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Board: Amyotrophic Lateral Sclerosis (ALS) 08-30-2014, 07:59 AM
Replies: 1
Views: 4,652
Posted By glennxyz
Re: Need help/Advice

i am taking riluzole for months now, it extends your life for a few months. i see no difference in my case, i was diagnosed last oct.
wish you luck
glenn
Board: Amyotrophic Lateral Sclerosis (ALS) 08-29-2014, 12:54 PM
Replies: 8
Views: 3,412
Posted By glennxyz
Re: Sound like ALS?

as chuck just mentioned, muscles melt away with als, i was a gym rat and my biceps are now like jello. try to find an als center in your town, here in ny there are many.
eyes do not get affected by...
Board: Amyotrophic Lateral Sclerosis (ALS) 08-29-2014, 06:16 AM
Replies: 8
Views: 3,412
Posted By glennxyz
Re: Sound like ALS?

i can't lift my left arm at all and the right arm is weakening every week. i can't hold a cup of coffee. you need to have a barrage of tests before concluding als.
glenn
Board: Amyotrophic Lateral Sclerosis (ALS) 08-29-2014, 05:29 AM
Replies: 8
Views: 3,412
Posted By glennxyz
Re: Sound like ALS?

ALS is a disease of exclusion, i had 50 different tests before my als diagnosis last october. weakness hit me in my arms/hands, my left arm is unusable at this point in time. i saw multiple experts...
Board: Amyotrophic Lateral Sclerosis (ALS) 08-23-2014, 04:30 PM
Replies: 2
Views: 4,105
Posted By glennxyz
Thumbs up Re: First time post

go to als center in stonybrook i go there often i was diagnosed last october, i have also been to columbia and beth israel in nyc...
good luck
glenn
Board: Amyotrophic Lateral Sclerosis (ALS) 08-23-2014, 04:07 PM
Replies: 2
Views: 3,956
Posted By glennxyz
Re: ALS blues

lead dog, try to have some hope i am in a clinical trial now at umass and brainstorm trial is just getting started. i was diagnosed last oct and my arms/hands have terrible weakness. legs still work...
Board: Knee & Hip Problems 09-02-2013, 02:15 PM
Replies: 2
Views: 451
Posted By glennxyz
Re: Long drive post surgery

That's too much too soon in my opinion, the outpatient PT is key to your recovery, it was for me. I went for 8 weeks and the recovery was exponential. I wouldn't signup for much activity for about...
Board: Knee & Hip Problems 08-03-2013, 09:22 AM
Replies: 2
Views: 343
Posted By glennxyz
Re: tkr recommendation

I am not familiar with this doctor but the process I went thru was I saw 4 different surgeons and asked lots of questions. Ultimately chose Dr Steven Haas of HSS in NYC. I was back bowling 6 weeks...
Board: Knee & Hip Problems 04-18-2013, 12:48 PM
Replies: 2
Views: 411
Posted By glennxyz
Re: Cost of replacements?

I can't help the cost question but I have a journey knee from S&N and my recovery to normal function has been very good, you can search my name for other posts that you might find helpful but...
Board: Knee & Hip Problems 03-20-2013, 10:30 AM
Replies: 9
Views: 1,871
Posted By glennxyz
Re: Knee Replacement Options

Mverba,

I am 2.5 yrs post TKR, I was 55 at the time. I have a Smith & Nephew Journey knee.

Glenn
Board: Knee & Hip Problems 03-20-2013, 03:21 AM
Replies: 9
Views: 1,871
Posted By glennxyz
Re: Knee Replacement Options

It is a difficult process to compare hospitals & surgeons, metrics are hard to find. I met with 4 surgeons to see whom I felt comfortable with asking lots of questions. I had mine done with Dr Haas...
Board: Knee & Hip Problems 02-13-2013, 01:39 PM
Replies: 17
Views: 1,733
Posted By glennxyz
Re: TKR 3 weeks out

For what it's worth on my 1st visit to outpatient PT my therapist introduced himself and said "if you are not crying when you are here I am not doing my job" nice ! It wasn't quite that bad but you...
Board: Knee & Hip Problems 02-11-2013, 11:58 AM
Replies: 17
Views: 1,733
Posted By glennxyz
Re: TKR 3 weeks out

Getting proper sleep is a common problem following surgery. I had to sleep in my recliner with ice packs on my knee for approx 6 weeks, the bed was impossible for me.
It will get better, I can now...
Board: Knee & Hip Problems 01-26-2013, 02:47 PM
Replies: 5
Views: 645
Posted By glennxyz
Re: What clinic/doctor is most experienced in TKR complications?

