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Board: Ear, Nose & Throat 02-22-2014, 04:42 PM
Replies: 1
Views: 275
Posted By Twinkie50
Re: Myringotomy adult w/o tube??

I have read that sometimes the tiny hole does not heal and it can cause worsening tinnitus. I would love to fly without horrid pain, but I do not need worsening ear trouble.
Board: Ear, Nose & Throat 02-22-2014, 04:27 PM
Replies: 1
Views: 275
Posted By Twinkie50
Question Myringotomy adult w/o tube??

Could really use some advice if anyone on here has had a myringotomy without tubes to help SEVERE ear pain when flying. I just saw my ENT because of a lingering sinus issue. That is clearing up, but...
Board: Irritable Bowel Syndrome (IBS) 08-23-2013, 12:26 PM
Replies: 39
Views: 12,626
Posted By Twinkie50
Re: IBS can lead to SIBO

I do yoga yes...just started recently again and it does make you feel mentally better. Also doing guided meditation - still need to get into a better schedule of more ME time...us women never seem...
Board: Irritable Bowel Syndrome (IBS) 08-23-2013, 08:38 AM
Replies: 39
Views: 12,626
Posted By Twinkie50
Re: IBS can lead to SIBO

Hi. Just something to chew on...!! If you are trying a new diet (and I have heard lots have had great success with FODMAP and that other diet...name escapes me now),really stick to it for a long...
Board: Irritable Bowel Syndrome (IBS) 07-29-2013, 03:39 PM
Replies: 39
Views: 12,626
Posted By Twinkie50
Re: IBS can lead to SIBO

Very good suggestions Karen!!! Good luck to you Lainey - only a few more days to wait right ????

MaryAnn
Board: Irritable Bowel Syndrome (IBS) 07-26-2013, 07:04 PM
Replies: 39
Views: 12,626
Posted By Twinkie50
Re: IBS can lead to SIBO

Well there ya go - Karen burped alot!!! I am SO THANKFUL for the ins. I have. I got my xifaxan paid for every single time no questions asked. And have had numerous refills on it and only paid...
Board: Irritable Bowel Syndrome (IBS) 07-26-2013, 11:13 AM
Replies: 39
Views: 12,626
Posted By Twinkie50
Re: IBS can lead to SIBO

Lainey - I did not have alot of belching with the SIBO - have you been tested for GERD or Hiatal Hernia? Not sure if I remember if you said you were given an endoscopy...not saying belching cannot...
Board: Irritable Bowel Syndrome (IBS) 07-24-2013, 04:36 PM
Replies: 39
Views: 12,626
Posted By Twinkie50
Re: IBS can lead to SIBO

Well it sounds like the wait will be worth it!!! I have never heard of Biaxin used for SIBO either. Keep in touch.
Board: Irritable Bowel Syndrome (IBS) 07-24-2013, 12:59 PM
Replies: 39
Views: 12,626
Posted By Twinkie50
Re: IBS can lead to SIBO

Hi Lainey - got an email that you had posted here!!! Sure you can join us in our agony!!! Keep the faith that this new GI will test you properly for the SIBO and give you the xifaxan. Just remind...
Board: Irritable Bowel Syndrome (IBS) 07-14-2013, 04:04 PM
Replies: 39
Views: 12,626
Posted By Twinkie50
Re: IBS can lead to SIBO

Hi Karen - well I have no secrets with the gluten free stuff!!! I just do not eat anything unless it says gluten free on it!! Keeps me away too from most processed foods - although I do eat gluten...
Board: Irritable Bowel Syndrome (IBS) 07-13-2013, 06:21 AM
Replies: 39
Views: 12,626
Posted By Twinkie50
Wink Re: IBS can lead to SIBO

[QUOTE=hopefloats36;5198819]Hi MaryAnn/Twinkie50,
I'm checking in again as it's been a while. How have you been managing since we last chatted? I've done quite well, but over the last month or so I...
Board: Irritable Bowel Syndrome (IBS) 06-08-2013, 10:12 AM
Replies: 4
Views: 789
Posted By Twinkie50
Re: Negative for Celiac, Gluten Sensitivity

A Hydrogen Breath Test I believe its called.
Board: Irritable Bowel Syndrome (IBS) 05-31-2013, 02:10 PM
Replies: 4
Views: 1,206
Posted By Twinkie50
Re: IBS or Lactose Intolerance? HOW DO YOU KNOW!!

