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Board: Shingles 01-12-2016, 09:34 AM
Replies: 15
Views: 5,441
Posted By SOE
Re: PHN without the Shingles rash

:wave:
Welcome to the boards!

I hope your doctor figures it out and gets you healed quickly.
Board: Shingles 01-08-2016, 12:13 PM
Replies: 15
Views: 5,441
Posted By SOE
Re: PHN without the Shingles rash

How are you feeling, Hoppy?
Board: Shingles 01-02-2016, 05:57 PM
Replies: 5
Views: 361
Posted By SOE
Re: Question about the blisters/lesions

You might want to look up Monolaurin too. As an immune booster.
Board: Shingles 01-02-2016, 10:43 AM
Replies: 5
Views: 361
Posted By SOE
Re: Question about the blisters/lesions

Actually, this information is not accurate. Shingles can travel to the eye and cause problems. Any shingles near the eyes must be watched very carefully.
Board: Shingles 01-01-2016, 10:12 PM
Replies: 5
Views: 361
Posted By SOE
Re: Question about the blisters/lesions

:wave: Welcome to the boards and Happy New Year!

So sorry you are going through this. I can't really answer the question about where the rash will spread -- except that it does travel along the...
Board: Shingles 12-21-2015, 08:47 PM
Replies: 1
Views: 300
Posted By SOE
Re: Recurring Shingles

Welcome to the boards. :wave:

I'm so sorry to hear that you keep getting them over and over again. I don't know what that means, but I suspect your immune system is just to weak to fight them.
...
Board: Shingles 12-16-2015, 03:57 PM
Replies: 1
Views: 394
Posted By SOE
Re: When does pain start.

:wave: Welcome to the boards!

Normally the pain hits before you even see any rash -- so it's possible you won't get the bad pain along with everything. You do need a lot of rest while your body...
Board: Celiac Disease 11-23-2015, 04:43 PM
Replies: 5
Views: 1,059
Posted By SOE
Re: Dx w/celiac but can I also have gluten allergy?

FYI, medications can do often have gluten in them. Wheat is often used as a filler/binder. It depends on the manufacturer and the medication. And sometimes it's just the brand name that's gluten...
Board: Celiac Disease 11-23-2015, 12:59 AM
Replies: 5
Views: 1,059
Posted By SOE
Re: Dx w/celiac but can I also have gluten allergy?

First of all, welcome to the boards! :wave:

So sorry you are going through this. It could be now that you are gluten free, that you will be even more intolerant of it than you were before. ...
Board: Shingles 11-20-2015, 11:13 PM
Replies: 2
Views: 438
Posted By SOE
Re: symptoms still after oral medicine and vaccine.

I had shingles in January this year, but have not had any recurring itch. But mine was more painful than it was itchy. I have not had the vaccine because my immune system is not strong enough at...
Board: Shingles 11-20-2015, 11:13 PM
Replies: 2
Views: 438
Posted By SOE
Re: symptoms still after oral medicine and vaccine.

I had shingles in January this year, but have not had any recurring itch. But mine was more painful than it was itchy. I have not had the vaccine because my immune system is not strong enough at...
Board: Celiac Disease 11-15-2015, 10:44 PM
Replies: 2
Views: 402
Posted By SOE
Re: Biopsy positive,Blood negative

I'm sorry I didn't see this sooner. He really should go by the biopsy which is much more certain than blood tests. Since he said trying going completely gluten free and maybe he could diagnose you...
Board: Celiac Disease 11-07-2015, 02:08 PM
Replies: 3
Views: 329
Posted By SOE
Re: 4 years gluten free- still anemic

So sorry you are feeling badly. I've been quite ill for several months (different issue) and I would not be this ill had my doctor taken me seriously to begin with.

I'm no expert, but I know...
Board: Celiac Disease 11-07-2015, 02:08 PM
Replies: 3
Views: 329
Posted By SOE
Re: 4 years gluten free- still anemic

So sorry you are feeling badly. I've been quite ill for several months (different issue) and I would not be this ill had my doctor taken me seriously to begin with.

I'm no expert, but I know...
Board: Mononucleosis 10-29-2015, 01:56 PM
Replies: 7
Views: 1,336
Posted By SOE
Re: Sharing My Mono Experience

Take care and let us know how you are doing.
Board: Mononucleosis 10-28-2015, 11:28 PM
Replies: 7
Views: 1,336
Posted By SOE
Re: Sharing My Mono Experience

I'm not sure you should go by me, because I am older than you are. I got mono when I was 50 and it went undiagnosed for months while I kept working. I also went back to work too soon afterwards. ...
Board: Mononucleosis 10-28-2015, 11:07 PM
Replies: 7
Views: 1,336
Posted By SOE
Re: Sharing My Mono Experience

I had a lot of muscle fatigue with the mono. I don't know about the cheeks thing. I have rosacea, and when it acts up it is itchy. I can't remember if it got worse during the mono...
Board: Mononucleosis 10-28-2015, 10:59 PM
Replies: 7
Views: 1,336
Posted By SOE
Re: Sharing My Mono Experience

Thank you for sharing your story -- and welcome to the Boards. :wave:

Everyone is different, so I can't answer the question about your symptoms. Did the doctor run a lyme disease test with some...
Board: Mononucleosis 10-11-2015, 09:44 PM
Replies: 2
Views: 567
Posted By SOE
Re: Mono over 50

I'm so sorry I missed your post! And I'm sorry you are going through this!

