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Board: Autoimmune Disorders 07-20-2016, 06:00 PM
Replies: 14
Views: 529
Posted By ladybud
Re: RA or What?? Please help me!!!

You have every right to get tests done to find the source of your pain. I would want an anti CCP antibody done and xrays of hands and feet could be done first, at much less cost than MRI. Erosions...
Board: Lyme Disease 07-20-2016, 05:47 PM
Replies: 3
Views: 160
Posted By ladybud
Re: AutoImmune or Lyme Diease? Opinions needed!

Your abnormal test results could indicate both lupus and autoimmune thyroid disease (Hashimotos disease). These 2 things can coexist, and can affect fertility, particularly if your thyroid hormone...
Board: Autoimmune Disorders 07-20-2016, 09:03 AM
Replies: 14
Views: 529
Posted By ladybud
Re: RA or What?? Please help me!!!

It is quite typical early on in arthritis for lab work to be normal. The MRI will be helpful if any erosions of the joint surface show up. They should do images of your worst joints. Also, be sure an...
Board: Lupus 07-18-2016, 06:47 PM
Replies: 5
Views: 269
Posted By ladybud
Re: Everything points to SLE but told no??

I am glad you got clarification and can at least now benefit from treatment. Pictures and diaries of symptoms are very helpful for documenting signs and symptoms and obviously made a big difference...
Board: Lupus 07-11-2016, 12:53 PM
Replies: 1
Views: 192
Posted By ladybud
Re: Red skin, neg ANA

Many people who have lupus do complain of burning and itching skin. Redness often appears on face, neck and chest especially following sun exposure. It is not usually all over. The tape irritation is...
Board: Heart Disorders 07-11-2016, 12:40 PM
Replies: 1
Views: 153
Posted By ladybud
Re: Every time I stand my heart rate increases by up to 45 beats per minute?

Your heart rate increase with standing is called orthostatic hypotension. Your BP is likely dropping too and the heart compensates by speeding up. There are several causes for this, by far most...
Board: Lupus 07-11-2016, 12:30 PM
Replies: 1
Views: 163
Posted By ladybud
Re: Help to understand blood work

So the sed rate, elevated above 20, reflects inflammation in your system.. The ANA titer of 1:80 is considered low positive but can be positive in several conditions, lupus and others. It is very...
Board: Prostatitis 07-09-2016, 07:55 PM
Replies: 4
Views: 881
Posted By ladybud
Re: 20, urge to pee 80-100 times/day prost. for 2 yrs, no improvement, help!

I agree with previous poster that interstitial cystitis is a likely possibility and you need cultures and a cystoscopy to visualize the bladder interior. I would see a new urologist for a second...
Board: Lupus 07-09-2016, 07:24 PM
Replies: 9
Views: 425
Posted By ladybud
Re: Late Onset Lupus

With your ANA being this high, I think the dsDNA of 15 is significant given your symptoms. No one seems to fit the"textbook" picture, and most people have no dsDNA antibodies at all. All labs and...
Board: Arthritis 07-09-2016, 07:02 PM
Replies: 2
Views: 294
Posted By ladybud
Re: diagnosis on imaging alone possible?

Hi Amanda and welcome to the boards. I think you will find help here, and I'll answer what I can. It seems like you have several symptoms of autoimmune arthritis and I think the rheumatology consult...
Board: Gallbladder 07-09-2016, 06:44 PM
Replies: 7
Views: 416
Posted By ladybud
Re: Is this "normal" for having gallstones? ALT (312), AST (604)

I would want to see a liver specialist who will do a workup for autoimmune disease. Usually gall stones, by themselves, do not cause liver enzymes this high. If viral hepatitis is ruled out, then...
Board: Autoimmune Disorders 07-01-2016, 11:42 AM
Replies: 24
Views: 853
Posted By ladybud
Re: Pediatric ANA

A sunburn that's bright red should involve the forehead and chin and hurt, burn or sting. The sun exposure may make her other symptoms worse as well.
Board: Digestive Disorders 06-30-2016, 12:57 PM
Replies: 5
Views: 628
Posted By ladybud
Re: I want to find the underlying cause for gastritis

