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Board: Lupus 06-18-2016, 10:57 AM
Replies: 2
Views: 334
Posted By kathryn+2
Re: Prednisone and flare ups

Thank you for your reply. I figured I'd just tough it out. I'm 5 weeks post surgery and able to be partial weight bearing. Still can't drive through. But my emotional health is in a much better...
Board: Lupus 06-10-2016, 04:24 PM
Replies: 2
Views: 334
Posted By kathryn+2
Prednisone and flare ups

I broke my ankle 4 weeks ago. Not weight bearing yet. It's been quite a challenge and very stressful both physically and emotionally. My question is I'm in a bad flare which isn't helping my healing...
Board: Foot & Ankle Problems 05-22-2016, 08:37 AM
Replies: 3
Views: 382
Posted By kathryn+2
Re: 6 days post surgery broken ankle

Those knee scooters look like a good thing. I actually rented a wheelchair and rarely use the crutches Thanks for the advice
Board: Foot & Ankle Problems 05-21-2016, 09:09 PM
Replies: 3
Views: 382
Posted By kathryn+2
6 days post surgery broken ankle

I know I'm supposed to stay off my ankle but a couple times while on the crutches I lost my balance and put a little weight on my ankle which is in a boot. I have 2 pins and a plate Do you think...
Board: Fibromyalgia 09-24-2015, 08:14 AM
Replies: 5
Views: 849
Posted By kathryn+2
Smile Re: Guaifenesin protocal

We've lived here for 38 years and it has grown quite a lot in that time. I think we're at 27,000 now .. Because of the drought Atascadero Lake is totally dried up. Very depressing.

The fire up...
Board: Fibromyalgia 09-23-2015, 09:27 AM
Replies: 5
Views: 849
Posted By kathryn+2
Re: Guaifenesin protocal

I'm reluctant to try it so I guess I'll go with my gut and forget about it. Thanks for the input.. I just started taking 600mg guaifenesin time released 1 x a day because it does ease my breathing. ...
Board: Fibromyalgia 09-22-2015, 11:55 AM
Replies: 5
Views: 849
Posted By kathryn+2
Guaifenesin protocal

Has anyone heard of this or tried it? Reading up on it it seems to be successful although they are saying you will feel worse before you start feeling better. If you feel worse you know it is...
Board: Lupus 09-04-2015, 09:25 AM
Replies: 2
Views: 505
Posted By kathryn+2
Re: Nose swelling and sores. Help !

Thank you so much for your concern Veej. It is feeling better. This might sound totally weird but I tried some hemorrhoid salve and it helped with the swelling. It is starting to go away on it's...
Board: Depression 09-02-2015, 08:00 AM
Replies: 4
Views: 1,310
Posted By kathryn+2
Re: Weary and Lost at 60

I'm 63 and feeling exactly the same way. When you are depressed it's hard to make yourself go out and interact with other people. I just don't have the energy anymore to fake it when inside I'm sad ....
Board: Lupus 08-29-2015, 02:40 PM
Replies: 2
Views: 505
Posted By kathryn+2
Nose swelling and sores. Help !

Does anyone get this? Right now my right nostril is almost completely closed from the swelling and it's also bleeding a little. Is there anything over the counter that I can use? I know Nasacort...
Board: Senior Health 06-11-2015, 08:50 PM
Replies: 6
Views: 732
Posted By kathryn+2
Re: Retirement fears

Yes ,he's waiting for Soc Sec at 66. I ,like your wife will qualify for some of my husbands Soc Sec. The main reason why we have to wait is that husband was part of the package when the our...
Board: Senior Health 06-11-2015, 05:19 PM
Replies: 6
Views: 732
Posted By kathryn+2
Re: Retirement fears

Thank you , I'm sure I will get used to it. I love my yoga class and want to go back to swimming which is something I did about 6 years ago and had to give up because of work ,watching grandkids,...
Board: Senior Health 06-05-2015, 10:09 AM
Replies: 6
Views: 732
Posted By kathryn+2
Retirement fears

After owning a business for 37 years with my husband we sold it to a competitor . My husband is going to go to work for them and I get to retire. I seem to be a bit nervous about that. Will I be...
Board: Lupus 12-30-2014, 08:07 PM
Replies: 6
Systemic Plaquenil only?
Views: 979
Posted By kathryn+2
Re: Plaquenil only?

