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Board: Lyme Disease 09-06-2007, 10:19 AM
Replies: 8
Views: 1,965
Posted By agm08001
Re: Not Sure What Yo Do!!!!!

Hi -

Sorry to hear you are having such a rough time! I was diagnosed with Lyme last August too. Did 6 mos. of Doxy twice a day (200 mg) and then 2 months of Rocephin (prescribed by my PCP - but I...
Board: Lyme Disease 09-04-2007, 09:42 AM
Replies: 7
Views: 1,507
Posted By agm08001
Re: cd-57 test.....

I was diagnosed with Lyme by my PCP in August of 2006 and then got a positive result with IGeNex (even by CDC standards on the IgG) in December. I did about 6 months of Doxy x 200/twice a day and...
Board: Lyme Disease 09-04-2007, 08:40 AM
Replies: 7
Views: 1,507
Posted By agm08001
Re: cd-57 test.....

Hi J -

The paperwork I have on CD-57 says 60 on the lowest end of the range but "chronic lyme" would be way under that. It also says that patients "cured" would have a count above 180. So, at...
Board: Lyme Disease 08-22-2007, 12:59 PM
Replies: 1
Views: 636
Posted By agm08001
Re: Andy......

Hi J -

Thanks for the encouragement. This has been a horrible year+ with this awful thing (Lyme).

I saw what I thought was a reliable LLMD (one of the the few in the area) back in January. He...
Board: Lyme Disease 08-21-2007, 02:31 PM
Replies: 3
Views: 770
Posted By agm08001
Re: curious.....does the change in weather cause more pain?....

Hi J - yep, you're not alone. I have had that problem too, especially my hands. Cold weather and changes in moisture levels, etc. makes arthritis-type pain worse in a lot of people. Hot showers/baths...
Board: Neurology 08-21-2007, 02:24 PM
Replies: 6
Views: 1,003
Posted By agm08001
My disappointing Neurologists visit...

So, I went to MGH (Mass General) today and had an appointment with a Neurologist. After having him ask me a million questions and having me perform memory tests, he said I was probably sharper than...
Board: Lyme Disease 08-15-2007, 06:18 PM
Replies: 7
Views: 2,243
Posted By agm08001
Re: Picc line questions

Hi Stan -

Unfortunately, it was my PCP who prescribed the IV abx and I don't think the dosage was very strong (I think it was 1 gram and most people I have seen had 4 grams/per). So, I haven't...
Board: Lyme Disease 08-15-2007, 04:04 PM
Replies: 7
Views: 2,243
Posted By agm08001
Re: Picc line questions

Hi Stan - I had an odd feeling in the second week of having my PICC line in (left arm). It was a sore sensation in my left foreaarm. The nurses in charge of changing my dressing said it was nothing....
Board: Lyme Disease 08-13-2007, 12:14 PM
Replies: 8
Views: 1,208
Posted By agm08001
Re: I am so mad!!!

Hi -

FYI - I have Lyme and have for over a year now. My PCP was the one that put me on the standard course of antibiotics for a month and then when the retest came back positive, he said "there...
Board: Lyme Disease 08-11-2007, 05:50 PM
Replies: 8
Views: 658
Posted By agm08001
Re: Please help me!

We'll be sure to say an extra prayer for you!!

Take care and I hope you feel better!!

Andy
Board: Lyme Disease 08-11-2007, 07:16 AM
Replies: 9
Views: 1,469
Posted By agm08001
Re: Irritability

Hi Gator -

Well, my wife is great at taking the lead on a lot of the child-rearing stuff. I've always believed in doing my share of housework when I got home from my normal work day (usually 10...
Board: Lyme Disease 08-10-2007, 08:05 PM
Replies: 3
Views: 580
Posted By agm08001
Re: antibiotic......

