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Board: Multiple Sclerosis 02-09-2016, 09:31 AM
Replies: 0
Views: 85
Posted By MSJayhawk
Can't Taste That ...

Just published information from neurology indicates that taste deficits (loss or change of taste) appear to be more prevalent among multiple sclerosis patients than previously reported and correlate...
Board: Multiple Sclerosis 02-04-2016, 08:27 PM
Replies: 1
Views: 185
Posted By MSJayhawk
Re: Subcortical T2 Hyperintensities

Indierock,

I do not believe there is anything set in stone when it relates to age progression lesion presentation. 3 mm and larger are those which typically raise concerns. I would not worry...
Board: Multiple Sclerosis 02-03-2016, 06:09 PM
Replies: 4
Views: 242
Posted By MSJayhawk
Re: Neuroradiologisit

Indierock,

Just keep on keeping on. Stay strong :) :angel:
Board: Multiple Sclerosis 02-02-2016, 04:42 PM
Replies: 15
Views: 557
Posted By MSJayhawk
Re: Am back, with new symptoms

Chooky,

TN can be caused by a variety of reasons. Some people can get TN issues resolved via surgery. I would encourage you to set aside your worries and allow your doctor to take a methodical...
Board: Multiple Sclerosis 01-31-2016, 01:31 PM
Replies: 6
Views: 393
Posted By MSJayhawk
Re: Scared ...

Hank16,

MS caused symptoms, if you have MS, are usually those which persist for 24+ hours. Anxiety can mimic these succinctly and can be difficult to differentiate.

Rather than just a...
Board: Multiple Sclerosis 01-30-2016, 02:07 PM
Replies: 14
Views: 628
Posted By MSJayhawk
Re: Vit D Deficient! And lesion size?

4strings,

I can relate to what you are feeling. Just keep on keeping on and you will get through this obstacle :) Pace yourself and take things in moderation whether activities or eating or...
Board: Multiple Sclerosis 01-30-2016, 02:04 PM
Replies: 2
Views: 235
Posted By MSJayhawk
Re: Jaw Clenching

CI1967

Trigeminal Neuralgia (TN) might be in play in your situation, but your doctor would have to verify this. You might review the TN forum on this website to see if you note familiar symptoms...
Board: Multiple Sclerosis 01-30-2016, 01:38 PM
Replies: 6
Views: 286
Posted By MSJayhawk
Re: Tired in the afternoon

jkl915,

I run out of energy in the afternoons and sometimes mid-morning too. Your not sleeping at night would be a concern as well as a cause of your need to nap. Severe fatigue as well as a...
Board: Multiple Sclerosis 01-30-2016, 01:29 PM
Replies: 4
Views: 273
Posted By MSJayhawk
Re: MS Specialist

indierock,

It could be from your sleeping position. Heart problems often present differently for women than for men. Best to be safe than sorry. If the "feeling" went away as you described, it...
Board: Multiple Sclerosis 01-29-2016, 07:31 PM
Replies: 6
Views: 393
Posted By MSJayhawk
Re: Scared ...

Hank16,

:wave: Welcome.

You shared that you are nervous and have anxiety. Over the years stress, worry, anxiety can build to a point where it overwhelms your tolerance limits and present with...
Board: Multiple Sclerosis 01-27-2016, 11:41 AM
Replies: 4
Views: 341
Posted By MSJayhawk
Re: Muscle spasms

Karen,

Muscle spasm can be MS related. For me, daily stretching alleviated mine. You might need to check your hydration, vitamin and mineral levels, and stretching. Stretching at bed time also...
Board: Multiple Sclerosis 01-27-2016, 07:37 AM
Replies: 10
Views: 446
Posted By MSJayhawk
Re: Not Sure

tdggal1980,

That is not too long of a delay.

The cold could be a contributing factor regarding your hand /finger numbness. During protracted periods of cold, I may wear a pair of gloves...
Board: Multiple Sclerosis 01-26-2016, 11:47 PM
Replies: 4
Views: 380
Posted By MSJayhawk
Re: Losing my mind...

7L0A3

:wave: Let not your heart be troubled.