I've been on plaquenil only since 2007. Like VeeJ I was diagnosed later in life at age 55. It doesn't leave me symptom free but definitely helps. I also take Advil daily and if I'm in a really bad...
Board: Lupus 11-11-2014, 08:02 AM
Replies: 4
Views: 698
Posted By kathryn+2
Re: Mini meltdown..

I've never had allergies or asthma before but for the past few years I've had a few symptoms in the spring and fall. I was diagnosed at the ER. I had so much pressure in my chest I thought I was...
Board: Lupus 11-10-2014, 10:29 AM
Replies: 4
Views: 698
Posted By kathryn+2
Re: Mini meltdown..

Thank you for your reply VeeJ. I am feeling a bit better. And yes ,I do have something else going on that could be or could not be related to lupus. Bronchospasms. I'm using an inhaler for that right...
Board: Irritable Bowel Syndrome (IBS) 11-09-2014, 05:27 PM
Replies: 0
Views: 674
Posted By kathryn+2
I don't know if this will help anyone else?

I've had IBSD for 30 years. I cut out dairy at that time and that helped a bit but in the past few years my IBS has gotten more frequent. Almost every day. In March I cut out refined sugar. It's...
Board: Lupus 11-09-2014, 04:06 PM
Replies: 4
Views: 698
Posted By kathryn+2
How do you handle it ?

I've had lupus and fibromyalgia for 7 years. I think I've been handling it pretty well. Today though I had a mini meltdown.
Does this ever happen to you guys? You just get so tired of feeling bad...
Board: Lupus 10-06-2014, 02:29 PM
Replies: 2
Views: 939
Posted By kathryn+2
lupus and lung issues.

Are lung issues very common with people who have lupus? I feel like something is sitting on my chest and I have a wheezy type of cough that is also a dry cough. When I last saw my rheumy in Aug....
Board: Lupus 09-28-2014, 04:24 PM
Replies: 6
Views: 1,190
Posted By kathryn+2
Re: Are you on prenisone? Questions.

I am in the process of finding a new rheumatologist. In my area there are only 2 and the one who diagnosed me is an hour away but was recommended by my GYN who sees her for her R A. This past appt...
Board: Lupus 09-24-2014, 08:50 AM
Replies: 6
Views: 1,190
Posted By kathryn+2
Are you on prenisone? Questions.

Hi All,
I have avoided taking prednisone for the last 8 years because of the side effects. For me it's anxiety, weight gain, and general grouchiness. This past week though has been so bad I...
Board: Lupus 09-04-2014, 08:26 AM
Replies: 4
Views: 1,640
Posted By kathryn+2
Re: Weird symptoms.

I'm only on plaquenil. I've been on it for 7 years. I'm pretty sure that's not the culprit . I take 400mg once a day. It only happens when I'm overtired. Either at night when I first go to bed or...
Board: Lupus 09-03-2014, 02:29 PM
Replies: 4
Views: 1,640
Posted By kathryn+2
Weird symptoms.

I was diagnosed with Mixed Connective Tissue Disease which may or may not be lupus ( my rheumy still isn't sure) and fibromyalgia . When I get overtired the same symptoms keep popping up. Mainly I...
Board: Lupus 09-01-2014, 08:10 AM
Replies: 19
Views: 5,031
Posted By kathryn+2
Re: Connective tissue disease or lupus?

If I were you Sockielover I would probably go on a small dose of prednisone until you are able to get back on the plaquenil. Everyone's different and maybe the side effects for you won't be too bad....
Board: Lupus 08-30-2014, 04:13 PM
Replies: 19
Views: 5,031
Posted By kathryn+2
Re: Connective tissue disease or lupus?

Your diagnosis sounds very similar to mine. My ANA titer is 1.40 speckled. My Dr. told me I had connective tissue disease because she said it doesn't look as bad to the insurance companies. So I'm...
Board: Chronic Pain 05-29-2014, 11:46 AM
Replies: 1
Views: 1,718
Posted By kathryn+2
lupus and pain relief?

