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Board: Raynaud's Syndrome 10-14-2016, 11:26 AM
Replies: 10
Views: 629
Posted By luca689
Re: Numb Fingertips

Typically the numbness that is sometimes experienced in Raynaud's is accompanied by colour changes due to blood flow differences during an attack, or numbness can come from damage to nerves as a...
Board: Raynaud's Syndrome 10-06-2016, 11:17 AM
Replies: 5
Views: 337
Posted By luca689
Re: Raynauds?

I agree with you. Air conditioning triggers more attacks than does winter. Take care and good luck with rheumatologist.
Board: Raynaud's Syndrome 10-06-2016, 06:31 AM
Replies: 5
Views: 337
Posted By luca689
Re: Raynauds?

Yes, even primary Raynaud's can cause damage over time. You really should protect your hands from attacks as much as possible and the best way is to keep them warm. Gloves, mittens, fingerless mitts...
Board: Raynaud's Syndrome 10-03-2016, 11:02 AM
Replies: 5
Views: 337
Posted By luca689
Re: Raynauds?

My Raynaud's is not always accompanied by pain. Of course, I will do just about anything to avoid a full blown attack, LOL. But I have noticed over the years that the longer the duration of the...
Board: Raynaud's Syndrome 09-12-2016, 11:09 AM
Replies: 1
Views: 302
Posted By luca689
Re: Hello, I'm new here.

layers - lots of layers. And anything that can be restricting to the circulation should be eliminated, such as cuffs on gloves and mittens. those little chemical hand warming packets are great as...
Board: Vitamins & Supplements 08-24-2016, 11:15 AM
Replies: 6
Views: 386
Posted By luca689
Re: Bone loss problems

Underlying gum disease alone can cause loss of bone in your jaw. a DEXA scan can show if there is bone loss in other areas of your skeleton, should your physician feel it is warranted. As far as the...
Board: Children's Health 06-27-2016, 07:07 AM
Replies: 29
Views: 2,494
Posted By luca689
Re: Pediatric ANA

Both limited and diffuse are systemic: the terms actually refer to where the skin involvement is with limited involving the face, the hands and arms to the elbow and the feet and legs up to the...
Board: Children's Health 06-24-2016, 11:24 AM
Replies: 29
Views: 2,494
Posted By luca689
Re: Pediatric ANA

Just to muddy the waters a wee bit, the SCL-70 is often falsely positive of late, depending on the testing method used. Also, a centromere pattern might indicate that an anticentromere test be done....
Board: Immune Disorders 06-14-2016, 11:29 AM
Replies: 1
Views: 674
Posted By luca689
Re: ANA Test results

UCTD is a valid diagnosis and can be treated, although plaquenil is usually the first med of choice to treat it. It can, however, take months to show improvement. UCTD is often the diagnosis when a...
Board: Raynaud's Syndrome 03-02-2016, 10:40 AM
Replies: 1
Views: 598
Posted By luca689
Re: Bold thread, Reynauds and nipples?

It is not that uncommon to have Raynaud's affect your nipples, but I don't know of any other issues involving Raynaud's and breast issues, like cancer or anything
Board: Thyroid Disorders 03-01-2016, 10:58 AM
Replies: 4
Views: 414
Posted By luca689
Re: Hypothyroid without symptoms

I had a similar situation and felt fine as well. Turned out what I thought was fine was much improved by taking my generic synthroid. It's really not a big deal and I didn't know how much better I...
Board: Autoimmune Disorders 02-18-2016, 11:20 AM
Replies: 2
Views: 477
Posted By luca689
Re: 4.5 years old daily afternoon low grade fever for months

Body temperature is not a constant thing and does normally fluctuate during any given 24 hour period, typically by almost 1 degree F, being highest in the late afternoon and evening and lowest in the...
Board: Autoimmune Disorders 01-19-2016, 10:56 AM
Replies: 4
Views: 847
Posted By luca689
Re: Do any autoimmune diseases affect your level of attractiveness

