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Board: Lung & Respiratory Disorders / COPD 10-05-2012, 08:53 AM
Replies: 11
Views: 2,774
Posted By Consie
Re: Mac/mai

The serrapeptase sounds intresting. I go for my 6 month pulmonary doc checkup in a couple of weeks and will ask about it. I know I have new nodes because the X-rays for other things showed them. I...
Board: Lung & Respiratory Disorders / COPD 09-18-2012, 09:36 AM
Replies: 11
Views: 2,774
Posted By Consie
Re: Mac/mai

It does seem more and more people are contracting MAC. Originally it was thought to be women who had it most. Thin,caucasian,past a certain age, with lung problems. Now it seems everyone is at risk....
Board: Drug Interactions / Side Effects 07-03-2012, 11:34 AM
Replies: 4
Views: 964
Posted By Consie
Re: Leviquin and tendon pain

This is a terrible drug!!! Doc put me on naproxyn. Doesn't know if it will help becaues it's drug not physical problem. Also using ice because my heels,tendons swelled out of my flats! I also have...
Board: Drug Interactions / Side Effects 06-30-2012, 01:03 PM
Replies: 4
Views: 964
Posted By Consie
Leviquin and tendon pain

After passing a kidney stone the doc put me on leviquin. After 3 days my achellies tendons started hurting ,had nightmares, sweated through sleepless nights and could not focus to read. Called doc he...
Board: Lung & Respiratory Disorders / COPD 06-13-2012, 10:25 AM
Replies: 11
Views: 2,774
Posted By Consie
Re: Mac/mai

It is a terrific thought that there are no more MACer's around isnt't it? Unfortunately we are still struggling;fortunately we are not alone! I had another CTScan last month that showed more little...
Board: Lung & Respiratory Disorders / COPD 05-25-2012, 09:45 AM
Replies: 11
Views: 2,774
Posted By Consie
Mac/mai

I used to come here to find help and comiseration with Mycobacterium lung disease. Haven't seen any posts for a long time. Is there anyone here who has any input?
Board: Depression 04-18-2012, 09:03 AM
Replies: 9
Views: 2,085
Posted By Consie
Re: whatever happened to that child-like love for life?

It would be great to be excited by anything, wouldn't it? Now that it's spring here I think of how I should get out and garden. Never seem to do. Last fall I bought all kinds of flower bulbs to plant...
Board: Depression 04-03-2012, 04:18 PM
Replies: 9
Views: 2,085
Posted By Consie
Re: whatever happened to that child-like love for life?

Sounds like this town!!! It's not a geener grass thing. I am so used to that I don't care. It's how I have no space for me. Physically mostly,mentally there is always some upheavel to deal with,fight...
Board: Depression 04-03-2012, 08:58 AM
Replies: 9
Views: 2,085
Posted By Consie
Re: whatever happened to that child-like love for life?

It is wonderful to find others who "get it"! My family thinks it's all in my head. I should just buck up and get on with things. They have no idea what this feeling is like. Fortunately I have a...
Board: Cancer: Skin 02-11-2012, 11:31 AM
Replies: 2
Views: 1,901
Posted By Consie
Re: Suspicious Mole: to wait or not?

Insurance is good. Health is much more important. I almost caused myself major health problems because I thought I couldn't afford a doctor. Explain to the office your problems. Mine were...
Board: Lung & Respiratory Disorders / COPD 01-22-2011, 10:39 AM
Replies: 4
Views: 1,549
Posted By Consie
Re: mycobacterial avium complex

It's been a while since I was on this site. Have had other medical issues to keep me busy. I was diagnosed June 2006, took the big 3...azithro,rifampin,and ethambutol meds for 22 months. I was very...
Board: Lung & Respiratory Disorders / COPD 01-20-2010, 08:54 AM
Replies: 13
Views: 8,827
Posted By Consie
Re: MAC Micobacterium Avium

