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Board: Multiple Sclerosis 07-30-2016, 09:39 AM
Replies: 8
Views: 125
Posted By MSJayhawk
Re: Skeptical

Great news :)

O-bands are elevated when there is something abnormal with your spinal fluid. Some doctors without MS experience will use the elevation to diagnose MS. This is where additional...
Board: Multiple Sclerosis 07-30-2016, 07:18 AM
Replies: 8
Views: 125
Posted By MSJayhawk
Re: Skeptical

Nae948,

You have a Vitamin D deficiency and some lesions. You have not seen an MS Specialist. Until you see an MS Specialist and allow time for your Vitamin D levels to recover, you should not...
Board: Multiple Sclerosis 07-28-2016, 06:47 PM
Replies: 5
Views: 205
Posted By MSJayhawk
Re: Heat and MS

wifenmommy,

Look into a home modification. Here in Kansas I was able to get a tax credit spread over 4 years for ADA Home modifications. Heat intolerance would fit this. Check with your...
Board: Multiple Sclerosis 07-27-2016, 08:28 AM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21,

Lactose intolerance can be a factor as can sun exposure, but there are alternatives. Some who are lactose intolerant can drink lactose free milk, almond, milk, or soy milk. There is...
Board: Multiple Sclerosis 07-27-2016, 06:38 AM
Replies: 2
Views: 194
Posted By MSJayhawk
Re: Might have MS

Ankur

:wave: Welcome.

Back surgery has come a long way since 2001. That said, however, when back surgery repairs one spot, the next weaker spot will develop. This cycle can lead to multiple...
Board: Multiple Sclerosis 07-27-2016, 06:23 AM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Nae948,

If your Vitamin D level is 7, you are deficient. Combine this with migraine lesions and a doctor without MS experience can misdiagnose.

The good news is that if it is only a D...
Board: Multiple Sclerosis 07-26-2016, 08:10 AM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Nae948,

Yes, no, maybe......if you are taking medications for MS or other symptoms, you should check with your doctor. Many of these medications can cause concern or can threaten the child's...
Board: Multiple Sclerosis 07-25-2016, 03:05 PM
Replies: 10
Views: 455
Posted By MSJayhawk
Re: Could this be MS?

mkdandy,

A change in diet can effect changes in your well being which helps you overall. Exercise has cognitive benefits because of the resulting proteins created as you exercise. Exercise also...
Board: Multiple Sclerosis 07-24-2016, 06:41 AM
Replies: 10
Views: 455
Posted By MSJayhawk
Re: Could this be MS?

mkdandy,

Your GP may be able to order tests in advance so that you can have the files in hand when you see the neurologist. If MS is a possibility, rather than a general neurologist, an MS...
Board: Multiple Sclerosis 07-23-2016, 07:15 PM
Replies: 5
Views: 205
Posted By MSJayhawk
Re: Heat and MS

WifenMommy,

Before 2002 I could deal with the heat and humidity. Now I cannot. I have to spend most of the day indoors with the air conditioner when it is hot and humid. The Boston...
Board: Multiple Sclerosis 07-23-2016, 01:09 PM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21,

MS is not fatal. It is chronic. Now, if you have MS and you are doing something wherein your MS can cause a problem, then the incident can be fatal. That said, MS is a non-fatal,...
Board: Multiple Sclerosis 07-23-2016, 07:10 AM
Replies: 2
Views: 143
Posted By MSJayhawk
Re: injury and M.S.

seekers,

:wave: Welcome. As a chiropractor is not a doctor let alone an MS Specialist, the diagnosis would be suspect at best. Lesions are not exclusive to MS. There are lesion size...
Board: Multiple Sclerosis 07-22-2016, 03:43 PM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21,

Given that of 37 million Americans who have migraines, 70% to 80% of sufferers have a family history of migraines. From what you shared, your father's history could be in play. Has...
Board: Multiple Sclerosis 07-22-2016, 03:13 PM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21,