My LLMD (at least, my old LLMD) had me on 1500 mg twice a day (Amox.) so yeah, they do use it. The dose you are on seems a bit low for it to work but who knows. My sister-in-law in EXTREMELY...
Board: Lyme Disease 08-10-2007, 05:57 PM
Replies: 9
Views: 1,469
Posted By agm08001
Re: Irritability

Hi Guys -


Stan - I can totally relate. The parrots sound JUST like my kids, especially the 3 yr old :) He often says the same thing over and over and over (usually in a whiney-tone too). I...
Board: Lyme Disease 08-10-2007, 03:22 PM
Replies: 9
Views: 1,469
Posted By agm08001
Re: Irritability

Thanks Standish, I appreciate the kind words. I have to admit, I have never been the patient person my wife is (and always has been) but I am actually in therapy to try and work on it - as well as...
Board: Lyme Disease 08-10-2007, 01:30 PM
Replies: 9
Views: 1,469
Posted By agm08001
Re: Irritability

Thanks Sleeper - I don't feel like a good daddy sometimes (a lot). Between the irritability and being exhausted all the time (not to mention being out of work), I don't feel much like a good...
Board: Lyme Disease 08-10-2007, 11:05 AM
Replies: 9
Views: 1,469
Posted By agm08001
Irritability

I know this is common among us Lymies but I am wondering if I am actually just a horrible individual or it really is the Lyme? I am SO irritable and we have a 16-month old and a 3-year old who is...
Board: Lyme Disease 08-09-2007, 03:30 PM
Replies: 2
Views: 520
Posted By agm08001
Re: cats claw.....

Hi 3Love - you can probably buy it at places like GNC or Vitamin Shop but I believe there is a certain type you have to get (not brand but a type that says "TOA free"). Good luck!
Board: Lyme Disease 08-09-2007, 03:23 PM
Replies: 5
Views: 651
Posted By agm08001
Re: I'm scared for my kids.

Hi Standish - My wife and I have 2 little kids too. So far, so good. We try and be sure they have bug spray with Deet when they go out in the yard. You can also buy a spray for clothing called...
Board: Lyme Disease 08-09-2007, 03:16 PM
Replies: 24
Views: 20,518
Posted By agm08001
Re: Amiloo- Try Dr Sam Donta, Boston Medical

MC - Hang in there! Yes, it is the one in Hampton. I don't know, maybe other people have had good experiences with him - I personally haven't. I started seeing him in January and saw him a about 3...
Board: Lyme Disease 08-09-2007, 01:44 PM
Replies: 20
Views: 4,363
Posted By agm08001
Re: OK heres the letter about Lyme's

GREAT letter! I have thought about becoming some sort of advocate for us Lymies and hopefully will find a way to get involved in my area. I have a few ideas. Hopefully my brain will cooperate long...
Board: Lyme Disease 08-09-2007, 01:40 PM
Replies: 24
Views: 20,518
Posted By agm08001
Re: Amiloo- Try Dr Sam Donta, Boston Medical

Hi Ticker - yes, it was Dr M. He seems to be the only LLMD around but there is one more on the north shore (of MA) that I might try.

I guess I can run the co-infections thing by my PCP - after...
Board: Lyme Disease 08-09-2007, 12:12 PM
Replies: 24
Views: 20,518
Posted By agm08001
Re: Amiloo- Try Dr Sam Donta, Boston Medical

Been sick for over a year now.

Went and saw a supposed LLMD in NH and he was no help at all. I keep hearing from everyone how important it is to be in contact with your Dr and be monitored...
Board: Lyme Disease 08-08-2007, 05:02 PM
Replies: 24
Views: 20,518
Posted By agm08001
Re: Amiloo- Try Dr Sam Donta, Boston Medical

Hi Zandvoort - So, this guy is good AND covered by insurance? Wow, sounds great. Is he accepting new patients?

I have really begun to feel like maybe I am crazy or a hypochodriac or something....
Board: Lyme Disease 07-20-2007, 11:53 AM
Replies: 0
Views: 1,069
Posted By agm08001
Hydrocephalus anyone?

Got a copy of my recent MRI and it says "communicating hydrocephalus is a consideration". Going to see a neurologist sometime soon but wanted to know if anyone else has gotten this diagnosis? I know...
Board: Lyme Disease 07-20-2007, 07:19 AM
Replies: 13
Views: 1,417
Posted By agm08001
Re: I Got A Diagnosis!!!!!!!

