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Board: Multiple Sclerosis 07-31-2015, 04:51 PM
Replies: 20
Views: 586
Posted By MSJayhawk
Re: Second Opinion and a bit disgruntled

Okie gal,

Kudos to the doctor's nurse. You are blessed.

With electronic records floating on the internet, it is difficult to say what records can be accessed. All my records with my MS...
Board: Multiple Sclerosis 07-30-2015, 08:12 PM
Replies: 3
Views: 125
Posted By MSJayhawk
Re: Checking In Again

sbha12,

As a side note, your divorce ranks fairly high on stress events within our lives. Stress can cause MS symptoms to present and could be linked towards your newest lesions. The less...
Board: Multiple Sclerosis 07-30-2015, 08:09 PM
Replies: 3
Views: 125
Posted By MSJayhawk
Re: Checking In Again

sbha12,

Thanks for your update. DMTs are supposed to s;low the progression of MS, but it does not stop MS. Lesions are not indicative of any major changes. That is, you might have 1 new lesion...
Board: Multiple Sclerosis 07-30-2015, 03:26 PM
Replies: 18
Views: 281
Posted By MSJayhawk
Re: question about MS

wickeddragon,

I read a recent proposal which believes depression or some depression can be caused by bad or problematic gut bacteria.

Whether I can walk on a given day or not, I stretch daily....
Board: Multiple Sclerosis 07-30-2015, 03:02 PM
Replies: 18
Views: 281
Posted By MSJayhawk
Re: question about MS

wickeddragon,

When you are moving sufficiently, your body is producing healing chemicals which bathe your body. These are beneficial to your well-being. Your metabolism rates could be a a...
Board: Multiple Sclerosis 07-30-2015, 02:30 PM
Replies: 12
Views: 274
Posted By MSJayhawk
Re: Likely MS Diagnosis and I'm Teriffied ... any advice?

k9kai,

No worries.

1) There is no way to know why no lesions were present. Also, if an MRI was not read properly or was not run properly, abnormalities can be missed. The problem also goes...
Board: Multiple Sclerosis 07-30-2015, 09:59 AM
Replies: 18
Views: 281
Posted By MSJayhawk
Re: question about MS

wickeddragon,

No worries.

If you are needing to change your career, check with your state of residence. Here there are slots available for sending you back to the university or vo-tech to...
Board: Multiple Sclerosis 07-30-2015, 09:46 AM
Replies: 3
Views: 152
Posted By MSJayhawk
Re: are these things typical of MS or just possibly symptoms?

Jennifer,

Welcome :wave:

During the hot summer period or when the temperatures dip below 52 F (11.11 C) I have trouble closing my hands to make a fist or even hold objects. While I do not...
Board: Multiple Sclerosis 07-30-2015, 07:45 AM
Replies: 18
Views: 281
Posted By MSJayhawk
Re: question about MS

wickeddragon,

A positive ANA test usually indicates that your immune system has launched a misdirected attack on your own tissue, that is, an autoimmune reaction. It is important, however to note...
Board: Multiple Sclerosis 07-29-2015, 12:47 PM
Replies: 12
Views: 274
Posted By MSJayhawk
Re: Likely MS Diagnosis and I'm Teriffied ... any advice?

k9kai,

Your blood tests should specifically indicate what was tested. You should also be tested for Lyme Disease. Once the blood tests are negative, then you have more to go on. Migraines,...
Board: Multiple Sclerosis 07-29-2015, 12:42 PM
Replies: 12
Views: 274
Posted By MSJayhawk
Re: Likely MS Diagnosis and I'm Teriffied ... any advice?

k9kai,

Migraines can cause lesions, but the lesions are quite tiny. Seeing a general neurologist if you suspected MS would not be the best for you. An MS Specialist (a neuro whose specialty is...
Board: Multiple Sclerosis 07-29-2015, 11:46 AM
Replies: 12
Views: 274
Posted By MSJayhawk
Re: Likely MS Diagnosis and I'm Teriffied ... any advice?

k9kai,

:wave: Welcome.

