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Board: Neuromuscular Diseases 08-07-2005, 05:06 AM
Replies: 41
Views: 194,106
Posted By LaurieCrochets
Re: INDENTATION IN OUTER LEFT THIGH

Hi Everyone,
It is muscle atrophy for sure for me. I said earlier I have severe osteoarthritis of the spine with spondylosis and bone spurs. All my muscles are deteriorating and I have severe...
Board: Lupus 05-25-2005, 11:12 PM
Replies: 42
Views: 15,214
Posted By LaurieCrochets
Re: Back pain with Lupus??

Patience 50:
I love your outlook and thoughts about your leg pain. I am only 38 and have severe Osteoarthritis of the Spine, Spondylosis and bone spurs. Now something in my hip is going??? The...
Board: Knee & Hip Problems 05-25-2005, 10:38 PM
Replies: 1
Views: 1,488
Posted By LaurieCrochets
Need opinion: Neurosurgeon said HIP but

Hi. I am 38. I saw a Neurosurgeon last September 04. I had severe back spasms, mid and lowerback. They are controlled by Zanaflex 2mg every 2-2 1/2 hours, still to this day. I have severe pelvis,...
Board: Multiple Sclerosis 01-23-2005, 07:34 PM
Replies: 10
Views: 1,803
Posted By LaurieCrochets
Re: New, with work & romance questions!

Not only does it depend on the employer, but it depends on the 'individual' that you are working for. The company can have a slogan or 'claim' they are family oriented, but, again, an individual...
Board: Multiple Sclerosis 01-21-2005, 07:41 PM
Replies: 10
Views: 1,803
Posted By LaurieCrochets
Re: New, with work & romance questions!

Don't tell, don't tell, don't tell. That man may not have a problem with it, but someone will somewhere. Don't tell. I only say that from experience. Unless it is life or job, then don't tell. ...
Board: Disabilities 01-13-2005, 03:40 AM
Replies: 18
Views: 4,022
Posted By LaurieCrochets
Re: On short term, ready to go to Long term, and the company is going to fire me

I never got a warning date. It just seems so unethical.
Board: Disabilities 01-12-2005, 07:55 PM
Replies: 18
Views: 4,022
Posted By LaurieCrochets
On short term, ready to go to Long term, and the company is going to fire me

Can you believe this? I am on short term disability thru work, it will go over to long term in February, and the company is trying to fire me. I have a very serious disease that is autoimmune...
Board: Multiple Sclerosis 01-01-2005, 07:01 PM
Replies: 6
Views: 7,632
Posted By LaurieCrochets
Re: Can you get put out to have a spinal tap?

I have had so many bad experiences with Steroid Epidural injections, I got to the point I can no longer take it.
Thanks everyone!
Board: Multiple Sclerosis 12-29-2004, 09:44 PM
Replies: 6
Views: 7,632
Posted By LaurieCrochets
Can you get put out to have a spinal tap?

Wondering if I can get put out, general anesthesia, for a spinal tap???
Board: Neurology 12-29-2004, 09:34 PM
Replies: 9
Views: 1,574
Posted By LaurieCrochets
Re: Neurologist Dumped Me - Why??

Purple and Julie,
I am trying to get into the University of Michigan Hospital, Physicians. A lot of people in Michigan drive there, about 3 hours away from me, but worth it. It is the 'top notch'...
Board: Arthritis 12-29-2004, 09:21 PM
Replies: 1
Views: 11,964
Posted By LaurieCrochets
Sclerosis in the Sacro Iliac Joint

Anyone know what "Sclerosis in the Sacro Iliac Joint" means?? What does the "Sclerosis" mean???? I have looked and looked online, but cannot come up with an answer?? All I know is that it hurts...
Board: Arthritis 12-29-2004, 09:13 PM
Replies: 5
Views: 1,094
Posted By LaurieCrochets
Re: A cane!

Hi there!
I am 38 and I use a walker.
I call it my buddy, almost my best friend, of course, my best friend is my hubby!!! It is a souped up one!! Only because I cannot use the one with the...
Board: Arthritis 12-28-2004, 01:05 PM
Replies: 9
Views: 3,620
Posted By LaurieCrochets
Re: Steroid injections into the joint?

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I guess I should have come right out and said I was being cynical as well.

