It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....




Lightbulb

Search   Advanced Search
Showing results 1 to 50 of 500
Search took 0.21 seconds.
Search: Posts Made By: MSJayhawk

Alternative to Searching: Try our message board index!
Board: Multiple Sclerosis 08-26-2015, 07:38 PM
Replies: 5
Views: 162
Posted By MSJayhawk
Re: Need second opinion

kjb20070,

You may find that their are doctors who would rather sit on the fence than deliver "bad news". When I was out in California and my MS worsened, the MS doctor did not believe my...
Board: Multiple Sclerosis 08-26-2015, 09:52 AM
Replies: 5
Views: 162
Posted By MSJayhawk
Re: Need second opinion

kjb20070,

:wave: Welcome.

Kudos for keeping a journal. It can really help.

In order to have a diagnosis of MS, you have to meet the criteria of the Revised McDonald Criteria. Thought your...
Board: Multiple Sclerosis 08-25-2015, 05:59 PM
Replies: 2
Views: 124
Posted By MSJayhawk
Re: Second opinion??

cb3angels,

:wave: Welcome!

I would certainly encourage you to seek out a second opinion.

A spinal tap and the rest of your tests are not specific tests for MS. I do not think your...
Board: Multiple Sclerosis 08-25-2015, 09:39 AM
Replies: 4
Views: 150
Posted By MSJayhawk
Re: I don't know what to believe

Dixze,

I think you will not get a proper diagnosis until October at the earliest.

Your neurologist would appear to be playing towards their experience of which MG might be their "bias". ...
Board: Multiple Sclerosis 08-25-2015, 09:13 AM
Replies: 4
Views: 150
Posted By MSJayhawk
Re: I don't know what to believe

Dixze,

If your neuro is an MS Specialist, you should be able to get an answer. It certainly should not take 6 years. In both myasthenia gravis and MS, symptoms often appear gradually over...
Board: Multiple Sclerosis 08-24-2015, 06:15 PM
Replies: 8
Views: 272
Posted By MSJayhawk
Re: Electric bicycle

Wigglestein,

I just read about a new clip on electric motor by "ONwheel". It looked interesting. You might want to look at this option as an alternative for re-purposing your existing bike :) ...
Board: Multiple Sclerosis 08-23-2015, 08:58 PM
Replies: 3
Views: 199
Posted By MSJayhawk
Re: What exactly is a relapse?

CI1967,

Snoopy shared with you the standard guideline. Some doctor's may have varying opinions, but the guidelines Snoopy shared are a great place to start. If you have a journal, you might...
Board: Multiple Sclerosis 08-23-2015, 01:47 PM
Replies: 3
Views: 159
Posted By MSJayhawk
Re: Ampyra does it really improve walking?

Rem4,

As I got worse, I used my power chair for conserving energy. Eventually I was there 90% of the time until I moved onward and now it is parked at my desk. Forearm crutches do not fit under...
Board: Multiple Sclerosis 08-23-2015, 12:30 PM
Replies: 3
Views: 159
Posted By MSJayhawk
Re: Ampyra does it really improve walking?

Rem4,

Your walking may or may not improve while using Ampyra. Looking at the initial walking test details during the study, the net improved speed was "iffy" and in those showing improvement, it...
Board: Multiple Sclerosis 08-23-2015, 06:43 AM
Replies: 5
Views: 176
Posted By MSJayhawk
Re: Optic Neuritis

sarabeach123,

What you are experiencing is normal following a diagnosis. I think that worry and stress are greater before a diagnosis. That said, worry and stress need to be limited as best you...
Board: Multiple Sclerosis 08-22-2015, 06:25 AM
Replies: 5
Views: 176
Posted By MSJayhawk
Re: Optic Neuritis

sarabeach123,

I would agree that what you shared does not sound like ON. I have had ON several times either in my right eye or both eyes. Early on with MS, you should be proactive as to new...
Board: Multiple Sclerosis 08-18-2015, 04:50 PM
Replies: 4
Views: 264
Posted By MSJayhawk
Re: Brain MRI/lesions