It is customary to do colonoscopy whenever there is a change in bowel habits. Excess stomach acid can cause looser stools, so I would suspect that is the cause but your Dr is being thorough to rule...
Board: Autoimmune Disorders 06-29-2016, 05:59 PM
Replies: 24
Views: 853
Posted By ladybud
Re: Pediatric ANA

This sounds very much like a usual malar rash. The veiny appearance can be from dilated veins and are closely related to telangiectasias seen in CREST syndrome. She may have an overlap of lupus and...
Board: Autoimmune Disorders 06-29-2016, 05:39 PM
Replies: 14
Views: 529
Posted By ladybud
Re: RA or What?? Please help me!!!

Inflammatory arthritis includes RA, lupus, mixed connective tissue disorder, undifferentiated connective tissue disease, gout, and a few others. It is in contrast to osteoarthritis which is more...
Board: Sarcoidosis 06-29-2016, 07:53 AM
Replies: 14
Views: 891
Posted By ladybud
Re: Please help - undiagnosed but definitely sarcoidosis

Yes I started my lupus symptoms with tachycardia episodes and have been on medicine to control that ever since. I have had serious problems with shortness of breath with exertion fort several years,...
Board: Sarcoidosis 06-28-2016, 02:47 PM
Replies: 14
Views: 891
Posted By ladybud
Re: Please help - undiagnosed but definitely sarcoidosis

I would definitely ask for a CK (CPK) test to be done. It is a muscle enzyme that is elevated in lupus myositis (inflammation of muscles) and dermatomyositis, and correlates with muscle pain and...
Board: Autoimmune Disorders 06-28-2016, 02:26 PM
Replies: 24
Views: 853
Posted By ladybud
Re: Pediatric ANA

Just an FYI, my malar rash can last anywhere from a few minutes (less than fifteen) to a few hours. It does not hurt, itch or burn. I feel a "flush" in my face and see it in the mirror. It can be...
Board: Autoimmune Disorders 06-28-2016, 01:38 PM
Replies: 14
Views: 529
Posted By ladybud
Re: RA or What?? Please help me!!!

The fact that all your sub-type antibodies (those you posted) are negative, may reflect two things: this is a relatively new illness ( months rather than years) or may be that RA is more likely, as...
Board: Autoimmune Disorders 06-27-2016, 06:17 PM
Replies: 14
Views: 529
Posted By ladybud
Re: RA or What?? Please help me!!!

What you are describing sounds like possible RA or a combo of RA and lupus, sometimes called rhupus. I have that. As many as 40% of people with RA have negative RA factor. Your ANA, being low...
Board: Autoimmune Disorders 06-27-2016, 02:29 PM
Replies: 24
Views: 853
Posted By ladybud
Re: Pediatric ANA

This stuff gets complex, but basically all the IGs are immunoglobulins or antibodies. IGM elevates early in infection or inflammation, then IGG elevates later and may stay elevated for a long time,...
Board: Sarcoidosis 06-26-2016, 07:09 AM
Replies: 14
Views: 891
Posted By ladybud
Re: Please help - undiagnosed but definitely sarcoidosis

If you truly have adrenal insufficiency you cannot go off the HC. 50 is a high dose though and could be causing the tremor as a side effect. Do you see an endocrinology Dr for this? This med and...
Board: Sarcoidosis 06-25-2016, 12:50 PM
Replies: 14
Views: 891
Posted By ladybud
Re: Please help - undiagnosed but definitely sarcoidosis

I think your symptoms are consistent with an autoimmune condition. You need a thorough workup for those and it is important to try to distinguish your pain as to whether it is more muscular (between...
Board: Autoimmune Disorders 06-24-2016, 12:48 PM
Replies: 24
Views: 853
Posted By ladybud
Re: Pediatric ANA

So sorry, I see back several posts in this thread that she has had most, but not all, of these tests done already. Her time in the hospital and her transplant procedure sounds truly remarkable-that...
Board: Sarcoidosis 06-23-2016, 02:48 PM
Replies: 14
Views: 891
Posted By ladybud
Re: Please help - undiagnosed but definitely sarcoidosis

amf1970

The ER does NOT do skin biopsies, a dermatologist does. Be sure to ask for the lupus band test or the biopsy may be meaningless. CT scans can show up granulomas in the lungs, but would not...
Board: Immune Disorders 06-22-2016, 01:36 PM
Replies: 3
Views: 437
Posted By ladybud
Re: Pediatric ANA