Scleroderma can and does alter your appearance but not on a temporary basis. Sjogren's can make your salivary glands swell which can change your appearance temporarily but you know when that happens....
Board: Relationship Health 01-06-2016, 11:23 AM
Replies: 6
Views: 515
Posted By luca689
Re: how would you handel this

Don't assume that she's not handling things well. Some people do or wish to do so privately. Having people wanting to talk about it, or seeing if she's ok constantly, and stuff like that might drive...
Board: Autoimmune Disorders 12-09-2015, 11:38 AM
Replies: 7
Views: 1,260
Posted By luca689
Re: Undifferentiated Diagnosis

UCTD is, in fact, a diagnosis and can be treated. I was originally diagnosed with it and immediately prescribed medication for it. I never worried about people who do or don't "get it" or want to...
Board: Autoimmune Disorders 10-12-2015, 06:25 AM
Replies: 13
Views: 1,045
Posted By luca689
Re: positive ANA's just mean "inflammation"

Yes, prozac does work for some people with Raynaud's. My rheumatologist did offer it to me if I was bothered by the swollen ankles one can get with calcium channel blockers, but I'm pretty stable...
Board: Autoimmune Disorders 10-07-2015, 11:13 AM
Replies: 9
Views: 693
Posted By luca689
Re: Special gloves for Raynauds?

Since you mentioned it, anything that constricts your circulation makes Raynaud's worse. Do you have the full triphasic colour changes? Another thing that typically helps is dressing in layers so you...
Board: Autoimmune Disorders 10-07-2015, 11:06 AM
Replies: 4
Views: 671
Posted By luca689
Re: anyone here with scleroderma?

Hi Lintek55! Morphea and linear scleroderma are NOT systemic scleroderma and they do not progress to systemic scleroderma. A patient can develop systemic whilest also having localized scleroderma...
Board: Autoimmune Disorders 10-05-2015, 11:21 AM
Replies: 4
Views: 671
Posted By luca689
Re: anyone here with scleroderma?

There are two main types of scleroderma, localized and systemic. the localized versions are morphea and linear and typically only affect a few areas of skin and muscle. It is not systemic. The other...
Board: Autoimmune Disorders 10-05-2015, 11:03 AM
Replies: 9
Views: 693
Posted By luca689
Re: Special gloves for Raynauds?

wool socks and no tight fitting shoes or boots. And mittens work better than gloves but no tight ribbing. There are also little hand warmer chemical packets that work well too. Many people use...
Board: Lupus 09-03-2015, 06:00 AM
Replies: 17
Views: 1,732
Posted By luca689
Re: SLICC Lupus criteria

I had 2 different MRI's, one with contrast and one without. These autoimmune diseases affect us all in so many different ways. Regardless of what they call it, I hope that your Dr's can find a...
Board: Lupus 09-02-2015, 10:57 AM
Replies: 17
Views: 1,732
Posted By luca689
Re: SLICC Lupus criteria

No,it's usually micro damge with sclero so doesn't show up on a general MRI. I just had some white matter? lesions. Bot the upshot is that the headaches are brought on by essential a raynaud's attack...
Board: Lupus 09-01-2015, 11:13 AM
Replies: 17
Views: 1,732
Posted By luca689
Re: SLICC Lupus criteria

If they suspect you are on the scleroderma spectrum, you generally will not be given steroids if at all possible because of renal crisis. Oftentimes, with vascular headaches associated with SSc can...
Board: Sjögren's Syndrome 07-21-2015, 10:59 AM
Replies: 1
Views: 655
Posted By luca689
Re: Weight gain w/Pilocarpine ... anyone?

no. My main side effect was sweating for a few minutes after taking it but that eventually went away
Board: Obesity 06-10-2015, 11:08 AM
Replies: 1
Views: 818
Posted By luca689
Re: Trying to loose it