Dixze,

The question would be "What is a healthy brain"? Your lesions could have been with you since you were an infant and could be linked to a simpple infection or high fever. There are many...
Board: Multiple Sclerosis 08-18-2015, 11:32 AM
Replies: 9
Views: 293
Posted By MSJayhawk
Re: Lion's Mane

sunshine149,

Consuming it will only provide a limited amount of the neurogenic properties. Extractions which are encapsulated for oral dosage are at least 5 times higher. Consumption of the...
Board: Multiple Sclerosis 08-17-2015, 05:29 PM
Replies: 9
Views: 293
Posted By MSJayhawk
Re: Lion's Mane

sunshine149,

FYI, you might want to remember the name Yamabushitake. This is the Japanese name for Lion's Mane mushroom and there are studies done under that name. The capsule dosage is a 96%...
Board: Multiple Sclerosis 08-17-2015, 05:20 PM
Replies: 9
Views: 293
Posted By MSJayhawk
Re: Lion's Mane

sunshine149,

Western doctors are limited by what they can advise due in large part to the litigious nature of society. My MS Clinic employs dietitians for nutritional education as that is their...
Board: Multiple Sclerosis 08-16-2015, 10:09 AM
Replies: 9
Views: 293
Posted By MSJayhawk
Re: Lion's Mane

sunshine149,

Lion's mane mushroom, Hericium erinaceus, is still in study, but the studies to date regarding the neuroregenerative properties are only believed to possibly be of benefit for the...
Board: Multiple Sclerosis 08-14-2015, 01:47 PM
Replies: 5
Views: 246
Posted By MSJayhawk
Re: Can someone explain this MRI to me?

Riderfan44.

Your experience is not unlike others with MS. Symptoms may go unnoticed or overlooked. The lesion which is active may or may not have an impact on you. Your body may even rewire and...
Board: Multiple Sclerosis 08-14-2015, 12:57 PM
Replies: 5
Views: 246
Posted By MSJayhawk
Re: Can someone explain this MRI to me?

Riderfan44.

:wave: Welcome.

The neuro is incorrect in his "ok". MSers can enjoy periods of remission, but there is no conclusive way to know how long these periods may last and if there will...
Board: Multiple Sclerosis 08-13-2015, 08:01 PM
Replies: 2
Views: 206
Posted By MSJayhawk
Re: Gilenya and side effects

Daphnieh,

High BP due to Gilenya is a less common side effect BUT it is considered severe. If you have any medical history of cardiovascular issues, Gilenya is not a med to try. If you are...
Board: Multiple Sclerosis 08-09-2015, 07:16 PM
Replies: 8
Views: 281
Posted By MSJayhawk
Re: Lhermitte's

Dixze,

If you have the symptoms (which it appears you do) and you meet the Revised McDonald Criteria, you should be able to get a diagnosis. After 6 years, any lesions, if you have them,...
Board: Multiple Sclerosis 08-09-2015, 05:42 PM
Replies: 8
Views: 281
Posted By MSJayhawk
Re: Lhermitte's

Dixze,

Even if you saw the neuro tomorrow, there is nothing that will stop the L'hermittes. During the summer months I get numbness and tingling in my feet and toes but mostly my hands. Cold...
Board: Multiple Sclerosis 08-09-2015, 01:35 PM
Replies: 8
Views: 281
Posted By MSJayhawk
Re: Lhermitte's

Dixze,

It is 115 F (46 C) heat index here. I understand some Hobbit's tossed a ring in West Texas :D L'hermitte triggers can include being tired or overheated in addition to neck movements. ...
Board: Multiple Sclerosis 08-09-2015, 01:29 PM
Replies: 8
Views: 281
Posted By MSJayhawk
Re: Lhermitte's

Dixze,

Yes, no, and maybe. If this is a new symptom for you, you should get a confirmation. At the very least, ask your GP to check things out and they should be able to say, neurological if...
Board: Multiple Sclerosis 08-07-2015, 07:51 PM
Replies: 13
Views: 400
Posted By MSJayhawk
Re: Reverse Lhermitte's

fairy77,

Often we have to self-advocate, but sometimes we are blessed with doctors and nurses who will advocate for us. Unless you live near a teaching hospital or a larger metro area, it is...
Board: Multiple Sclerosis 08-07-2015, 10:27 AM
Replies: 5
Views: 280
Posted By MSJayhawk
Re: MRI - reactions during

The study is available online :) I researched it too when xxPantherxx mentioned it. I think that the newer machines are more likely "better" as the study was in 2000 and 15 years have passed :) ...
Board: Multiple Sclerosis 08-06-2015, 06:15 PM
Replies: 5
Views: 280
Posted By MSJayhawk
Re: MRI - reactions during

The study was based on people experiencing similar things to what xxPantherxx experienced. I always lay my hands on my stomach relaxed and loose, but this is what I have always done. I know that...
Board: Multiple Sclerosis 08-05-2015, 08:17 AM
Replies: 6
Views: 497
Posted By MSJayhawk
Re: are these things typical of MS or just possibly symptoms?