When I got it, my mother felt guilty much of her life thereafter. Before she passed away, she finally gave up blaming herself. I started extensively tracing my lineage. After 50,000...
Board: Multiple Sclerosis 07-22-2016, 02:52 PM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21,

No worries :) Vitamin D deficiencies do not reverse overnight. If you are Vitamin D deficient, you will need to supplement. While I was never deficient, mine was low normal. ...
Board: Multiple Sclerosis 07-22-2016, 01:40 PM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21,


Statistically, your gender would be greater relevance towards getting MS. Even then, the actual risk of a person getting MS is quite low. Vitamin D mentioned above is a known MS...
Board: Multiple Sclerosis 07-22-2016, 12:07 PM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21 ,

No worries.

Your lesions could be the result of migraines or even a childhood high fever. If you have continual MRIs and there are increasing numbers of lesions, the answer...
Board: Multiple Sclerosis 07-22-2016, 11:28 AM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21 ,

The lumbar puncture is not a test for MS. There is no specific test for MS. Everything that is tested eliminates or identifies an MS mimicry. Regardless of your pending result, ...
Board: Multiple Sclerosis 07-22-2016, 11:01 AM
Replies: 25
Views: 488
Posted By MSJayhawk
Re: Confusion

Naebeav21 ,

Migraines can cause lesions, but those lesions differ from MS lesions. Migraine lesions are consistently 2 mm or less if they are present. Those would be too small to fit within the...
Board: Caregivers 07-20-2016, 01:54 PM
Replies: 2
Views: 234
Posted By MSJayhawk
Re: Ms spouse and confusion

Hat123 ,


:wave: Welcome. Caregiver burnout is real and will sap your own health.


MS is a stigma to some, it can mean the end of her social life. Even though their is no genetic...
Board: Multiple Sclerosis 07-20-2016, 10:08 AM
Replies: 2
Views: 168
Posted By MSJayhawk
Re: Pregnancy and MS

canada1979,

:wave: Welcome.

It is good that you are doing the right thing in your attempt to have a child. I am sorry you had a miscarriage. Was it punishment? No, God does not punish...
Board: Multiple Sclerosis 07-19-2016, 03:51 PM
Replies: 19
Views: 653
Posted By MSJayhawk
Re: It's been a long time........

WifenMommy,

As my MS progresses, I have considered a small dog for service for retrieving fallen items, etc. Service dogs can come in many sizes and shapes. If you want a service dog for...
Board: Multiple Sclerosis 07-18-2016, 05:54 PM
Replies: 19
Views: 653
Posted By MSJayhawk
Re: It's been a long time........

WifenMommy,

Service Dogs usually have a long waiting list. I trained my own. He started obedience at 3 months and by 6 months he would happily pull the shopping cart. As he was a "giant"...
Board: Multiple Sclerosis 07-18-2016, 07:55 AM
Replies: 10
Views: 455
Posted By MSJayhawk
Re: Could this be MS?

mkdandy,

:wave: Welcome.

Based upon what you have shared, it sounds highly unlikely that MS is a concern. Anxiety is, however, a concern. Uncontrolled, anxiety can mimic MS and cause...
Board: Multiple Sclerosis 07-16-2016, 03:32 PM
Replies: 19
Views: 653
Posted By MSJayhawk
Re: It's been a long time........

WifenMommy,

I fell a lot until I got a service dog for walking support. With my service dog I have never fallen. While I was having seizures, my service dog was the first to alert and ran for...
Board: Eye & Vision 07-16-2016, 01:12 PM
Replies: 2
Views: 189
Posted By MSJayhawk
Re: Med or no med and stomach question

LauraInAtlanta,

Stomach issue is in all probability your steroid side effects. I would encourage you to confirm this with the prescribing doctor.

The Swank Diet is quite strict. I started...
Board: Multiple Sclerosis 07-16-2016, 08:31 AM
Replies: 19
Views: 653
Posted By MSJayhawk
Re: It's been a long time........

