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Board: Muscular Dystrophy 03-10-2015, 01:27 PM
Replies: 0
Views: 629
Posted By Monnie45
Anesthesia guidelines

Hi, I have MD 2. I have never had any problem with anesthesia. I am due for a colonoscopy. When I have had them in the past, I have had them at a surgery center. The hospital is another option. ...
Board: Muscular Dystrophy 10-27-2014, 05:23 AM
Replies: 0
Views: 875
Posted By Monnie45
Discouraged

Hi, I am really somewhat fed up. I have Myotonic Dystrophy 2, I am 69 years old. My physical symptoms are not too bad. I avoid steps and have difficulty with curbs. I usually need a hand or railing....
Board: Muscular Dystrophy 10-07-2014, 01:09 PM
Replies: 0
Views: 1,990
Posted By Monnie45
Medication for cholesterol

Hi, I was given a prescription of Modafinal. My problem is that I take Questran(cholestyromine) for cholesterol. I was told by the doctor that gave me the prescription is that Modafinal needed to be...
Board: Muscular Dystrophy 09-27-2014, 02:27 PM
Replies: 2
Views: 2,991
Posted By Monnie45
Re: What have people experienced

Hi, when I was in my early 50's I noticed I was having difficulty climbing staris. I was living in a condo, lower floor, and attributed it to not needing to climb stairs. kinda out of practice. I...
Board: Muscular Dystrophy 09-27-2014, 08:02 AM
Replies: 0
Views: 1,757
Posted By Monnie45
Unstableness.

Hi, I have a question. I was diagnosed with MD 2 probaby about 5 years ago. Before that I was also diagnosed with Meniere's Disease. I was having the feeling of being on a boat and went to see an...
Board: Muscular Dystrophy 06-14-2014, 07:42 AM
Replies: 0
Views: 2,924
Posted By Monnie45
fatigue

Hi, I have MD2. I don't have any real severe symptoms. I avoid stairs and cannot get up steep curbs without assistance. My life is not severly affected. Several years ago I was also diagnosed...
Board: Dizziness / Vertigo 03-17-2014, 08:25 AM
Replies: 1
Views: 520
Posted By Monnie45
tightness in head and lightheadedness

I was diagnosied with Menier's years ago. I do not have any obvious symptoms now. I do, however have a constant tightness in my head and I am somewhat lightheaded. Does anyone else have this.
Board: Muscular Dystrophy 08-13-2013, 03:15 PM
Replies: 0
Views: 658
Posted By Monnie45
getting onto schoolbuses

Hi, I was so very embarassed today. I have MD 2 but for the most part am doing fairly good. Although I have some difficulty can still get up steps. I can walk the mall without any aids or...
Board: Sinus Problems 06-27-2013, 06:28 AM
Replies: 1
Views: 422
Posted By Monnie45
Is this Sinusitis?

Hi, for many years I have complained about pressure in my lower forehead. I told the doctor but at first he didn't seem to be concerned. I was diagnosed with Menieres Disease several years ago but...
Board: Muscular Dystrophy 05-26-2013, 09:31 AM
Replies: 2
Views: 765
Posted By Monnie45
Re: tightness in head

Hi, haven't been into my post recently. I noticed you asked how I knew I had Meniere's. I went to a doctor that specializes in dizzeness and he told me that the tests indicated I did. I kinda...
Board: Eye & Vision 05-16-2013, 05:52 AM
Replies: 2
Views: 634
Posted By Monnie45
epiretinal membrane surgery

Hi, according to my eye doctor I have an epiretinal membrane in both eyes. At this point it doesn't seem to be affecting my vision any and do not need surgery but that could change in the future. I...
Board: Muscular Dystrophy 04-28-2013, 07:55 AM
Replies: 2
Views: 765
Posted By Monnie45
tightness in head

Hi, for many years I have had a general tightness in my had. I do not have any pain, just some discomfort. It makes me feel generally fatigued. About 7 years or more ago I was diagnosed with...
Board: Muscular Dystrophy 04-08-2013, 06:43 AM
Replies: 1
Views: 921
Posted By Monnie45
Re: Does this sound like MD

Hi, I have a form of muscular dystrophy called myotonic dystrophy. Although I do not have the problem with muscles not being able to relax, that is one of the symptoms of the disease.

