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Board: Depression 11-08-2010, 04:52 AM
Replies: 5
Views: 1,750
Posted By goldenwings
Re: can anybody explain the difference please?

Hiya Dan, thanks once again for the info. At the moment I am down. Just had a visit from 2 support workers who work in the mental health field. Very strange to actually be talking to someone about...
Board: Depression 11-06-2010, 02:38 PM
Replies: 5
Views: 1,750
Posted By goldenwings
Re: can anybody explain the difference please?

Hiya Dan, thanks for replying. In the past I have been told I have depression, but I suppose because I haven't seen this particular chappy before and he doesn't know me, then he is erring on the...
Board: Depression 11-04-2010, 06:38 AM
Replies: 5
Views: 1,750
Posted By goldenwings
can anybody explain the difference please?

Hiya, I haven't posted on this forum before and wondered if anybody would be able to help me?

I am such a private person and normally put on the mask of being ok. I am strong to the point that if...
Board: Lupus 02-06-2010, 09:59 AM
Replies: 5
Views: 2,138
Posted By goldenwings
Smile Re: doctor appt. needs some advice please

Hi kedl,

The problem with fluorescent lights affects lots of people with lupus and also without lupus.

It's difficult to do much about if it is in stores and so on, where you can't ask them...
Board: Lupus 02-04-2010, 10:48 AM
Replies: 5
Views: 2,138
Posted By goldenwings
Smile Re: doctor appt. needs some advice please

Hiya kdel,

it seems as though you are going through the usual steps for eradication of the 'obvious' things that might be wrong with you at this time and in the past and then if that doesn't...
Board: Fibromyalgia 02-04-2010, 10:23 AM
Replies: 11
Views: 2,318
Posted By goldenwings
Smile Re: I Love My Body

Wow my sister, so, so true. Deeply moving as usual.

goldenwings :angel:
Board: Lupus 01-25-2010, 09:18 AM
Replies: 5
Views: 1,764
Posted By goldenwings
Re: lupus

Hiya, I too am in the UK and would like to welcome you both.

What I would suggest firstly is that you strive to get a good lupus doctor. This I know is hard to do as in the UK it is difficult...
Board: Costochondritis 01-25-2010, 09:09 AM
Replies: 5
Views: 3,006
Posted By goldenwings
Re: CONFUSED,about COSTO-CHRONDRISTIS

Hello there, may I suggest that you go to the top of this page and in the search engine on the left hand side type in Costochondritis? There is so much information given in this section by members...
Board: Lupus 06-12-2009, 12:22 PM
Replies: 7
Views: 1,707
Posted By goldenwings
Smile Re: Confused & Medicated #2

Hiya Bk73,

In some cases a course of steroids for a short time does the trick in bringing the inflammation under 'control'. It will give you pain relief and after the doctors have looked into...
Board: Lupus 06-11-2009, 03:15 PM
Replies: 15
Views: 3,110
Posted By goldenwings
Smile Re: Uncertain....

Hiya 33 & Tired,


As Veej has already mentioned APS, I too think you must and need to be tested for it, especially with your history of miscarriage. APS/sticky blood can also cause other...
Board: Lupus 06-11-2009, 02:59 PM
Replies: 7
Views: 1,707
Posted By goldenwings
Smile Re: Confused & Medicated #2

Hiya Bk73 :wave:

I speak as a patient with SLE for over 30 years and not as a medical doctor.

deleted


To answer your question about prednisone helping with fibro, it is not normally used...
Board: Autoimmune Disorders 06-05-2009, 04:59 AM
Replies: 9
Views: 11,035
Posted By goldenwings
Re: acne lump like on the armpits

Hiya j,

I agree with dandelion, it seems to me that the sypmtoms and the way you describe the condition it is hidradenitis suppurativa.