My Rheumy did them the right way, meaning she just didn't do it for the hell of it, or just to 'do' them,...
Board: Multiple Sclerosis 12-26-2004, 06:02 PM
Replies: 13
Views: 1,307
Posted By LaurieCrochets
Re: Going crazy

Camille,
You have truly been blessed with a wonderful husband!! I see what you meant, now that you explained it a little more!! I feel that way at times too!! I feel like he has to do so much at...
Board: Arthritis 12-26-2004, 06:53 AM
Replies: 9
Views: 3,620
Posted By LaurieCrochets
Re: Steroid injections into the joint?

The Rheumy I see now did the Steroid Injections the "RIGHT" way!! Of course, I still had the symptoms of the med, but they were done right and also done correctly over the right amount of time. I...
Board: Arthritis 12-26-2004, 06:48 AM
Replies: 11
Views: 3,930
Posted By LaurieCrochets
Re: Glucosamine/Chondroitin side effects?

Hi,
I have read studies on Glucosamine with the Chondroitin and another ingredient starting with an "M"???? My pharmacist even said to get the one with the Chondroitin and the "M" word. Look it up...
Board: Arthritis 12-24-2004, 08:51 PM
Replies: 9
Views: 3,620
Posted By LaurieCrochets
Re: Steroid injections into the joint?

I had an idiot dr who claimed to be a pain clinic screw me up. He did 7 steroid injections in my back. The idiot couldn't even speak english. I was a fool for letting him do it. Then he got angry...
Board: Arthritis 12-24-2004, 07:02 AM
Replies: 8
Views: 3,447
Posted By LaurieCrochets
Re: Soma Prescribed for Muscle Spasms in back and things

My spasms and muscle pain is to severe for Soma. Soma was like an over the counter Tylenol. No good.
Board: Arthritis 12-24-2004, 06:58 AM
Replies: 3
Views: 1,656
Posted By LaurieCrochets
Re: Arthritis meds and tuberculosis

Sarcoidosis can 'look' like TB. Look up Sarcoidosis online and you will also see it can cause severe arthritis, as well of inflammation of any body tissue. I wonder if they do have Sarcoid, have a...
Board: Arthritis 12-24-2004, 06:47 AM
Replies: 9
Views: 3,620
Posted By LaurieCrochets
Re: Steroid injections into the joint?

I disagree. I did gain weight, and I did get the hump in my back. That is the only 2 side effects. The weight started to come off in about 2-3 months.
Board: Birth Control 12-24-2004, 06:45 AM
Replies: 9
Views: 1,554
Posted By LaurieCrochets
Re: Shot?

Depo Provera Shot is the best!!!
Yes, at first for the first few months I would have spotting. After a few months that went away.
*NO PMS!!!!!
*NO MIGRAINES!!!!!! That is the biggest reason why I...
Board: Multiple Sclerosis 12-24-2004, 02:22 AM
Replies: 11
Views: 1,369
Posted By LaurieCrochets
Re: Another Weird One

Hi all,
I am not dx with MS, but was looking up muscle spasms and spasticity.

I also have wiped water off my legs, and there is not any there!!
Laurie
Board: Multiple Sclerosis 12-24-2004, 01:59 AM
Replies: 13
Views: 1,307
Posted By LaurieCrochets
Re: Going crazy

Hello,
I am female, and I was the breadwinner. We also have 2 children. I had, and still have, a lot going on, too, but never felt my husband had to hide things from me because he may have felt I...
Board: Multiple Sclerosis 12-24-2004, 01:49 AM
Replies: 13
Views: 2,964
Posted By LaurieCrochets
Re: Need ideas for Bra's that don't provoke muscle spasms??

Thanks White Dove.
Yes, I had to borrow clothes from my Mom too, and she said the same thing your Mom said to you!!!! No, nothing can be done. No specialist or physical therapy. I can't afford...
Board: Arthritis 12-23-2004, 07:18 PM
Replies: 3
Views: 1,646
Posted By LaurieCrochets
Re: Bextra, I got the dreaded

Hi Susan,
I guess the mouth sores and rash are side effects that can appear while taking the Bextra, and an indicator for the Dr that you should not be on it??? I will have to ask her when I see...
Board: Arthritis 12-23-2004, 03:03 AM
Replies: 11
Views: 3,930
Posted By LaurieCrochets
Re: Glucosamine/Chondroitin side effects?

