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Board: Multiple Sclerosis 09-16-2004, 07:04 PM
Replies: 3
Views: 1,167
Posted By Soleil11
Re: new medication.......

Well, it is Washington State, and this is new as of Sept. And, it isn't quite working how you said, that is the old way of dealing with Rx's not covered. This will be the 4th one I have tried. I...
Board: Cancer: Colon 09-16-2004, 06:57 PM
Replies: 11
Views: 3,353
Posted By Soleil11
Re: Rectal cancer...clarification on some things

I have had colo-rectal cancer about 3 yrs. ago. As for all your questions, I found the surgeon really covers the bases AFTER the results are in.
If it is cancerous, they will talk to your mother...
Board: Multiple Sclerosis 09-14-2004, 10:51 PM
Replies: 3
Views: 1,167
Posted By Soleil11
Question new medication.......

The state I live in quit covering a medication I was on for spasticity. I have used several, but the one they are choosing to cover as of this month w/ no prior warning is Methocarbomol. I have ...
Board: Cancer 09-13-2004, 08:45 PM
Replies: 7
Views: 1,700
Posted By Soleil11
Re: Brain Cancer

I also had my mother die from brain cancer, mestastized from the lung area. Vision symptoms, kaleidiscope as mentioned by another poster and she had TIA's, mini strokes as well with it. it was a...
Board: Fibromyalgia 02-09-2004, 07:33 PM
Replies: 17
Views: 3,572
Posted By Soleil11
Re: Fybromyalgia Causes

Oh, I have'nt been here for a very long while, and the one nite I check in is the time I get to hear misty, Misty share all her research. Thank you. I regret to say I have had a winter that has taken...
Board: Cancer: Colon 12-02-2003, 05:26 PM
Replies: 22
Views: 13,848
Posted By Soleil11
Re: Large Polup Removal

Holy cow! There must be more to this than what you said. I had a cancerous, large aggressive growth, and they only took the growth. You shoud get a 2nd opinion immediately. I would not want that if I...
Board: Cancer: Colon 12-02-2003, 05:22 PM
Replies: 13
Views: 2,634
Posted By Soleil11
Re: Please tell me more about pills instead of phospho-soda...

I agree with above poster... I had the colorectal cancer, and you will have a lot more prepping to do if you are diagnosed. Then, after surgery, I had referred pain that they ended up ordering a ct...
Board: Cancer: Colon 12-01-2003, 07:45 PM
Replies: 3
Views: 1,759
Posted By Soleil11
Had colorectal-cancer...GET TESTED

Just reading thru these..... I never thought I would have cancer, ever, have too many other inflammatory type conditions. Said I am not a cancer type.
My dad had it, but I just traveled along not...
Board: Fibromyalgia 12-01-2003, 07:35 AM
Replies: 2
Views: 690
Posted By Soleil11
Re: Working and S. Security??

Thanks for answering me on this. With the conomy the way it is, Makeup sounds like it might go by the wayside for home sales, or maybe I didn't understand what exactly you were selling and how? But,...
Board: Fibromyalgia 11-30-2003, 02:56 PM
Replies: 2
Views: 690
Posted By Soleil11
Working and S. Security??

I am considering attempting p-time work search, have been on S.S. for 10 yrs.
I might be crazy to do do this. I would like input from anyone who has tried this after not working for so long. I don't...
Board: Fibromyalgia 11-29-2003, 08:01 PM
Replies: 4
Views: 1,336
Posted By Soleil11
Re: Been gone for awhil...

Probably won't read this as it's so far down the line now, but here goes?? No, don't have Reynaud's syndrome, at least that is one thing we don't have in common.
Also, I know about the diet pop,...
Board: Fibromyalgia 11-23-2003, 09:57 AM
Replies: 18
Views: 12,396
Posted By Soleil11
Thumbs down Re: Poll**what meds are you on for your fibro???

Please change Rheumatologists, this sounds like poor doctoring and there is a lot that can be done, meds, and massage therapy thru PT if it is billed right so it gets paid for. If you have spinal...
Board: Fibromyalgia 11-22-2003, 06:51 PM
Replies: 4
Views: 985
Posted By Soleil11
Re: OMEGA 3 oils

Yes, I was taking Omega3, but have changed to organic Flax Oil. I take cod liver oil capsules with it. I kept getting hot after taking the fish oil. I started thinking that maybe the oil was...
Board: Fibromyalgia 11-22-2003, 06:43 PM
Replies: 4
Views: 1,336
Posted By Soleil11
Re: Been gone for awhil...