Mine was diagnosed after ....wait for it....10 years!! ...
Board: Lupus 05-25-2009, 03:37 PM
Replies: 13
Views: 2,318
Posted By goldenwings
Re: BIG BIG diet changes for health...maybe :)

Good on you girl!! If it suits you then carry on - keep an eye on things though, don't overdo it with too many veggies as this can give you a bad tummy. If you like cauliflower, why not try it with...
Board: Lupus 05-20-2009, 07:32 AM
Replies: 6
Views: 1,465
Posted By goldenwings
Cool Re: Is chronic pain something that is experienced?

Hiya jj,

further to my 1st post - one thing I must advise against is actually 'telling' the doctor that you think you have lupus. Some doctors can be very sensitive about patients telling them...
Board: Lupus 05-19-2009, 05:33 PM
Replies: 6
Views: 1,465
Posted By goldenwings
Smile Re: Is chronic pain something that is experienced?

Hiya JJ,

Reading your post, I am sorry but I am not sure whether you have an actual diagnosis of lupus or not, but yes chronic pain can be involved. Thing is though having an 'on the ball'...
Board: Lupus 05-19-2009, 06:18 AM
Replies: 4
Views: 1,216
Posted By goldenwings
Cool Re: flourescent lights

Hiya Marsha,

Hopefully this will explain how to do it for you.

At the top left of this page click on My Settings. It will take you to Your Control Panel again on the left hand side. Then go...
Board: Lupus 05-18-2009, 10:23 AM
Replies: 4
Views: 1,216
Posted By goldenwings
Cool Re: flourescent lights

Hiya Marsha,

I had a really bad experience yesterday because of these lights in a food store. I felt dizzy and so horrid.

I have found information for you for products/covers for fluorescent...
Board: Lupus 05-16-2009, 06:53 PM
Replies: 5
Views: 1,613
Posted By goldenwings
Red face Re: Testing

Hello flahers,

wow, first thing I thought was you should change your doctor. The way he/she is looking into giving you a definite diagnosis or their actual thoughts on your having lupus is...
Board: Fibromyalgia 05-11-2009, 05:33 AM
Replies: 6
Views: 3,666
Posted By goldenwings
Smile Re: ear/face pain and fibro?

Hi there, sounds to me - as a patient with it - that you might have trigeminal neuralgia. This can affect the ears, face and scalp and is so very painful at times.

It doesn't occur though as a...
Board: Lupus 05-07-2009, 05:40 PM
Replies: 4
Views: 13,949
Posted By goldenwings
Smile Re: Itchy facial rash

Hello there, You aid you have seen and tralked with a doctor regarding this question. The thing is with a 'true' malar rash the nose will be red as will the cheeks red but the 'folds' at the side of...
Board: Lupus 05-02-2009, 07:46 AM
Replies: 18
Views: 3,757
Posted By goldenwings
Smile Re: question

Hiya Erica,

got me scratching my head on this one. "Excessive thirst may be a symptom of high blood sugar (hyperglycemia). It can be an important clue in detecting diabetes". You know this and...
Board: Lupus 04-30-2009, 09:56 AM
Replies: 8
Views: 2,402
Posted By goldenwings
Re: Rheumie big fat jerk!!!

Hiya B, to start may I say something - ggrrrr!! it makes me so mad when anybody - not only doctors - have this attitude and way of going about things !!

Ok so having a positive ANA does not have...
Board: Lupus 04-30-2009, 04:47 AM
Replies: 18
Views: 3,757
Posted By goldenwings
Thumbs up Re: question

Hiya Erica,

I have the same thing going on. Does the dryness only affect your mouth? I ask because a number of years ago diagnosed with Sjogrens Syndrome. I personally find articificial saliva...
Board: Lupus 04-29-2009, 09:17 AM
Replies: 4
Views: 1,943
Posted By goldenwings
Smile Re: Terrified during the most exciting time of my life

Hiya, just to add my thoughts on this. Only a rheumatologist can say if you have lupus or any other type of illness. Symptoms you speak of could point to a whole lot of things. This is why it is...
Board: Lupus 04-29-2009, 08:56 AM
Replies: 8
Views: 4,634
Posted By goldenwings
Smile Re: i have lupus and i must stay out of sun does this include shade?

