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Board: Inner Ear Disorders 06-03-2015, 04:40 PM
Replies: 6
Views: 572
Posted By uga
Re: Bilateral Vestibular Hypofunction/Loss (BVH/BVL)

Hugo84

I have had bilateral hypo function for several years and things do improve over time but it is slow and progress should be measured in months and even years not days and weeks.

Do your...
Board: Inner Ear Disorders 01-11-2014, 08:51 PM
Replies: 11
Views: 815
Posted By uga
Re: Bilateral hypofunction (BVL)

Yes,
I do work now as a librarian at a University. I recently went back to work after being on disability for several years. I am an attorney by trade but I could no longer perform my job duties...
Board: Inner Ear Disorders 01-11-2014, 07:03 PM
Replies: 11
Views: 815
Posted By uga
Re: Bilateral hypofunction (BVL)

Hello,

They found out I had zero vestibular function in both ears from a battery of tests that included an eng (hot and cold water in my ears) as well as a rotary chair test. I must say that my...
Board: Inner Ear Disorders 01-03-2014, 08:29 PM
Replies: 3
Views: 666
Posted By uga
Re: BVL Question

Jssmith
I am BVL and I have the same issues with feeling ok for a few days and then it seems as if my brain forgets everything about what it has learned. Hopefully Manybikes will be along to...
Board: Inner Ear Disorders 01-02-2014, 04:09 PM
Replies: 11
Views: 815
Posted By uga
Re: Bilateral hypofunction (BVL)

They do not know what caused my loss, several doctors have indicated a possible virus. My hearing fine, I just lost my balance apparatus. For the first 3-6 months I guess I was still loosing the...
Board: Inner Ear Disorders 01-02-2014, 12:04 PM
Replies: 11
Views: 815
Posted By uga
Re: Bilateral hypofunction (BVL)

Nicole,
I woke up one day and I tried to get out of bed and stumbled before falling down. For about 3-6 months I would get horrible vertigo. It was the worse feeling in the world as I could not do...
Board: Inner Ear Disorders 01-01-2014, 06:38 PM
Replies: 11
Views: 815
Posted By uga
Bilateral hypofunction (BVL)

Howdy
It has been a few years since I lost my vestibular system and while things are not easy they have definitely improved over the last few years.
I just wanted to thank Manybikes for his...
Board: Inner Ear Disorders 12-31-2013, 07:28 PM
Replies: 12
Views: 1,998
Posted By uga
Re: bilateral vestibular loss for the last 4 years

I have been dealing with BVL for about 3 years and can totally identify, as Manybikes stresses in his posts, keep movin and make yourself move. Improvement is measured in weeks and months not days. ...
Board: Inner Ear Disorders 12-29-2013, 02:24 PM
Replies: 10
Views: 867
Posted By uga
Re: When driving the cars seem to blur?? Among other symptoms after BVD

Happy new year as well!

Most if my problems at point are some bouncy/blurry vision when I am stressed or very tired and I also have problems with fast moving object, I cannot or lets say I have a...
Board: Inner Ear Disorders 12-29-2013, 11:31 AM
Replies: 10
Views: 867
Posted By uga
Re: When driving the cars seem to blur?? Among other symptoms after BVD

We definitely sound like we share a lot of the same symptoms. I have lost function in both ears as well. I had the oscillopsia with bouncy and blurt vision but over the course of ine it has gotten a...
Board: Inner Ear Disorders 12-28-2013, 02:17 PM
Replies: 10
Views: 867
Posted By uga
Re: When driving the cars seem to blur?? Among other symptoms after BVD

Have you had your inner ears tested with eng or rotary chair testing to determine if your inner ear function is gone or damaged?

Do things bounce in your vision when you walk?
How is your...
Board: Inner Ear Disorders 12-23-2013, 07:53 PM
Replies: 1
Views: 387
Posted By uga
Re: Bilateral Vestibulopathy

Have you had a calorics/eng test to determine inner ear damage
Board: Inner Ear Disorders 07-29-2012, 12:27 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Many bikes:
thanks my friend--- it is going on 2 years since I lost all function. You are soooo very right suscess and improvement can only be measured in months and years, not days and weeks.
...
Board: Inner Ear Disorders 06-25-2012, 07:50 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Manybikes: thanks my friend!