Jennifer,

Your current dilemma could be MS or not. I will cycle through times when the touch of paper or other times when the touch of a certain plastic is painful or irritating. Have you...
Board: Multiple Sclerosis 08-04-2015, 07:40 AM
Replies: 2
Views: 277
Posted By MSJayhawk
Re: MRI results - normal! Woohoo

xxPantherxx,

Indeed it is good news. Because 5% of MSers can present initially without lesions, it would be wise to heed the doctor's advice and have follow-up MRIs. Reducing stress and...
Board: Multiple Sclerosis 08-03-2015, 08:45 AM
Replies: 5
Views: 280
Posted By MSJayhawk
Re: MRI - reactions during

xxPantherxx,

Thanks for your update!

If you close your hands or clasp your hands during an MRI you can effectively create an electrical loop. When exposed to the high "on off" of the magnetic...
Board: Multiple Sclerosis 08-02-2015, 08:12 PM
Replies: 4
Views: 318
Posted By MSJayhawk
Re: Tingling/numbness in feet

Dixze,

Sulfasalazine can cause tingling and numbness in hands and/or feet. These are symptoms which should be reported to the prescribing doctor. :angel:
Board: Multiple Sclerosis 08-02-2015, 05:19 PM
Replies: 4
Views: 318
Posted By MSJayhawk
Re: Tingling/numbness in feet

Dixze,

:wave: Welcome.

You shared that you were diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) which is a syndrome with many symptoms. Of those symptoms, numbness and...
Board: Multiple Sclerosis 08-02-2015, 03:57 PM
Replies: 13
Views: 400
Posted By MSJayhawk
Re: Reverse Lhermitte's

fairy77,

Amatadine is used primarily for PD, but also to treat respiratory infections as well as PD like symptoms.

My thermostat is broken. My upper limit depends on the heat/humidity. ...
Board: Multiple Sclerosis 08-01-2015, 05:34 PM
Replies: 13
Views: 400
Posted By MSJayhawk
Re: Reverse Lhermitte's

fairy77,

Checking variants of Lhermitte's sign, there are several variants. As to the direction you indicated, it falls under one of the variant types, but would need to be seen by the doctor to...
Board: Multiple Sclerosis 08-01-2015, 05:14 PM
Replies: 13
Views: 400
Posted By MSJayhawk
Re: Reverse Lhermitte's

fairy77,

Lhermitte’s sign is not specific to MS, but among 38% of MSers, it can be a persistent symptom. It is a symptom that can occur with any abnormality of the cervical spinal cord, usually...
Board: Multiple Sclerosis 07-31-2015, 04:51 PM
Replies: 20
Views: 916
Posted By MSJayhawk
Re: Second Opinion and a bit disgruntled

Okie gal,

Kudos to the doctor's nurse. You are blessed.

With electronic records floating on the internet, it is difficult to say what records can be accessed. All my records with my MS...
Board: Multiple Sclerosis 07-30-2015, 08:12 PM
Replies: 3
Views: 213
Posted By MSJayhawk
Re: Checking In Again

sbha12,

As a side note, your divorce ranks fairly high on stress events within our lives. Stress can cause MS symptoms to present and could be linked towards your newest lesions. The less...
Board: Multiple Sclerosis 07-30-2015, 08:09 PM
Replies: 3
Views: 213
Posted By MSJayhawk
Re: Checking In Again

sbha12,

Thanks for your update. DMTs are supposed to s;low the progression of MS, but it does not stop MS. Lesions are not indicative of any major changes. That is, you might have 1 new lesion...
Board: Multiple Sclerosis 07-30-2015, 03:26 PM
Replies: 18
Views: 507
Posted By MSJayhawk
Re: question about MS

wickeddragon,

I read a recent proposal which believes depression or some depression can be caused by bad or problematic gut bacteria.