Hiya, if you do venture out into the sun then be sensible and cover up well with light cotton clothing, long sleeved shirts and long skirts or even cotton trousers. Plenty of sunscreen and always...
Board: Lupus 04-27-2009, 05:45 PM
Replies: 2
Views: 1,242
Posted By goldenwings
Smile Re: Oh the itching! Its new!

Hiya derlinda,

I too have this type of itching. Sometimes it drives me scatty! Thing is though it might not een be associated with lupus, it is a condition that can affect anybody, even if they...
Board: Lupus 04-25-2009, 04:28 AM
Replies: 4
Views: 873
Posted By goldenwings
Smile Re: Diagnosed this week

Hiya Amethyst,:wave:

I'm happy to meet you. Veej has given you such good advice as she normally does.

The only thing I would add is that if you have any - and I do mean any - questions, ask,...
Board: Lupus 04-25-2009, 04:19 AM
Replies: 13
Views: 2,318
Posted By goldenwings
Smile Re: BIG BIG diet changes for health...maybe :)

Hiya derlinda,

Good for you looking into things that will be of benefit in the dietary department. I personally have never changed my diet in any way. I just don't eat what doesn't feel good....
Board: Lupus 04-21-2009, 06:23 PM
Replies: 11
Views: 2,818
Posted By goldenwings
Smile Re: Am i the only one who cant take meds?

Hiya derlinda,

Good to speak to you again. I have not been able to take pain meds for a number of years, but could tolerate some not too strong ones many many years ago before all of my other...
Board: Fibromyalgia 04-21-2009, 07:18 AM
Replies: 7
Views: 1,254
Posted By goldenwings
Re: Stretching Exercises

Thanks blue. I am trying to come back and post more and more. Time will enable me to do this, things are still painful emotionally but I know you are there and that makes my heart sing.

Thank...
Board: Lupus 04-21-2009, 07:04 AM
Replies: 11
Views: 2,818
Posted By goldenwings
Smile Re: Am i the only one who cant take meds?

Hiya derlinda,

I cannot take pain meds either. NSAID's are a no-no. I am on so many other medications for other serious problems so I have to be very careful. The only thing I take is...
Board: Fibromyalgia 04-21-2009, 06:50 AM
Replies: 7
Views: 1,254
Posted By goldenwings
Smile Stretching Exercises

Hello there,

I wonder if any of you have used the gentle stretching exercises I have posted in the past? If you have used them would you mind letting me know how you got on with them ?

I have...
Board: Fibromyalgia 04-20-2009, 06:40 AM
Replies: 35
Views: 15,153
Posted By goldenwings
Smile Re: Anyone else have rib pain?

Hiya everyone,

Just come on after a long absence and seen this post. Thing is costo and Tietze's do differ in that with Tietze's the pain is accompanied by redness/swelling in the areas that are...
Board: Lupus 04-16-2009, 04:17 AM
Replies: 7
Views: 2,733
Posted By goldenwings
Smile Re: hughes syndrome

Hiya luvcows,

the thing is the type of doctor you should see is dependent on the symptoms you are having. Some patients do have to see quite a few different specialists for specific problems...
Board: Lupus 04-09-2009, 05:37 AM
Replies: 13
Views: 4,021
Posted By goldenwings
Smile Re: Prednisone here i come! help...

Hiya Angel

Personally I too would not even think of my depression having anything at all to do with prednisolone. My life in general has at times been rough and circumstances have been hard. ...
Board: Lupus 03-30-2009, 07:38 AM
Replies: 13
Views: 4,021
Posted By goldenwings
Smile Re: Prednisone here i come! help...

Hiya derlinda, as you said you tried with the pred and it didn't work for you but I know you will give something else a go if you have to. Work with your doctors and in time there will be something...
Board: Arthritis 03-29-2009, 07:44 AM
Replies: 14
Views: 7,047
Posted By goldenwings
Re: plaquenil

Kim,

I don't now whether your comment was tongue in cheek or not, but I myself do not claim to be an expert, as the wording at the end of my posts will show but someone who hopes to be able to...
Board: Arthritis 03-28-2009, 06:01 AM
Replies: 14
Views: 7,047
Posted By goldenwings
Smile Re: plaquenil

Hi there, the use of plaquenil is for control of inflammation, it is not classed as a 'painkiller'. It does take time to start to work and as with any other strong medications, must be tapered or...
Board: Costochondritis 03-27-2009, 04:36 PM
Replies: 2
Views: 7,465
Posted By goldenwings
Smile Re: costochondritis and exercise?