WifenMommy,

Cherries are a natural anti-inflammatory. And yes, Expensive!

My balance is awful. If I have sat down or napped, my brain "shuts down". When I get up it is though I am...
Board: Multiple Sclerosis 07-16-2016, 08:08 AM
Replies: 2
Views: 151
Posted By MSJayhawk
Re: ms and epilepsy??

climbz4coffee,

:wave: Welcome. Let not your heart be troubled.

"I get random twitches in my muscles and full-body jerks every time I try to drift off to sleep. "---- This is quite...
Board: Multiple Sclerosis 07-15-2016, 05:59 PM
Replies: 15
Views: 682
Posted By MSJayhawk
Re: Does all lesions in the brain means MS?

Pida,

About 5% of MSers present with symptoms before any lesions are ever seen. This only adds to the difficulty in trying to diagnose MS. MY MS Specialist rarely speaks to the radiologist...
Board: Multiple Sclerosis 07-15-2016, 05:05 PM
Replies: 6
Views: 356
Posted By MSJayhawk
Re: Next steps after husband was told he likely has MS

Twohands,

I posted a thread about microbleeds and MSers. This may bear info worth looking into if your husband was misdiagnosed with a stroke. :) :angel:
Board: Multiple Sclerosis 07-15-2016, 05:01 PM
Replies: 2
Views: 246
Posted By MSJayhawk
Re: Supplements for MS

Fancy60,

Welcome :wave:
There are no supplements which are directly helpful to an MSer unless the MSer cannot get them through diet or is deficient. Blood tests can provide the best...
Board: Multiple Sclerosis 07-14-2016, 01:42 PM
Replies: 6
Views: 356
Posted By MSJayhawk
Re: Next steps after husband was told he likely has MS

twohands,

A stroke usually can be seen through testing.

The number of lesions does not equate to symptoms. Much of this is due to the uniqueness of our CNS network. Brain lesions can and...
Board: Multiple Sclerosis 07-14-2016, 01:07 PM
Replies: 19
Views: 653
Posted By MSJayhawk
Re: It's been a long time........

WifenMommy,

I have had drop foot for 39+ years. There are some drop foot devices which will work for some patients. One of them send an electrical impulse. It is not for everyone. My...
Board: Multiple Sclerosis 07-14-2016, 10:14 AM
Replies: 15
Views: 682
Posted By MSJayhawk
Re: Does all lesions in the brain means MS?

Pida,

Your doctor is "old school". The questions were not unlike mine in 1982. The advent of the MRI for a diagnostic tool was just beginning. I was one of the first MSers to try out the...
Board: Multiple Sclerosis 07-12-2016, 08:11 PM
Replies: 19
Views: 653
Posted By MSJayhawk
Re: It's been a long time........

WifenMommy,

Welcome back. :wave:

Welcome officially to the MS family. I know you would rather not join the club. But you are among supportive people.

Research has long shown that women's...
Board: Multiple Sclerosis 07-12-2016, 02:55 PM
Replies: 6
Views: 356
Posted By MSJayhawk
Re: Next steps after husband was told he likely has MS

twohands,

:wave: Welcome to the MS board. :)

The next steps with which you are proceeding is the correct avenue. The MS Specialist will be able to best ascertain the situation. ...
Board: Multiple Sclerosis 07-11-2016, 06:01 PM
Replies: 15
Views: 682
Posted By MSJayhawk
Re: Does all lesions in the brain means MS?

Pida,

Unless your neurologist has MS experience, the possibility of moving in another direction exists. There are some who will take note and send you on to an MS Specialist.

As to the...
Board: Multiple Sclerosis 07-11-2016, 07:00 AM
Replies: 15
Views: 682
Posted By MSJayhawk
Re: Does all lesions in the brain means MS?

Pida,

:wave: Welcome.

