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Board: Ear, Nose & Throat 10-05-2012, 09:43 AM
Replies: 2
Views: 3,201
Posted By social357
Re: Meniere's Disease: 4-8 week long episodes of vertigo?

So, I saw a few more doctors, including Dr Jeffrey Brown, the doctor who named the syndrome, Mal de Debarquement Syndrome (MdDS). He is pretty sure I have MdDS. When your wife gets it, is it after...
Board: Multiple Sclerosis 07-06-2012, 02:43 PM
Replies: 23
Views: 5,350
Posted By social357
Re: Does it sound like MS?

Just in case you were wondering, I had my MRI and it was clean. My 2009 MRI was clean also. The neurologist said after 9 years of symptoms, I'd either be showing neurological signs (passed my neuro...
Board: Ear, Nose & Throat 05-28-2012, 02:40 PM
Replies: 2
Views: 3,201
Posted By social357
Question Meniere's Disease: 4-8 week long episodes of vertigo?

I have been having episodes of vertigo, headaches, fatigue and some other, more minor symptoms for the last 9 years. The episodes each last 4-8 weeks, and all but the last one have been characterized...
Board: Inner Ear Disorders 05-10-2012, 02:32 PM
Replies: 1
Views: 1,213
Posted By social357
Re: Room spinning

Probably BPPV (Benign Paroxysmal Positional Vertigo), but you should definitely go see an ENT to get diagnosed. My brother in law has BPPV and if he sleeps on one side (can't remember which one), he...
Board: Multiple Sclerosis 05-02-2012, 09:40 AM
Replies: 12
Views: 1,598
Posted By social357
Re: Limboland and a positive attitude - sometimes

Hi. I am in limboland too and I totally understand your catch 22 feelings. I've had 5 episodes (4 in the past 4 years) and I know something isn't right and need to get diagnosed. I think I may be...
Board: Multiple Sclerosis 04-29-2012, 10:47 AM
Replies: 7
Views: 2,709
Posted By social357
Re: MRI Contrast Types

I'm in Portland OR. I want to go to the MS clinic at OHSU. It's a research hospital, a good one, and they have a clinic just for MS. I found it on the Providers page on my insurance. But they won't...
Board: Multiple Sclerosis 04-28-2012, 10:34 PM
Replies: 7
Views: 2,709
Posted By social357
Re: MRI Contrast Types

It's my PA who ordered the MRI for me. She is the only person who will listen to me and help me so far. I've been told that it can't be MS because people with MS don't get vertigo, and more recently,...
Board: Multiple Sclerosis 04-28-2012, 07:42 PM
Replies: 7
Views: 2,709
Posted By social357
MRI Contrast Types

I had my MRI yesterday. It was a lot different than my first MRI in 2009. In 2009, they made me drink the contrast. This time, they injected me. From what I'm reading, drinking the contrast is only...
Board: Headaches & Migraines 04-25-2012, 09:32 AM
Replies: 6
Views: 3,495
Posted By social357
Re: Does this sound like a migraine variant?

No, I haven't had one.

And I totally agree, but FINDING a doctor who will listen is proving to be very difficult. My PA (Physician's Assistant) will listen but she isn't a doctor, more like a...
Board: Multiple Sclerosis 04-23-2012, 04:58 PM
Replies: 10
Views: 3,848
Posted By social357
Re: Normal MRI what next ? please share DX stories

This may not be helpful since I haven't been diagnosed and very well may not have MS at all, but I did have a clearn MRI 2.5 years ago (during my 3rd attack of whatever-this-is).

As far as the...
Board: Autoimmune Disorders 04-23-2012, 09:45 AM
Replies: 4
Views: 2,318
Posted By social357
Re: Undiagnosed Mystery Illness for 9 years.

Thank you for all this. I have already had one ovary removed in 2010 (the naughty one) and I did have a laparoscopy last month, but maybe the surgeon wouldn't have been able to tell from the outward...
Board: Multiple Sclerosis 04-20-2012, 11:42 AM
Replies: 17
Views: 2,324
Posted By social357
Re: 6 years of chronic pain-First MRI with contrast today- Need advice

I have a friend who has MS and she found out after she had a serious flare after giving birth to her 2nd child. She has had another child since, and is pregnant with her last. She says it is...
Board: Multiple Sclerosis 04-20-2012, 11:35 AM
Replies: 23
Views: 5,350
Posted By social357
Talking Re: Does it sound like MS?

I saw my PA this morning. She read my illness time line from 1998 to present. She read my list of symptoms and concerns I had written down. She asked if she could keep the copies because she wants to...
Board: Multiple Sclerosis 04-19-2012, 03:05 PM
Replies: 23
Views: 5,350
Posted By social357
Re: Does it sound like MS?

My right arm just went "asleep" from teh shoulder down. I didn't think anything of it, and kept shaking it trying to wake it up. Then I felt panicky and then I went, "OK, if this IS MS, it's not...
Board: Multiple Sclerosis 04-19-2012, 01:00 PM
Replies: 25
Views: 1,815
Posted By social357
Smile Re: so many questions.. can anyone help me understand?