The most intresting thing about MAC is how sneaky it is! I don't think any of us MACer's know how we got it. It could be from going on a walk by a pond or from washing bird droppings off the car,...
Board: Lung & Respiratory Disorders / COPD 12-18-2009, 08:44 AM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Hi everyone. It's been a while since I posted. I was diagnoised in 2006 and went through 22 months of remembering to take the nasty meds. So far I have been told the MAC is not growing and all seems...
Board: Lung & Respiratory Disorders / COPD 11-28-2009, 10:28 AM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Haven't been on in a couple of weeks. Regard the H1N1 vaccine, my pulmonary and immunology docs both said it wasn't really necessary. That even with the slight emphysema and the MAC I'm just "on the...
Board: Lung & Respiratory Disorders / COPD 11-03-2009, 09:25 AM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Hope all went well at the doc's. I am on a drug holiday that I hope continues. I was diagnosed in June 2006. Took ethambutol,rifampin and azithromycin for 22 months. It was the ethambutol that caused...
Board: Lung & Respiratory Disorders / COPD 11-01-2009, 09:57 AM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Good luck with the eye exam. Hopefully it is something that is easily remedied. My eyes took a while to go back to normal after the meds but so far all is well. Let us know how it goes. good...
Board: Lung & Respiratory Disorders / COPD 10-27-2009, 11:13 AM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Good to hear from other MACers. It is odd but I am actually looking forward to going to the docs this week. I have the immunologist Thurs and the pulmonary on Friday. One one them will give me a flu...
Board: Lung & Respiratory Disorders / COPD 10-27-2009, 10:57 AM
Replies: 4
Views: 2,356
Posted By Consie
Re: how bad is having a lung biopsy?

You don't say what type of a biopsy. Is it surgery or a needle biopssy? What has your surgeon said?
Board: Heart Disorders 10-23-2009, 10:33 AM
Replies: 0
Views: 800
Posted By Consie
Left Branch Bundle Blockage

MY doc is ordering a Stress test to check this out further. Just wondered if anyone knows what the next step would be. Is it serious? Appreciate the input.
Board: Lung & Respiratory Disorders / COPD 10-23-2009, 10:19 AM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Hello again everyone. It has been an intresting week. I called the pulmonary doc to see if he would order a CTScan or even a simple Xray but he still seems to think it unnecessary. While I was on the...
Board: Lung & Respiratory Disorders / COPD 10-17-2009, 12:05 PM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Hi to everyone! I had password problems too.Never figured out how to correct it. I used to be Allegra back in 2006 until recently. Actually I'm still me just a different name! I have been off the...
Board: Lung & Respiratory Disorders / COPD 10-17-2009, 11:49 AM
Replies: 13
Views: 8,827
Posted By Consie
Re: MAC Micobacterium Avium

Welcome to the site. When I was first diagnosed in June 2006 this was where I had the most support and information sharing. I had the 3 drugs...rafimpin, azithromycin,and ethambutol for 22 months....
Board: Lung & Respiratory Disorders / COPD 10-04-2009, 03:35 PM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Thanks for the information. I'll check out the Gerd and see it things improve.
Board: Lung & Respiratory Disorders / COPD 10-04-2009, 03:31 PM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

Welcome Snow Lily. It seems we are a growing group here. Unfortunate that it is the evil MAC that has joined us it is terrific to have the support. I live in central New Jersey and have a great...
Board: Lung & Respiratory Disorders / COPD 10-01-2009, 08:38 AM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

That is so true. Most people have no idea how sick this can make us feel. Even those close to me. It's not just a lun infection like a cold that is a quick fix. This is a life altering illness.Maybe...
Board: Lung & Respiratory Disorders / COPD 09-30-2009, 10:20 AM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

It's not a happy thought but welcome back to people who care about you. So sorry to hear you broncoscopy showed infections. Several MACer's have mentioned pseudomonas I hope the Cipro works quickly...
Board: Lung & Respiratory Disorders / COPD 09-30-2009, 09:15 AM
Replies: 13
Views: 8,827
Posted By Consie
Re: MAC Micobacterium Avium

Welcome to our group. For a loooooog time no one posted and today I see 2 Mac listings !Yeah for that too bad it is that. As far as I know on one posting here is immunosupressed. We are mostly...
Board: Lung & Respiratory Disorders / COPD 09-11-2009, 04:27 PM
Replies: 73
Views: 33,198
Posted By Consie
Re: Non Tuberculiosis MAC/MAI

hi again. It's still me. I couldn't get back on no matter what I tried so I have changed names.I hope I don't get banned from the site.:confused: It has been such a BIG help to me the past few years....
Showing results 1 to 28 of 28

 








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