I have a benchmark established for my "normal" Based on that benchmark, I can judge how I am doing each day and adjust my list of things to do...
Board: Multiple Sclerosis 01-26-2016, 05:48 PM
Replies: 15
Views: 557
Posted By MSJayhawk
Re: Am back, with new symptoms

Chooky,

Given that you are in the summer there, I will share that during the summer (late spring to early fall) I will soak my hands in cold water. This has worked effectively for me. I do not...
Board: Multiple Sclerosis 01-26-2016, 05:43 PM
Replies: 9
Views: 404
Posted By MSJayhawk
Re: Deciding on meds tomorrow - scared

Firemom,

Thank you for your update. Prednisone can cause weight gain. As your body tapers off of it, you should start to notice differences.

With MS our bodies are in overdrive regarding our...
Board: Multiple Sclerosis 01-26-2016, 03:19 PM
Replies: 15
Views: 557
Posted By MSJayhawk
Re: Am back, with new symptoms

Chooky,

The feeling in your feet might be alleviated with some stretching. This was what helped me. As to trembles and vibrations, these are part of my normal life nowadays. I just "live with...
Board: Multiple Sclerosis 01-26-2016, 02:47 PM
Replies: 0
Views: 216
Posted By MSJayhawk
Lyrica Recall

I have posted a notice of a Lyrica recall on the Health News Board. I know there are a few who are taking it. The particulars of the recall are noted there. Stay safe! :) :angel:
Board: Multiple Sclerosis 01-25-2016, 09:57 PM
Replies: 9
Views: 404
Posted By MSJayhawk
Re: Deciding on meds tomorrow - scared

firemom31,

A difficult decision, but one that you need to reach personally. As long as you are properly monitored and you work closely with the prescribing doctor and the Copaxone nurse, you can...
Board: Multiple Sclerosis 01-25-2016, 09:36 PM
Replies: 15
Views: 557
Posted By MSJayhawk
Re: Am back, with new symptoms

Chooky,

A hot day can be a major trigger. Heat can interrupt neurotransmitters. I use this when I deal with my lower back and leg pain. 43 C is hot. Too hot for me! My upper temperature...
Board: Multiple Sclerosis 01-25-2016, 02:47 PM
Replies: 15
Views: 557
Posted By MSJayhawk
Re: Am back, with new symptoms

Chooky,

The MRI image needs to be read by an MS Specialist. A stroke can indeed be the first thought for many MSers and your initial instinct was correct to get checked straight away. The...
Board: Multiple Sclerosis 01-25-2016, 01:57 PM
Replies: 5
Views: 301
Posted By MSJayhawk
Re: Numbness?

Indierock,

My feet feel that way sometimes. In the winter I will double the sock layers to eliminate the temperature triggers which I have. In the summer a cold soaking of my feet "wake them...
Board: Multiple Sclerosis 01-25-2016, 12:23 AM
Replies: 15
Views: 557
Posted By MSJayhawk
Re: Am back, with new symptoms

Chooky,

Just to add. A spinal tap is not a specific test for MS> 15% of patients who have MS have normal test results for o-bands. The elevation of o-bands can also vary over time. If the...
Board: Multiple Sclerosis 01-25-2016, 12:18 AM
Replies: 15
Views: 557
Posted By MSJayhawk
Re: Am back, with new symptoms

Chooky,


:wave: Good On'ya for touching back with an update.

Vessels and nerves are separate and it is highly unlikely that the two could be confused, but not impossible, especially if...
Board: Multiple Sclerosis 01-24-2016, 07:17 PM
Replies: 10
Views: 567
Posted By MSJayhawk
Re: Advice

An EMG uses tiny devices called electrodes to transmit or detect electrical signals.