I am doing ok, hanging in there, driving in traffic on highways is scary, hopefully it will come.

Let me ask you a question:

Do you still get...
Board: Inner Ear Disorders 06-12-2012, 06:06 AM
Replies: 12
Views: 6,344
Posted By uga
Re: Bilateral Vestibular Weakness - a likely diagnosis

The more you do and stay active the better it becomes. There is no medical cure but the body and brain are amazing and the uncomfortable will soon become comfortable. Push yourself, just not over...
Board: Inner Ear Disorders 06-10-2012, 06:04 PM
Replies: 12
Views: 6,344
Posted By uga
Re: Bilateral Vestibular Weakness - a likely diagnosis

If your balance is really bad, be very careful. Do not be afraid to use use a mobility device such Asa cane, walker, wheelchair I needed in certain situations. Falls can do a lot of damage. ...
Board: Inner Ear Disorders 06-10-2012, 06:02 PM
Replies: 12
Views: 6,344
Posted By uga
Re: Bilateral Vestibular Weakness - a likely diagnosis

If your balance is really bad, be very careful. Do not be afraid to use use a mobility device such Asa cane, walker, wheelchair I needed in certain situations. Falls can do a lot of damage. ...
Board: Inner Ear Disorders 06-04-2012, 06:42 PM
Replies: 2
Views: 1,217
Posted By uga
Re: DX with Bilateral Vest. Hypofunction, confused

Caterbay:

The vertigo is he result of the minimal vestibular function you still have left in one ear, it is sending a bad signal to the brain.

Total wipeout should not result in vertigo.
Board: Inner Ear Disorders 05-31-2012, 06:34 PM
Replies: 2
Views: 1,217
Posted By uga
Re: DX with Bilateral Vest. Hypofunction, confused

I am in the same boat, I started a thread called Bilateral Hypofunction.

Can you still work as a nurse with no balance function and oscillopsia.

Can you read street signs when walking and...
Board: Inner Ear Disorders 04-20-2012, 05:45 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Manybikes:

Do you ever worry about getting older and not having the strength (le muscles) to give you the support and stability you have now.

My biggest worry is getting older and falling...
Board: Inner Ear Disorders 04-15-2012, 12:18 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

I think the ultimate question is if you have ears that are sending bad or distorted signals to the brain is someone better off without that signal and thus the faulty vestibular system. We actually...
Board: Inner Ear Disorders 02-29-2012, 06:20 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Dizzyme:

Yes I was diagnosed with vestibular migraine and my dr thinks that could have been causing my vertigo--- I used to get vertigo for hours and even days for about a year before loosing all...
Board: Inner Ear Disorders 02-27-2012, 06:54 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

I used to get tingly sensations in my ears and down my body as well. It could be vestibular migraine which have been known to do this. Remember migraine is more than a headache.

Vestibular...
Board: Inner Ear Disorders 02-21-2012, 04:52 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Greg:

As you can see, I started this thread I reach out to Manybikes, he is an inspiration to so many people most of whom he will never meet. When it first hit me I thought my life is over, but...
Board: Inner Ear Disorders 02-20-2012, 07:18 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Greg,

If you don't mind me asking, what type of work do you do with such balance, dizzy, and eyesight problems?

It was my experience with no vestibular function that if I had a walking...
Board: Inner Ear Disorders 02-20-2012, 07:16 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Greg,

If you don't mind me asking, what type of work do you do with such balance, dizzy, and eyesight problems?

It was my experience with no vestibular function that if I had a walking...
Board: Inner Ear Disorders 02-15-2012, 02:05 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

From my experience, I could not live with vertigo that could strike at anytime or anyplace, I find as I move through this, life without any inner ear function is better than violent vertigo. I feel...
Board: Inner Ear Disorders 01-12-2012, 11:47 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Dizzyme:
Yes I do drive but not on highways nor at night, but I think one day I will be able to do both.

To answer your question, I think my balance is good for someone with no vestibular...
Board: Inner Ear Disorders 12-26-2011, 07:01 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Hopefully Manybikes will be along to answer you dizzyme.

