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Board: Cancer: Breast 11-07-2012, 08:19 PM
Replies: 1
Views: 963
Posted By Jul2
Re: Lump in armpit?

Gads, could be anything! Were you ever tested for Lyme disease?
Board: Pituitary Disease 11-07-2012, 07:49 PM
Replies: 33
Views: 14,851
Posted By Jul2
Re: Pituitary Resistance to Thyroid Hormone

This is interesting. As a pituitary patient with high prolactin I had very severe problems with heat. Also, my heartbeat was so slow I had constant arrhythmias every night. Was sure I was going to...
Board: Endocrine Disorders 11-07-2012, 07:20 PM
Replies: 5
Views: 2,628
Posted By Jul2
Re: Cushings? Pseudo Cushings? Please help

I'm not a doctor and it sounds as though yours is amazingly efficient. He's doing what an "endocrinologist" would do in Canada. The only thing I'm wondering is if he tested your cortisol level as...
Board: Cancer: Cervical & Ovarian 10-31-2012, 10:56 PM
Replies: 7
Views: 1,733
Posted By Jul2
Re: Colposcopy Pain & Best Drug Before

That's actually what concerns me most, Erie. When I was first told I had breast cancer about 5 years ago, I didn't want to believe it, so waited a year for a biopsy. It hadn't advanced any further...
Board: Cancer: Cervical & Ovarian 10-30-2012, 02:23 AM
Replies: 7
Views: 1,733
Posted By Jul2
Colposcopy and Types of Drugs - Also Cancer Spread from Biopsy

If I do get the courage to undergo this, and I only have a few days to decide, I am thinking of taking a drug called TEVA-KETOROLAC, 10 MG, which I happen to have in my cabinet. Maybe that will be...
Board: Cancer: Cervical & Ovarian 10-30-2012, 02:14 AM
Replies: 7
Views: 1,733
Posted By Jul2
Colposcopy Pain & High Grade Cells Versus Low

Thanks for replying, all of you. What I'm guessing at though, is that those with high grade cells would experience much more pain than those with low grade cells. Have any of you had high grade...
Board: Cancer: Cervical & Ovarian 10-28-2012, 02:34 PM
Replies: 7
Views: 1,733
Posted By Jul2
Question Colposcopy Pain & Best Drug Before

Hi. Please don't read this thread if you are afraid of the answers.

I've read some of the old threads on here about colposcopy pain and the fear of it. Many of those women never posted back...
Board: Pituitary Disease 10-24-2012, 10:35 AM
Replies: 29
Views: 22,899
Posted By Jul2
Re: Looking for surgeon to remove Pituitary Tumor

I assume you're asking from the US, but I will give you my feelings from Canada because I fear that I will die from a large tumour myself.

If it's possible to do such a thing, the only guy in the...
Board: Pituitary Disease 08-12-2012, 07:38 PM
Replies: 0
Views: 2,926
Posted By Jul2
Pituitary Problems May be Lyme Disease

- Do you suffer from anxiety?
- Do you panic easily?
- Is it hard to concentrate?
- Are you tired all the time? Do you sleep too much?
- Have you had a large change in weight over the last few...
Board: Pituitary Disease 08-11-2012, 11:53 AM
Replies: 6
Views: 17,629
Posted By Jul2
Re: Band of pressure across forehead

I never noticed the protruding forehead until I was in the bathroom standing under a light one day with hair pulled back. Then I could see a 1/2 bowl-like growth. It can't be noticed in normal...
Board: Endocrine Disorders 08-11-2012, 11:38 AM
Replies: 5
Views: 2,628
Posted By Jul2
Re: Cushings? Pseudo Cushings? Please help

Congratulations! Always better to be safe, than sorry. Extra tests don't generally hurt.
Board: Endocrine Disorders 08-07-2012, 04:22 PM
Replies: 5
Views: 2,628
Posted By Jul2
Re: Cushings? Pseudo Cushings? Please help

If you have a doctor who starts out a sentence with 'You don't look like....
it's best to find another.

Cancer patients don't all look like they have cancer.
Cushings patients don't all look...
Board: Hormone Problems 08-05-2012, 08:31 AM
Replies: 15
Views: 79,431
Posted By Jul2
Re: Excesive weight gain related to high levels of Prolactin???