During a needle EMG, a needle electrode inserted directly into a muscle records the electrical activity in that...
Board: Multiple Sclerosis 01-24-2016, 12:20 PM
Replies: 8
Views: 519
Posted By MSJayhawk
Re: is there a specific test to diagnosis MS

fll5682,

No worries. If Motrin does not help, I would not take it as long term it too can cause damage. The Orthopedic doctor should have discussed long term complications post surgery. Surgery...
Board: Multiple Sclerosis 01-22-2016, 04:51 PM
Replies: 6
Views: 333
Posted By MSJayhawk
Re: MS Specialist

Indierock,

Great news to hear. Thanks for sharing. I believe this is the best direction you can get for exiting limbo land. If it is not MS, at least you will know why it is not and hopefully...
Board: Multiple Sclerosis 01-21-2016, 09:31 PM
Replies: 8
Views: 519
Posted By MSJayhawk
Re: is there a specific test to diagnosis MS

fll5682,

If you are getting relief with Motrin, that pain is unlikely to be MS or MS related. Long term use of OTCs is not recommended either. That said, I would make sure that your neurologist...
Board: Multiple Sclerosis 01-21-2016, 09:08 PM
Replies: 8
Views: 519
Posted By MSJayhawk
Re: is there a specific test to diagnosis MS

fll5682,


:wave: Welcome.

To answer your main question, there is no specific test for MS.

There are over 400 MS mimicries. Some of your symptoms fit, but the overlaps exist. MS...
Board: Multiple Sclerosis 01-20-2016, 10:25 AM
Replies: 10
Views: 567
Posted By MSJayhawk
Re: Advice

Melrose16,

My non-medical opinion is that your doctor is wrong. The Lumbar Puncture is not a test for MS and 15% of MSers have a normal result (negative). The elevated o-band can be up or down...
Board: Multiple Sclerosis 01-19-2016, 06:36 PM
Replies: 11
Views: 646
Posted By MSJayhawk
Re: MS? Yikes!

Bellazae333,

Her major one was fatigue and lack of energy. IT was similar to my MS fatigue which prompted her to ask questions. It was during the fall season, so no temperature intolerance was...
Board: Multiple Sclerosis 01-18-2016, 09:24 PM
Replies: 11
Views: 646
Posted By MSJayhawk
Re: MS? Yikes!

Bellazae333,

Six years ago my younger sister started dealing with fatigue and other problems. She went to see a neurologist because I have MS. The neuro sent her to the cardiologist. The...
Board: Multiple Sclerosis 01-18-2016, 11:43 AM
Replies: 7
Views: 403
Posted By MSJayhawk
Re: Leg spasms

Ann,

The lesions on the spine should be able to be seen on an MRI.

Many medications lose effectiveness over time whenever MS is involved. :angel:
Board: Multiple Sclerosis 01-18-2016, 11:38 AM
Replies: 7
Views: 347
Posted By MSJayhawk
Re: 6 month recheck

Okie gal,

The Amish Cheese store down your way is a nice place for cheese and baked goods. :)
Board: Multiple Sclerosis 01-18-2016, 08:25 AM
Replies: 13
Views: 407
Posted By MSJayhawk
Re: Contrast

Indierock,

Prior to the advent of the McDonald Criteria and subsequent revisions, the "standards" were all over the map. Settling on 4 types of MS as well as standardizing the nomenclature took...
Board: Multiple Sclerosis 01-17-2016, 07:47 PM
Replies: 13
Views: 407
Posted By MSJayhawk
Re: Contrast

Indierock

I cannot say why a neurologist chooses what is chosen to do. My experience has always been a standard brain and C-spine. In 2002 when I was worsening, the MRI could not find any...
Board: Multiple Sclerosis 01-17-2016, 02:34 PM
Replies: 7
Views: 347
Posted By MSJayhawk
Re: 6 month recheck

Okie gal,

Thanks for your update. Family denial is a difficult obstacle to overcome for too many MSers.

Settling into a groove, much of your journey should be "trucking dizzily along". :D ...
Board: Multiple Sclerosis 01-17-2016, 01:29 PM
Replies: 13
Views: 407
Posted By MSJayhawk
Re: Contrast

Indierock,

Contrast is only useful in that active lesions will light up. If you have a mass of lesions, new lesions may appear indistinguishable unless they light up. Timing is essential too...
Board: Multiple Sclerosis 01-17-2016, 07:24 AM
Replies: 7
Views: 403
Posted By MSJayhawk
Re: Leg spasms

Ann,

Spasms and tightness can indeed be MS related and might indicate new, active lesions. For me, it did. An MRI was re-done to include my T-spine where active lesions were found.