I'm not sure that you are doing anything wrong so much as ready for the next step. You sound like you are exercising and making great food choices! Now you may need to think about the calories in...
Board: Autoimmune Disorders 05-19-2015, 11:21 AM
Replies: 3
Views: 715
Posted By luca689
Re: Tattoo Reactions

I have a tattoo and have not had any problems with it. Have you seen a dermatologist?
Board: Autoimmune Disorders 04-21-2015, 11:17 AM
Replies: 2
Views: 452
Posted By luca689
Re: Dealing with Fatigue

ummm, Plaquenil is the first drug that one is normally put on with CREST. Most sclero experts believe early treatment is better than waiting til damage is done. Plaquenil actually has few side...
Board: Raynaud's Syndrome 03-02-2015, 12:15 PM
Replies: 5
Views: 1,027
Posted By luca689
Re: Blisters with Raynaud's Phenomenon

If you have Raynaud's you have a vascular problem. It may not be a very big problem but when capillaries constrict to cause Raynauds, or chillblains, it is a problem. I have Raynaud's secondary to...
Board: Raynaud's Syndrome 03-02-2015, 11:30 AM
Replies: 5
Views: 1,027
Posted By luca689
Re: Blisters with Raynaud's Phenomenon

Doesn't sound like Raynaud's but like chillblains. Raynaud's causes ulcers, not blisters. Stay warm with no constrictions on your toes, like a tight shoe or tight socks. You could prolly try some...
Board: Autoimmune Disorders 02-10-2015, 10:57 AM
Replies: 1
Views: 464
Posted By luca689
Re: Should I get more Blood tests? Dont know whats going on

you should have that autoimmune screening anyway. I know that in systemic scleraderma, the complement values are usually normal or slightly high, even.
Board: Raynaud's Syndrome 02-09-2015, 11:34 AM
Replies: 1
Views: 1,067
Posted By luca689
Re: autoimmune, does this sounds like raynauds?

It could be Raynaud's with ulcers. Try dressing in layers with gloves and warm wooly socks. Be careful of anything that restricts circulation like tight shoes or cuffs. I use gloves even in the...
Board: Lupus 02-05-2015, 07:16 AM
Replies: 42
Views: 6,472
Posted By luca689
Re: Good Complements?

In extreme cold, most people's reaction is to draw the blood away from the extremities, which is why the weather people always warn about dangerous cold as it can result in frostbite. Raynaud's is...
Board: Lupus 02-03-2015, 08:42 AM
Replies: 42
Views: 6,472
Posted By luca689
Re: Good Complements?

Yes you can have a messed up PFT for technical reasons, ie: the technician. I had one done recently and had a very nice tech who explained everything in advance of each test and very clearly...
Board: Autoimmune Disorders 02-03-2015, 08:18 AM
Replies: 12
Views: 908
Posted By luca689
Re: 5 year old health issues positive ANA

There are 3 main types of systemic scleroderma: The CREST or limited systemic variety - the "limited" bit refers only to where on the skin the hardening of scleroderma occurs. Diffuse systemic...
Board: Lupus 01-30-2015, 12:44 PM
Replies: 3
Views: 819
Posted By luca689
Re: symptoms

Telangiasticas is completely misspelled on my part. It is: Telangiectasias. They are also known as "spider veins or bites" Telangiectasias /tɛlˌæn.dʒiː.ɛkˈteɪ.zi.ə/ or angioectasias (also known as...
Board: Lupus 01-30-2015, 11:18 AM
Replies: 3
Views: 819
Posted By luca689
Re: symptoms

are the red dots telangiasticas? or pin dots like petechiae? or something else altogether? The telangiastica sort of rash is part of the UCTD constellation of symptoms and is considered mostly benign...
Board: Autoimmune Disorders 11-20-2014, 02:09 PM
Replies: 14
Views: 1,106
Posted By luca689
Re: ana levels