It can take awhile to pin down the autoimmune disorders, as the symptoms often evolve over a period of time, months or years, and until you get signs and symptoms to go with the blood work results,...
Board: Immune Disorders 06-22-2016, 01:11 PM
Replies: 3
Views: 437
Posted By ladybud
Re: Pediatric ANA

Children can certainly have high antibody levels, and it is common to see abnormal ANA levels without any other abnormalities on blood tests. The Centromere pattern can be associated with CREST...
Board: Sarcoidosis 06-22-2016, 12:49 PM
Replies: 14
Views: 891
Posted By ladybud
Re: Please help - undiagnosed but definitely sarcoidosis

Amanda, since you have shortness of breath, pulmonary function tests should be done to rule out asthma or other lung issues. The other helpful tests for heart would be a 24 hr Holter monitor to check...
Board: Sarcoidosis 06-21-2016, 06:07 AM
Replies: 14
Views: 891
Posted By ladybud
Re: Please help - undiagnosed but definitely sarcoidosis

Amanda, I would agree you may have an autoimmune disorder. Sarcoidosis can be diagnosed by skin biopsy of a lesion. The one on your leg could be biopsies by a dermatologist, but I would highly...
Board: Pain Management 06-20-2016, 05:09 PM
Replies: 6
Views: 645
Posted By ladybud
Re: Help in Bama!

I guess I am wondering what is causing the pain, where it is, and what kind of lupus treatment you are on. Pain meds are less effective than treatment of the underlying conditions and suppressing the...
Board: Lupus 06-14-2016, 07:59 PM
Replies: 20
Views: 852
Posted By ladybud
Re: New here. Waiting on lab results.

PS if you have a university teaching hospital nearby, I would go to ER there, as they will be more aggressive at checking you out with something more unusual than run of mill illness
Board: Lupus 06-14-2016, 07:42 PM
Replies: 20
Views: 852
Posted By ladybud
Re: New here. Waiting on lab results.

Honestly I would go back to the ER and ask to have a lumbar puncture and mention aseptic meningitis from possible lupus as a possibility. Take all your lab results with you. I don't think the ER Dr....
Board: General Health 06-14-2016, 07:22 PM
Replies: 4
Views: 349
Posted By ladybud
Re: Burning feeling inside my body

Have you taken your temperature during these episodes? Some infections have cyclic symptoms with fever. Establishing whether you have fever, by thermometer measurements, is critical. If so, an...
Board: Lupus 06-14-2016, 06:54 PM
Replies: 20
Views: 852
Posted By ladybud
Re: New here. Waiting on lab results.

So with your WBC count and platelet count low and presence of anti dsDNA antibodies, plus fever, rash and joint pains/aching, I think you have an autoimmune disease and your PCP should refer you to a...
Board: General Health 06-13-2016, 06:43 AM
Replies: 4
Views: 349
Posted By ladybud
Re: Burning feeling inside my body

The nature of the illness sounds like autoimmune disease should be revisited. If it has been 4years since testing was done, it would make sense to be tested again. Many of the antibodies seen in...
Board: Digestive Disorders 06-10-2016, 10:26 AM
Replies: 5
Views: 628
Posted By ladybud
Re: I want to find the underlying cause for gastritis

Many people who have gastritis have a loss of appetite, especially if eating exaccerbates their symptoms. Just to be on safe side, I would request getting an ultrasound to check out the pancreas and...
Board: Lupus 06-01-2016, 06:36 PM
Replies: 3
Views: 473
Posted By ladybud
Re: About to be diagnosed with SLE (I think)

It seems you have identified a possible genetic link with your illness and your Mom's. I am so sorry you lost her at an early age due to possible missed diagnosis of lupus. Some of her symptoms and...
Board: Lupus 06-01-2016, 07:52 AM
Replies: 3
Views: 473
Posted By ladybud
Re: About to be diagnosed with SLE (I think)

Many people with skin (cutaneous) lupus have negative ANAs, but may have positive anti-Ro (SSA) .antibodies. These should be run. It is also seen that some lupus patients also have immune...
Board: Autoimmune Disorders 06-01-2016, 07:25 AM
Replies: 1
Views: 371
Posted By ladybud
Re: What is happening with my skin?

