year or so later my hands started to hurt/burn...

I'm on the max...
Board: Neuropathy 11-16-2011, 07:14 AM
Replies: 25
Views: 5,280
Posted By RisingParrot
Re: bull353

Wow!! That is so wrong on their part and so sorry you are having to deal w/those kind of doctors.

I'm on my 4th Neurologist after not liking the answers the first 3 gave me...and I'm REALLY...
Board: Neuropathy 11-15-2011, 06:54 AM
Replies: 25
Views: 5,280
Posted By RisingParrot
Re: bull353

It does help some....but I'd suggest you talk w/a Neurologist and have them test your level.
J
Board: Neuropathy 11-11-2011, 01:05 PM
Replies: 24
Views: 3,235
Posted By RisingParrot
Re: Just diagnosed..help

JenC523,

Great thoughts and prayers out to you and hope your doctor visit on Monday goes great.
J
Board: Neuropathy 11-11-2011, 12:59 PM
Replies: 24
Views: 3,235
Posted By RisingParrot
Re: Just diagnosed..help

rons4ever,

First you are NOT crazy nor are you alone.

I was kind of in the same boat w/you....I've had PN since 07...in pain/numb every second I'm awake from mid calf to toes and just below...
Board: Neuropathy 11-10-2011, 06:42 AM
Replies: 4
Views: 847
Posted By RisingParrot
Re: Left feeling like a drug addict...

Most have NO clue what we here deal w/on a daily basis....I know personally every second that I'm awake can test my pain tolerance...

I realize I'm VERY lucky to have K in my life...she...
Board: Neuropathy 11-09-2011, 06:21 AM
Replies: 4
Views: 847
Posted By RisingParrot
Re: Left feeling like a drug addict...

P....VERY sorry your experience w/them was so bad.

I've never been to a pain clinic before so don't know how they do it. BUT that seems like a HARSH way of going about that.

So did you sign...
Board: Neuropathy 11-04-2011, 02:37 PM
Replies: 2
Views: 764
Posted By RisingParrot
Re: What now?

Like Cocoa I'm interested in what symptoms you are having.

What type of doctor are you seeing in 3months?

Did they do any other kind of tests on you?

I had PN since 07 and recently...
Board: Neuropathy 11-04-2011, 07:13 AM
Replies: 24
Views: 3,235
Posted By RisingParrot
Re: Just diagnosed..help

Aussie....that is awesome!! I'm so happy for you.

I hope someone else reading this can clue their doctors in and get the same results that you did.

I'd LOVE for one day to be able to get rid...
Board: Neuropathy 11-03-2011, 09:35 AM
Replies: 24
Views: 3,235
Posted By RisingParrot
Re: Just diagnosed..help

Wow....that is AWESOME!!!!!

Did you know fixing your diet would help w/your PN?

I for one am interested in hearing more about your story.
J
Board: Neuropathy 11-01-2011, 04:00 PM
Replies: 2
Views: 1,564
Posted By RisingParrot
Re: neuropathy?

Peripheral neuropathy...


Peripheral neuritis; Neuropathy - peripheral; Neuritis - peripheral

Last reviewed: April 26, 2011.

Peripheral nerves carry information to and from the brain. They...
Board: Neuropathy 11-01-2011, 02:05 PM
Replies: 24
Views: 3,235
Posted By RisingParrot
Re: Just diagnosed..help

Hi Jen..

First you are NOT alone..I've had PN since 07 and in that time I'm on my 4th Neurologist....I've had MANY blood and Zap tests....had a spinal tap and #4 removed some of my left ankle...
Board: Neuropathy 10-28-2011, 02:16 PM
Replies: 6
Views: 11,873
Posted By RisingParrot
Re: Woke w/a Huge Cramp in Calf Muscle, Now Barely Walk? Suggestions?

GREAT to hear you are doing better and thanks for letting us know.

Fingers crossed you don't have to deal w/that again.
J
Board: Neuropathy 10-28-2011, 02:13 PM
Replies: 1
Views: 2,594
Posted By RisingParrot
Re: SORE FEET - WEAK KNEES - STRONG LEGS?! - help!

You MUST see a Neurologist...

The as I call them Zap Tests aren't that bad and don't take long so you can do it! They will probably also do a blood test and for me I also had a Spinal Tap(which...
Board: Neuropathy 10-26-2011, 02:49 PM
Replies: 20
Views: 6,752
Posted By RisingParrot
Re: Acupuncture for neuropathy?

captinsane1,

Glad today is a better day and I agree....been a LOT better then yesterday.

I agree, there are some great people here and I'm very thankful for you and the rest of the users for...
Board: Neuropathy 10-26-2011, 10:30 AM
Replies: 20
Views: 6,752
Posted By RisingParrot
Re: Acupuncture for neuropathy?

P, sorry it is getting worse for you.

I too hope that there is an answer out there that will help all of us live great pain free lives.

This forum is for sure a great thing and needed so we...
Board: Neuropathy 10-26-2011, 08:31 AM
Replies: 20
Views: 6,752
Posted By RisingParrot
Re: Acupuncture for neuropathy?

Very sorry to hear!!! I hope you and all of us here have a MUCH better day.

x2 on the Stay Strong and God Bless!

I hope you and all of us here have a MUCH better and positive day.

J
Board: Neuropathy 10-26-2011, 07:50 AM
Replies: 20
Views: 6,752
Posted By RisingParrot
Re: Acupuncture for neuropathy?

captinsane1,

Sorry you too are having awful days...and again VERY sorry for your loss. Maybe one day they will find the right answer to help all of us to be pain free on a daily basis. Until then...
Board: Neuropathy 10-25-2011, 02:28 PM
Replies: 20
Views: 6,752
Posted By RisingParrot
Re: Acupuncture for neuropathy?

It for sure sucks that we know that the next day will still be painful but also that it could be worse and nothing we can do but HOPE it either gets better or our pills help.

I just need to do...
Board: Neuropathy 10-25-2011, 02:05 PM
Replies: 9
Views: 1,248
Posted By RisingParrot
Re: Neuropathy

Thankfully w/my Ins I don't need a Referral...so it is pretty easy on me.

I agree it is difficult to find that right doctor.

J
Board: Neuropathy 10-25-2011, 01:47 PM
Replies: 20
Views: 6,752
Posted By RisingParrot
Re: Acupuncture for neuropathy?

I was able to get out of bed and make it to work...that alone is something right?

Guess a good way to put it is aggravated/frustrated w/the whole thing. I take the pills that after seeing 4...
Board: Neuropathy 10-25-2011, 12:10 PM
Replies: 9
Views: 1,248
Posted By RisingParrot
Re: Neuropathy

Healthcare System...I wasn't happy w/my first Neurologist...so I'm up to #4 now...won't settle w/just anyone treating me...want the best I can get.

Sorry to confuse you or any members.
J
Board: Neuropathy 10-25-2011, 07:24 AM
Replies: 9
Views: 1,248
Posted By RisingParrot
Re: Neuropathy

We for sure can only do what we can...some days are better then others but on those bad we must just take it more easy even if we don't want to. Don't risk making the condition worse or trying to do...
Board: Neuropathy 10-24-2011, 10:47 AM
Replies: 14
Views: 1,434
Posted By RisingParrot
Re: Neuropathy or something new?

Oh I've been on those before....I say for me they make me stupid LOL

Just keep an open mind and at least listen to them BUT remember...you know your body better then they do...

I'm hoping for...
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