Today's doctors "aren't" being trained for the most common and deadly diseases, such as pituitary tumours (one in five people), or Lyme disease, which could be as common as in one in two people, if...
Board: Hormone Problems 05-03-2012, 11:27 AM
Replies: 15
Views: 79,431
Posted By Jul2
Re: Excesive weight gain related to high levels of Prolactin???

I’m really glad you’re on them again. Do you have a pituitary tumour, and if so, what size is it?

I have a tumour over 1cm. It's called an macroadenoma now, but most doctors don't know...
Board: Hormone Problems 04-13-2012, 06:52 PM
Replies: 5
Views: 12,491
Posted By Jul2
Re: estrogen dominance/ progesterone low

it seems that this strange word called estrogen dominance can be used for either women who have excessive estrogen or too little!
Board: Hormone Problems 04-13-2012, 06:38 PM
Replies: 1
Views: 1,562
Posted By Jul2
Re: Cushing's syndrome

I'm not a doctor but I think that is possible with pituitary tumours especially, which she probably has. Surely she should rule that out by first starting with a prolactin blood test, and then if...
Board: Hormone Problems 04-13-2012, 06:31 PM
Replies: 1
Views: 876
Posted By Jul2
Re: change sex to female

My gosh, that can be dangerous for health, because you would have to take so many hormones to change your appearance and hormones can cause so many problems. But I do know of one young person in...
Board: Hormone Problems 04-13-2012, 06:16 PM
Replies: 3
Views: 3,669
Posted By Jul2
Re: 37 period stopped for 3 months, hot flashes & insomnia

PS. Forgot to mention that if yu do have a tumour and if it is small and removed, you might actually be able to get pregnant again. You would have to ask your doctor. But one extremely important...
Board: Hormone Problems 04-13-2012, 06:07 PM
Replies: 0
Views: 1,334
Posted By Jul2
Cabergoline or Dostinex - Do They Really Work for Sexual Arrousal?

Also wanted to comment on the topic of sexual arousal which some people believe can happen with these drugs. Don't know what it does for men, but as a woman who has lost all sex drive for many years...
Board: Hormone Problems 04-13-2012, 06:05 PM
Replies: 0
Views: 1,047
Posted By Jul2
Cabergoline or Dostinex Mixed with Other Drugs

Forgot to mention that another thing I find hard with Cabergoline is that it doesn't seem to react too well with other drugs, especially those hard on the stomach such as Alleve. Ouch! Don't like...
Board: Hormone Problems 04-13-2012, 05:56 PM
Replies: 15
Views: 79,431
Posted By Jul2
Re: Excesive weight gain related to high levels of Prolactin???

Yes, same thing. I decided to try to stop the Cabergoline for three months after taking it for a year. Things were OK for first few weeks but then increasingly I started to go into massive sweats...
Board: Hormone Problems 03-31-2012, 10:33 PM
Replies: 15
Views: 79,431
Posted By Jul2
Re: Excesive weight gain related to high levels of Prolactin???

Not only will those drugs raise your prolactin as well as your triglyceride levels (which may already be at risk with tumour growth), but they also make your tumour grow bigger.

I read one...
Board: Pituitary Disease 03-17-2012, 07:05 PM
Replies: 33
Views: 14,851
Posted By Jul2
Re: Pituitary Resistance to Thyroid Hormone

All I can recommend is to ensure the tumour growth is monitored every three years or so. They can be removed when small but once they are over 1cm (they're harder to remove). And yes, they can...
Board: Pituitary Disease 03-17-2012, 06:52 PM
Replies: 11
Views: 9,773
Posted By Jul2
Re: Anxiety and panic- related symptoms to Prolactinoma?

Works like a charm that way! The only bad news is that you have to take it for life because high prolactin has been shown in many many instances to cause cancers to move directly to the lymph nodes....
Board: Pituitary Disease 03-17-2012, 06:46 PM
Replies: 6
Views: 17,629
Posted By Jul2
Re: Band of pressure across forehead

Sounds like an eye problem to me - cataracts maybe? Have you seen someone about your eyes? Pituitary tumours do cause eye problems and pain behind the eye, especially if they're growing, but...
Board: Pituitary Disease 03-03-2012, 12:07 PM
Replies: 29
Views: 22,899
Posted By Jul2
Re: Looking for surgeon to remove Pituitary Tumor

I never saw that Kelly guy in the United States myself, but I did email him once and he does sound not only caring, but brilliant. In fact, he is probably the only surgeon I would trust!
Board: Pituitary Disease 03-03-2012, 12:03 PM
Replies: 6
Views: 17,629
Posted By Jul2
Re: Band of pressure across forehead

Never heard of that one before, but certainly, as a pituitary patient, I have had double migraines -- one going in each direction, like in the form of a cross. Regarding the pressure, have you ever...
Board: Pituitary Disease 03-03-2012, 11:57 AM
Replies: 2
Views: 1,221
Posted By Jul2
Re: Test results. thoughts?