Hello.
My bottle warns: If allergic to "SHELLFISH", do NOT take. I have the allergy to shellfish, found out by the CAT Scan dye. 2 days after the ER I take out the Gluc . . . and I take 2. The...
Board: Arthritis 12-23-2004, 02:58 AM
Replies: 3
Views: 1,646
Posted By LaurieCrochets
Bextra, I got the dreaded

Bextra, I got the dreaded phone call from my Dr. She was asking if we had any rashes or mouth ulcers. Yes, I have. I explained. They called back and said since I have had those conditions before,...
Board: Arthritis 12-22-2004, 02:53 AM
Replies: 8
Views: 3,447
Posted By LaurieCrochets
Re: Soma Prescribed for Muscle Spasms in back and things

Hi Dwiggie!
I have read about the Botox injections, and it is great to hear your description! I am unable to work because of the spasms, and a few other problems, so, I was wondering if you are...
Board: Arthritis 12-22-2004, 02:48 AM
Replies: 5
Views: 3,156
Posted By LaurieCrochets
Re: Bextra info

It seems as if, 'if' the benefits outweigh the risks, then you would continue to take them??? I would think the benefits outweigh the risks for you Dad??? But, then again, if your Dad's Dr thinks...
Board: Immune Disorders 12-22-2004, 02:43 AM
Replies: 10
Views: 3,167
Posted By LaurieCrochets
Re: I am ANGRY and don't want to live with this

Hi Denise,
I wonder what the Sarc does to make our muscles shut down?? I have been worried that maybe I have Multiple Sclerosis also??? You had mentioned before in a previous message that your...
Board: Multiple Sclerosis 12-21-2004, 08:56 AM
Replies: 13
Views: 2,964
Posted By LaurieCrochets
Re: Need ideas for Bra's that don't provoke muscle spasms??

Hi Camille,
Thank you! I have to get some and try them out!! I blew up from a 10-12 to a 2X around my neck area. And, as you can imagine, so did my chest. Right now I have to wear a 42DD in...
Board: Multiple Sclerosis 12-20-2004, 08:13 PM
Replies: 13
Views: 2,964
Posted By LaurieCrochets
Re: Need ideas for Bra's that don't provoke muscle spasms??

Dessell,
Lupus can cause a rash called erthro . . . something! Spelling on that is bad, sorry! It is a skin rash that is referred to a 'butterfly' explanation. It goes across the bridge of your...
Board: Arthritis 12-20-2004, 08:01 PM
Replies: 17
Views: 4,321
Posted By LaurieCrochets
Re: household aids /tips

Nancy H,
Thanks for your help!! May I ask if they take up a lot of counter space?? My counter space and storage for the kitchen is very limited. I have been using a rubber thingy, if you can...
Board: Arthritis 12-20-2004, 07:57 PM
Replies: 17
Views: 4,321
Posted By LaurieCrochets
Re: household aids /tips

Snowmelts,
Thank you!!! Don't worry about the description!!! I really can understand what you mean, I really can imgaine how it looks!! I am going to have to go to a Walgreen's and look for one! ...
Board: Arthritis 12-20-2004, 07:54 PM
Replies: 17
Views: 4,321
Posted By LaurieCrochets
Re: household aids /tips

Susan,
Then Mobic 'is' available her in the states?? I am going to open another window online and look that drug up. Wondering then if I could try it?? Thanks for your help!!!
Laurie
Board: Arthritis 12-20-2004, 07:51 PM
Replies: 17
Views: 4,321
Posted By LaurieCrochets
Re: household aids /tips

Hi Susan,
Yes, my SED rate is always at 38 to 40 guaranteed. I don't know if I am repeating anything here, I apologize if I am as I am tired. I am diagnosed with Sarcoidosis, which is inflammation...
Board: Multiple Sclerosis 12-19-2004, 10:23 AM
Replies: 13
Views: 2,964
Posted By LaurieCrochets
Re: Need ideas for Bra's that don't provoke muscle spasms??

Hi Dessell,
Your spinal lesions, were they called Hemangiomas? Were any of them accumalations of blood vessels? The reason I am asking is my MRI showed those on my spine. Did you have an MRI that...
Board: Immune Disorders 12-19-2004, 04:17 AM
Replies: 10
Views: 3,167
Posted By LaurieCrochets
Re: I am ANGRY and don't want to live with this

Hi Denise,
There are 2 tests? A CPK and a CK?? The CPK was very low, and the CK was very high?? Go figure??
Denise, do you have Sarcoidosis??
So, if it could be from low potassium, do I need...
Board: Multiple Sclerosis 12-19-2004, 04:12 AM
Replies: 13
Views: 2,964
Posted By LaurieCrochets
Re: Need ideas for Bra's that don't provoke muscle spasms??

