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Board: Anemia 10-06-2013, 08:16 PM
Replies: 13
Views: 1,346
Posted By Heatherx5
Re: Horrible hair due to anemia/iron pills, any suggestions?!

I am glad you are getting color back. I suggest looking into Hema-Plex, slow release. You cant get it over the counter at health food stores or online. It's amazing stuff. I was taking 325 mg of...
Board: Anemia 10-06-2013, 01:15 AM
Replies: 2
Views: 740
Posted By Heatherx5
Re: Help! Iron deficient but not anemic...

Ferritin: 37 (normal iron levels are measured to be 80 and higher!!!)<<<This is bad and this is actually one of the first thing that you lose with anemia. The first! Ferritin starts depleting then...
Board: Anemia 10-06-2013, 01:12 AM
Replies: 13
Views: 1,346
Posted By Heatherx5
Re: Horrible hair due to anemia/iron pills, any suggestions?!

I lost hair by the gobs! The worse my iron got the more hair fell out! Truth of the matter is your hair probably won't start to come back till your numbers go up. Once my ferritin got back into the...
Board: Anemia 08-07-2013, 10:55 AM
Replies: 8
Views: 1,604
Posted By Heatherx5
Re: I have iron deficiency anemia. What is causing it?

I think a specialist would be a good idea. I haven't found many Dr's that are really familiar with anemia in general and I did a lot of studying on it myself and could not believe how common it was...
Board: Anemia 07-27-2013, 09:39 AM
Replies: 8
Views: 1,604
Posted By Heatherx5
Re: I have iron deficiency anemia. What is causing it?

The only thing I can think of in your case would be Runner's Anemia. I think your Dr's could be wrong in this case especially with the amount you are running and the little red meat you are eating....
Board: Anemia 07-27-2013, 09:32 AM
Replies: 1
Views: 569
Posted By Heatherx5
Re: Is this from low ferrite?

What is slightly low? Your ferritin can go up to the 200's. Most people that suffer anemias don't report feeling better till ferritin reaches 50-70's. Having a low ferritin can cause an array of...
Board: Anemia 07-25-2013, 12:34 PM
Replies: 22
Views: 3,528
Posted By Heatherx5
Re: Low ferritin

I went back and reread the levels that she had posted and all of these posts to make sure I answered correctly the first time. Agree with you as well Lady. We usually see eye to eye on things :)....
Board: Anemia 07-25-2013, 08:54 AM
Replies: 15
Views: 4,111
Posted By Heatherx5
Re: Low ferritin, symptomatic Hematologist said not anemic

You are right and I'm sorry for you. My ferritin was a 60 last check and my Dr. says I can plan on taking iron for another year and to continue with the Hemaplex because it was working. There are 2...
Board: Anemia 07-25-2013, 08:45 AM
Replies: 12
Views: 1,419
Posted By Heatherx5
Re: Bone marrow biopsy

Do you have an update Sue? Curious as to what they found out and how you are doing.
Board: Anemia 07-25-2013, 08:41 AM
Replies: 2
Views: 597
Posted By Heatherx5
Re: How to not feel as sick?

I never found a trick that helped me. I think I pretty much stayed in bed for 3 months, literally. All I could do was sleep. I was dizzy, shaky, weak, and wanted to throw up constantly. Just keep...
Board: Anemia 07-25-2013, 08:37 AM
Replies: 15
Views: 4,111
Posted By Heatherx5
Re: Low ferritin, symptomatic Hematologist said not anemic

I want to post this here for you to see I know sometimes things get lost in the shuffle. It's a previous post on another thread.