Congrats on the diagnosis! I am glad your Mom is finally on your side and that you can begin getting the help you need! It's good that you have forgiven her too. Not doing so wouldn't have helped...
Board: Lyme Disease 07-20-2007, 06:59 AM
Replies: 8
Views: 856
Posted By agm08001
Re: Do you recall a bite or a rash?.....

Hi Julia -

I guess there is no confirmed evidence that it can be transmitted sexually but my wife and I aren't taking any chances, if you know what I mean....

Take care and God bless, Andy
Board: Lyme Disease 07-19-2007, 02:45 PM
Replies: 8
Views: 984
Posted By agm08001
Re: Very disappointed....

T - Yes, I did (see Dr M). Might just have to go to Wilton. I'll see how far it is.

Thanks!

Andy
Board: Lyme Disease 07-19-2007, 02:06 PM
Replies: 3
Views: 505
Posted By agm08001
Re: oh, so embarrassing but I am going to ask....here goes nothing....

Hi J -

None here. I doubt anyone on here would think the question was gross as we all go through so much with this. And remember, sh** happens (sorry, couldn't resist :D ). We are all in this...
Board: Lyme Disease 07-19-2007, 02:03 PM
Replies: 8
Views: 856
Posted By agm08001
Re: Do you recall a bite or a rash?.....

Hi Julia -

No, so far she is Lyme-free (thank God). Not sure how we could manage our kids if she did have it (they are one and three).

Take care and God bless, Andy
Board: Lyme Disease 07-19-2007, 12:44 PM
Replies: 8
Views: 856
Posted By agm08001
Re: Do you recall a bite or a rash?.....

Hey J -

Nope, never had one (or aty least neither my wife nor I ever noticed one). From what I understand, a LOT of people never notice a bit or a rash. And I tested positive by Igenex too (AND...
Board: Lyme Disease 07-19-2007, 12:40 PM
Replies: 8
Views: 984
Posted By agm08001
Re: Very disappointed....

Good idea IML!! My ENT is a very reasonable woman. Thanks for the suggestion!:)

Take care and God bless,

Andy
Board: Lyme Disease 07-19-2007, 12:38 PM
Replies: 8
Views: 984
Posted By agm08001
Re: Very disappointed....

Hey All -

Thanks for all the support and encouragement. I sit here, the day after my appointment with Dr Steere, and give myself my IV. Scr*w him! I am neither imagining this nor a hypochodriac...
Board: Lyme Disease 07-18-2007, 04:40 PM
Replies: 8
Views: 984
Posted By agm08001
Very disappointed....

So, I had my appointment with Dr Steere today. I know, I know, he is no friend of us Lymies. I knew his stance on things going in. Not sure what I was expecting or why I expected my outcome with him...
Board: Lyme Disease 07-17-2007, 01:49 PM
Replies: 1
Views: 397
Posted By agm08001
Re: Insurance Problems

Hi Stan - I have BCBS here in Massachusetts and so far my IV treatment has been approved without any problems. If you Dr is willing to fight for you (and in light of the other issues), I am sure you...
Board: Lyme Disease 07-17-2007, 10:16 AM
Replies: 4
Views: 5,006
Posted By agm08001
Re: Coumadin & Fluconazole warning

Hi JoJo -

Thanks for the advice! No, I am not doing anything to detox right now. I was on oral abx for six months (200 mg Doxy/twice a day) and it did nothing. Now I am on IV Rocephin. It's been...
Board: Lyme Disease 07-17-2007, 07:29 AM
Replies: 4
Views: 5,006
Posted By agm08001
Re: Coumadin & Fluconazole warning

Hey Stan -

First let me say that what happened to me was very unusual. I talked to the IV nurse and she said it RARELY happens.

About a week and a half after I first had the PICC line put it...
Board: Lyme Disease 07-16-2007, 04:59 PM
Replies: 4
Views: 5,006
Posted By agm08001
Coumadin & Fluconazole warning

Hey All - just a quick FYI.

DO NOT take fluconazole if you are on Coumadin (Warfarin) for any reason (or at leasts make sure your Dr/s know about the different drugs - mine obviously didn't and...
Board: Lyme Disease 07-16-2007, 04:46 PM
Replies: 2
Views: 515
Posted By agm08001
Re: booked till December!!!!......help!