Markebe
Board: Incontinence 04-08-2013, 06:09 AM
Replies: 1
Views: 733
Posted By Monnie45
incontinence

Hi, I have been having problems with incontinence for years. I have had surgery to no avail. Leakage of urine doesn't bother me much, it is the other that has caused problems. I have seen a...
Board: Anxiety 03-17-2013, 07:15 AM
Replies: 0
Views: 315
Posted By Monnie45
worrying about kids

Hi, I am new to this group. I have a problem, I worry so much about my kids. I have three. They are afraid to tell me something is wrong knowing how I will react. My youngest daughter just lost her...
Board: Muscular Dystrophy 12-10-2012, 07:39 AM
Replies: 1
Views: 754
Posted By Monnie45
regarding sleep

Hi, I have myotonic dystrophy. I go to sleep quite early. In most cases I shut off my lights at about 8 PM. Most times I fall asleep fairly quickly and sometimes it takes me awhile. I am usually...
Board: Muscular Dystrophy 11-24-2012, 07:31 AM
Replies: 8
Views: 3,707
Posted By Monnie45
Re: Myotonic DNA test

Hi, I had a test for Myotonic Dystrophy 2 several years ago. I got my results fairly quickly, probably in about a week. Unfortunately, it was positive.
Board: Muscular Dystrophy 09-30-2012, 01:14 PM
Replies: 0
Views: 747
Posted By Monnie45
living alone

Hi, I have Myotonic Dystrophy 2. At this point, I have limited problems. My basic problems is climbing stairs especially without railings. Luckily I live in a condo on the bottom floor, no stairs....
Board: Muscular Dystrophy 09-27-2012, 01:02 PM
Replies: 1
Views: 755
Posted By Monnie45
Medicatons for fatigue

Hi, I have Myotonic Dystrophy2. Marlene S. Cohen posted a discussion.
Medication for fatigue I have not taken any medication yet for fatigue. I did try Nuvigil for several weks and wasn't sure I...
Board: Muscular Dystrophy 06-24-2012, 01:04 PM
Replies: 39
Views: 11,290
Posted By Monnie45
Re: What Emotions are you dealing with?

Hi, I have Myotonic Dystrophy 2. I am 67 years old and do not look disabled. People don't understand sometimes. I do have difficulty with steps and when there is a steep curb need to ask for help. ...
Board: Muscular Dystrophy 06-13-2012, 11:26 AM
Replies: 4
Views: 1,229
Posted By Monnie45
strength in one leg versus another

Hi, I have noticed something lately. I have MD2, I can still step on onto a curb with my left foot if it isn't too steep without a railing but cannot seem to do it with my right foot. I also...
Board: Muscular Dystrophy 02-19-2012, 10:09 AM
Replies: 2
Views: 1,416
Posted By Monnie45
Re: Tightness in head

Thanks for your responce. Don't know too much about "Hugs", sorry.
Board: Muscular Dystrophy 02-13-2012, 06:31 AM
Replies: 2
Views: 1,416
Posted By Monnie45
Tightness in head

Hi, I have addressed this before but for years I have mentioned to the doctor about a tighness in my forehead. Honestly, it also can pass for a feeling of low level lightheadednss. Several years ago...
Board: Muscular Dystrophy 12-25-2011, 07:26 AM
Replies: 0
Myotonic strength in legs
Views: 777
Posted By Monnie45
strength in legs

Hi, I have noticed within the last months that I can step up onto a curb with my left leg without any support but I cannot do it with my right leg. I am right handed, don't know if that has a...
Board: Cystic Fibrosis 07-05-2011, 05:48 AM
Replies: 6
Views: 3,970
Posted By Monnie45
Re: Daughters chane of having baby with Cystic Fibroisis

High, QuickDraw, thanks for your reply. My daugher is almost 5 months pregnant and decided to get tested for Cystic Fibrosis. It was never confirmed that she was a carrier and she was not a...
Board: Muscular Dystrophy 06-16-2011, 11:24 AM
Replies: 5
Myotonic medication
Views: 1,705
Posted By Monnie45
Re: medication

Thanks for the info about arbuterol, I will ask my doctor about it.