Dizzyme: do you have trouble walking in crowds, lots of movement, uneven surfaces?

The one thing I am afraid of is falling and...
Board: Inner Ear Disorders 12-07-2011, 06:55 PM
Replies: 10
Views: 3,366
Posted By uga
Re: No Idea Whats Wrong With Me!

Have they ruled out menieres?
Board: Inner Ear Disorders 12-06-2011, 10:33 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Dizzym:
Life for me was tough with just 10-15% function, because it always caused me vertigo/dizziness as bad signals always through me for a loop. My balance has always been ok, I did not notice...
Board: Inner Ear Disorders 12-06-2011, 06:55 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Dizzym:

Manybikes is right on, I use the same tricks when on a computer, close eyes when scrolling down. Manybikes in an invaluable resource.

To answer your question, I just went back to work...
Board: Inner Ear Disorders 12-06-2011, 06:42 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Dizzym:

Manybikes is right on, I use the same tricks when on a computer, close eyes when scrolling down. Manybikes in an invaluable resource.

To answer your question, I just went back to work...
Board: Inner Ear Disorders 12-05-2011, 06:51 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Thanks many bikes: you are my inspiration, and have been a big help.

Dizzym:
Yes, the oscillopsia/bouncy vision is tough. I feel mine is getting better or I am just getting used to it/central...
Board: Inner Ear Disorders 12-04-2011, 08:32 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Dizzym:

Thanks: I do check the thread. I have no function in either ear and in many ways I think that is better than having bad function. It is tough, but I do not get dizzy or have vertigo. My...
Board: Inner Ear Disorders 09-16-2011, 12:56 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

manybikes:

was just thinking about you and wanted to say thanks for the help. Things are coming along slowly, but coming along ok.

here are some of my problems, concerns and questions.

I...
Board: Inner Ear Disorders 08-12-2011, 09:32 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Thanks manybikes!

Things are tough, but I try to stay as active as possible, I wil not let this ruin my life. I am finding that it is important to push yourself, but dont push yourself over the...
Board: Inner Ear Disorders 08-05-2011, 09:20 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Manybikes: thanks again for the support,
i get the feeling i just need to keep moving even though it is difficult, that is the way the brain retrains itself?

Manybikes:
do you ever have...
Board: Inner Ear Disorders 08-02-2011, 02:47 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Manybikes:

i am 38 years old and the cause of my vestibular loss is something they do not know, but think it is autoimmune or viral of some sort.

i lost my function about 3 months ago, i...
Board: Inner Ear Disorders 08-01-2011, 07:01 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

thanks Manybikes!!!

I am going to start going to the gym and use the treadmill. i now realize this will be a long long road to haul, but one i can overcome with hardwork and determination.

i...
Board: Inner Ear Disorders 07-29-2011, 11:31 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Manybikes:

I have heard that about meniere's patients, vertigo for hours if not days. I hear they often just kill their ears to stop the vertigo and just go without vestibular function
...
Board: Inner Ear Disorders 07-27-2011, 12:15 PM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

Manybikes

When you were loosing function did you have vertigo? I did and I can honestly say total loss off function is better than bad function and vertigo, what do you think?

I will have to...
Board: Inner Ear Disorders 07-26-2011, 10:56 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

ManyBikes:

thanks a million, your story is inspiring to know there is hope. i just want to be able to sail, flyfish and enjoy my water sports like you do.

after all these years, has your...
Board: Inner Ear Disorders 07-26-2011, 05:48 AM
Replies: 89
Views: 21,353
Posted By uga
Re: Bilateral hypofunction

manybikes:

thank you,

do you ever have trouble in crowds or stores or does that get better as well. from your experience how long did it take for you to feel somewhat normal and able to make...
Board: Inner Ear Disorders 04-22-2011, 02:02 PM
Replies: 89
Views: 21,353
Posted By uga
Bilateral hypofunction

I have recently lost my vestibular function and am wondering does this ever get better, I am worried the oscillopsia will never improve and I will be disabled forever. The one thing I love to do is...
Showing results 1 to 45 of 45

 








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