I moved away from Tucson, AZ for 2 main reasons:
1. We were not near to friends or family and had no help when I am not well.
2. I became so heat sensitive I couldn't even sit with my kids outside...
Board: Multiple Sclerosis 04-19-2012, 12:46 PM
Replies: 23
Views: 5,350
Posted By social357
Re: Does it sound like MS?

Thank you for your support. I'm so ready for a diagnosis. My husband doesn't see any point in my pursuing it, since I'm going to feel this way anyway. In a way, I agree. I'm already getting used to...
Board: Multiple Sclerosis 04-19-2012, 11:00 AM
Replies: 23
Views: 5,350
Posted By social357
Re: Does it sound like MS?

I'm trying out the OHSU MS Clinic, but they need a referral from my insurance which takes 2 weeks to process from the day they receive it. Then 3-7 days to get me in for an appointment. That's a long...
Board: Multiple Sclerosis 04-19-2012, 10:10 AM
Replies: 23
Views: 5,350
Posted By social357
Re: Does it sound like MS?

The doctor was horrible. I warned him ahead of time that I might cry and if I do, he should just ignore it. It happens because being sick is so emotional for me. In 2009, it was so severe that I lost...
Board: Headaches & Migraines 04-19-2012, 07:15 AM
Replies: 6
Views: 3,495
Posted By social357
Re: Does this sound like a migraine variant?

I had my thyroid checked in 2009, but it's probably time to do it again. I've never had any bloodwork come up abnormal, except once I had "slightly low vitamin D."
Board: Headaches & Migraines 04-18-2012, 09:19 PM
Replies: 3
Views: 4,723
Posted By social357
Re: Dizzy and lightheaded, headaches

oops, sorry double reply
Board: Headaches & Migraines 04-18-2012, 09:16 PM
Replies: 3
Views: 4,723
Posted By social357
Re: Dizzy and lightheaded, headaches

Do you feel that way on the weekends too? If it was the lighting, you probably wouldn't experience it on weekends when you weren't in the classroom (unless you had residual headaches, I suppose). Can...
Board: Headaches & Migraines 04-18-2012, 09:10 PM
Replies: 6
Views: 3,495
Posted By social357
Red face Does this sound like a migraine variant?

I can't get doctors to take me seriously. They latch on to ONE symptom and ignore the rest. Today I saw a neurologist. He latched onto the headache symptom and told me he wasn't going to run any...
Board: Multiple Sclerosis 04-16-2012, 10:48 AM
Replies: 23
Views: 6,742
Posted By social357
Re: Optic Neuritis as first MS symptom

We've already talked on the boards, MSJayHawk. I posted maybe last week or so. Oh, there it is, on the 10th of April. :)
Board: Multiple Sclerosis 04-16-2012, 10:13 AM
Replies: 17
Views: 2,324
Posted By social357
Re: 6 years of chronic pain-First MRI with contrast today- Need advice

I have endometriosis too. I just had surgery last month to get it removed and my doctor thinks she got it all but I'm still in unexplained pain. And the shower spray bothers me too. I turn on the...
Board: Multiple Sclerosis 04-16-2012, 09:52 AM
Replies: 23
Views: 6,742
Posted By social357
Re: Optic Neuritis as first MS symptom

I agree it's an important thing to test for. I haven't been diagnosed with MS (or anything, for 9-10 years) and my levels of b-12 are fine, but I took weekly b-12 injections for a few months anyway,...
Board: Ear, Nose & Throat 04-12-2012, 10:35 AM
Replies: 7
Views: 10,044
Posted By social357
Re: Tonsil Stones are driving me absolutely crazy.

My daughter had to have her tonsils removed at 3 years old (they were so large they were touching in the back of her throat, and her voice sounded very nasally and stuffy). She hated taking the...
Board: Ear, Nose & Throat 04-12-2012, 10:29 AM
Replies: 1
Views: 2,238
Posted By social357
Re: Tonsil, deviated septum, and sinus surgery recovery.

I had to have a sinus surgery too, in November 2009. Getting those spolints pulled out of my nose really was wild for me too. I cried. I couldn't believe something so big fit up there! The weekly...
Board: Ear, Nose & Throat 04-12-2012, 10:22 AM
Replies: 1
Views: 8,874
Posted By social357
Re: Vibrating deep sound in left ear

I get those ear spasms too (I think what we are hearing it the muscles in the ear spasming and contracting), and they definitely get worse when I am sick. I notice them when I am sick, over tired,...
Board: Ear, Nose & Throat 04-12-2012, 10:16 AM
Replies: 2
Views: 1,463
Posted By social357
Re: spasm in ear in response to sounds

I get this too. I get it especially if I take vicodin, if I have a cold, if I'm very tired, or if I wear wool next to my skin (if I wear a long-sleeved undershirt, and the neckline of the sweater...
Board: Multiple Sclerosis 04-11-2012, 02:11 PM
Replies: 61
Views: 5,831
Posted By social357
Re: worried i have ms?