I was diagnosed about 8 years ago. Currently I take plaquenil and Advil. I feel like my pain is escalating and I've lost control of it.. I don't want to go on narcotic pain meds and I truly hate...
Board: Lupus 11-14-2013, 10:30 AM
Replies: 4
Systemic photosensitivity
Views: 706
Posted By kathryn+2
Re: photosensitivity

I've been on plaquenil for 8 years. I haven't had an eye check up for 3 years though. Need to make an appt. Insurance doesn't cover eye care.
Board: Lupus 11-13-2013, 03:22 PM
Replies: 4
Systemic photosensitivity
Views: 706
Posted By kathryn+2
photosensitivity

Does anyone else have eye issues with bright light when they are in a flare? Today I had to pick up grandkids and I could barely see to drive. My eyes just hurt so much and I couldn't focus. I did...
Board: Lupus 07-29-2013, 08:16 PM
Replies: 3
Views: 596
Posted By kathryn+2
Re: Feverish inside

I wouldn't say my internal organs feel like that but sometimes when I'm really tired and especially at night before I fall asleep I feel like my body is burning up from the inside out and...
Board: Sexual Health - Women 02-05-2013, 05:43 PM
Replies: 9
Views: 1,053
Posted By kathryn+2
Re: Generic meds causing no desire for sex?

You do sound like a pretty good husband. All I can say is if you love her hang in there. I'm 60 years old and have only enjoyed sex for the last 2 years or so.My husband says it was worth the wait. ...
Board: Sexual Health - Women 02-05-2013, 01:43 PM
Replies: 9
Views: 1,053
Posted By kathryn+2
Re: Generic meds causing no desire for sex?

Everything you've mentioned about your wife can totally affect her sex drive. She may want to have her testosterone levels checked. On the other hand an understanding husband who is willing to help...
Board: Sexual Health - Women 01-24-2013, 09:07 AM
Replies: 9
Views: 1,053
Posted By kathryn+2
Re: Generic meds causing no desire for sex?

Your family Doc is not up on women's hormone issues. Is it a man ? (just wondering) Do you have a GYN? Testosterone cream compounded for women is very, very common. Compounded just means that after...
Board: Sexual Health - Women 01-23-2013, 05:55 PM
Replies: 9
Views: 1,053
Posted By kathryn+2
re: Generic meds causing no desire for sex?

I must once again mention testoterone cream. Another poster also mentioned it. It worked well for me ( I am 60 years old) It's a quick and easy fix if it works . You won't know until you try it. In...
Board: Colds & Flu 11-10-2012, 12:31 PM
Replies: 3
Views: 4,698
Posted By kathryn+2
Re: Still coughing after 3 weeks...

Yikes ! Sorry you are having so much trouble. I am coughing up greenish yellow stuff. But I'm feeling a bit better today. Since it is the weekend I will see how I am on Mon. My insurance does not...
Board: Colds & Flu 11-08-2012, 05:57 PM
Replies: 3
Views: 4,698
Posted By kathryn+2
Re: Still coughing after 3 weeks...

Sounds like what I have. I haven't been to the Dr. though. Trying to wait it out. If it's something viral then antibiotics won't really help. Are you feeling any better yet?
Board: Lupus 10-24-2012, 11:55 AM
Replies: 0
Views: 412
Posted By kathryn+2
eye issues with flourescent lighting?

I own a business that uses flourescent lights . Sometimes my eyes are very sensitive to light. I know there are filters out there for flourescent lights. Has anyone used them ? I'm interested in...
Board: Sexual Health - Women 10-23-2012, 08:13 PM
Replies: 11
Views: 2,694
Posted By kathryn+2
Re: No desire for sex. Medication to help?

You may want to try testosterone cream. Talk to your GYN. She or he will test your testosterone levels and the pharmacy can compound a a cream just for you at the level you need to bring your ...
Board: Lupus 10-23-2012, 08:03 PM
Replies: 6
Views: 989
Posted By kathryn+2
Re: Update on Plaquenil

It has really helped me also. Glad it has made a difference in how you feel. I take 400mg daily.

