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Board: Thyroid Disorders 03-20-2013, 03:49 PM
Replies: 8
Views: 3,486
Posted By accessn12
Re: Advice on: Normal TSH elevated T4 and elevated T3

Being that the FT4 did not come back high on equilibrium dialysis and the thyroid binding globulin is in the normal range, it is unlikely that this is resistance to thyroid hormone. Looks more like...
Board: Thyroid Disorders 01-12-2013, 06:52 PM
Replies: 1
Views: 300
Posted By accessn12
Re: staples left after thryroidectomy

Yes, it can be considered normal. It's not unusual at all to have "surgical clips" (they don't like to call them staples) anywhere that you've had surgery. They don't cause problems and are...
Board: Thyroid Disorders 12-19-2012, 08:24 AM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

There were some articles in a newsletter this morning questioning protocols and the possible influence of the drug manufacturers and money on the members of the panels who put out the expert...
Board: Thyroid Disorders 12-19-2012, 06:05 AM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Some people feel that doctors always know best and never question a recommendation. It could be that she was trying to help her daughter. You have to put as much of the blame on the doctors for not...
Board: Thyroid Disorders 12-18-2012, 06:54 PM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Obviously you've been doing a lot of reading. You'd think they'd learn, wouldn't you? :confused:

No, I probably have the genes. Insurance companies won't pay for genetic testing unless it is...
Board: Thyroid Disorders 12-18-2012, 09:37 AM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

No, I've never been pregnant. I had a hysterectomy in my early 30's for severe endometriosis.

It was never confirmed but I highly suspect that my mom had PRTH and I know for sure that her mom had...
Board: Thyroid Disorders 12-18-2012, 08:25 AM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

I actually think it would be worse to have graves or hashis. "Just" doing RAI and trying to titrate thyroid hormone to a feel good level can be a living nightmare. Take a look at the number of...
Board: Thyroid Disorders 12-17-2012, 08:19 AM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

I have news for you. You are not going to feel like this for the rest of your life! :bouncing:

Give it some time though cause it does take a while for things to settle out. At least you have a...
Board: Thyroid Disorders 12-16-2012, 04:46 PM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Out of curiosity, did you have a cold or anything within a couple months preceding the symptoms? Or even a super amount of stress over something? I'm convinced that something tips the balance and...
Board: Thyroid Disorders 12-16-2012, 02:25 PM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Beta blockers are the mainstay of treatment for RTH. She probably won't ask you to come off of them if she's reading the literature. If she does, you are perfectly in your right to tell her you'd...
Board: Thyroid Disorders 12-16-2012, 08:56 AM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Moving south doesn't work. Your teeth will still chatter. You will remain bundled up while everyone else is running around in shorts and they will be looking at you like you're crazy.

This year,...
Board: Thyroid Disorders 12-16-2012, 07:28 AM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

It did. I was kind of glad to see you too. I've spent many years trying to locate an adult who has it. Hypers and hypos understand some of it but it really is an entity unto it's own. I make the...
Board: Thyroid Disorders 12-15-2012, 04:55 PM
Replies: 22
Views: 1,756
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Hi Jamie,

I got tied up in a few other diseases. The thyroid's been staying in it's cage and I haven't been around for a while. Just thought I'd peek in and see what's up with everyone. I took...
Board: Pituitary Disease 07-27-2012, 07:06 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Hi Karen,

Was surprised to see your post. I haven't been on in a while and didn't get a notification of it but had run across new PubMed article today regarding treatment and thought it might be...
Board: Pituitary Disease 01-13-2012, 06:38 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

It always seems to be later than sooner. :mad: Always gotta be a battle.

Another thing to add to your book of musts is having Free T3 and Free T4's done instead of Totals. The endo will...
Board: Pituitary Disease 01-11-2012, 03:03 PM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Hi, bldlove. I'm a little braindead. I've had a few problems (other than the thyroid) going on. The thyroid's been behaving, for once, while everything else falls apart. Boo hoo, woe is me. I...
Board: Pituitary Disease 12-06-2011, 04:33 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Real quick but I'll be back. I've got an out of town appt today. I don't wanna go!!!

The skin is 100% TRa (Thyroid Receptor Alpha). Therefore, it responds normally to excess thyroid hormone. ...
Board: Pituitary Disease 10-14-2011, 05:04 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

I think I pulled a disappearing act too.

Did you get the results of your Holter yet?

