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Board: Health Insurance SSDI Issues 03-15-2013, 12:25 AM
Replies: 0
Views: 382
Posted By sydneysmommy
Just an update on my SSDI

I wrote in here a couple times when I went through the process of disability. I am 23 and was approved in January of this year. It took me almost exactly two years to get my approval from the date I...
Board: Rare Disorders 03-15-2013, 12:16 AM
Replies: 4
Views: 2,061
Posted By sydneysmommy
Re: NEED DIAGNOSIS - Syncope, Unexplained Bruises, and Joint Pain

Google Postural Orthostatic Tachycardia Syndrome and orthostatic intolerance. I had to be diagnosed with a Tilt Table Test.
Board: Health Insurance SSDI Issues 01-11-2013, 03:51 AM
Replies: 1
Views: 467
Posted By sydneysmommy
Had my hearing yesterday

I think it went really well. My lawyer seemed positive it was favorable, but i dont want to get my hopes up.
It only lasted 15 mins and the lawyer and VE didnt ask me any questions. The judge just...
Board: Health Insurance SSDI Issues 11-10-2012, 12:12 AM
Replies: 2
Views: 498
Posted By sydneysmommy
Re: SSI Help with PTSD.. Self Defense

Dont worry too much about age.... I know plenty of people with this same illness as me and same age (im 23) who were approved. The biggest thing is to have good medical records. Start building up...
Board: Health Insurance SSDI Issues 11-08-2012, 12:54 AM
Replies: 3
Views: 472
Posted By sydneysmommy
Re: wait time please?

I have a lawyer. Its just confusing because i know of a couple people who have applied after me and have already gone to their hearing and got their results.
Board: Health Insurance SSDI Issues 11-02-2012, 03:04 AM
Replies: 3
Views: 472
Posted By sydneysmommy
wait time please?

I appealed my reconsideration in Janurary of this year. So its been about 10 months now. I am in AZ and was wondering what the average wait time is for a hearing date. Also, when they schedule you...
Board: Infertility 09-24-2012, 08:17 AM
Replies: 1
Views: 886
Posted By sydneysmommy
Could this be bad?

Hi there! I am 23 years old and have a 2 and a half year old daughter. The last two months my periods have been extremely painful and all over the place, when usually they are not painful. I have had...
Board: Brain & Nervous System Disorders 08-26-2012, 01:29 PM
Replies: 2
Views: 554
Posted By sydneysmommy
Re: Help! Feel Like I'm Slowly Dying

grantk, what you just mentioned sounds just like POTS aka dysautonomia. I get no swings and mornings are always the worst.
Board: Health Insurance SSDI Issues 07-11-2012, 01:04 AM
Replies: 4
Views: 1,744
Posted By sydneysmommy
Re: SSDI child's benefit, saving the money?

My dad had a very large payout from SSDI years ago, and saved majority of the money still....its been 7 years and they have never checked on it and other than his 7 year review, he never hears from...
Board: Health Insurance SSDI Issues 07-08-2012, 01:09 AM
Replies: 2
Views: 493
Posted By sydneysmommy
Re: What about Stroke Survivors?

You dont need to be denied twice, or even once. I found a few that would take you before any denials, but most just wait for your first. i got my lawyer the same day I got my initial denial letter.
Board: Health Insurance SSDI Issues 07-08-2012, 01:04 AM
Replies: 2
Views: 366
Posted By sydneysmommy
How long for hearing?

I appealed my reconsideration in December and was told it could be a year or longer. Last month I got a letter from SSA saying I could send my records in for an early decision.


I heard that...
Board: Health Insurance SSDI Issues 07-07-2012, 01:18 AM
Replies: 8
Views: 848
Posted By sydneysmommy
Re: age and ssi

Ive applied for adult disabled child and they told me it woulr be half of what my father recieves...he gets around 2400/month, so i would get half.
Board: Chronic Fatigue 05-23-2012, 09:11 AM
Replies: 1
Views: 1,327
Posted By sydneysmommy
If you have CFS please look at this

I kept being told I had ME/CFS and that there was not too much I could do about it. This was about 5 years ago when I was 18. I was completely bed bound.Turns out I actually have a condition called...
Board: Health Insurance SSDI Issues 10-26-2011, 10:16 AM
Replies: 13
Views: 1,583
Posted By sydneysmommy
Re: Reconsideration stage question....

oh yeah my cardiologist and neurologist filled those out after my first denial. I dont know why they didnt ask for that on the first round either?
Board: Health Insurance SSDI Issues 10-26-2011, 09:57 AM
Replies: 13
Views: 1,583
Posted By sydneysmommy
Re: Reconsideration stage question....

thats aweaome you got it on reconsideration! yes I do have a lawyer but im not sure how much they have helped so far. My condition is mainly physical ( dysautonomia postural orthostatic tachycardia...
Board: Health Insurance SSDI Issues 10-26-2011, 09:49 AM
Replies: 13
Views: 1,583
Posted By sydneysmommy
Re: Reconsideration stage question....

Thank you everyone! I was just confused because everyone told me that with reconsideration, it would be a couplw months then I would get my denial, which I was expectibg soon. Then they call up...
Board: Health Insurance SSDI Issues 10-25-2011, 11:10 PM
Replies: 13
Views: 1,583
Posted By sydneysmommy
Reconsideration stage question....

I got denied in July and finally heard back today that they are going to send me in for a psych exam. ( I had already done a physical exam before my first denial) Why wasnt this done before my first...
Board: Chronic Fatigue 10-15-2011, 01:39 AM
Replies: 0
Views: 832
Posted By sydneysmommy
Bear with me here! Need some input!