Hi to Misty, Misty.... Ya' I have bulging discs too. I believe that is why I get pinched nerve feeling in the lumbar area for the past month if I try to walk any distance, I mean like thru a store...
Board: Fibromyalgia 11-22-2003, 10:19 AM
Replies: 4
Views: 1,336
Posted By Soleil11
Been gone for awhil...

I have had a hard time with the snow and wet weather and can't seem to check in here like I used to......Poster(Misty,Misty) .... I don't have Messenger and can't sit at the computer very long since...
Board: Fibromyalgia 11-11-2003, 12:18 PM
Replies: 5
Views: 967
Posted By Soleil11
Hi, Will try what you suggested in Yahoo in a few...

Hi, Will try what you suggested in Yahoo in a few days. Will be gone for a few again. Oh, I did know that Pregabalin wasn't a HGH, do not why I wrote that. I remember that the hospital's clinic...
Board: Fibromyalgia 11-10-2003, 01:43 PM
Replies: 5
Views: 967
Posted By Soleil11
Wink Thanks for the note.... I agree with everything...

Thanks for the note.... I agree with everything you said... it is a combo of everything to improve the health situation. I think maybe experiments are being done by ET's on certain of us. That would...
Board: Fibromyalgia 11-10-2003, 10:06 AM
Replies: 4
Views: 538
Posted By Soleil11
If you go back through the pages of posts, can't...

If you go back through the pages of posts, can't remember where, but someone on here has info that may help you if you decide you need it. You could go by subject posted to get to that info.
Board: Fibromyalgia 11-10-2003, 10:00 AM
Replies: 5
Views: 967
Posted By Soleil11
Misty, Misty, (Poster)

I haven't been on in awhile and noticed a post you left and then deleted. I have had many things of life to deal with. I am feeling better, think my last post I had been feeling ill for awhile like a...
Board: Fibromyalgia 10-26-2003, 10:31 AM
Replies: 7
Views: 568
Posted By Soleil11
Post I wanted to add after reading replies that I also...

I wanted to add after reading replies that I also feel better in the summer except for those really hot days which then cause stiffness and retention and swelling. I do not normally retain fluid, but...
Board: Fibromyalgia 10-23-2003, 07:32 PM
Replies: 7
Views: 568
Posted By Soleil11
Post Flare Time for Most??

I have been not well for about a month.Curious as to whether others are in a flare period where it is worse now with the weather change, even tho it's not really cold out. It still is a season change...
Board: Fibromyalgia 10-23-2003, 07:28 PM
Replies: 6
Views: 640
Posted By Soleil11
Post I've been on a sleeing pill for many yrs. (Pro...

I've been on a sleeing pill for many yrs. (Pro Som) seems to not have hardly any side effects, and helps some. Some of them I would not take. It helps, but you have a small window where you can fall...
Board: Fibromyalgia 10-23-2003, 07:19 PM
Replies: 3
Views: 420
Posted By Soleil11
Post For many people, not all, Soma with your pain med...

For many people, not all, Soma with your pain med is more effective taken together for pain.
Board: Fibromyalgia 10-23-2003, 07:15 PM
Replies: 0
Views: 452
Posted By Soleil11
Post Undifferentiated connective tissue disorder?

Just read it here in a post.... could someone tell me what it is and what the symptoms are and treatment as well? How did it start? Curious.... thanks
Board: Fibromyalgia 10-23-2003, 07:11 PM
Replies: 2
Views: 424
Posted By Soleil11
Post I am really glad for you that you just moved on...

I am really glad for you that you just moved on this after reading your posts.
If you cannot work due to pain, fatigue,etc. then it only makes sense you have to get some disability filed. You are...
Board: Fibromyalgia 10-20-2003, 07:26 PM
Replies: 3
Views: 527
Posted By Soleil11
Post What type of care provider tested you for Fibro? ...