For the...
Board: Multiple Sclerosis 01-16-2016, 01:34 PM
Replies: 14
Views: 490
Posted By MSJayhawk
Re: Lesions

Indierock,

No change does not mean "No Disease". As to your current lesions, the radiologist or even a neurologist would literally have to know the specific nerve affected and how it was wired...
Board: Multiple Sclerosis 01-15-2016, 08:23 PM
Replies: 14
Views: 490
Posted By MSJayhawk
Re: Lesions

Indierock,

If you have a lesion form next to a previous lesion, the appearance would be a growing lesion. You have to be able to compare images. Myelin Sheaths are attacked, but the resulting...
Board: Multiple Sclerosis 01-15-2016, 12:59 PM
Replies: 11
Views: 646
Posted By MSJayhawk
Re: MS? Yikes!

Bellazae333,

Stenosis and disc issues can mimic MS. The large dose of D will give you a boost, but once you complete the prescription strength dosages, you will likely need a daily dosage. As...
Board: Multiple Sclerosis 01-14-2016, 01:43 PM
Replies: 6
Views: 314
Posted By MSJayhawk
Re: Unanswered Questions

Indierock,

You deserve proper answers. I think your standing is strong. I fully support your efforts. :) :angel:
Board: Multiple Sclerosis 01-14-2016, 01:34 PM
Replies: 5
Views: 435
Posted By MSJayhawk
Re: help? new symptoms, when to seek medical attention?

bluedream,

One thing you might look into is triggers. When I started maintaining my journal of symptoms, patterns emerged. There are avoidable triggers and unavoidable triggers. If you can...
Board: Multiple Sclerosis 01-14-2016, 10:48 AM
Replies: 5
Views: 435
Posted By MSJayhawk
Re: help? new symptoms, when to seek medical attention?

bluedream,

:wave: Welcome.

If you have MS, first time experiences with certain symptoms can be scary. Things like the MS hug are just an annoyance for me as it no longer surprises me. The...
Board: Multiple Sclerosis 01-14-2016, 08:27 AM
Replies: 10
Views: 446
Posted By MSJayhawk
Re: Not Sure

tdggal1980,

Please "test" with the compresses if you go with heat. My source of pain was rooted in t-spine lesions. Interrupting the messages can also leave legs weak due to interrupted...
Board: Multiple Sclerosis 01-14-2016, 12:15 AM
Replies: 11
Views: 646
Posted By MSJayhawk
Re: MS? Yikes!

Bellazae333,

:wave: Welcome.

The earliest history of MS was in the northern parts of Europe, hence the sunshine linkage, but it was believed to be a lack of sunshine. MS is found in Northern...
Board: Multiple Sclerosis 01-13-2016, 03:45 PM
Replies: 10
Views: 446
Posted By MSJayhawk
Re: Not Sure

tdggal1980,

You might try cold compresses on the areas of pain. For pain in my back and legs I have been using a heating pad whenever the pain presents.

My MS Specialist told me that low...
Board: Multiple Sclerosis 01-13-2016, 01:09 PM
Replies: 10
Views: 446
Posted By MSJayhawk
Re: Not Sure

tdggal1980,

:wave: Welcome. Many of your symptoms can present with MS, but not all. That said, You shared that you were deficient or low in Vitamin D, B12, and Iron. These can all combine...
Board: Multiple Sclerosis 01-13-2016, 12:02 AM
Replies: 2
Views: 297
Posted By MSJayhawk
Re: Appt with new neuro tomorrow.....

Majikgirl1997,

Best of luck. When I go to my doctor I try to have a list of questions or topics to discuss. Mindful of her time, many of the questions are answered in the course of the exam. ...
Board: Multiple Sclerosis 01-12-2016, 06:39 PM
Replies: 5
Views: 521
Posted By MSJayhawk
Re: Possible undiagnosed MS, in pain and scared. Please help.

amatch89,

:wave: Welcome.

A lower lumbar MRI would only, very rarely, find a lesion on few people. Most MRIs used in MS diagnoses are for the cervical spine and brain; with and without...
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