I had my TKR done at hospital for special surgery in NY, my research had them as a top hospital for knee and hip replacements. I saw 4 surgeons before choosing Dr Haas at HSS, I waited 7 months for...
Board: Knee & Hip Problems 01-08-2013, 03:36 AM
Replies: 12
Views: 1,177
Posted By glennxyz
Re: Need positive TKR stories. Are there any?

I am 2 years post TKR, I was back bowling 6 weeks after surgery. I now ski and play golf more than I have in 20 years and I walk the course most of the time. I go to gym 3x a week and spend 45 mins...
Board: Knee & Hip Problems 11-20-2012, 03:34 AM
Replies: 7
Views: 996
Posted By glennxyz
Re: TKR in younger patient?

You are going to the right place for that second opinion, I had my TKR done there 2 years ago (55 years old) by dr steven haas. I have recovered fine, was back bowling in 6 weeks and played more golf...
Board: Knee & Hip Problems 11-10-2012, 04:25 AM
Replies: 10
Views: 1,297
Posted By glennxyz
Re: Having TKR -- and scared

I am 2 years post TKR (right knee), I was 55. I also have a desk job but stayed out 8 weeks so that you can do the exercises properly, you cannot skimp here. I doubt you will be up and around by...
Board: Knee & Hip Problems 10-01-2012, 04:03 PM
Replies: 27
Views: 2,733
Posted By glennxyz
Re: tkr date on 9/17/2012

I had a CPM machine as well for 1 month at home, it certainly helped but for me the outpatient PT was the best thing for my recovery. The improvements were exponential once I started PT.

Good...
Board: Knee & Hip Problems 09-30-2012, 07:49 AM
Replies: 27
Views: 2,733
Posted By glennxyz
Re: tkr date on 9/17/2012

That's the attitude keep plugging away with the exercises, I slept the 1st 6 weeks in my recliner. Now 2 years post Op and all is well.

Best of luck,
Glenn
Board: Knee & Hip Problems 09-30-2012, 07:44 AM
Replies: 4
Views: 830
Posted By glennxyz
Re: Recent knee replacement

It took me about 6 weeks before I felt "human" again. Don't be afraid to take meds before PT sessions, its important that you do those exercises with 100% focus.
I am now 2 years post Op and can...
Board: Knee & Hip Problems 09-18-2012, 04:17 AM
Replies: 2
Views: 837
Posted By glennxyz
Re: Best knee doctors in Manhattan, New York City?

My TKR surgeon was Steven Haas, HSS, Can't say enough good things about him. I am doing great and have recovered well.

Good luck,
Glenn
Board: Knee & Hip Problems 09-16-2012, 05:20 PM
Replies: 3
Views: 965
Posted By glennxyz
Re: After TKR, is walking "fluid" again?

Just read some of the "sticky" postings here so you know what to expect. The 1st 6-8 weeks following the surgery are tough but all up hill after that. There will be times that you will regret...
Board: Knee & Hip Problems 09-16-2012, 08:37 AM
Replies: 3
Views: 965
Posted By glennxyz
Re: After TKR, is walking "fluid" again?

It is "fluid" for me. I had RTKR in Oct 2010. I had trouble walking 6 blocks before surgery and now routinely walk 18 holes of golf & 40+ blocks when we go to Manhattan. I was 55 when I had the...
Board: Knee & Hip Problems 05-14-2012, 02:53 AM
Replies: 9
Views: 1,311
Posted By glennxyz
Re: TKR on 4/24/12

The pain should be diminishing with each passing week but after each PT session I had some after affects for a few hours. I stopped taking pain meds after 4 weeks. The key time frame for me was 6...
Board: Knee & Hip Problems 04-06-2012, 04:18 AM
Replies: 8
Views: 1,516
Posted By glennxyz
Re: tkr - toilet raiser or bars?