It the stress is enough that it makes you wonder if it's affecting it, then it's enough to affect it. ...
Board: Pituitary Disease 09-27-2011, 09:32 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

There have been reported cases of autoimmune thyroid disorders coexisting with both RTH and pituitary tumors so it's not impossible.

I also know a set of identical twins where one has hashis and...
Board: Pituitary Disease 09-27-2011, 05:22 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Since this is such an appropriate article for this thread, you're getting it twice so anyone wondering the same thing can look at it too. What Should be Done When Thyroid Function Tests Do Not Make...
Board: Thyroid Disorders 09-27-2011, 04:35 AM
Replies: 1
Views: 1,445
Posted By accessn12
Re: 3 blood tests and still no clue...help!

I ran across this the other day: What Should be Done When Thyroid Function Tests Do Not Make Sense? http://www.medscape.com/viewarticle/743248

It might give you some food for thought while I...
Board: Pituitary Disease 09-22-2011, 12:12 PM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Hi Karen :wave: It's good to see you again! So how is your daughter doing overall? I never did well without the beta blockers either. I was so glad to have a doc who was willing to prescribe...
Board: Pituitary Disease 09-18-2011, 03:29 PM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Hi Claire,

I'm still around. I'm glad you replied. I've been looking for years for someone else who actually had a firm diagnosis. I know they're out there. They're just real hard to find. ...
Board: Thyroid Disorders 05-30-2011, 04:37 PM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

Did you feel pretty normal for those 20+ years?

I'd really like to follow this through to the final, formal diagnosis if you don't mind. I think it would be a learning experience for all to find...
Board: Thyroid Disorders 05-25-2011, 08:02 AM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

Did she provide you the numbers? I'm still as curious as you are as to what happened. If it hadn't been for the elevated TSH, a normal explanation would be easy.
Board: Thyroid Disorders 05-25-2011, 04:34 AM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

Ok, that sounds a little better. I got the impression that you'd gotten the brush-off. She's following protocol. It sounds like she might know her stuff too which is good. I've heard some really...
Board: Thyroid Disorders 05-24-2011, 02:18 PM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

Dangit! That's not what I was hoping for but sorta what I expected having been thru it many a time. I went all the way to Vandy only to receive an email that my problem was menopause. Gotta be the...
Board: Thyroid Disorders 05-23-2011, 04:01 PM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

Beta blockers have a greater effect on pulse than they do on bp. They aren't the greatest bp meds in the world unless they're used in combination with something else but they definitely slow the...
Board: Thyroid Disorders 05-22-2011, 03:45 PM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

I sure wish they'd had online classes when I was in school, or even computers for that matter. If that had been the case, I might have gone on further but all I wanted was out.

I see a kindred...
Board: Thyroid Disorders 05-21-2011, 04:17 AM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

My dad, my uncle, my sister and a few others in the family went to UVa. My mom went to Randolph-Macon. I'm not unfamiliar with your neck of the woods either. I'm doing my studies online. I can't...
Board: Thyroid Disorders 05-20-2011, 11:31 AM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

That's the new rules. You refer, refer, refer. The insurance companies kinda forced the primaries into being paper pushers so they don't really have too much time to practice medicine. They are...
Board: Thyroid Disorders 05-20-2011, 01:18 AM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

I was sorta betting you'd look it up.

My doc just comes right out and says "You're weird" but that's ok. He does it with a smile and at least he does something about it.

I don't know what it...
Board: Thyroid Disorders 05-19-2011, 05:52 PM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

I need to stop spinning in circles long enough to sit down and compose a proper reply. Between Spring, work, school and everything else going on, it's been terribly hectic.

I think it's great...
Board: Thyroid Disorders 05-17-2011, 04:16 AM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

Never, ever had your T4 tested before? That's terribly interesting. So set me straight. Your TSH was high so you were put on Levoxyl. Was it just cause of the high TSH or were you experiencing...
Board: Thyroid Disorders 05-16-2011, 04:07 AM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

Sorry it took me so long. Things got a little hectic.

Have you gotten the results of the T3 uptake yet? Two other telling tests might be thyroglobulin and reverse T3.

