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Board: Sjögren's Syndrome 05-31-2012, 07:11 AM
Replies: 1
Views: 2,545
Posted By Sleepwalk
Re: newly diagnosed - mouth sores/throat irritation

I'm waiting for the results of a salivary glad biopsy to rule out Sjogren's since all the other tests for it have been negative. I had the test yesterday (30th) and should hear something Monday.
...
Board: Digestive Disorders 05-31-2012, 06:08 AM
Replies: 8
Views: 4,074
Posted By Sleepwalk
Re: Carafate making me fatigued

I've had Nissen Fundopliction for GERD (2011) and still bad problems persisted. I became dryer throughout my body including my esophagus and had more pain than before the surgery. I gradually lost...
Board: Sjögren's Syndrome 03-11-2012, 10:19 PM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Board: Sjögren's Syndrome 03-11-2012, 10:02 PM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Re: !

I thought I was going nuts for so long but never knew why it eventually got better after hormonal changes would settle down (periods, PMS, menopause etc). I also think my gall bladder went south due...
Board: Sjögren's Syndrome 03-11-2012, 08:46 PM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Re: Finding a Sjogren's Specialist

The panic attacks began with me when I couldn't breathe following nose and sinus surgery about 3 years ago. I've always had many of AI symptoms but didn't know that's what they were. Hindsight is...
Board: Sjögren's Syndrome 03-11-2012, 02:25 PM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Re: Finding a Sjogren's Specialist

I imagine you're much younger than I am since most everyone is. :) I just retired in July and my insurance changed. My company insurance paid for most everything. I'm also not seeing the doctor any...
Board: Sjögren's Syndrome 03-11-2012, 12:46 PM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Re: Finding a Sjogren's Specialist

My good friend's daughter has Addison's and Sjogren's and she was diagnosed and treated by the doctor I'm going to until her husband was transferred and they moved out of state. She had been...
Board: Sjögren's Syndrome 03-11-2012, 08:08 AM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Re: Finding a Sjogren's Specialist

Thank you. I have an appointment with a prominent rheumatologist in Texas and will see him on April 3. I'll try to remember I posted here and report back.
Board: Sjögren's Syndrome 03-08-2012, 07:35 AM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Re: Finding a Sjogren's Specialist

We have actually located a very highly recommended Sjogren's specialist in Texas and I have an appointment with him on April 3. The best internist in my hometown told me to just accept the fact that...
Board: Sjögren's Syndrome 02-24-2012, 07:26 AM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Re: Finding a Sjogren's Specialist

Thanks for replying. I did get invited to an immune disorder support group in my own town and hubby and I both attended. It was helpful and informative.

My eye doctor's receptionist actually has...
Board: Sjögren's Syndrome 02-20-2012, 02:07 PM
Replies: 26
Views: 7,304
Posted By Sleepwalk
Finding a Sjogren's Specialist

Can anyone suggest a fairly simple way to locate a doctor/specialist/clinic in OKLAHOMA who works with Sjogren's Syndrome? I went to a rheumatologist in a city nearby and he gave me meds even after a...
Board: Acid Reflux / GERD 01-26-2012, 12:21 PM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Board: Acid Reflux / GERD 01-26-2012, 10:49 AM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

Stay in touch. I wish I'd had someone to lead me through my complicated recovery and maybe I wouldn't have gotten completely worn out. I went to a web site where I was misled into thinking that...
Board: Acid Reflux / GERD 01-25-2012, 04:40 PM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

Seldom do things happen to us in a vacuum. I am being assessed for an immune deficiency disorder I may have had all my life. It ties in with the GERD and the breathing problems I have as a result of...
Board: Acid Reflux / GERD 01-25-2012, 03:55 PM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

I sympathize with what you're going through. I'm still taking a small amount of Lexapro (7.5mg) as I have just never worked up to 10 mg yet. I know I could feel better as far as depression goes but I...
Board: Acid Reflux / GERD 11-07-2011, 04:53 PM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

I keep trying to reply and my message keeps disappearing or won't post.

I'll try again and see if this shows up.