Hi Julia - A friend of my folks' was treated by Daniel Cameron, MD in Mt Kisco, NY. He is supposedly one of the tops in the field (and she thought he was great). Hope it helps!

Take care and God...
Board: Lyme Disease 07-14-2007, 02:30 PM
Replies: 9
Views: 3,029
Posted By agm08001
Re: Lyme Treatment

Hey Stan -

I was diagnosed a year ago. My Primary Care Dr did the standard one month of antibiotics (100 mg twice a day). After a month he tested me again and the number (ELISA) was even higher....
Board: Lyme Disease 07-13-2007, 12:29 PM
Replies: 8
Views: 870
Posted By agm08001
Re: Lyme news on Fox 25 in Boston

Yeah, unfortunately it wasn't the greatest segment and I thought it would be a lot more in depth. I guess the mainstream denial continues...

Take care and God Bless, Andy
Board: Lyme Disease 07-13-2007, 12:23 PM
Replies: 9
Views: 3,029
Posted By agm08001
Re: Lyme Treatment

Hi BigStan -

I had a PICC line put in a few weeks ago and am giving myself IV Rocephin daily. Like Ticker said, once you get used to doing it, it is no big deal at all. The only concerns are not...
Board: Lyme Disease 07-12-2007, 05:04 PM
Replies: 8
Views: 870
Posted By agm08001
Re: Lyme news on Fox 25 in Boston

I am hoping it is helpful to us and enlightening to those who know nothing about Lyme (or refuse to, like a sibling of mine - doubt he'll watch it even though I told him about it).

I just caught a...
Board: Lyme Disease 07-12-2007, 04:23 PM
Replies: 8
Views: 870
Posted By agm08001
Lyme news on Fox 25 in Boston

Hey All - for anyone with access to Fox 25 10 p.m. news (Boston) tonight, there is going to be some sort of report on Lyme. Just an FYI.

For those of you whop don't have access to Fox 25...
Board: Lyme Disease 07-12-2007, 04:17 PM
Replies: 5
Views: 802
Posted By agm08001
Re: IV Advice (getting it continued)...

Hi Ticker -

Thanks for the suggestion. Never even occurred to me to research Dr Steere before I see him. I have read a few things but not much. Like I said, I am going to try and appeal to my PCP...
Board: Lyme Disease 07-12-2007, 02:54 PM
Replies: 5
Views: 802
Posted By agm08001
Re: IV Advice (getting it continued)...

Hi Ticker & JoJo,

Thanks for the advice. My PCP is a pretty reasonable guy so he may indeed sign off on me keeping it in. I know you don't think highly of him Ticker, but I am seeing Dr Alan...
Board: Lyme Disease 07-12-2007, 12:29 PM
Replies: 5
Views: 802
Posted By agm08001
IV Advice (getting it continued)...

Hi All -

As I sit here and infuse myself with Rocephin, I have a situation I hope some of you might be able to give advice on.

I see my PCP tomorrow about this (and a checkup on the blood...
Board: Lyme Disease 07-12-2007, 12:16 PM
Replies: 15
Views: 2,951
Posted By agm08001
Re: SCARED!! Lyme, Rocky Mountain, or West Nile we do not know!

Sorry - didn't mean to confuse anyone! I know, easy to do with us Lymies...:)

I apologize for causing any undo confusion!

Take care and God Bless,

Andy
Board: Lyme Disease 07-10-2007, 01:08 PM
Replies: 15
Views: 2,951
Posted By agm08001
Re: SCARED!! Lyme, Rocky Mountain, or West Nile we do not know!

One of my sons is named Camden :) We like to think of the ME Camden, not of the NJ one! (No offense to NJ meant)
Board: Lyme Disease 07-05-2007, 01:38 PM
Replies: 7
Views: 1,684
Posted By agm08001
Re: Bulls Eye Rash after the fact

Take care and good luck!

God bless, Andy
Board: Lyme Disease 07-05-2007, 01:34 PM
Replies: 7
Views: 1,168
Posted By agm08001
Re: Adding insult to injury....

Hey All - Thanks for the kind words. We didn't make it up to Wolfeboro. I had to go back to the Dr to have my blood levels checked - for Coumadin - and am still waiting to see if I need more lovenox....
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