Maybe do some research on small intestinal bacterial overgrowth. Many IBSers have this along with the IBS. Then find a GI doc who can send you for a breath test and see if you test positive.
Board: Irritable Bowel Syndrome (IBS) 05-31-2013, 02:07 PM
Replies: 4
Views: 789
Posted By Twinkie50
Re: Negative for Celiac, Gluten Sensitivity

I have had IBS for over 30 years. I was diagnosed a year ago with small intestinal bacterial overgrowth and was treated 3 times with antibiotics. I was also given blood tests and an endoscopy for...
Board: Fibromyalgia 05-05-2013, 05:43 AM
Replies: 7
Views: 619
Posted By Twinkie50
Re: Going Gluten Free For Hopful Relief. Advice? Suggestions?

Hi - I have had fibro for over 30 years along with IBS, and all the other things that go along with fibromyalgia. My stomach issues worsened a few years back and after lots of testing I was...
Board: Fibromyalgia 02-26-2013, 10:48 AM
Replies: 15
Views: 1,014
Posted By Twinkie50
Re: Gluten Intolerance

Wow - I don't eat much soy but everytime I have (like soymilk for example) I felt like crud. You just taught me something new!!! Thanks!!!!
Board: Fibromyalgia 02-26-2013, 03:40 AM
Replies: 15
Views: 1,014
Posted By Twinkie50
Re: Gluten Intolerance

Good for you !!! Now that I have changed my diet, I can honestly say I agree with you 100%. What goes in our bodies really truly indeed plays a huge part on how we feel. Especially people like us...
Board: Fibromyalgia 02-25-2013, 03:34 AM
Replies: 15
Views: 1,014
Posted By Twinkie50
Re: Gluten Intolerance

Oh Ok ... that makes sense now! Have you been breath tested for small intestinal bacterial overgrowth? You may want to look that up on internet. Not all GI doctors know much about it.
Board: Fibromyalgia 02-24-2013, 06:08 PM
Replies: 15
Views: 1,014
Posted By Twinkie50
Re: Gluten Intolerance

Not sure how you test for gluten (celiac disease) through a colonoscopy?? Testing is done by endoscopy and by taking a biopsy of the small intestine. Also, by bloodwork. I do not have celiac...
Board: Fibromyalgia 02-24-2013, 11:50 AM
Replies: 15
Views: 1,014
Posted By Twinkie50
Re: Gluten Intolerance

Hi - I have had fibro since my 20's and I am 54 now. Due to years of intestinal problems (IBS and small intestinal bacterial overgrowth) and also hearing alot about patients with fibro feeling so...
Board: Irritable Bowel Syndrome (IBS) 11-09-2012, 02:29 AM
Replies: 15
Views: 2,221
Posted By Twinkie50
Re: Scared!

Have you spoken to your doctor about a fibromyalgia diagnosis? Or, have you been tested for lyme disease? There is no real way to test for fibromyalgia besides the trigger points and basically...
Board: Menopause 11-08-2012, 06:34 AM
Replies: 9
Views: 5,419
Posted By Twinkie50
Re: weird aches and pains - Peri? Fibro?

good to hear - I have had an upper endoscopy too - no GERD damage but I do have GERD symptoms. I have had IBS since my 20's and fibro since then too. Seems like everything is accelerated since...
Board: Irritable Bowel Syndrome (IBS) 11-08-2012, 02:46 AM
Replies: 15
Views: 2,221
Posted By Twinkie50
Unhappy Re: Scared!

Has your doctor given you something to help with your anxiety? I have horrible anxiety - have my entire life. There are medications to help keep it under control. It is debilitating I know. Sounds...
Board: Menopause 11-08-2012, 02:42 AM
Replies: 9
Views: 5,419
Posted By Twinkie50
Re: weird aches and pains - Peri? Fibro?