I went through MS seizures which left me bedridden for nearly 6 months. MS Seizures are rare and affect about 5% of MSers. My seizures stopped and I "recovered".
...
Board: Multiple Sclerosis 07-29-2015, 10:15 AM
Replies: 18
Views: 281
Posted By MSJayhawk
Re: question about MS

Wikkeddragon,

I know how you feel. I have found that my being around is more important than actually getting on rides or doing some activities. There are fewer activities for me, but my kids do...
Board: Multiple Sclerosis 07-29-2015, 07:17 AM
Replies: 18
Views: 281
Posted By MSJayhawk
Re: question about MS

Wikkeddragon,

If your eye is that bad, you should have some kind of answer from an Ophthalmologist because your vision as you shared does not seem familiar regarding MS.

When we reach our...
Board: Multiple Sclerosis 07-28-2015, 01:44 PM
Replies: 18
Views: 281
Posted By MSJayhawk
Re: question about MS

wickeddragon,

No worries. Looks like you have done the preliminary screening. The MS Specialist consult would benefit you, I think. :) :angel:
Board: Multiple Sclerosis 07-28-2015, 11:22 AM
Replies: 12
Views: 270
Posted By MSJayhawk
Re: Tingle in finger

Erin,


No worries. We know how you are feeling and the questions and concerns you have are easily understood. The questions you have might be those of others who are afraid to ask. Questions...
Board: Multiple Sclerosis 07-28-2015, 11:10 AM
Replies: 18
Views: 281
Posted By MSJayhawk
Re: question about MS

wickeddragon,

:wave: Welcome.

There are over 400 known MS mimicries and there exists no conclusive test for MS. A diagnosis requires the elimination of the known mimicries through testing and...
Board: Multiple Sclerosis 07-27-2015, 01:27 PM
Replies: 14
Views: 446
Posted By MSJayhawk
Re: so scared

miseagustusa,

I missed your question, but Snoopy answered it spot on. The first clearly recognizable case of multiple sclerosis appears to have been that of Augustus d'Este (1794–1848), the...
Board: Multiple Sclerosis 07-27-2015, 12:00 PM
Replies: 14
Views: 446
Posted By MSJayhawk
Re: so scared

miseagustusa,

I would add that 8 liters of any fluid is excessive, even if it were just water. The concerns you might consider is how much you are flushing out of your body. Calcium, Vitamin D,...
Board: Multiple Sclerosis 07-27-2015, 10:33 AM
Replies: 14
Views: 446
Posted By MSJayhawk
Re: so scared

miseagustusa,

I drink Diet Dr. Pepper, but only to attack a certain area of pain in my head. It is ineffective for any other pain. If you are drinking 8 liters of Diet Coke a day, you have to...
Board: Multiple Sclerosis 07-26-2015, 07:43 PM
Replies: 2
Views: 160
Posted By MSJayhawk
Re: Questions...weird symtpoms....

Michellethenurs,

:wave: Welcome.

If your problems come and go and your pain is relieved with ibuprofen, MS is unlikely. Long term ibuprofen is not good, but this is another matter.
...
Board: Multiple Sclerosis 07-26-2015, 06:26 PM
Replies: 14
Views: 446
Posted By MSJayhawk
Re: so scared

miseagustusa,

An ophthalmologist (or a neuro-ophthalmologist) could send you to an MS Specialist or a neurologist. The ophthalmologist is often part of the team especially if you are an MSer...
Board: Multiple Sclerosis 07-26-2015, 02:06 PM
Replies: 14
Views: 446
Posted By MSJayhawk
Re: so scared

miseagustusa,

yes, no, maybe.....

MS meds or DMTs (Disease Modifying Therapies) are supposed to slow down disease progression and thereby slowing the number of attacks which could conceivably...
Board: Multiple Sclerosis 07-26-2015, 12:08 PM
Replies: 12
Views: 270
Posted By MSJayhawk
Re: Tingle in finger

Erin,

The quotation from your report is a radiologist's writing, I believe. 2 mm is quite small and could very well be due to migraines or even a childhood infection. The way that I know is...
Board: Multiple Sclerosis 07-26-2015, 09:51 AM
Replies: 12
Views: 270
Posted By MSJayhawk
Re: Tingle in finger

Erin,

If there is indeed only a single lesion, it would be insufficient to be diagnosed with MS at this time. You might be considered CIS (Clinically Isolated Syndrome).