Hi there sweetie40,

I can't comment on the skiing as I don't ski, but I have had massive problems with costo over a number of years. Thing is the best thing for it to decrease the inflammation...
Board: Lupus 03-27-2009, 06:57 AM
Replies: 2
Views: 954
Posted By goldenwings
Smile Re: Help me clam down plz!

Hiya derlinda, sorry it's late but only just seen your post.

I totally understand how you feel in regard to the panic and worry when something new happens to your body. The fear of the unknown...
Board: Lupus 03-26-2009, 06:14 AM
Replies: 4
Views: 2,243
Posted By goldenwings
Smile Re: Lupus and weight gain question

Hiya sophie,

As you said you had not been prescribed any medications to perhaps bring on the weight gain, then one of the thing causing this could be a lack of exercise. It follows that if you...
Board: Lupus 03-26-2009, 06:00 AM
Replies: 1
Views: 1,384
Posted By goldenwings
Smile Re: usage of prednisalone

Hiya bryld,

Sorry only just seen your post. No idea of what you were given for your stomach probs it could have been any number of meds for the protection of your insides but I am sure your GP...
Board: Lupus 03-25-2009, 10:44 AM
Replies: 13
Views: 4,021
Posted By goldenwings
Smile Re: Prednisone here i come! help...

Hiya derlinda,

As I said the post I put up first was only from my own experience and you will most probably get more replies from others memebrs of the forum giving you their personal accounts of...
Board: Lupus 03-25-2009, 10:25 AM
Replies: 13
Views: 4,021
Posted By goldenwings
Smile Re: Prednisone here i come! help...

Hiya derlinda,

This is only from my own personal experience and not in a doctor type of way.

I have been taking steroids/prednisone for more than 30 years since I was little 'un because I was...
Board: Lupus 03-20-2009, 05:38 AM
Replies: 1
Views: 1,296
Posted By goldenwings
Smile Re: is this lupus

Hiya ren772,

Only a doctor would be able to specifically state that you have lupus of any type. It is diagnosed not only by ANA tests, but by a number of other factors being part of the...
Board: Lupus 03-20-2009, 05:06 AM
Replies: 2
Views: 1,561
Posted By goldenwings
Smile Re: normal ana test

Hiya, I am giving this information as a person with SLE, not as a doctor.

The value of the ana test is determined by lots of factors. The results of an ANA test are usually given in titres, which...
Board: Lupus 03-17-2009, 08:05 AM
Replies: 7
Views: 2,733
Posted By goldenwings
Re: hughes syndrome

Hiya amelaine,

As you obviously know both ms and lupus are auto immune disorders and are often mistaken for each other. You do need a definitive diagnosis for this and your doctor should be more...
Board: Lupus 03-14-2009, 07:32 AM
Replies: 4
Views: 1,663
Posted By goldenwings
Smile Re: Not Lupus! Now what???

Well hello my friend derlinda,

Sorry not to have been on before, but as you know what is going on with me I know you will be ok with that.

Well, I am surprised to read that your diagnosis of...
Board: Lupus 03-14-2009, 07:20 AM
Replies: 7
Views: 2,733
Posted By goldenwings
Re: hughes syndrome

Hello,

I have aps/hughes/sticky blood. What do you need to know specifically ?

Hope I can help. Take care.

goldenwings :angel:
Board: Lupus 03-14-2009, 07:16 AM
Replies: 9
Views: 1,898
Posted By goldenwings
Re: I saw the Rheumatologist today ...help!!!!

Hiya sophie,

I don't quite understand what he means - lupus and fibro go hand in hand - as this statement is wrong.

There are people with lupus who don't have fibro, and people with fibro...
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