I too have the same things. Have had some extremely severe muscle attacks, so crippling they have hurt for six weeks afterward. Also had low vitamin D and, like you, 5000 was recommended. But be...
Board: Pituitary Disease 03-03-2012, 11:51 AM
Replies: 11
Views: 9,773
Posted By Jul2
Re: Anxiety and panic- related symptoms to Prolactinoma?

I think that's false. In fact, from what I have read, one of the first symptoms many pituitary patients present is exactly that. Some reports have even said that many of these patients exhibit the...
Board: Pituitary Disease 03-03-2012, 11:46 AM
Replies: 2
Views: 1,417
Posted By Jul2
Re: Have Pituitary Tumor... Need Help,Advice,and Support

It's really sad that insurance companies don't realize that by not removing this tumour right away, bills will cost in the many thousands later from the offshooting deadly diseases. By the way, I...
Board: Pituitary Disease 03-03-2012, 11:39 AM
Replies: 8
Views: 2,970
Posted By Jul2
Re: Doctors No Nothing About Pituitary Tumours! What tests are necessary?

Actually Cabergoline (Dostinex generic) is a bit different from Bromocriptine. I did try the Bromocriptine but couldn't take it. The Cabergoline only has to be taken once a week as well, which...
Board: Pituitary Disease 03-03-2012, 11:31 AM
Replies: 1
Views: 2,589
Posted By Jul2
Re: Pituitary tumor, but doc refuses to treat it

Whatever happened about your visit to the other endocrinologist? Hopefully he treated it.

Usually they will watch it grow for awhile first to make sure it is growing, but they let mine grow...
Board: Hormone Problems 02-29-2012, 04:23 AM
Replies: 15
Views: 79,431
Posted By Jul2
Re: Excesive weight gain related to high levels of Prolactin???

I feel so sad when reading postings like this. I hope you're aware that some anti-psychotics will raise your prolactin levels. Many will also "cause" pituitary tumours to grow, so if you're ...
Board: Pituitary Disease 02-21-2012, 12:45 AM
Replies: 8
Views: 2,970
Posted By Jul2
Re: Doctors No Nothing About Pituitary Tumours! What tests are necessary?

Don't know if my other message posted so am trying again.

Think pituitary patients basically have little other option than to bang their heads against the wall in the hopes that that will destroy...
Board: Pituitary Disease 02-21-2012, 12:41 AM
Replies: 8
Views: 2,970
Posted By Jul2
Re: Doctors No Nothing About Pituitary Tumours! What tests are necessary?

Don't know that it's the fault of the doctors themselves either. It's my understanding that most medical schools are sponsored by Corporations and if a company isn't huge, it might not be able to...
Board: Pituitary Disease 02-15-2012, 05:39 PM
Replies: 8
Views: 2,970
Posted By Jul2
Re: Doctors No Nothing About Pituitary Tumours! What tests are necessary?

You have to sign a form saying you understand all the risks, even though the great majority of patients won't have a clue of the true dangers. Many won't even bother to read the micro print, which...
Board: Pituitary Disease 02-15-2012, 04:59 PM
Replies: 8
Views: 2,970
Posted By Jul2
Re: Doctors No Nothing About Pituitary Tumours! What tests are necessary?

That's the problem. They will tell almost all pituitary patients that they are too complicated to treat. Doctors aren't interested in treating people with so many ailments and will indeed try to...
Board: Pituitary Disease 02-02-2012, 12:47 AM
Replies: 8
Views: 2,970
Posted By Jul2
Re: Doctors No Nothing About Pituitary Tumours! What tests are necessary?

Thanks for replying. I fully understand what you're going through and wish you luck too. I think most every pituitary tumour patients feel the same.