I had mono -- but not the other things you have. Must be quite frustrating. I know I still struggle with fatigue years...
Board: Mononucleosis 10-11-2015, 09:43 PM
Replies: 2
Views: 567
Posted By SOE
Re: Mono over 50

I'm so sorry I missed your post! And I'm sorry you are going through this!

I had mono -- but not the other things you have. Must be quite frustrating. I know I still struggle with fatigue years...
Board: Mononucleosis 10-10-2015, 11:53 AM
Replies: 11
Views: 1,186
Posted By SOE
Re: Persistent weakness after mono?

You can try testing for Celiac, but if it showed up after the mono, it may be too soon to test positive for it. Also, just an fyi, giving up gluten for 3 or 4 days wouldn't tell you anything. You...
Board: Mononucleosis 10-10-2015, 11:53 AM
Replies: 11
Views: 1,186
Posted By SOE
Re: Persistent weakness after mono?

You can try testing for Celiac, but if it showed up after the mono, it may be too soon to test positive for it. Also, just an fyi, giving up gluten for 3 or 4 days wouldn't tell you anything. You...
Board: Mononucleosis 10-09-2015, 10:01 PM
Replies: 11
Views: 1,186
Posted By SOE
Re: Persistent weakness after mono?

Welcome to the boards. So sorry you are going through this.

I don't know -- but after I got mono, it triggered Celiac Disease in me. The symptoms I get from that (they are different for...
Board: Celiac Disease 10-03-2015, 01:30 PM
Replies: 2
Views: 654
Posted By SOE
Re: Need help with labs for my son

Hello :wave:

I'm no expert. There's a high likelihood that he has it, if you do. And I agree with you that everyone has different symptoms.

Biopsies are so hit and miss based on which...
Board: Celiac Disease 09-25-2015, 12:32 PM
Replies: 1
Views: 375
Posted By SOE
Re: retesting... freaking out

Welcome to the boards. I'm sorry you are going through this difficulty!

Can you ask your previous physician to just "officially" diagnose you? Put it in a report or something so that it is...
Board: Celiac Disease 09-02-2015, 01:01 PM
Replies: 13
Views: 758
Posted By SOE
Re: Celiacs ... Need Your Take

Having not had gluten for 2 weeks may affect your tests, but I don't think there is a definitive answer. Having gone without may give you a false negative.
Board: Celiac Disease 08-29-2015, 05:55 PM
Replies: 13
Views: 758
Posted By SOE
Re: Celiacs ... Need Your Take

Not necessarily. Everyone is different and there are so many variables.
Board: Celiac Disease 08-29-2015, 03:59 PM
Replies: 13
Views: 758
Posted By SOE
Re: Celiacs ... Need Your Take

P.S. If you have Celiac, cross-contamination is a BIG issue. It's no different than just eating the gluten. It literally just takes a hint of cross-contamination to do me in.

Also, wheat is in...
Board: Celiac Disease 08-29-2015, 03:57 PM
Replies: 13
Views: 758
Posted By SOE
Re: Celiacs ... Need Your Take

So sorry you are feeling badly. How frustrating!

Yes, I think you should be tested. Not all Celiacs have the stomach issues. It can manifest in many different ways. I mostly have the...
Board: Celiac Disease 08-29-2015, 03:49 PM
Replies: 7
Views: 353
Posted By SOE
Re: 18 year old girl desperate for help

The swollen glands sound like maybe your Glandular Fever is back or never left? You can have it more than once... But I don't know all the celiac symptoms. There are dozens if not possibly...
Board: Celiac Disease 08-29-2015, 02:03 PM
Replies: 7
Views: 353
Posted By SOE
Re: 18 year old girl desperate for help

I have encountered the same issue with people -- even my family. And by several doctors.

I think it is possible that the gluten is causing these issues. Everything starts with our gut, and when...
Board: Celiac Disease 08-29-2015, 09:09 AM
Replies: 7
Views: 353
Posted By SOE
Re: 18 year old girl desperate for help

Welcome to the boards! :wave:

I'm so sorry you feel bad! Your story is very similar to mine.

After I got mono (glandular fever here in the U.S.), I started feeling worse again and I figured...
Board: Shingles 08-20-2015, 07:42 PM
Replies: 1
Views: 562
Posted By SOE
Re: misdiagnosed for 1st week

Welcome to the boards. :wave:

Sorry to hear you got shingles. It's awful.

You should ask your doctor for lidocaine ointment for your rash. It really helped me a lot. It's a prescription,...
Board: Mononucleosis 08-14-2015, 09:19 PM
Replies: 11
Views: 1,186
Posted By SOE
Re: Persistent weakness after mono?