Ferritin levels are a good way to detect IDA in the early stages...
Board: Anemia 07-25-2013, 08:29 AM
Replies: 15
Views: 4,111
Posted By Heatherx5
Re: Low ferritin, symptomatic Hematologist said not anemic

I was taking a very large does like you and it wasn't cutting it. I actually went to the health food store and talked to them about it and they pointed me in the direction of some stuff called...
Board: Anemia 07-25-2013, 08:25 AM
Replies: 22
Views: 3,528
Posted By Heatherx5
Re: Low ferritin

Not to be rude but there is no cause for being concerned with iron overload in a person that has ferritin and iron levels as above. I could see if this woman was being treated properly but not every...
Board: Anemia 07-25-2013, 08:16 AM
Replies: 15
Views: 4,111
Posted By Heatherx5
Re: Low ferritin, symptomatic Hematologist said not anemic

Your ferritin is low. Ferritin 19.20 (10.0-291.0). Most women don't report even feeling better till their ferritin reaches numbers in the 50-70's. My hair didn't even start growing back till my...
Board: Anemia 07-02-2013, 01:10 AM
Replies: 12
Views: 1,419
Posted By Heatherx5
Re: Bone marrow biopsy

Well with cancers your white blood cell count wouldn't be normal. It would be really high. When I first got anemia I thought that was what was causing mine and my Dr. said no way because my WBC was...
Board: Anemia 07-02-2013, 01:00 AM
Replies: 12
Views: 1,419
Posted By Heatherx5
Re: Bone marrow biopsy

Have you ever heard of aplastic anemia? Aplastic anemia is when your body stops making new red blood cells, white blood cells, and platelets. It can be diagnosed through a bone marrow biopsy. There...
Board: Anemia 07-02-2013, 12:54 AM
Replies: 4
Views: 602
Posted By Heatherx5
Re: Ladies!

Glad you are doing better mama! Wishing you the best, good news! :)
Board: Anemia 06-29-2013, 08:39 PM
Replies: 4
Views: 602
Posted By Heatherx5
Re: Ladies!

Thank you and I remember you. I have been skipping over posts here and there because you seemed to have really educated yourself and doing a great job with other people's questions :). It's amazing...
Board: Anemia 06-29-2013, 02:13 PM
Replies: 4
Views: 602
Posted By Heatherx5
Ladies!

Just wanted to quickly check on my girls and see how you all are. I have been back and forth a lot this summer. My brother was murdered in October and I have his daughter here with me this summer, so...
Board: Anemia 06-29-2013, 02:06 PM
Replies: 7
Views: 785
Posted By Heatherx5
Re: muscle jerks?

Yes in my humble opinion that is to low. Get yourself some sublingual b12, 500 mcg should work good take them for about a month and get rechecked you will be amazed at the difference!
Board: Anemia 06-29-2013, 02:05 PM
Replies: 5
Views: 621
Posted By Heatherx5
Re: Help please!

You will be ok Kay and keep checking in an letting us know how you are doing. Sometimes just having support and knowing you are NOT alone in this fight is what is needed. I am so glad I found these...
Board: Anemia 06-21-2013, 01:23 AM
Replies: 2
Views: 536
Posted By Heatherx5
Re: Anemia

I don't know much about immunoglobin but I can tell you that your cravings are normal with anemia. They are called picas. Most of the time anemics crave non-food items such as ice. Hopefully someone...
Board: Anemia 06-21-2013, 01:19 AM
Replies: 2
Views: 611
Posted By Heatherx5
Re: Feet going numb and tingly when sitting

Hello lady :). I have to agree with you I would guess the iron or maybe b12. Have you had your numbers checked lately? I have been in and out busy month. Hope your feeling better!
Board: Anemia 06-09-2013, 09:10 AM
Replies: 5
Views: 621
Posted By Heatherx5
Re: Help please!

Kay, I had the worst ear issues. I had a nose surgery thinking that it was my sinus causing the ear pressure, ringing, etc but really it was my IDA. It will get better I promise you just have to keep...
Board: Anemia 06-08-2013, 08:31 PM
Replies: 7
Views: 785
Posted By Heatherx5
Re: muscle jerks?