Marlene
Board: Muscular Dystrophy 06-16-2011, 11:20 AM
Replies: 5
Myotonic medication
Views: 1,705
Posted By Monnie45
Re: medication

Hi, Mark, thanks for the info but I am 66, have been on Medicare for over a year and have been collecting Social Security for five months. I did check with my pharmacist and my Medicare Part D...
Board: Muscular Dystrophy 06-15-2011, 06:44 AM
Replies: 5
Myotonic medication
Views: 1,705
Posted By Monnie45
medication

Hi, my doctor prescribed provigil for me for fatigue. I checked with the pharmacy and although I have medicare, the cost if substantial and I will be in my donut hole quickly. It runs about 500...
Board: Cystic Fibrosis 04-28-2011, 02:50 PM
Replies: 6
Views: 3,970
Posted By Monnie45
Re: Daughters chane of having baby with Cystic Fibroisis

Hi, I don't know that my daughter is a carrier, it was just a hunch that the doctor had when she was a child because the test for CF came back as high normal. Thanks.
Board: Muscular Dystrophy 04-28-2011, 02:48 PM
Replies: 5
Views: 2,516
Posted By Monnie45
Re: general fatigue

Hi, thanks, I am also battling with Meniere's Disease and just have difficulty getting through the day. I wish I lived closer and could give you a physical hug.

Marlene
Board: Cystic Fibrosis 04-26-2011, 04:08 PM
Replies: 6
Views: 3,970
Posted By Monnie45
Daughters chance of having baby with Cystic Fibroisis

Hi, about twenty years ago, when my daughter was tested fo Cystic Fibrosis because of her small size. She was not quite 5 feet and weighted under 100 pounds and still is. She had her share of...
Board: Muscular Dystrophy 04-26-2011, 03:43 PM
Replies: 5
Views: 2,516
Posted By Monnie45
Re: general fatigue

Hi, thanks Mark.
Board: Muscular Dystrophy 04-25-2011, 09:03 AM
Replies: 16
Views: 4,040
Posted By Monnie45
Re: My friends still don't get it

Surprisingly enough, she is a great dentist. She gives a local before administering anesthesia so you don't even feel the needle. Surprising, isn't it.
Board: Muscular Dystrophy 04-25-2011, 06:54 AM
Replies: 5
Views: 2,516
Posted By Monnie45
Re: general fatigue

Another comment, several years ago before being diagnosed with MD2 I was also diagnosed with Meniere's Disease, an inflammation of the middel ear, causing me to feel like I was on a boat. My hearing...
Board: Muscular Dystrophy 04-25-2011, 06:17 AM
Replies: 16
Views: 4,040
Posted By Monnie45
Re: My friends still don't get it

Mark, sorry to hear your frustration. Of all people you are the one that is always there for us. I can almost always expect a reply from you when I am frustrated. People don't always understand. ...
Board: Muscular Dystrophy 04-25-2011, 05:54 AM
Replies: 5
Views: 2,516
Posted By Monnie45
Angry general fatigue

Hi, I do appreciate that muscular diseases can cause fatigue but I always seem to be tired and have a lack of energy. Sometimes I would just rather lay in bed watching lifetime movies on TV. I am...
Board: Muscular Dystrophy 03-07-2011, 12:22 PM
Replies: 30
Views: 9,540
Posted By Monnie45
Re: Does this happen to anyone else?

I do understand. I am in fairly good shape now but do have difficulty with stairs. I am feeling more strain going up a curb and if I am descending from a curb, I have to be very careful. I did...
Board: Muscular Dystrophy 03-07-2011, 07:00 AM
Replies: 30
Views: 9,540
Posted By Monnie45
Re: Does this happen to anyone else?