Your symptoms are suggestive of Ehlers-Danlos syndrome. It is genetic, so genetic testing can be done to confirm it if you want. You can find more information on it on the internet. A rheumatology Dr...
Board: Lupus 05-25-2016, 05:51 PM
Replies: 8
Views: 750
Posted By ladybud
Re: What were your first symptoms?

In general, hives for no apparent allergic reason, are frequent in lupus, and can even be a presenting (early) symptom. It is a sign the immune system is reacting to something (itself?) and can be...
Board: Lupus 05-25-2016, 05:32 PM
Replies: 6
Views: 447
Posted By ladybud
Re: This all feels rushed - Dr.'s keep saying lupus

I too think that your Drs. are not rushing, just trying to be thorough, which I would appreciate, as too many Drs. don't look far enough. I am so sorry for your fetal loss. It is devastating and you...
Board: Thyroid Disorders 05-20-2016, 06:16 AM
Replies: 1
Views: 319
Posted By ladybud
Re: Possible hypothyroidism

Yes it makes sense. With a TSH over 3 and low end of range T3 and T4, your thyroid is probably fizzling out, and that is likely causing the weight gain. A + ANA often occurs in Hashimoto's...
Board: Lupus 05-19-2016, 08:54 AM
Replies: 2
Views: 444
Posted By ladybud
Re: How urgently do I need to get treatment?

In my opinion, there is more urgency to get additional diagnostic tests done than get started on treatment. Depending on when and what tests were done previously, some of them may need to be repeated...
Board: Lupus 05-18-2016, 09:34 PM
Replies: 8
Views: 750
Posted By ladybud
Re: What were your first symptoms?

Interesting that I also have blood vessels that burst spontaneously, usually in my fingers. It is acutely painful when it happens. I also had a large vein rupture in my arm from an auto inject of...
Board: Lupus 05-18-2016, 06:44 AM
Replies: 8
Views: 750
Posted By ladybud
Re: What were your first symptoms?

I remember having rather sudden onset of sacroiliac pain-intense burning pain on both sides. Then I started having bilateral joint pain in joints not typically associated with osteoarthritis. Like my...
Board: Digestive Disorders 05-09-2016, 02:33 PM
Replies: 5
Views: 628
Posted By ladybud
Re: I want to find the underlying cause for gastritis

Antral gastritis means you have inflammation in the upper inner curved portion of the stomach. This is common, because the cells that secrete hydrochloric acid are located there. It is caused by an...
Board: Thyroid Disorders 05-09-2016, 02:23 PM
Replies: 1
Views: 387
Posted By ladybud
Re: Joint and muscle weakness?

Hashimoto's can exist with other autoimmune problems, and a rheumatologist is the type of doctor you need to see. Give the Dr. a concise list of all your symptoms, and they should do blood and urine...
Board: Arthritis 05-09-2016, 02:13 PM
Replies: 4
Views: 800
Posted By ladybud
Re: Dad has Rheumatoid Arthritis ... or so they say

It is unfortunate and sad that your Dad is so ill at such a young age, and relatively uncooperative with letting others help in his health care. These symptoms could represent a number of different...
Board: Autoimmune Disorders 04-29-2016, 09:11 AM
Replies: 6
Views: 537
Posted By ladybud
Re: Doctor isn't checking for autoimmune ... ?

Vega, sorry that I forgot to answer your question about whether all these symptoms were related. YES, they are. Lupus is associated with rashes, mouth (and nose) ulcers, sun sensitivity, joint pains,...
Board: Autoimmune Disorders 04-29-2016, 08:52 AM
Replies: 6
Views: 537
Posted By ladybud
Re: Doctor isn't checking for autoimmune ... ?

Hello Vega, and welcome to the boards! It is really difficult to be diagnosed with these things, especially being so young. In some respects, though, knowing what is wrong at an early stage can be a...
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