That title was supposed to say Doctors Know...
Board: Pituitary Disease 01-30-2012, 05:20 PM
Replies: 8
Views: 2,970
Posted By Jul2
Doctors No Nothing About Pituitary Tumours! What tests are necessary?

(1) Is it true that diabetes tests are as good as IGF-1 and OGTT? I have told my doctors that the Internet said they were not because the latter were more accurate but they don't believe it. ...
Board: Thyroid Disorders 05-07-2011, 02:00 PM
Replies: 10
Views: 2,806
Posted By Jul2
Re: Facial changes anyone??? I don't look the same anymore!!

My problem was that the MRI did show that the tumour had turned from a microadenoma to a full blown adenoma, but the two IGF and growth hormone readings I had in 10 years were both normal. In spite...
Board: Alzheimer's Disease & Dementia 05-07-2011, 01:44 PM
Replies: 8
Views: 2,105
Posted By Jul2
Re: Don't Say Hi! Say Hi, Mom!

It does seem trivial doesn't it. But this is also a person who demands most unreasonable control over the lives of others and is never happy unless she can control everyone's lives, including the...
Board: Hormone Problems 05-07-2011, 01:30 PM
Replies: 15
Views: 79,431
Posted By Jul2
Re: Excesive weight gain related to high levels of Prolactin???

Don't be discouraged by the tests. My growth hormone tests turned out to be normal as well, even though my hands, feet, nose bridge, and jaw were growing. I was the same as you -- jumped from about...
Board: Thyroid Disorders 04-14-2011, 03:08 PM
Replies: 10
Views: 2,806
Posted By Jul2
Re: Facial changes anyone??? I don't look the same anymore!!

Forgot to mention that while I also swear by Cabergoline, which is an extra special wonder drug in my eyes because it's so effective you won't believe your eyes after just a few weeks, I also wonder...
Board: Thyroid Disorders 04-14-2011, 02:41 PM
Replies: 10
Views: 2,806
Posted By Jul2
Re: Facial changes anyone??? I don't look the same anymore!!

I had the most of the same symptoms as the rest of you and far worse. My spine is also C-shaped. Often I think that when the body is fully grown, in this disease the spine may also try to grow but...
Board: Pituitary Disease 04-03-2011, 09:12 PM
Replies: 17
Views: 18,027
Posted By Jul2
Re: Low hormone levels. Possible pituitary gland tumor need some info..Kinda scared

It's true that doctor's don't tell you about the other options. You have to find out about them for yourself through the Internet. I do believe there is some kind of shot you can get that starts...
Board: Pituitary Disease 04-02-2011, 07:21 PM
Replies: 17
Views: 18,027
Posted By Jul2
Re: Low hormone levels. Possible pituitary gland tumor need some info..Kinda scared

I do sometimes worry that the heart problems may become bad again, but for now they feel great! Surely I must have died and gone to heaven!

I only take a quarter pill twice a week, which raised...
Board: Pituitary Disease 04-01-2011, 01:39 AM
Replies: 17
Views: 18,027
Posted By Jul2
Re: Low hormone levels. Possible pituitary gland tumor need some info..Kinda scared

I'm responding to my own earlier post because I want this to be noticed. Yes, those heart warnings are on the Dostinex, but for me anyway, it "REVERSED" very bad heart problems.
Board: Pituitary Disease 04-01-2011, 01:32 AM
Replies: 17
Views: 18,027
Posted By Jul2
Re: Low hormone levels. Possible pituitary gland tumor need some info..Kinda scared

You've got a great brain surgeon. Dostinex works absolute miracles and brain surgery is really dangerous so you should feel relieved.
Board: Pituitary Disease 04-01-2011, 01:21 AM
Replies: 17
Views: 18,027
Posted By Jul2
Re: Low hormone levels. Possible pituitary gland tumor need some info..Kinda scared

People with these problems have a lot of difficulties, and serious ones too, made even worse by neglect from doctors who have no idea what's going on. Even when they do find out, the great...
Board: Alzheimer's Disease & Dementia 01-28-2011, 05:56 PM
Replies: 1
Views: 1,096
Posted By Jul2
Dementia - Problems with Pill Giving

I changed the subject on this one just in case anyone is looking for discussion on that. I like debates too. As a matter of fact, I thought quite deeply about what you had said the other day and...
Showing results 1 to 50 of 65

 








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