What type of care provider tested you for Fibro?
The "test" is clinical history and your symptoms and some tender areas. It doesn't have a blood test at this point. Let us know what the dr. said...
Board: Fibromyalgia 10-18-2003, 06:30 PM
Replies: 3
Views: 539
Posted By Soleil11
Post Geez, here I go about LDN again, if you aren't on...

Geez, here I go about LDN again, if you aren't on morphine based medication, there is something helping Fibromyalgia. But, one would need to do the regimen before you are on pain med. Talk to the...
Board: Fibromyalgia 10-18-2003, 06:25 PM
Replies: 7
Views: 1,560
Posted By Soleil11
Post Everything said here is so good. If you are...

Everything said here is so good. If you are diagnosed on the appt. in Dec. please check back here and talk to poster(mIsty,Misty). She has made a dent in this disease with a protocol she has been on...
Board: Multiple Sclerosis 10-17-2003, 09:02 PM
Replies: 21
Views: 2,992
Posted By Soleil11
Post This is only to say I hear you and have these...

This is only to say I hear you and have these problems also. I don't have the answer for you, but wanted you to know I read your post. Please take care of yourself and I hope you don't lose your job....
Board: Fibromyalgia 10-17-2003, 08:48 PM
Replies: 11
Views: 3,124
Posted By Soleil11
Post Nice to be abel to admit here I am having anxiety...

Nice to be abel to admit here I am having anxiety lately. It is significant and I am trying to pin down a trigger. It is almost like it is in the air. It just is. It is unpleasnat and i don't recall...
Board: Fibromyalgia 10-14-2003, 10:16 AM
Replies: 2
Views: 1,195
Posted By Soleil11
Post I am suggesting MSM, a supplement that is...

I am suggesting MSM, a supplement that is harmless as water. Have been on for a few months now. It will help some, which is better than what you are dealing with. I believe you could use some gentle...
Board: Fibromyalgia 10-14-2003, 10:07 AM
Replies: 4
Views: 1,090
Posted By Soleil11
Post I wrote everything down and thanks for putting it...

I wrote everything down and thanks for putting it on here. I usually weed and pick thru ideas as i have tried a lot and have so many side effects as do so many of us. Thanks for your time and I will...
Board: Fibromyalgia 10-12-2003, 11:11 PM
Replies: 3
Views: 1,510
Posted By Soleil11
Post Well, I have Medicare and Medicaid, cheap...

Well, I have Medicare and Medicaid, cheap insurances. And, the way my dr. does it is to RX for myofascial pain release. Then, Pt will do massage therapy and it goes thru, at least it has for me for...
Board: Fibromyalgia 10-12-2003, 11:06 PM
Replies: 7
Views: 949
Posted By Soleil11
Post Just a note about the ankle feeling like it will...

Just a note about the ankle feeling like it will break when you step on it. Isn't this too much. At the drs. brought it up as well PT. This is what they said, nerve involvement. I said it feels like...
Board: Fibromyalgia 10-12-2003, 10:59 PM
Replies: 4
Views: 1,090
Posted By Soleil11
Post Oh, Geez, thank you Misty, Misty, for the info....

Oh, Geez, thank you Misty, Misty, for the info. I'm the one that couldn't transition to LDN a while back. But, this sounds hopeful. I will talk to my dr at the next visit which isn't for a month and...
Board: Fibromyalgia 10-06-2003, 11:25 AM
Replies: 1
Views: 568
Posted By Soleil11
Post I have been diagnosed with chostochondritis since...

I have been diagnosed with chostochondritis since an auto accident a few yrs. ago. It set in with the injuries. I really didn't get good enough care at Pt. At a different clinic now who works on it...
Board: Fibromyalgia 09-28-2003, 09:40 PM
Replies: 9
Views: 971
Posted By Soleil11
Post One more thing...buy Tiger balm and put a small...

One more thing...buy Tiger balm and put a small amount massaged into the muscle knots, you will get relief shortly. It does help, strongest of all the stuff in my experience. Do this right away. I am...
Board: Fibromyalgia 09-28-2003, 09:29 PM
Replies: 9
Views: 971
Posted By Soleil11
Post Adding my 2 cents here, you need the pain...