Hi White Dove & Dessell!
Thanks for your help!! I do soooo appreciate it!
Here is my problem: I have a disease called Sarcoidosis.
I was on Steroids for '1' week only, but got them...
Board: Neuromuscular Diseases 12-16-2004, 09:58 PM
Replies: 41
Views: 194,106
Posted By LaurieCrochets
Re: INDENTATION IN OUTER LEFT THIGH

My Neurologist called it muscle atrophy, as the person who replied previously, she is right. Over 1 1/2 years ago I saw the Neuro for it. I have some herniated discs, etc. But the main problem...
Board: Arthritis 12-16-2004, 09:38 PM
Replies: 1
Views: 996
Posted By LaurieCrochets
Re: Body Aches

Kaye,
I have Sarcoidosis, and that happens to me. The disease causes inflammation in the body, and can hit any organ, or many all at one time. It causes arthritis, etc. Night sweats for me are...
Board: Arthritis 12-16-2004, 09:30 PM
Replies: 17
Views: 4,321
Posted By LaurieCrochets
Re: household aids /tips

Susan,
Thanks! I am going to look up the Mobic, and ask my Dr. I also do want to ask her about the methoxetrate for sure. I have also read about Imuran? I think the enbrel is used for...
Board: Arthritis 12-16-2004, 09:25 PM
Replies: 8
Views: 3,447
Posted By LaurieCrochets
Re: Soma Prescribed for Muscle Spasms in back and things

Hi everyone,
Couldn't do the Soma. It did nothing for me. I gave it 4 days. I hurt sooooo bad. Every muscle in my body ached HORRIBLY. My spasms were horrid, and my legs, my legs could hardly...
Board: Arthritis 12-15-2004, 09:14 AM
Replies: 17
Views: 4,321
Posted By LaurieCrochets
Re: household aids /tips

Hi susanbrennan80,
You are not being nosy at all. Yes, I have private health insurance. By RA do you mean Rheumatologist? I now have a walker, the kind with the brakes on the handles. I could...
Board: Brain & Nervous System Disorders 12-15-2004, 06:57 AM
Replies: 5
Views: 5,429
Posted By LaurieCrochets
Re: Muscle Spasms / Tremors Question

Hello,
I posted a while ago. Want to let you all know I have just tried Soma, and Baclofen as a muscle relaxant. I was absolutely dying in pain. Every muscle in my body was dying. I have the...
Board: Immune Disorders 12-14-2004, 03:40 AM
Replies: 10
Views: 3,167
Posted By LaurieCrochets
Re: I am ANGRY and don't want to live with this

Denise,
Let me know what that muscle disease does?? Please!! What is the status of your walking ability? What muscle groups have been hit? Let me know asap!!

I just requested the doctor and I...
Board: Neurology 12-12-2004, 10:32 AM
Replies: 9
Views: 1,574
Posted By LaurieCrochets
Re: Neurologist Dumped Me - Why??

Thanks Dessell!
Yeah, the bummer is I will have to drive 45 minutes to 1 hour.

I was thinking and I wonder if I stumped him in trying to treat me??? I wonder if he did not know what to diagnos...
Board: Multiple Sclerosis 12-12-2004, 10:26 AM
Replies: 13
Views: 2,964
Posted By LaurieCrochets
Need ideas for Bra's that don't provoke muscle spasms??

Hi Everyone,
Just wondering if anyone has any ideas for bras??? When I wear a bra, it makes the muscle spasms worse, or even just causes them. So I was wondering if any of you have a tip or trick...
Board: Neurology 12-12-2004, 07:59 AM
Replies: 9
Views: 1,574
Posted By LaurieCrochets
Neurologist Dumped Me - Why??

Hi all!
Last December of 03, I had been seeing a Neurologist for the last 2 1/2 years due to Migrains. In November I started with muscle weaknes, spasms, and spasticity. In the Spring of this...
Board: Multiple Sclerosis 12-12-2004, 03:07 AM
Replies: 0
Views: 700
Posted By LaurieCrochets
I tried Soma - didn't work

Hi,
I tried Soma for a day = it didn't work. I can hardly walk with it. The rubberband feeling around my rib cage wasn't touched at all. I only gave it a 12 hour try, but can't take the pain with...
Showing results 1 to 50 of 122

 








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