Nana B,

You will be advised to avoid shower/tub while the staples are still on, about 8-10 days after surgery the staples will come off. I was able to take a shower at that point, lifting the leg...
Board: Knee & Hip Problems 02-28-2012, 03:33 PM
Replies: 4
Tkr
Views: 1,346
Posted By glennxyz
Re: Tkr

I couldn't agree more with jenny, the key for me was moving as much as possible, walking, stairs (within reason) and a quasi aggressive PT schedule. I am now 1.5 years post RTKR and no pain with 135...
Board: Knee & Hip Problems 02-19-2012, 08:08 AM
Replies: 3
Views: 1,278
Posted By glennxyz
Re: tkr - yes or no?

If you search on my ID you will see previous posts on what to expect, key points:
- the 1st 6 weeks of recovery are tough, its all uphill after that
- you will not be able to chase young children...
Board: Knee & Hip Problems 01-28-2012, 05:25 AM
Replies: 9
Views: 1,871
Posted By glennxyz
Re: Knee Replacement Options

I had my right TKR in Oct 2010 (I am 56) and its doing fine but you cannot do high impact activities if you want it to last. I bowl, bike & golf alot and the knee is fine. I went skiing a couple of...
Board: Knee & Hip Problems 01-23-2012, 11:57 AM
Replies: 2
Views: 1,260
Posted By glennxyz
Re: Knee Replacement

I had TKR on right knee 15 months ago, I am fully recovered. I can kneel fine but I had to do some work last week kneeling often and for long durations while working and although I got thru it the...
Board: Knee & Hip Problems 01-23-2012, 11:50 AM
Replies: 2
Views: 1,260
Posted By glennxyz
Re: Knee Replacement

I had TKR on right knee 15 months ago, I am fully recovered. I can kneel fine but I had to do some work last week kneeling often and for long durations while working and although I got thru it the...
Board: Knee & Hip Problems 01-10-2012, 03:13 PM
Replies: 11
Views: 2,058
Posted By glennxyz
Re: Unexplained Knee issues (detailed)

I was hesitant to have it done but very glad I did. Couldn't walk 8 blocks before and over the holidays I walked 80 blocks in manhattan. Play golf & bowl regularly with no pain, actually went...
Board: Knee & Hip Problems 01-08-2012, 01:53 PM
Replies: 11
Views: 2,058
Posted By glennxyz
Re: Unexplained Knee issues (detailed)

See a good orthopedic doctor for the answer. I had my TKR performed at Hospital for Special Surgery in NYC so its an option for you. They have knee/orthopedic savants at that facility.

Good...
Board: Knee & Hip Problems 01-02-2012, 05:36 AM
Replies: 2
Views: 1,286
Posted By glennxyz
Re: Knee Replacement 6 months Report

As most will attest to on this board, the 1st 6 weeks are the most difficult after TKR. I questioned my decision at that point. But give it more time and you will see the bending improve but keep...
Board: Knee & Hip Problems 12-09-2011, 05:06 AM
Replies: 4
Views: 1,322
Posted By glennxyz
Re: Minimally Invasive Total Knee Replacement

Find the best orthopedic hospital near you and you can search that facility for this expertise, that's what I did here in New York. I saw 4 different surgeons before committing to TKR (I am 1 year...
Board: Knee & Hip Problems 11-01-2011, 03:33 AM
Replies: 8
Views: 6,962
Posted By glennxyz
Re: Knee replacement... any hardware recommendations?

Thx for the positive comments on my knee hardware, I did some reading on oxidized zirconium and found some simulation tests that exceed any other type of knee.

I sure hope they are right, I plan...
Board: Knee & Hip Problems 10-31-2011, 05:18 PM
Replies: 8
Views: 6,962
Posted By glennxyz
Re: Knee replacement... any hardware recommendations?

My TKR was Oct 2010, smith&nephew journey knee/surgeon was trained on this one, I waited 7 months for this surgeon for 1st consultation. I had the TKR performed at hospital for special surgery in...
Board: Knee & Hip Problems 10-10-2011, 03:25 PM
Replies: 70
Views: 11,651
Posted By glennxyz
Re: Facing TKR on October 11, 2011

The hospital and your medical doctor assigned by hospital will setup the home PT and nurses for blood tests at home and staple removal.