The term CIS is used...
Board: Multiple Sclerosis 07-26-2015, 09:42 AM
Replies: 14
Views: 446
Posted By MSJayhawk
Re: so scared

miseagustusa,

Welcome. :wave:

As Snoopy shared, there is a proper diagnostic process, the Revised McDonald Criteria, which is used and accepted as the standard for making a diagnosis of MS. ...
Board: Multiple Sclerosis 07-25-2015, 07:13 PM
Replies: 12
Views: 270
Posted By MSJayhawk
Re: Tingle in finger

Erin,

Panic and anxiety can mimic MS. As Snoopy has shared, the spine may yield answers. An MS Specialist can assist you regarding the probability of MS. Migraines can cause lesions, but these...
Board: Multiple Sclerosis 07-25-2015, 06:50 AM
Replies: 9
Views: 404
Posted By MSJayhawk
Re: Copaxone 3x per week

Rose,

Listen to your intuition. Your physical reactions certainly seem to shout "allergic reaction". There are others who have experienced the same and stopped the med. I would certainly get to...
Board: Multiple Sclerosis 07-25-2015, 06:44 AM
Replies: 8
Views: 290
Posted By MSJayhawk
Re: Starting Tecfidera

sarabeach123,


If you have read all the info you can and are comfortable with the med, go for it. The only reviews you should look at are case studies and research papers which have been...
Board: Multiple Sclerosis 07-24-2015, 08:31 PM
Replies: 5
Views: 216
Posted By MSJayhawk
Re: Abnormal, but not abnormal enough?

mlmoore1341,

You need to put all your files in one file and take them to an MS Specialist. Your previous MRIs might not be sufficient, but if needed, another one may be ordered. To be brushed...
Board: Multiple Sclerosis 07-24-2015, 04:36 PM
Replies: 12
Views: 264
Posted By MSJayhawk
Re: What do I do next?

Edurham79,

Before taking any D3, I would determine if you have any deficiency first. My MS Specialist has me supplement because she wants my level to be in mid-normal to eliminate any variances. ...
Board: Multiple Sclerosis 07-24-2015, 04:25 PM
Replies: 5
Views: 216
Posted By MSJayhawk
Re: Abnormal, but not abnormal enough?

mlmoore1341,

:wave: Welcome.

Have you seen only a general neurologist or have you seen an MS Specialist?

About 5% of MSers present initially with no lesions. Of the MRIs what has been...
Board: Multiple Sclerosis 07-23-2015, 08:53 PM
Replies: 3
Views: 259
Posted By MSJayhawk
Re: Possible Diagnosis/Advice

AliciaPT.

:wave: Welcome.

Families can have a predisposition towards developing MS or another autoimmune disorder. Statistically, it is still improbable. That is, it is statistically...
Board: Multiple Sclerosis 07-23-2015, 04:28 PM
Replies: 8
Views: 290
Posted By MSJayhawk
Re: Starting Tecfidera

sarabeach123,

From what I have read, the first 2 -3 weeks are the biggest hurdle.. Afterwards, just monitoring and watching for any major concerns of which you need to be vigilant. :angel:
Board: Multiple Sclerosis 07-22-2015, 08:51 PM
Replies: 12
Views: 264
Posted By MSJayhawk
Re: What do I do next?

Edurham79,

There is no timeline for ON healing and recovery. The time to full recovery really varies among patients. Lesions take time to recover too. Some lesions will eventually be by-passed...
Board: Multiple Sclerosis 07-22-2015, 08:35 PM
Replies: 13
Views: 396
Posted By MSJayhawk
Re: MRI findings/impressions

Runnin,

No worries. You have been through a lot already and I would not want you to be brushed off without a proper review. I think that the MS Specialist will bring you some clarity. :angel:
Board: Multiple Sclerosis 07-22-2015, 08:32 PM
Replies: 9
Views: 472
Posted By MSJayhawk
Re: In a huge panick! Help!!!!