Is the dysautonomia...
Board: Thyroid Disorders 05-08-2011, 04:08 AM
Replies: 26
Views: 8,392
Posted By accessn12
Re: High TSH, high FT4, highT3

Hi annie,

You said your renal function is diminished? Is it age related decline or is it kidney disease? What's your eGFR? Kidney function can affect thyroid hormone results. That falls into...
Board: Lung & Respiratory Disorders / COPD 05-01-2011, 05:31 AM
Replies: 53
Views: 24,596
Posted By accessn12
Re: Pulmonary Hypertension

I am so sorry about your partner. You are so right though. It is a diagnosis that is sometimes totally overlooked until it's too late. Earlier treatment makes for so much better outcomes and it's...
Board: Pituitary Disease 04-15-2011, 03:25 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

What do I think? I think the doc is spewing from a book rather than wanting to learn something new. Doctors can be so closed-minded sometimes. I guess she missed that there's something known as...
Board: Lung & Respiratory Disorders / COPD 04-14-2011, 03:03 AM
Replies: 53
Views: 24,596
Posted By accessn12
Re: Pulmonary Hypertension

Yes James, you can live a long life with PH. It is not the death sentence that it used to be and that you often read about if you do a web search on it. There are some very good treatments now that...
Board: Lung & Respiratory Disorders / COPD 04-12-2011, 05:53 PM
Replies: 53
Views: 24,596
Posted By accessn12
Re: Pulmonary Hypertension

Hi Angel,

Actually I'm doing pretty well for the time being. Had a followup echo last month and the pressure has remained steady and I'm definitely feeling better on the medications. Saw my gp...
Board: Pituitary Disease 03-26-2011, 05:58 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Hi,

I made it back. Life gets a little hectic sometimes. I have this awful habit of biting off more than I can chew and then I gotta try and get it all done. :dizzy:

I like the nurse's note...
Board: Pituitary Disease 03-08-2011, 10:16 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

I've run across parents of young children who have it. Two mothers and a father. All 4 children displayed symptoms of hyperthyroidism. The two from the father's family had the genetic mutation...
Board: Pituitary Disease 03-07-2011, 05:38 AM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

I'd be happy to help you and your daughter along on your journey. I've looked for many years and although I know of a few other people who have RTH, I've never been able to make contact to speak...
Board: Pituitary Disease 03-06-2011, 06:47 PM
Replies: 33
Views: 14,868
Posted By accessn12
Re: Pituitary Resistance to Thyroid Hormone

Karen,

If you're still around here somewhere, I have pituitary resistance to thyroid hormone.

It's been a while since I've been on the boards so I just saw your post.
Board: Thyroid Disorders 02-12-2010, 12:31 PM
Replies: 6
Views: 1,759
Posted By accessn12
Re: Wired Wrong? Or Something Else?

I'm what you would call wired wrong. I have pituitary resistance to thyroid hormone. Technically, you could say I'm hyper and hypo at the same time because of a genetic mutation in the thyroid...
Board: Bell's Palsy 01-04-2010, 04:35 AM
Replies: 5
Views: 2,870
Posted By accessn12
Re: Graves and Anti-thyroid meds

I wish things were that good. Other than the thyroid, it's been a pretty wickedly bad year between the heart failure, the rabies, the bell's palsy, the pneumonia and whatever else that's kept me...
Board: Thyroid Disorders 01-03-2010, 05:33 AM
Replies: 5
Views: 1,457
Posted By accessn12
Re: hyperthyroid

Hi Tammy,

I'd have to say that one of the worse symptoms of being hyper is the insomnia and the total inability to calm down. You need to talk to your doc about it. Your dose of tapazole may...
Board: Bell's Palsy 01-02-2010, 03:21 PM
Replies: 5
Views: 2,870
Posted By accessn12
Re: Graves and Anti-thyroid meds

Hiya gg!!!

You sound the ideal candidate for this. I was really impressed with the results of the study. The whole thing makes so much sense too in the why it would work so well.
Congrats on...
Board: Bell's Palsy 01-02-2010, 09:20 AM
Replies: 5
Views: 2,870
Posted By accessn12
Graves and Anti-thyroid meds

I ran across this recently published study and thought I'd pass it on for those who might be interested. It may require registration for those who've never used Medscape before but it's well worth...
Board: Thyroid Disorders 01-02-2010, 08:25 AM
Replies: 6
Views: 1,310
Posted By accessn12
Re: New Labs any thoughts or opinions?

Hi Oleander :wave:

Looks like a beautiful set of labs to me. :) Glad to hear you're feeling good too. That always makes for a good combination.

I got me a couple quarts of moonshine in the...
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