Good luck,
Glenn
Board: Knee & Hip Problems 09-27-2011, 05:09 PM
Replies: 20
Views: 8,794
Posted By glennxyz
Re: Total Knee Replacement

Flexation is a function of your muscle tone as my PT tech explained, my muscles fought back as we went thru the exercises. Stay the course and it will get better, 6 weeks for me was key, significant...
Board: Knee & Hip Problems 09-11-2011, 07:33 AM
Replies: 70
Views: 11,651
Posted By glennxyz
Re: Facing TKR on October 11, 2011

My right TKR was Oct 13 2010, I drove to outpatient PT after 2 weeks but its only a 1/2 mile away. This outpatient PT was significantly better than what I received at home mostly due to the various...
Board: Knee & Hip Problems 08-25-2011, 12:32 PM
Replies: 32
Views: 6,058
Posted By glennxyz
Re: TKR on Sep 22 and very scared!

Look at PT as a very good thing, the techs encouraged & pushed me.
It will hurt but its not that bad, I am anti any type of drug so i took a small amount before PT even thought they asked me to...
Board: Knee & Hip Problems 08-25-2011, 11:46 AM
Replies: 32
Views: 6,058
Posted By glennxyz
Re: TKR on Sep 22 and very scared!

I just have to add the following comments in case I've painted too rosy a picture about recovery:
- there is wide spectrum of time required to recover, everyone is different just read this board for...
Board: Knee & Hip Problems 08-25-2011, 07:58 AM
Replies: 32
Views: 6,058
Posted By glennxyz
Re: TKR on Sep 22 and very scared!

Smith & Nephew, do a google search on the name and you can read about their technology Oxidized Zirconium, I can't post the URL due to posting rules. I actually have the engineering white paper on...
Board: Knee & Hip Problems 08-25-2011, 04:05 AM
Replies: 32
Views: 6,058
Posted By glennxyz
Re: TKR on Sep 22 and very scared!

Yes, you should be able to stand on your knees, I have a 2nd floor storage area in my garage and I have to move around entirely on my knees. You will need to wait until the incision is completely...
Board: Knee & Hip Problems 08-24-2011, 06:31 PM
Replies: 32
Views: 6,058
Posted By glennxyz
Re: TKR on Sep 22 and very scared!

To give you both some positive karma:
- Oct 13 will be 1 year since my right TKR, I am 56.
- I was totally pain free after 12 weeks, play golf and walk the course regularly.
- I have 11 & 13 year...
Board: Knee & Hip Problems 08-14-2011, 08:59 AM
Replies: 2
Views: 1,169
Posted By glennxyz
Re: TKR Pain and Bending

PT will help alot with the bending and getting back to normal activities but I would be lying if I didn't mention its painful. Take the meds an hour before going to PT and take as much as you can. ...
Board: Knee & Hip Problems 07-04-2011, 04:55 AM
Replies: 5
Views: 1,544
Posted By glennxyz
Re: TKR - questions

It will help you and likely answer most of your questions if you read the "sticky" notes on this board. They helped me prepare for the surgery, I knew what to expect. Recovery times can be very...
Board: Knee & Hip Problems 06-22-2011, 04:10 AM
Replies: 9
Views: 2,557
Posted By glennxyz
Re: I need advice with TKR - to do it or put it off

Hoping to be active/mobile after 4 weeks is pushing it, given the children's ages you will need 8 weeks post TKR in my opinion before you can watch the kids again. I am one of the more successful...
Board: Knee & Hip Problems 05-30-2011, 12:04 PM
Replies: 11
Views: 2,191
Posted By glennxyz
Re: Knee Replacement problems

The pain and the inability to rest properly lasted 6 weeks. Take the meds and do the exercises its the only way to get back to normal activities. I had to sleep & nap in my recliner for the 1st 6...
Board: Knee & Hip Problems 05-21-2011, 04:39 AM
Replies: 89
Views: 19,989
Posted By glennxyz
Re: 1st TKR Monday-SCARED! Have Q's

My experience RTKR oct 2010:

- never used the cane or walker, left hospital in 3 days.
- couldn't do stairs initially without holding/leaning on hand rails.
- it is imperative to do the PT...
Board: Knee & Hip Problems 05-11-2011, 03:25 AM
Replies: 4
Views: 967
Posted By glennxyz
Re: Knee Replacement Query

Don't wait and get other surgeon opinions to be sure, I am 55 and had the same apprehension.
My TKR was in Oct 2010 and I am back at the gym, golf, bowling and 2 weeks ago walked several miles in...
Showing results 1 to 50 of 73

 








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