It does not sound like you have Raynaud's at all but I'm not a Dr., but Raynaud's is not due to the mechanics of pressure. It is due to vascular constriction caused by cold, temperature change, or...
Board: Autoimmune Disorders 11-20-2014, 11:36 AM
Replies: 14
Views: 1,106
Posted By luca689
Re: ana levels

Scleroderma isn't mostly fatal any more! And a "poor" lifestyle doesn't cause it. Nor do antibiotics or mold. It is thought that there may be a genetic component as well as an enviromental one, but...
Board: Autoimmune Disorders 11-03-2014, 11:12 AM
Replies: 1
Views: 846
Posted By luca689
Re: MCTD, chest rash

Makeup with a green base does the trick
Board: Lupus 10-07-2014, 08:45 AM
Replies: 31
Views: 5,433
Posted By luca689
Re: very confused

One finger IS good! And I was worried that you had sudden onset Raynaud's which would lean towards a sclero diagnosis in the setting of your particular antibody, but since that is not the case, that...
Board: Lupus 10-07-2014, 08:21 AM
Replies: 31
Views: 5,433
Posted By luca689
Re: very confused

I'm curious if any of your Dr's did a capillary nailfold test. That is a quick test to see if you have capillary dropout indicative of secondary rather than primary Raynaud's. And did you test...
Board: Lupus 10-01-2014, 01:50 PM
Replies: 31
Views: 5,433
Posted By luca689
Re: very confused

You usually need to be seen by an eye Dr every so often because of the plaquenil. Like everyone else has said, it takes a little while to work but it will help the fatigue and joint aches and pains!...
Board: Lupus 09-25-2014, 06:49 AM
Replies: 31
Views: 5,433
Posted By luca689
Re: very confused

Iowa1972, it is good that you are seeing a specialist as many rheumatologists aren't comfortable dealing with sclero patients, if you do indeed have it or are not up to date with it as they don't see...
Board: Lupus 09-24-2014, 07:01 AM
Replies: 31
Views: 5,433
Posted By luca689
Re: very confused

Hi Iowa1972! A positive SC70 doesn't always mean systemic scleroderma. It depends on your symptoms. You can be positive and never develop it. If however you are diagnosed with it early treatment is...
Board: Lupus 09-08-2014, 11:01 AM
Replies: 42
Views: 6,472
Posted By luca689
Re: Good Complements?

Not unusual at all. Every patient is different and it is good that the Dr is treating the patient as an individual.
Board: Lupus 09-02-2014, 11:11 AM
Replies: 5
Views: 2,065
Posted By luca689
Re: lupus and test results

Scleroderma is not diagnosed by ANA or pattern, but is diagnosed by new tests for specific antibodies. There are 9 or 10 now. and of course, symptoms
Board: High Cholesterol 07-18-2014, 10:58 AM
Replies: 6
Views: 3,545
Posted By luca689
Re: Are statins THAT dangerous?

I am on crestor myself. No particular side effects for me and in fact is beneficial for more than just lowering cholesterol. They appear to help prevent delamination, as it were, of blood vessel...
Board: Lupus 07-17-2014, 11:04 AM
Replies: 19
Views: 5,244
Posted By luca689
Re: Connective tissue disease or lupus?

There are 4 to 6 commonly run antibody tests as well as the rheumatoid arthritis one or two. They include the anti-RNP, Anti-SM, Scl-70 and others. Mine evolved to limited systemic scleroderma, but...
Board: Lupus 07-17-2014, 10:28 AM
Replies: 19
Views: 5,244
Posted By luca689
Re: Connective tissue disease or lupus?

I was originally diagnosed with undifferentiated connective tissue disease. It is a stand alone disease that may or may not develop further and is usually treated with plaquenil. It certainly helped...
Board: Autoimmune Disorders 07-09-2014, 11:17 AM
Replies: 2
Views: 1,631
Posted By luca689
Re: Do your ANA patterns change?

I have not had a pattern change but I have had my ANA drop to zero from 1:640, even though I have symptoms indicative of my diagnosis of Limited systemic scleroderma.
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