You are welcome. Definitely get your b12 checked. I know some labs consider 350 normal, something around there but my Dr. still says that is the low end of normal. US standards seem low, I think I...
Board: Anemia 06-08-2013, 08:27 PM
Replies: 2
Views: 15,188
Posted By Heatherx5
Re: High RDW... What does it mean?

If you have a high RDW and have been diagnosed with anemia I am sure it's due to the anemia. With only seeing the RDW value I can' say for sure but I'm guessing so. Having a high RDW combined with...
Board: Anemia 06-08-2013, 01:31 PM
Replies: 22
Views: 3,528
Posted By Heatherx5
Re: Low ferritin

Kay you can have all sorts of issues including ear ringing, your ferritin is way to low. I hope it's being treated.
Board: Anemia 06-08-2013, 01:30 PM
Replies: 22
Views: 3,528
Posted By Heatherx5
Re: Low ferritin

That is absolutely not true. I have had a normal hemoglobin for months and am still taking iron...it is possible to have normal hemoglobin and hematocrit in your blood and still have organs, tissues,...
Board: Anemia 06-08-2013, 01:09 PM
Replies: 6
Views: 1,168
Posted By Heatherx5
Re: New and overwhelmed...

Ferritin is evil! This number is the first to go with anemia because it's your iron stores and when you are running low on iron that is where it comes from. So your body is pulling from the ferritin...
Board: Anemia 06-08-2013, 01:00 PM
Replies: 7
Views: 785
Posted By Heatherx5
Re: muscle jerks?

I remember in the very beginning of all this I did have some issues with this. I had muscles spasms and lots of tingling too. By chance are you low on B12?
Board: Anemia 06-08-2013, 12:55 PM
Replies: 5
Views: 1,083
Posted By Heatherx5
Re: Lab results, need help figuring out

TIBC is total iron binding capacity. A higher TIBC can indicate an iron deficiency but with your other numbers normal I am wondering what your ferritin and iron levels are, you could be just at the...
Board: Anemia 06-08-2013, 12:49 PM
Replies: 5
Views: 621
Posted By Heatherx5
Re: Help please!

Hello, I am sorry that you are going through all this but I feel your pain. I was the same way about a year ago and it's not a good feeling. Mentally and physically anemia can cause a lot of issues....
Board: Anemia 05-21-2013, 01:02 PM
Replies: 5
Views: 2,199
Posted By Heatherx5
Re: very low iron and %sat levels

I agree with concrete. Start making calls and find yourself a hematologist. They will see by your labs you need some help and you might not need a referral.
Board: Anemia 05-20-2013, 02:57 PM
Replies: 6
Views: 2,660
Posted By Heatherx5
Re: Scared to death to start Venofer infusions Wed.!! But do I have a choice?

How did infusions go ladies? Please share your stories!
Board: Anemia 05-20-2013, 02:23 PM
Replies: 5
Views: 6,750
Posted By Heatherx5
Re: light headed, tired and always irritated with no energy

My personal opinion on this one is the anemia needs to be treated be it taking a pill and dealing with the side effects or finding a hematologist and getting some infusions. Have you talked with a...
Board: Anemia 05-20-2013, 02:16 PM
Replies: 22
Views: 3,528
Posted By Heatherx5
Re: Low ferritin

Your ferritin is really low. Most people don't even report feeling well till their ferritin reaches 50-70. Ferritin can take months and even years to go up and you can absolutely still be anemic with...
Board: Anemia 05-20-2013, 02:07 PM
Replies: 1
Views: 826
Posted By Heatherx5
Re: Floradix Iron & Herbs

How low is your iron? I completely agree with you on being a little bit worried about taking to much iron. It worried me too so I quit taking it and switched as well. I wasn't having good results...
Board: Anemia 05-15-2013, 10:42 PM
Replies: 4
Views: 540
Posted By Heatherx5
Re: Relapse?