Whether I can walk on a given day or not, I stretch daily....
Board: Multiple Sclerosis 07-30-2015, 03:02 PM
Replies: 18
Views: 507
Posted By MSJayhawk
Re: question about MS

wickeddragon,

When you are moving sufficiently, your body is producing healing chemicals which bathe your body. These are beneficial to your well-being. Your metabolism rates could be a a...
Board: Multiple Sclerosis 07-30-2015, 02:30 PM
Replies: 12
Views: 539
Posted By MSJayhawk
Re: Likely MS Diagnosis and I'm Teriffied ... any advice?

k9kai,

No worries.

1) There is no way to know why no lesions were present. Also, if an MRI was not read properly or was not run properly, abnormalities can be missed. The problem also goes...
Board: Multiple Sclerosis 07-30-2015, 09:59 AM
Replies: 18
Views: 507
Posted By MSJayhawk
Re: question about MS

wickeddragon,

No worries.

If you are needing to change your career, check with your state of residence. Here there are slots available for sending you back to the university or vo-tech to...
Board: Multiple Sclerosis 07-30-2015, 09:46 AM
Replies: 6
Views: 497
Posted By MSJayhawk
Re: are these things typical of MS or just possibly symptoms?

Jennifer,

Welcome :wave:

During the hot summer period or when the temperatures dip below 52 F (11.11 C) I have trouble closing my hands to make a fist or even hold objects. While I do not...
Board: Multiple Sclerosis 07-30-2015, 07:45 AM
Replies: 18
Views: 507
Posted By MSJayhawk
Re: question about MS

wickeddragon,

A positive ANA test usually indicates that your immune system has launched a misdirected attack on your own tissue, that is, an autoimmune reaction. It is important, however to note...
Board: Multiple Sclerosis 07-29-2015, 12:47 PM
Replies: 12
Views: 539
Posted By MSJayhawk
Re: Likely MS Diagnosis and I'm Teriffied ... any advice?

k9kai,

Your blood tests should specifically indicate what was tested. You should also be tested for Lyme Disease. Once the blood tests are negative, then you have more to go on. Migraines,...
Board: Multiple Sclerosis 07-29-2015, 12:42 PM
Replies: 12
Views: 539
Posted By MSJayhawk
Re: Likely MS Diagnosis and I'm Teriffied ... any advice?

k9kai,

Migraines can cause lesions, but the lesions are quite tiny. Seeing a general neurologist if you suspected MS would not be the best for you. An MS Specialist (a neuro whose specialty is...
Board: Multiple Sclerosis 07-29-2015, 11:46 AM
Replies: 12
Views: 539
Posted By MSJayhawk
Re: Likely MS Diagnosis and I'm Teriffied ... any advice?

k9kai,

:wave: Welcome.

I went through MS seizures which left me bedridden for nearly 6 months. MS Seizures are rare and affect about 5% of MSers. My seizures stopped and I "recovered".
...
Board: Multiple Sclerosis 07-29-2015, 10:15 AM
Replies: 18
Views: 507
Posted By MSJayhawk
Re: question about MS

Wikkeddragon,

I know how you feel. I have found that my being around is more important than actually getting on rides or doing some activities. There are fewer activities for me, but my kids do...
Board: Multiple Sclerosis 07-29-2015, 07:17 AM
Replies: 18
Views: 507
Posted By MSJayhawk
Re: question about MS

Wikkeddragon,

If your eye is that bad, you should have some kind of answer from an Ophthalmologist because your vision as you shared does not seem familiar regarding MS.

When we reach our...
Board: Multiple Sclerosis 07-28-2015, 01:44 PM
Replies: 18
Views: 507
Posted By MSJayhawk
Re: question about MS

wickeddragon,

No worries. Looks like you have done the preliminary screening. The MS Specialist consult would benefit you, I think. :) :angel:
Board: Multiple Sclerosis 07-28-2015, 11:22 AM
Replies: 12
Views: 364
Posted By MSJayhawk
Re: Tingle in finger

Erin,


No worries. We know how you are feeling and the questions and concerns you have are easily understood. The questions you have might be those of others who are afraid to ask. Questions...
Showing results 1 to 50 of 500

 








All times are GMT -7. The time now is 01:28 AM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2015 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!