I don't know, but I guess it just stays with some people longer. At least know you are not alone (if that helps...). :yawn:

I'm hoping more people will see this thread and share their experience...
Board: Mononucleosis 08-09-2015, 11:33 AM
Replies: 1
Views: 386
Posted By SOE
Re: What would be considered an enlarged spleen?

:wave: Sorry, I have no idea, but hopefully someone else may know.
Board: Mononucleosis 08-07-2015, 06:24 PM
Replies: 11
Views: 1,186
Posted By SOE
Re: Persistent weakness after mono?

I got mono close to 4 years ago now (3 or 4 -- too tired to figure it out :) ). I kept complaining to the doctor about being tired all the time. Finally she tested me for mono and said it was a new...
Board: Celiac Disease 07-30-2015, 06:30 PM
Replies: 1
Views: 574
Posted By SOE
Re: Could I have Celiac?

Welcome to the boards. So sorry you feel this poorly!

It could be Celiac. I got mono a few years ago which triggered Celiac Disease -- which viruses can do if you carry the gene. And I lost the...
Board: Mononucleosis 07-25-2015, 01:03 AM
Replies: 3
Views: 411
Posted By SOE
Re: Need some advice

How are you feeling?
Board: Mononucleosis 07-07-2015, 08:52 AM
Replies: 11
Views: 1,186
Posted By SOE
Re: Persistent weakness after mono?

Welcome to the boards!

I'm so sorry you are going through this. Unfortunately, I have had the same problems and I had mono nearly 4 years ago. It's exhausting. I have not found any answers yet,...
Board: Shingles 06-30-2015, 10:56 AM
Replies: 2
Views: 1,218
Posted By SOE
Re: Shingles Question

:wave:

Sorry I did not see this post earlier. I believe that it is normal. I'm pretty sure it happened with me.

How are you feeling?
Board: Mononucleosis 06-30-2015, 10:52 AM
Replies: 3
Views: 411
Posted By SOE
Re: Need some advice

Sorry to hear that you have mono. There is not much to do for mono except to get lots and lots of rest. If you do not rest properly, it will take longer to get well.

Rest. Avoid all alcohol. ...
Board: Shingles 06-27-2015, 10:53 AM
Replies: 1
Views: 603
Posted By SOE
Re: Atypical Shingles

Hi DannyJane :wave:

I'm so sorry you are suffering! I just passed my 5 month mark. My pain started in my right kidney and back. The rash showed up 5 days later on my stomach and went around to...
Board: Shingles 06-24-2015, 02:41 PM
Replies: 5
Views: 1,405
Posted By SOE
Re: First time shingles - what to expect?

I don't know why you didn't take the antiviral. I didn't get to the doctor in time. I took the antiviral -- but not within 72 hours and now I have post herpetic nerve pain. I've been in major pain...
Board: Shingles 06-22-2015, 03:54 PM
Replies: 5
Views: 1,405
Posted By SOE
Re: First time shingles - what to expect?

Hi :wave:

I can't answer all of your questions, but I can tell you what my experience was in this past January. The emergency room doctor told me that they were seeing all ages come through with...
Board: Shingles 06-11-2015, 04:05 PM
Replies: 1
Views: 566
Posted By SOE
Re: Advice from Anyone Who Had Shingles

Since you are taking the antiviral, you have a great shot at this going away quickly. My sister had shingles on her head and the worst was over in 2 weeks. I didn't get to the doctor fast enough,...
Board: Shingles 06-11-2015, 04:01 PM
Replies: 2
Views: 695
Posted By SOE
Re: Shingles ... maybe

Welcome to the boards. I was told in the ER that they are seeing people of all ages now with Shingles, even children. So don't let your age throw you. You need to go straight to the doctor. If it...
Board: Shingles 06-11-2015, 03:37 PM
Replies: 6
Views: 792
Posted By SOE
Re: New "Sufferer" - Is My Prescription Correct?

It sounds right. Shingles can take awhile. My rash took a couple of months to completely go away and 4-1/2 months later I am still having nerve pain because I did not get to the doctor in time. Be...
Board: Shingles 06-11-2015, 03:37 PM
Replies: 6
Views: 792
Posted By SOE
Re: New "Sufferer" - Is My Prescription Correct?

It sounds right. Shingles can take awhile. My rash took a couple of months to completely go away and 4-1/2 months later I am still having nerve pain because I did not get to the doctor in time. Be...
Board: Shingles 05-18-2015, 01:05 PM
Replies: 3
Views: 512
Posted By SOE
Re: shingles shot

You are so fortunate that you had a mild case. I am on day 114 of nerve pain, with no end in sight. I think I am going to get the vaccine when I am well enough to do so. I have heard that it will...
Board: Shingles 05-05-2015, 02:46 PM
Replies: 1
Views: 445
Posted By SOE
Re: looking for sympathetic dr for pain meds las vegas

Welcome to the boards. I don't have a doctor referral, but I know what you are going through.

I have been seeing a regular internist for my shingles pain. I am on Gabapentin and Norco. Also, I...
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