Adding my 2 cents here, you need the pain medication, that is what it is for, they know it is painful. And, what else helps IS the PT, but the stretches and myofscial release, being for me massage...
Board: Fibromyalgia 09-17-2003, 05:24 PM
Replies: 5
Views: 521
Posted By Soleil11
Post You must have been out of the country, are you...

You must have been out of the country, are you sure you haven't been overseas in the past 5 yrs? Otherwise, it is all in your head...
Board: Fibromyalgia 09-17-2003, 05:05 PM
Replies: 7
Views: 1,191
Posted By Soleil11
Post I don't believe as the above poster said that...

I don't believe as the above poster said that myofascial pain is just in your face. That couldn't have been what was meant?
Myofascial pain syndrome causes muscle knots that are extremely painful...
Board: Fibromyalgia 09-16-2003, 06:40 PM
Replies: 2
Views: 355
Posted By Soleil11
Post Just a tought, please request a referral to a...

Just a tought, please request a referral to a rhuematologist. They are who normally diagnose Fibromyalgia or naything like it. Don't know why the the Otho suggested the other specialist, but they...
Board: Costochondritis 09-15-2003, 11:15 AM
Replies: 7
Views: 3,844
Posted By Soleil11
Post Kathy, been gone for a bit, sorry it has taken so...

Kathy, been gone for a bit, sorry it has taken so long to respond. I do have some of that swallowing difficulty. I know the feeling of food feeling stuck in the diaphragm. I am not a dr. so this is...
Board: Costochondritis 09-08-2003, 06:01 PM
Replies: 7
Views: 3,844
Posted By Soleil11
Post Kathy, one more thing, probably MS doesn't help...

Kathy, one more thing, probably MS doesn't help the situation as they have said the spasticity just contributes to the tight pulling in rib cage. So, in that repect it is a contributor to the...
Board: Costochondritis 09-08-2003, 05:57 PM
Replies: 7
Views: 3,844
Posted By Soleil11
Post Kathy, I also am diagnosed with MS. I don't know...

Kathy, I also am diagnosed with MS. I don't know if there is a correlation, tho, to costochondritis. I also had an auto accident as I said in above post and my ribs and rib/sternum and mid-back have...
Board: Costochondritis 09-06-2003, 07:21 PM
Replies: 7
Views: 3,844
Posted By Soleil11
Post Well, it is hard to say since PT has called it...

Well, it is hard to say since PT has called it costochondritis, I have exactly what you have ever since an auto accident 3yrs. ago. Then, I am diagnosed with myofascial pain syndrome at one time and...
Board: Fibromyalgia 09-03-2003, 07:01 PM
Replies: 3
Views: 483
Posted By Soleil11
Post Just read this about the tennis balls and...

Just read this about the tennis balls and reminded me of my screwdriver I use. I'll probably be thought a kook, but I have resorted to poking and holding on the worst pains and then releasing with a...
Board: Pain Management 08-20-2003, 08:46 PM
Replies: 4
Views: 1,803
Posted By Soleil11
Post Hi--I have your same rib pain areas, left side,...

Hi--I have your same rib pain areas, left side, excruciating, I have knife stab pain just to side of mid-thoracic. Just makes me crazy with pain.
I use ice, try Tiger Balm salve from drugstore,...
Board: Pain Management 08-20-2003, 08:38 PM
Replies: 11
Views: 1,183
Posted By Soleil11
Post One more thing... you mentioned having a shot of...

One more thing... you mentioned having a shot of morphine. I would suffer thru the pain until they are done with exam. If you have a shot of morphine, your range of motion will good because you won't...
Board: Fibromyalgia 08-15-2003, 09:12 PM
Replies: 7
Views: 827
Posted By Soleil11
Post There is a protocol called lowdose naltrexone....

There is a protocol called lowdose naltrexone. Ask (poster on here, (Misty, Misty) about it. It could help you! Soleil
Board: Fibromyalgia 08-15-2003, 09:06 PM
Replies: 7
Views: 648
Posted By Soleil11
Post I am thrilled that Bextra gave you your life...

I am thrilled that Bextra gave you your life back. It is good when something finally HELPS! You are indeed fortunate that there is something that makes a difference. Unfortunately,I did not have...
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