If you haven't been diagnosed with anything and haven't been to the doctors (and are awaiting diagnosis), then you should apply for life insurance, and, if you have a job at the moment, disability...
Board: Post-Traumatic Stress Disorder (PTSD) 04-11-2012, 12:53 PM
Replies: 2
Views: 1,277
Posted By social357
Question My doctor suggested I might have PTSD... for pelvic pain

I've had pelvic pain issues for years. At first it was rupturing ovarian cysts, then a cyst that didn't rupture and was over 2.5" across that had to be removed. Then the pain continued so they...
Board: Multiple Sclerosis 04-10-2012, 11:58 AM
Replies: 7
Views: 1,537
Posted By social357
Exclamation Re: fear of disclosure, symptoms becoming noticeable to coworkers, comments appreciat

I was living in Tucson until recently, and when I called the Mayo clinic to try to get care there, they told me it was $3,000 simply to walk in the door. They told me they don't take insurance and...
Board: Multiple Sclerosis 04-10-2012, 10:06 AM
Replies: 23
Views: 5,350
Posted By social357
Smile Re: Does it sound like MS?

Haha on the "it's all in your head." I guess that IS what my GYN specialist is suggesting now. Chronic pain disorder, ptsd, or...?? There are some psychotherapists who are counselors and some who are...
Board: Multiple Sclerosis 04-09-2012, 11:58 AM
Replies: 23
Views: 5,350
Posted By social357
Re: Does it sound like MS?

Good advice, thanks. I had no idea even a week could make a difference. My regular doctor before I moved was still citing that 2009 MRI to prove her "point" that I was making it up. I feel very...
Board: Multiple Sclerosis 04-09-2012, 11:49 AM
Replies: 23
Views: 5,350
Posted By social357
Re: Does it sound like MS?

Thanks for your response. I am going to find out if the neurologist I am seeing is an MS specialist, as well as look up the best specialists in my area.

I would like to clarify (perhaps...
Board: Open to All Other Health Topics 04-06-2012, 12:49 PM
Replies: 6
Views: 1,402
Posted By social357
Re: Cant figure out whats wrong, I desperately need help. Please.

I have no idea what it might be, but hang in there. I've been undiagnosed for 9 years and it is terrifying at times. Some days I just cry all the way to work and all the way home (ok, sometimes I cry...
Board: Multiple Sclerosis 04-06-2012, 12:31 PM
Replies: 13
Views: 1,712
Posted By social357
Exclamation Re: Lesions

Argh, now I'm wondering if some of my doctors DID have an idea of what to diagnose but didn't want to tell me. I find it hard to believe that so many doctors have seen me and not a single one has any...
Board: Multiple Sclerosis 04-06-2012, 12:25 PM
Replies: 13
Views: 1,712
Posted By social357
Lightbulb Re: Lesions

Do those of you with MS have uneven knee reflexes? I used to have strong refelxes and now I don't have any. The doctor can tap all day and not get a response. Several doctors have said, "it's ok as...
Board: Multiple Sclerosis 04-06-2012, 12:16 PM
Replies: 23
Views: 5,350
Posted By social357
Unhappy Does it sound like MS?

I have an unexplained, undiagnosed issue and would very much like some feedback or ideas. I am a 30 year old female, 5'6" and 140 pounds (I was 125-130 pounds until about a year ago).

Symptom...
Board: Autoimmune Disorders 04-04-2012, 04:55 PM
Replies: 4
Views: 2,318
Posted By social357
Undiagnosed Mystery Illness for 9 years.

I have been struggling with health issues since I was 21 (I'm 30 now). I have 2 main issues. One is/was ovarian cycst, then an incorrect diagnosis of endometriosis (doctor lost my records), and now a...
Board: Open to All Other Health Topics 04-04-2012, 04:50 PM
Replies: 0
Views: 416
Posted By social357
Lightbulb Mystery Illness Undiagnosed (9 years)

I have 2 main issues with my health. One is/was ovarian cycts, then an incorrect diagnosis of endometriosis (doctor lost my records and failed to perform necessary biopsies), and now a possible...
Board: Dizziness / Vertigo 04-04-2012, 03:19 PM
Replies: 3
Views: 3,610
Posted By social357
Re: Post-operation (G.A.) dizziness / vertigo

I have had lots of episiodes of vertigo, so I can't say I do have a similar problem, but all my previous episodes were triggered (apparently) by travel. THIS episode of dizziness and migraines...
Board: Dizziness / Vertigo 04-04-2012, 03:15 PM
Replies: 1
Views: 1,522
Posted By social357
Re: Vertigo - scared its a brain tumour!!!

Did this start after you took a boat, plane or long car ride? If it did, you might want to look up Mal de Debarquement Syndrome.

This sounds a bit like the episodes I've had. My issue is still...
Showing results 1 to 43 of 43

 








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