Okay, it did. I'll be brief in case it doesn't work again. I'm not sorry I...
Board: Acid Reflux / GERD 11-07-2011, 04:42 PM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

Good to hear back from you. I replied promptly so I don't know why the post took so long to appear.

I will be one week on Lexapro tomorrow. Couldn't handle the Elavil. I'm doing a little better...
Board: Acid Reflux / GERD 11-07-2011, 07:55 AM
Replies: 17
Views: 10,996
Posted By Sleepwalk
Re: Successful TIF for LPR?

I have not been able to do dairy for several years and have not had the benefit of Ensure etc post-Nissen to keep my calorie intake up etc. I've never been able to take Carafate since the second time...
Board: Neuropathy 11-07-2011, 07:31 AM
Replies: 5
Views: 8,944
Posted By Sleepwalk
Re: burning pain in upper back and middle chest

I think my GERD/acid reflux was SO bad that the GI and I both had those symptoms mixed up in with LPR symptoms. I can say that the LPR symptoms started one morning out of the blue 3 years ago. It...
Board: Neuropathy 11-07-2011, 07:26 AM
Replies: 5
Views: 8,944
Posted By Sleepwalk
Re: burning pain in upper back and middle chest

I think my GERD/acid reflux was SO bad that the GI and I both had those symptoms mixed up in with LPR. I can say that the LPR symptoms started one morning out of the blue 3 years ago. It wakes me up...
Board: Acid Reflux / GERD 11-07-2011, 07:10 AM
Replies: 17
Views: 10,996
Posted By Sleepwalk
Re: Successful TIF for LPR?

Sounds as if your surgery turned out much better; certainly more like I wish mine had turned out.

I still can't eat, have no appetite and don't sleep very well. My anxiety and depression level...
Board: Acid Reflux / GERD 11-06-2011, 03:32 PM
Replies: 17
Views: 10,996
Posted By Sleepwalk
Re: Successful TIF for LPR?

I had acid reflux/Gerd for many many years. I've been on every PPI in the book and the only thing that helps is the 60 mg time-released Dexilant and it makes me depressed and anxious. I can't take...
Board: Acid Reflux / GERD 11-06-2011, 02:44 PM
Replies: 17
Views: 10,996
Posted By Sleepwalk
Re: Successful TIF for LPR?

I've already had surgery for severe GERD. Three years ago I started getting LPR symptoms. I can't taste my food, my tongue and throat burn, my sinuses burn and I cough and spit mucous in the morning...
Board: Neuropathy 11-06-2011, 02:24 PM
Replies: 5
Views: 8,944
Posted By Sleepwalk
Re: burning pain in upper back and middle chest

I'm taking 5 mg of Lexapro (first week almost) for LPR symptoms following Nissen surgery for GERD.

I'm curious how you're doing if you're still taking Lexapro or wht you've done if you've stopped...
Board: Acid Reflux / GERD 11-06-2011, 11:58 AM
Replies: 17
Views: 10,996
Posted By Sleepwalk
Re: Successful TIF for LPR?

Wish this hadn't been a dead end. I had Nissen August 1 of this year and now have LPR out the roof.

Anyone with any suggestions please let me know.
Board: Acid Reflux / GERD 11-02-2011, 02:45 PM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

I gave in today and realized I have to get back on an antidepressant. I stopped it last spring just before we sold our big home and bought a smaller one and I had my surgery. It was a very hectic...
Board: Acid Reflux / GERD 11-02-2011, 02:42 PM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

I gave in today and realized I have to get back on an antidepressant. I stopped mine last spring just before we sold our new home and bought a smaller one and I had my surgery. It was a very hectic...
Board: Acid Reflux / GERD 10-28-2011, 06:30 PM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

Good to hear back from you. I've done so much research on this subject in the last three months I think I could write a book. I'm actually pursuing two avenues at this point to try to find some...
Board: Acid Reflux / GERD 10-28-2011, 06:46 AM
Replies: 30
Views: 17,709
Posted By Sleepwalk
Re: Post Nissen Fundoplication Issues

I read your story with interest and wonder how you're doing now. I've had super bad GERD since 2000 and finally got a Nissen Fundo on August 1 of thie year (2011). Like you, it seems to have fixed...
Showing results 1 to 29 of 29

 








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