Just read your post and I am having very similar problems. I am in menopause and have fibromyalgia but have been suffering with similar problems along with IBS and small intestinal bacterical...
Board: Urology 11-05-2012, 06:24 AM
Replies: 8
Views: 6,734
Posted By Twinkie50
Re: macrobid tingling and numbness - scared

Well, maybe call your doctor and tell him what is going on if you have not done so yet, and if you still have symptoms of the UTI get on an antibiotic you have used before, or get another urinalysis...
Board: Urology 11-05-2012, 02:34 AM
Replies: 8
Views: 6,734
Posted By Twinkie50
Re: macrobid tingling and numbness - scared

I hope you have stopped the drug ??? !!!!!
Board: Fibromyalgia 10-28-2012, 01:40 PM
Replies: 6
Views: 764
Posted By Twinkie50
Re: New here, Gluten free question

I would suggest that you research about eating foods with gluten - educate yourself and then make a decision whether you would like to try it or not. I have had FM for over 25 years and I try...
Board: Fibromyalgia 10-28-2012, 01:33 PM
Replies: 6
Views: 764
Posted By Twinkie50
Re: New here, Gluten free question

I don't think Fibromyalgia is caused by a gluten intolerance either, but gluten is not good for you and if we can remove any bad things from our already compromised system like gluten, processed...
Board: Fibromyalgia 10-28-2012, 04:40 AM
Replies: 6
Views: 764
Posted By Twinkie50
Re: New here, Gluten free question

I have fibromyalgia, IBS, small intestinal bacterial overgrowth and going thru menopause - ugh !!!!!! Anyway, I went on a strict gluten free diet over 3 mths ago. I am also limiting my sugars and...
Board: Irritable Bowel Syndrome (IBS) 10-25-2012, 03:58 AM
Replies: 4
Views: 7,934
Posted By Twinkie50
Re: pain in upper stomach and under left rib cage

why do *** my a l l 's look like *** ????? !!!!!!!!!
Board: Irritable Bowel Syndrome (IBS) 10-25-2012, 03:55 AM
Replies: 4
Views: 7,934
Posted By Twinkie50
Smile Re: pain in upper stomach and under left rib cage

Thank you for replying !!! I origin***y posted that post 2 years ago and I sit here 2 years later with the same problem and still worrying its my pancreas. I too was diagnosed with ibs back when it...
Board: Irritable Bowel Syndrome (IBS) 10-05-2012, 01:05 PM
Replies: 7
Views: 12,274
Posted By Twinkie50
Re: So sick of farting!

Oh and I forgot to mention, probiotics seem to make me worse ... I have tried several kinds and they are so expensive. I also had my stool tested last year - no parasites or anything of that sort,...
Board: Irritable Bowel Syndrome (IBS) 10-05-2012, 01:01 PM
Replies: 7
Views: 12,274
Posted By Twinkie50
Re: So sick of farting!

Hi - for me, after 4 rounds or maybe it was 5 rounds of xifaxan, I have gone gluten free, very low carbs and very low sugars. I feel fine on the xifaxan, but the symptoms have returned every single...
Board: Irritable Bowel Syndrome (IBS) 10-05-2012, 12:47 PM
Replies: 3
Views: 7,901
Posted By Twinkie50
Re: IBS-can it feel like hip /groin pain ?

Is it on your left side? I have had IBS for many many years. Alot of my pain is right in the left groin area and to the inner part of my hip bone. So I would say YES!!! Its way worse when I have...
Board: Digestive Disorders 10-01-2012, 12:35 PM
Replies: 19
Views: 2,717
Posted By Twinkie50
Re: Pleaseeee help. im at the end of my rope :(

Worth asking your GI doctor for the breath test to see if you have it. You kinda know already your lactose intolerant due to the fact that you feel better off dairy!!! Good luck
Board: Digestive Disorders 10-01-2012, 10:55 AM
Replies: 19
Views: 2,717
Posted By Twinkie50
Re: Pleaseeee help. im at the end of my rope :(

Constipation can be part of sibo too. Just do some research on Small Intestinal Bacterial Overgrowth on the internet. Many with IBS have it. MaryAnn Oh, P.S. I had constipation too - never...
Board: Digestive Disorders 10-01-2012, 04:25 AM
Replies: 19
Views: 2,717
Posted By Twinkie50
Re: Pleaseeee help. im at the end of my rope :(

[B]I would really inquire about testing for bacterial overgrowth. If cutting out dairy is not allieviating your symptoms entirely, you may need antibiotics if you test positive for bacterial...
Board: Irritable Bowel Syndrome (IBS) 09-25-2012, 03:16 AM
Replies: 4
Views: 2,252
Posted By Twinkie50
Re: Rifaximin / Xifaxan effective dosage?