Hmm, I think my fear of stepping on the escalator was the same thing......read my question. The level steps seem to go so fast that I was afraid to step onto them. My girlfriend says I shouldn't...
Board: Muscular Dystrophy 03-07-2011, 05:10 AM
Replies: 1
Views: 1,129
Posted By Monnie45
escalator

Hi, I had something happen to me yesterday, it has never happened before. I went to the mall with a friend, had no trouble going up the up escalator, no trouble getting off but than I was getting on...
Board: Muscular Dystrophy 02-20-2011, 08:15 AM
Replies: 2
Views: 1,073
Posted By Monnie45
another question

Hi, me again. I have noticed that when I am stepping up onto a curb, I find it much easier to step up with my left foot rather than my right. Actually I can step up with my right but find I seem to...
Board: Muscular Dystrophy 02-20-2011, 06:55 AM
Replies: 3
Views: 1,011
Posted By Monnie45
Windy Day

Hi, several times when the wind was very strong I honestly felt as though I would fall. I walk without an aid but the wind made me feel very insecure. Anyone else feel this way.

Marlene
Board: Muscular Dystrophy 01-15-2011, 04:54 AM
Replies: 4
Views: 2,014
Posted By Monnie45
Re: exercise

Mandy, well, your sense of humor is still very strong. Thanks so very much for your post. I am fairly active at this point and hope to remain so.
Board: Muscular Dystrophy 01-09-2011, 06:10 AM
Replies: 4
Views: 2,014
Posted By Monnie45
exercise

Hi, I have myotonic dystrophy 2 and wonder what type of exercise is best for me to do. I appreciate that exercise in excess can be harmful. I do however want to keep whatever muscle strength I...
Board: Muscular Dystrophy 12-26-2010, 08:18 AM
Replies: 0
Views: 1,625
Posted By Monnie45
cholesterol medication

Hi, I have high cholesterol and am now taking cholestyramine twice a day before meals. I hate it. I know that it can interfer with other medication. Other meds should be taken one hour before or...
Board: Muscular Dystrophy 11-28-2010, 06:32 AM
Replies: 1
Views: 1,500
Posted By Monnie45
Differences between MD's.

Hi, I have myotonic dystrophy 2, what is the differerance between Limb Girdle and other muscular dystrophys.

Marlene
Board: Muscular Dystrophy 11-21-2010, 07:42 AM
Replies: 1
Views: 1,922
Posted By Monnie45
Living alone

Hi, I am 65 years old, diagnosed several years ago with myotonic dystrophy 2and at this point my symptoms are not life altering. I am still working as a hygienist, getting tired, though and ready to...
Board: Muscular Dystrophy 11-21-2010, 07:24 AM
Replies: 5
Views: 3,507
Posted By Monnie45
Re: Questions: Husband and Daughter with MD

Hi, I have myotonic dystrophy 2 and I live in Silver Spring. I have been seeing a rhumatologist but wonder how much he really knows about the disease. I was sent to another rhumatologist though for a...
Board: Muscular Dystrophy 11-21-2010, 07:22 AM
Replies: 5
Views: 3,507
Posted By Monnie45
Re: Questions: Husband and Daughter with MD

Hi, I have myotonic dystrophy 2 and I live in Silver Spring. I have been seeing a rhumatologist but wonder how much he really knows about the disease. I was sent to another rhumatologist though for...
Board: Muscular Dystrophy 11-20-2010, 03:38 PM
Replies: 12
Views: 5,086
Posted By Monnie45
Re: Stairs....I hate 'em!

Hi, Mark, I have seen your name a lot, Michigani. Are you on other boards as well? You always seem to know so much. I have a hard to hold bladder but I have had three children and that is not...
Board: Muscular Dystrophy 11-20-2010, 07:57 AM
Replies: 12
Views: 5,086
Posted By Monnie45
Re: Stairs....I hate 'em!

Mark, I have myotonic dystrophy 2. I was diagnosed several years ago by a blood test.

Marlene
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