Well I have had POTS/OI for 4 years and now CFS diagnosis, not sure if its just bad POTS again, but it really doesnt make much difference what they call it :)

When I was 18 I had my "crash" and...
Board: Allergies 10-15-2011, 01:29 AM
Replies: 5
Views: 1,326
Posted By sydneysmommy
Re: Not sure what to think

The problem with sinus sprays (water saline solutions) is that because my sinuses are so swollen, my ENT said an infection could occur with the use of them. I am on flonsase and patanase, but because...
Board: Allergies 10-13-2011, 11:05 PM
Replies: 9
Views: 6,822
Posted By sydneysmommy
Re: Best place to live in US for allergies?

Dont move to AZ! I am doing HORRIBLE here.
I have constant swelling in my sinuses and ears (causes dizziness and vertigo) and severe fatigue and sneezing. I hate being here and cant wait to finally...
Board: Cancer 10-12-2011, 08:58 PM
Replies: 13
Views: 5,278
Posted By sydneysmommy
Re: what are the general symptoms of cancer

Have you tried Low Dose Naltrexon? My mom's friend is trying it for her cancer and it got rid of my mothers crohns disease. Its worth looking into!
Board: Cancer 10-12-2011, 08:55 PM
Replies: 0
Views: 950
Posted By sydneysmommy
question about infant and cancer...

My friends child is 14 months old and she has been in the 5th percentile and weight for a long time. (she is only 16 pounds and 24 inches tall for 14 months old). She has had gastro problems but...
Board: Disabilities 10-10-2011, 10:54 PM
Replies: 20
Views: 3,620
Posted By sydneysmommy
Re: Amount per month

My father receives 2,317 per month
Board: Brain & Nervous System Disorders 10-10-2011, 10:49 PM
Replies: 71
Views: 122,044
Posted By sydneysmommy
Re: Help! Feel Like I'm Slowly Dying

I came down with POTS and OI when I was 18 but it took a year and a half to get my diagnosis. Its because doctors are not educated on it and you have to see an ANS specialist.
I saw Dr. Goodman at...
Board: Allergies 10-10-2011, 11:10 AM
Replies: 5
Views: 1,326
Posted By sydneysmommy
Not sure what to think

I went to an ENT and they diagnosed me with severe allergies to hay and grass through the allergy test.
My symptoms are vertigo/dizziness from pressure on my ears ( I feel like there is fluid in...
Board: Brain & Nervous System Disorders 10-10-2011, 09:43 AM
Replies: 71
Views: 122,044
Posted By sydneysmommy
Re: Help! Feel Like I'm Slowly Dying

you would need a tilt table teat to confirm POTS. I take midodrine, florinef,metroprolol, tons of salt and just a life style change. I am applying for disability.
good luck and congrats on your...
Board: Brain & Nervous System Disorders 10-03-2011, 09:43 PM
Replies: 0
Views: 745
Posted By sydneysmommy
Just putting this out there!

I am trying to spread the word about dysautonomia. I have read a LOT of posts that sound so familiar to this. I have POTS and OI and its been a LONG journey to finally get my diagnosis.
I would hate...
Board: Brain & Nervous System Disorders 10-03-2011, 09:39 PM
Replies: 4
Views: 1,982
Posted By sydneysmommy
Re: Autonomic Dysfunction- Vanderbilt Autonomic Research Center- Any one with experie

Have you tried midodrine or florinef? With orthostatic intolerance, a beta blocker would not be wise until you get the blood pressure up. Have you done the TTT? If so what were you stats?
Board: Brain & Nervous System Disorders 10-03-2011, 09:38 PM
Replies: 4
Views: 1,982
Posted By sydneysmommy
Re: Autonomic Dysfunction- Vanderbilt Autonomic Research Center- Any one with experie

yes I am 22 with POTS and OI. I have had it for around 4 years. After my daughter was born I got significantly worse. I am now bed bound but hoping with some new meds that I will start feeling...
Board: Brain & Nervous System Disorders 10-03-2011, 09:30 PM
Replies: 71
Views: 122,044
Posted By sydneysmommy
Re: Help! Feel Like I'm Slowly Dying

Also to mention, pregnancy can cause dysautonomia.
Board: Brain & Nervous System Disorders 10-03-2011, 09:29 PM
Replies: 71
Views: 122,044
Posted By sydneysmommy
Re: Help! Feel Like I'm Slowly Dying

Look up dysautonomia. I have a form called Postural Orthostatic Tachycardia syndrome and Orthostatic Intolerance. Also was diagnosed with ME/CFS.
Board: Health Insurance SSDI Issues 10-02-2011, 10:44 PM
Replies: 8
Views: 3,298
Posted By sydneysmommy
Re: Disability Hearing for Fibromyalgia

I was diagnosed with POTS and oI, and also ME/CFS, but my lawyer and I decided it would be in my best interest not to include the ME/CFS diagnosis. They told me most judges just roll their eyes when...
Board: Disabilities 09-28-2011, 11:57 AM
Replies: 25
Views: 6,981
Posted By sydneysmommy
Re: Received disability award letter by mistake???

How do you check your online status? I saw it needed a confirmation number.. where did you find it?? thanks :)
Board: Disabilities 09-27-2011, 09:32 PM
Replies: 19
Views: 3,386
Posted By sydneysmommy
Re: First time denied...Now what ?

Im on the reconsideration phase right now with a lawyer. My lawyers sent the appeal July 1st and I havent heard anything yet :/ Ill write when I do! Good luck!
My friend was approved at the appeal...
Board: Anxiety 05-17-2011, 02:00 AM
Replies: 1
Views: 567
Posted By sydneysmommy
please help!

Try to bear with me :]

I am 21 years old. I have a chronic illness called postural orthostatic tachycardia syndrome with orthostatic intolerance also ME/CFS. Because of all this I have anxiety...
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