Hang in there , Kathryn
Board: Autoimmune Disorders 08-19-2012, 09:00 PM
Replies: 3
Views: 1,169
Posted By kathryn+2
Re: Is Plaquenil very helpful in relieving pain?

Plaquenil has helped me a lot. You need to know that it can take a few months to really start working so don't expect instant results. I haven't had any side effects from it .

Kathryn
Board: Lupus 08-19-2012, 10:25 AM
Replies: 5
Views: 3,659
Posted By kathryn+2
Re: Difficulty swallowing and desperate

I'm not sure why you are reluctant to take plaquenil. It has been very helpful for me and many other people with lupus. It has no side effects ( at least for me) and eye problems are very rare. I'm...
Board: Lupus 03-16-2012, 04:58 PM
Replies: 5
Views: 8,597
Posted By kathryn+2
Re: hip bursitis and autoimmune disorders

Hi Pixie..

I was diagnosed about 7 years ago. I'm 60. I don't have any organ involvement,just joint /muscle pain and fatigue. I've read that when you get it later in life it's usually a milder...
Board: Lupus 03-15-2012, 05:03 PM
Replies: 5
Views: 8,597
Posted By kathryn+2
hip bursitis and autoimmune disorders

Are those of us with autoimmune disorders more prone to burstis because of the inflammation in our bodies? I'm only 60 ,not overweight ,fairly active,and I have terrible pain in both my hips. It's...
Board: Lupus 03-15-2012, 04:53 PM
Replies: 2
Views: 1,431
Posted By kathryn+2
Re: Lupus symptom nasal narrowing

Yes...I have had a lot of problems with my nasal passages. My rheumatologist prescribed an ointment called triamcinolone acetonide that I put up my nose with a cotton swab. The swelling went away. I...
Board: Lupus 02-17-2012, 05:20 PM
Replies: 1
Views: 1,052
Posted By kathryn+2
Re: Mattresses

I have a Tempur- Pedic and I absolutely love it. It's pricey ,but worth it ,and it's not supposed to ever wear out

.
Board: Lupus 10-10-2011, 02:31 PM
Replies: 11
Views: 2,931
Posted By kathryn+2
Re: prednisone...love/hate

I don't think you do know untill you get tested. Lack of VitD could manifest itself in sore ,achy muscles. I think a lot of women are deficiant and should be tested. I was on an rx of 50,000 iu's...
Board: Lupus 10-09-2011, 03:04 PM
Replies: 11
Views: 2,931
Posted By kathryn+2
Re: prednisone...love/hate

Actually I've been taking the Red Yeast Rice very sporadicly. My cholesterol was a bit high ,which is what prompted me to start taking it. But I haven't been very diligent. Guess I won't take it now....
Board: Lupus 10-08-2011, 09:47 AM
Replies: 11
Views: 2,931
Posted By kathryn+2
Smile Re: prednisone...love/hate

Thanks Jane,
I will definately try the DHEA. I always try to use alternative/holistic as a first defense. Acupuncture has helped me as well deep breathing and visualization when the pain and...
Board: Lupus 10-06-2011, 10:22 PM
Replies: 11
Views: 2,931
Posted By kathryn+2
Re: prednisone...love/hate

Hi Jane, Thank you for your concern. I do appreciate it...

I only use the prednisone as a very last resort. Maybe once or twice a year for a 2 week period. I'm 59 ,working full time in a...
Board: Lupus 10-03-2011, 10:37 AM
Replies: 11
Views: 2,931
Posted By kathryn+2
prednisone...love/hate

I'm in a flare up ..probably because I have a virus right now. I decided to go on 15mgs of prednisone (my Dr. gives me an rx and leaves it to my discretion when to go on it) It did help with the...
Board: Hormone Problems 04-23-2011, 11:12 AM
Replies: 0
Views: 1,685
Posted By kathryn+2
testosterone cream and burning sensation

I just started using testosterone cream . I'm using 1ml a day ,applied to the inner thigh. right away after applying it I feel a burning sensation in that area,as well as in my mouth. It does go away...
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