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Board: Muscular Dystrophy 12-08-2011, 01:55 PM
Replies: 4
Views: 958
Posted By Dreaman
Re: Stressing out

Greetings,
I have LMGD MD- My legs are doing similar to yours-backstep- knee buckle and I also have hip flexor problem. Its been worse in just the past year. I also understand the frustration in...
Board: Muscular Dystrophy 08-26-2011, 10:37 AM
Replies: 6
Views: 2,139
Posted By Dreaman
Re: explain leg problems to friends and family

Thanks

I think they get it about the weakening or wasting of the muscles but they don't get why I can walk but can't get out of a chair,do steps,walk uphill,etc. They give all sorts of advice on...
Board: Muscular Dystrophy 07-15-2011, 10:29 AM
Replies: 6
Views: 1,762
Posted By Dreaman
Re: Help!

Mandy

My heart goes out to you. I am definately on your side. You seem to be making the right decisions for your situation at this time. Trust your instincts I figure he means well but he's not...
Board: Muscular Dystrophy 07-14-2011, 01:14 PM
Replies: 17
Views: 4,732
Posted By Dreaman
Re: When do i need a walking aid?

Min,

Wow that is an interesting spot your in. That can be such a big step. Wish I could help but of course the decision has to be yours and what is the best at this time. Once you weigh all the...
Board: Muscular Dystrophy 07-04-2011, 01:11 PM
Replies: 23
Facioscapulohumeral Homebound
Views: 4,691
Posted By Dreaman
Re: Homebound

2807 You're husband sounds real thoughtful - that is supper. I would say if you like the standard -stick with it but at the same time depending on your financial situation (meaning if you can't...
Board: Muscular Dystrophy 07-01-2011, 06:13 PM
Replies: 23
Facioscapulohumeral Homebound
Views: 4,691
Posted By Dreaman
Re: Homebound

To all,
I don't know which is worse the physical or the mental. I guess It depends on the day.
I get my boost every day from a poem my daughter wrote( she passed away from Cystic Fibrosis in 1996...
Board: Muscular Dystrophy 06-29-2011, 05:12 PM
Replies: 2
Views: 1,275
Posted By Dreaman
Re: Testing results

Hang in there.I know the not knowing is very stressfull but maybe they will find something that can be helped. Keep us posted.I for one am praying for you.

Later, Dreaman
Board: Muscular Dystrophy 06-14-2011, 10:12 PM
Replies: 17
Views: 4,732
Posted By Dreaman
Re: When do i need a walking aid?

Hi
I too went through this period and it is a difficult thing to admit it is even needed. I am 59 and have been using an arm crutch for about 5 yrs. I use 2 if I am walking on uneven ground(which...
Board: Muscular Dystrophy 05-15-2011, 04:17 PM
Replies: 30
Views: 9,505
Posted By Dreaman
Smile Re: Does this happen to anyone else?

Mark
I know exactly what you are saying. I can't walk on anything uneven and I can't do stairs. I feel more comfortable with just socks on or completely flat shoes.This is so hard to explain to...
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