erinb275,


It could be anxiety, but it is difficult. If the symptom presents and persists for 24+ hours, then you are in the possible MS category. A persistent symptom does not have to maintain...
Board: Multiple Sclerosis 07-22-2015, 01:22 PM
Replies: 4
Views: 170
Posted By MSJayhawk
Re: First appointment today

xxPantherxx,

The doctor always tells me I am fine or that I did well with my tests. :) But I think it is because she knows I am trying to accomplish what shes asks. I know some who were...
Board: Multiple Sclerosis 07-22-2015, 07:46 AM
Replies: 8
Views: 265
Posted By MSJayhawk
Re: Abnormal EMG

firemom31,

Given the area of concern, it could be c-spine or brain. When my leg problems first appeared, it was due to t-spine lesions, but this was because the symptoms were new and I had no...
Board: Multiple Sclerosis 07-21-2015, 07:39 PM
Replies: 20
Views: 586
Posted By MSJayhawk
Re: Second Opinion and a bit disgruntled

Okie gal,

No worries. When you make a well informed decision, you make the best decision. For some it is great. Such is life with MS. When the rehab nurse changed my shoe style, it really...
Board: Multiple Sclerosis 07-21-2015, 05:55 PM
Replies: 20
Views: 586
Posted By MSJayhawk
Re: Second Opinion and a bit disgruntled

Okie gal,

A post-marketing study of Ampyra did not meet its primary endpoint, showing that a low dose (one-half of the approved dose) did not improve walking speed.

The dose approved by the...
Board: Multiple Sclerosis 07-21-2015, 05:46 PM
Replies: 20
Views: 586
Posted By MSJayhawk
Re: Second Opinion and a bit disgruntled

Okie gal,

Unfortunately Ampyra has limited effectiveness. Many MSers have felt worse and most rate the actual effectiveness quite poorly. If you look at the actual effectiveness, the...
Board: Multiple Sclerosis 07-21-2015, 03:44 PM
Replies: 5
Views: 272
Posted By MSJayhawk
Re: Copaxone 3x and Glatopa

globeman,

Since Glatopa is a generic of the original Copaxone, if you have been prescribed Copaxone 3X (40 mg dosage 3 times a week), this is not equivalent to the generic Glatopa. I do not...
Board: Multiple Sclerosis 07-21-2015, 03:39 PM
Replies: 5
Views: 272
Posted By MSJayhawk
Re: Copaxone 3x and Glatopa

globeman,

:wave: Welcome. Someone should be able to assist you. There is also an insurance board on this same site which might have information too. :angel:
Board: Multiple Sclerosis 07-21-2015, 12:46 PM
Replies: 13
Views: 396
Posted By MSJayhawk
Re: MRI findings/impressions

Runnin,

While lesions associated with MS MAY HAVE Dawson Fingers, this is not a guarantee. There is a size average, but again, this is not "set in stone" There's no single cause of mild...
Board: Multiple Sclerosis 07-21-2015, 10:53 AM
Replies: 4
Views: 147
Posted By MSJayhawk
Re: Yay, Dr appointment tomorrow

xxPantherxx,

Great news and I hope it goes well.

Cognition problems can be a burden. Mine were interfering with my GM position and I felt that disability was my only recourse because I did...
Board: Multiple Sclerosis 07-20-2015, 08:01 AM
Replies: 1
Views: 178
Posted By MSJayhawk
Re: Exercise and tingling feet, arms and hands

xxPantherxx,

Tai Chi is an excellent low impact choice for MSers.

What you are describing happens to me during warmer weather. I do not know what your trigger is, but you might have one (no...
Board: Multiple Sclerosis 07-20-2015, 07:51 AM
Replies: 7
Views: 275
Posted By MSJayhawk
Re: Medical bankruptcy

Jose802,

:wave: Welcome.

I was diagnosed when I was 19 and was still under my parent's family policy until I graduated. After I was diagnosed, I only went to see the doctor once every 6...
Board: Multiple Sclerosis 07-18-2015, 10:36 PM
Replies: 7
Views: 328
Posted By MSJayhawk
Re: Could it be MS?

Laura451,

My wife was on bed rest for nearly 7 months and our son literally sat in her pelvic girdle and pressed against her main nerves

Pregnancy of even the mildest form is often sufficient...
Board: Multiple Sclerosis 07-18-2015, 09:00 PM
Replies: 7
Views: 328
Posted By MSJayhawk
Re: Could it be MS?

Laura451,

No worries. If your blood tests have been all normal, you have eliminated a great number of known MS mimicries.

Did you have any symptoms prior to your pregnancy? Sometimes the...
Showing results 1 to 50 of 500

 








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