Have you tried changing your diet? I know making some changes and experimenting with eliminating foods can greatly reduce IBS symptoms as well as the bacterial overgrowth.
Board: Irritable Bowel Syndrome (IBS) 09-24-2012, 03:11 PM
Replies: 4
Views: 2,252
Posted By Twinkie50
Re: Rifaximin / Xifaxan effective dosage?

I was treated with xifaxan several times in the last year for small intestinal bacterial overgrowth and yes, I have IBS too. I was given 550mg twice daily for 14 days the first time. The second...
Board: Digestive Disorders 09-24-2012, 03:05 PM
Replies: 19
Views: 2,717
Posted By Twinkie50
Re: Pleaseeee help. im at the end of my rope :(

Maybe you have small intestinal bacterial overgrowth. Maybe do some research about it and see if your GI doctor can do a hydrogen breath test for bacterial overgrowth - I believe it is a separate...
Board: Fibromyalgia 08-27-2012, 01:53 PM
Replies: 14
Views: 1,481
Posted By Twinkie50
Re: What do you say to people who think Fibro is not a real condition

I think my post would get deleted if I really wrote what I'd like to say to non-believers!!! :nono: Those are the ones that I would like to walk in my shoes for a few months. MaryAnn
Board: Irritable Bowel Syndrome (IBS) 07-31-2012, 03:26 AM
Replies: 7
Views: 12,274
Posted By Twinkie50
Re: So sick of farting!

sorry - hit reply before I was done!! Anyway, I was diagnosed with it 8 months ago. Many doctors believe close to 75% of IBS sufferers have SIBO also. Just a thought.... I was tested for celiac...
Board: Irritable Bowel Syndrome (IBS) 07-31-2012, 03:23 AM
Replies: 7
Views: 12,274
Posted By Twinkie50
Re: So sick of farting!

You may want to see a GI doctor and look into small intestinal bacterial overgrowth. I have had IBS for over 25 years - my symptoms changed a few years back - pain up high; SEVERE passing of gas;...
Board: Fibromyalgia 05-21-2012, 04:33 AM
Replies: 5
Views: 1,619
Posted By Twinkie50
Re: Sore skin.

Absolutely - its one of my worse symptoms. Last night, out of the blue, my right leg from above my knee up to my groin felt like a severe sunburn. I could not even stand my soft pj's touching my...
Board: Fibromyalgia 05-04-2012, 01:32 PM
Replies: 4
Views: 1,786
Posted By Twinkie50
magnesium malate brands????

Was recommended by other FMers to try magnesium malate - I have been taking magnesium oxide, but it just makes me go to the bathroom too much and I don't feel it helps with my pain.

I do need...
Board: Fibromyalgia 05-04-2012, 01:19 PM
Replies: 23
Views: 2,403
Posted By Twinkie50
Re: Wrong about fibro diagnoses need help

I hope your doctor is wrong too because having fibro is a nightmare. You do need to know though, that everyone feels the pain differently - some people are completely disabled from it; others work;...
Board: Fibromyalgia 05-04-2012, 01:15 PM
Replies: 3
Views: 766
Posted By Twinkie50
Re: Fellow sufferer need vitamin advice ?? !!

Hi - I am not taking anything for the menopause - my ob/gyn and my pirmary doctor are against it and thats ok with me. Its mostly the hot flashes that get to me and keep me up at night, but it comes...
Board: Vitamins & Supplements 05-02-2012, 12:17 PM
Replies: 4
Views: 1,355
Posted By Twinkie50
Re: I could use some expert advice!!!

Thanks for your advice! The man at the vitamin store by me did give me a brochure on New Chapter Bone Strength Cal/Mag Vit D3 and Natural K2 complex. I bought a sample supply to try. As far as Vit...
Board: Fibromyalgia 05-02-2012, 04:25 AM
Replies: 3
Views: 766
Posted By Twinkie50
Question Fellow sufferer need vitamin advice ?? !!

Hi - my head is spinning looking for certain types of vitamins for several reasons. Been reading on-line - visiting my local health food store (felt they had no idea what they were talking...
Board: Vitamins & Supplements 05-02-2012, 04:18 AM
Replies: 4
Views: 1,355
Posted By Twinkie50
Question I could use some expert advice!!!

Hi - my head is spinning looking for certain types of vitamins for several reasons. Been reading on-line - visiting my local health food store (felt they had no idea what they were talking...
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