While all MSers will eventually have lesions, not all lesions are MS related. The fact that you have lesions does not mean that you have MS, BUT the fact that you...
Board: Multiple Sclerosis 07-07-2016, 09:11 PM
Replies: 6
Views: 422
Posted By MSJayhawk
Re: MS diagnosis.. three years later

Libby,

:wave: Welcome.

Chronic disease can cause a sense of loss to both the patient, friends , and family. I can tell you that after 39+ years , your presence as an anchor is sufficient...
Board: Multiple Sclerosis 07-06-2016, 08:53 PM
Replies: 3
Views: 353
Posted By MSJayhawk
Re: Inappropriate Neuro Exam?

KateA,

:wave: Welcome.

It sounds like a strange exam indeed. My initial exam was needle pokes and prodding. Were you experiencing any problems in your breast area at the time? I would...
Board: Multiple Sclerosis 07-04-2016, 02:31 PM
Replies: 3
Views: 275
Posted By MSJayhawk
Re: To Tysabri or not Tysabri....

Kashius,

It really is a personal decision. The doctor, however, has no way to predict your future course with MS. Will you go down fast? I am progressive and have been for 39+ years. My MS...
Board: Multiple Sclerosis 07-03-2016, 03:01 PM
Replies: 5
Views: 431
Posted By MSJayhawk
Re: Head/neck pain

I have a pair of passive protector headset (like an old style headphone that fully encloses my ears) I bought mine for shooting and hunting. Most of my pulsatile tinnitus has been in my left...
Board: Multiple Sclerosis 07-03-2016, 11:19 AM
Replies: 5
Views: 431
Posted By MSJayhawk
Re: Head/neck pain

tortielicious,

:wave: Welcome.

I do not know what support structure you have there in the UK as you have to deal within the NHS, but you might check with your local Royal MS Chapter. I...
Board: Multiple Sclerosis 07-02-2016, 03:58 PM
Replies: 2
Views: 357
Posted By MSJayhawk
Re: Severe ear/facial pain

possible ms,

Trigeminal nerve can be a standalone or an MS Symptom. One thing to determine is if the pain is caused by an errant placement of a blood vessel or inflammation of the nerve itself....
Board: Multiple Sclerosis 06-30-2016, 11:59 AM
Replies: 6
Views: 326
Posted By MSJayhawk
Re: Next Steps?

Gimps,

:wave: Welcome.

The lesions on the MRI are an aid into getting to a diagnosis. The neurologist will need to also consider lesion size and possible shape. If the lesions fall into the...
Board: Multiple Sclerosis 06-29-2016, 05:20 PM
Replies: 3
Views: 316
Posted By MSJayhawk
Re: Abdominal/GI issues with MS patients?

SkeochGirl,

Long term use of Nexium and similar medications has long term concerns and are considered to be best for only short term or occasional use.

I have coughing and swallowing issues...
Board: Multiple Sclerosis 06-29-2016, 01:42 PM
Replies: 5
Views: 418
Posted By MSJayhawk
Re: does this sound like ms?

froggie83

I hope that you find out. A referral should not be a problem. 30 miles is quite near. At the top of the forum page you can find a thread which can help you locate an MS Specialist,...
Board: Multiple Sclerosis 06-29-2016, 12:14 PM
Replies: 5
Views: 418
Posted By MSJayhawk
Re: does this sound like ms?

froggie83

BTW You are not crazy :) :angel:
Board: Multiple Sclerosis 06-29-2016, 12:12 PM
Replies: 5
Views: 418
Posted By MSJayhawk
Re: does this sound like ms?

froggie83

Thanks for sharing. If your blood tests were all normal (other than your noted concern), then you basically have moved yourself to the neurological field of concern. If MS is a...
Board: Multiple Sclerosis 06-29-2016, 12:04 PM
Replies: 3
Views: 316
Posted By MSJayhawk
Re: Abdominal/GI issues with MS patients?

SkeochGirl,

Thanks for sharing.
I will have GI issues from time-to-time and other torso issue which are all MS related. I did have a thorough check first with the GI specialist and my family...
Showing results 1 to 50 of 500

 







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