I really hope in your case it's just feeling bad not relapsing. Anemia is such a battle and can grow very tiring emotionally and physically and no one really understands the pain till they experience...
Board: Anemia 05-15-2013, 12:53 PM
Replies: 4
Views: 540
Posted By Heatherx5
Re: Relapse?

I am sure you can have a relapse if you aren't treating the issue that is causing the anemia. I would get my numbers up there and have a cycle and they would drop again. It was like a constant...
Board: Anemia 05-15-2013, 12:46 PM
Replies: 4
Views: 664
Posted By Heatherx5
Re: Abnormal TIBC Results

Looks like you are anemic. I chewed ice for a year straight. I got my diagnosis last year in May and I was so addicted to ice it was like a drug to me. I was going through 5/64 oz cups of ice a day!...
Board: Anemia 05-15-2013, 12:41 PM
Replies: 2
Views: 4,738
Posted By Heatherx5
Re: When will the dizziness/nausea go? :-(

I know exactly how you feel and can relate so much. Anemia is something that takes a long while to fix. For some it can go fast for others not so much. People that are getting their iron delivered...
Board: Anemia 05-11-2013, 01:57 AM
Replies: 2
Views: 580
Posted By Heatherx5
Re: Good results!

Great news! So happy for you. I hope you continue to do well and those numbers keep rising.! What a weird side effect, glad that one subsided fast. :)
Board: Anemia 04-17-2013, 04:42 PM
Replies: 3
Views: 781
Posted By Heatherx5
Re: Do I have Anemia?

With your hematocrit and hemoglobin being low you could possibly have an anemia problem. There are more labs that need checked to make sure, iron serum, ferritin, iron saturation.
Board: Anemia 04-16-2013, 07:40 PM
Replies: 5
Views: 950
Posted By Heatherx5
Re: Backtracking and frustrated!

There are never to many questions ;). I get such bad brain weirdness I hope my posts don't seem all over the place and crazy. Just another fun symptom of anemia. Sometimes I'm good sometimes I'm bad,...
Board: Anemia 04-16-2013, 07:39 PM
Replies: 5
Views: 950
Posted By Heatherx5
Re: Backtracking and frustrated!

You are welcome Carol!

Last year around this time I got so sick and was having major anxiety and panic, this was out of the blue. To make a long story short Mother's Day I was blacking out. Went...
Board: Anemia 04-16-2013, 05:45 PM
Replies: 5
Views: 950
Posted By Heatherx5
Re: Backtracking and frustrated!

This happened to me as well. Any form of bleeding while you are anemic is not good. Your body is trying to play catch up with these iron supps and then you have a period and you lose what you are...
Board: Anemia 04-03-2013, 04:35 PM
Replies: 8
Views: 3,094
Posted By Heatherx5
Re: vitamin b12 deficient?

The normal for US standards. A lot of other countries have way higher standards then we do. 180 is low and needs to be treated. I got my smashed out so fast and back up there but was suffering...
Board: Anemia 04-03-2013, 02:09 PM
Replies: 8
Views: 3,094
Posted By Heatherx5
Re: vitamin b12 deficient?

Agree with lady. I was 340 and my Dr. put me on b12. I took sublinguals for a month and my b12 went back up to 800 ish, in just a month. Wasn't to hard to raise, the iron I take now has b12 in it and...
Board: Anemia 04-03-2013, 01:13 PM
Replies: 50
Views: 12,879
Posted By Heatherx5
Re: Low ferritin the cause?

Mand I didn't have insurance at the beginning of all this and I owe about 2 thousand just towards labs alone. Now the insurance I have covers all labs but I still owe! It sucks so bad. :( I feel...
Board: Anemia 04-03-2013, 01:54 AM
Replies: 1
Views: 812
Posted By Heatherx5
Re: Follow up yesterday after iron infusion

Wow, these Dr's I have zero tolerance for, right here. I count my blessings I have such a wonderful OB and GP. This is sad and I'm sad for you. I wish these Dr's could feel how we feel for just one...
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