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Board: Multiple Sclerosis 04-27-2017, 01:47 PM
Replies: 19
Views: 526
Posted By Agenda
Re: All of a sudden things change.

Blathanna, it is impossible for me to say if you have ms or not. I believe you are unwell and please God you will get help soon, and finally a diagnosis.

In my case ms was a diagnosis of...
Board: Multiple Sclerosis 04-27-2017, 11:13 AM
Replies: 19
Views: 526
Posted By Agenda
Re: All of a sudden things change.

Hi Blathanna, I totally understand your need to have an answer. I am glad the nuero is seeing you again I really hope it is a positive appointment.

Fingers crossed for next week,

Ann x
Board: Multiple Sclerosis 04-26-2017, 09:15 AM
Replies: 19
Views: 526
Posted By Agenda
Re: All of a sudden things change.

Hi Blathanna, has one of your neurologists said a doubt remains. Unless they have sadly I feel you are no further on in finding an answer.

I totally understand your frustration, you know it took...
Board: Multiple Sclerosis 04-18-2017, 01:02 PM
Replies: 8
Views: 252
Posted By Agenda
Re: Awaiting CT Results

Hi Blathanna, hopefully you will finally get an answer or at least something pointing in the right direction. Was she able to tell you when you will get your results?

Ann
Board: Multiple Sclerosis 04-11-2017, 04:41 PM
Replies: 4
Views: 223
Posted By Agenda
Re: Cold Shoulder.

Blathanna, how frustrating for you. I forgot about it being Easter weekend. Could your gp ring the hospital for them, mine has got my MRI results this way.

Ann
Board: Multiple Sclerosis 04-10-2017, 01:45 PM
Replies: 11
Views: 284
Posted By Agenda
Re: CT Angiography.

Blathanna p, I tried to pm you but you are not set up to receive private messages. I wanted to give the name of my ms specialist and one to avoid if you have no joy with this nuerologist you are...
Board: Multiple Sclerosis 04-10-2017, 01:42 PM
Replies: 11
Views: 284
Posted By Agenda
Re: CT Angiography.

Good luck, hopefully this will help clarify things. How long will you have to wait on the results?

Ann
Board: Multiple Sclerosis 04-10-2017, 01:40 PM
Replies: 11
Views: 284
Posted By Agenda
Re: CT Angiography.

Good luck, hopefully this will help clarify things. How long will you have to wait on the results?

Ann
Board: Multiple Sclerosis 04-08-2017, 11:26 AM
Replies: 12
Ms
Views: 422
Posted By Agenda
Re: Ms

Hi Blathanna, I mean this in the nicest possible way you are going to have to stop going over the same ground. You are going to drive yourself mad, your stress levels must be hitting the roof.
...
Board: Multiple Sclerosis 04-05-2017, 11:19 AM
Replies: 12
Views: 403
Posted By Agenda
Re: Consultants Feedback

Hi Blathanna, I have been reading your posts and my heart goes out to you. It took me 12 years to get a diagnosis of ms, inflammatory arthritis, fibro to name a few of the misdiagnosis I got.
...
Board: Multiple Sclerosis 01-18-2016, 10:34 AM
Replies: 7
Views: 853
Posted By Agenda
Re: Leg spasms

Thanks everyone for your replies, I am on baclofen and pain Medes but they are just not cutting it anymore. Is it true that spinal leisons are difficult to spot on an MRI?

Regards,

Ann
Board: Multiple Sclerosis 01-17-2016, 03:08 AM
Replies: 7
Views: 853
Posted By Agenda
Leg spasms

Hi, I have ms diagnosed nearly 2 years misdiagnosed for at least 12. My main problems were upper body spasms in back and shoulders which are incredibly painful and loss of sight in my right eye.
...
Board: Multiple Sclerosis 07-27-2014, 05:57 PM
Replies: 4
Views: 1,445
Posted By Agenda
Re: Update!

I totally understand we're you are coming from. I was diagnoided at the end of May after having ms for minimum of ten years and being told it was fibro.

At least now we know what we are dealing...
Board: Fibromyalgia 06-24-2014, 05:10 PM
Replies: 7
Views: 1,987
Posted By Agenda
Re: I was right more than just fibromyalgia

Hi blue, I am also a lucky girl and have both ms and fibro. I am sure the coming months will be fun tryi g to unpick which symptom belongs to which illness.

Thankfully my gp, I think in America...
Board: Fibromyalgia 06-23-2014, 09:45 AM
Replies: 7
Views: 1,987
Posted By Agenda
Re: I was right more than just fibromyalgia

Hi Blue, I hear what you are saying about the anger and you are right. By luck more than design my nuero is an ms specialist, so that was lucky. As for giving the other doctor so good talking too I...
Board: Multiple Sclerosis 06-22-2014, 11:10 AM
Replies: 1
Views: 579
Posted By Agenda
So depressed

Hi everyone, I got my ms diagnosis recently after many years of suspecting it. On getting diagnosis I was relived because for one at times I questioned my sanity I had such an array of symptoms that...
Board: Fibromyalgia 06-22-2014, 10:52 AM
Replies: 7
Views: 1,987
Posted By Agenda
I was right more than just fibromyalgia

Hi everyone, have not posted in a while, not having an easy time of it.

After years of insisting to doctors that I felt I had more wrong with me than fibro and constantly being fobbed off or...
Board: Multiple Sclerosis 06-14-2014, 11:58 AM
Replies: 5
Views: 1,455
Posted By Agenda
Re: Atypical ms

Hi MSJHAWK, thank you for your lovely reply. My nuero is an ms specialist and very we'll regarded. He is very abrupt, not rude just to the point and not very easy to ask questions too. In saing...
Board: Multiple Sclerosis 06-13-2014, 01:06 PM
Replies: 5
Views: 1,455
Posted By Agenda
Atypical ms

Hi, I seen my nuero yesterday to get test results. It has been a long battle to get a diagnosis involving numerous tests like lots of you.

I made the mistake of going in on my own and got very...
Board: Multiple Sclerosis 12-03-2013, 03:10 PM
Replies: 2
Views: 508
Posted By Agenda
Looking for some advice.

Hi all, I am looking for some advice. I have been attending a rhuematologist for 9 years and have been diagnoised with fibro and osteoarthritis. My previous rhuemy felt that there was something else...
Board: Fibromyalgia 11-13-2013, 05:30 PM
Replies: 4
Views: 780
Posted By Agenda
Re: Chronic neck pain

Hi Jenny, I can totally relate to your neck problems. I have found through trial and error the most effective treatment for me is Valium, anti inflamatories and tylex with codieine. I use heat pads...
Board: Fibromyalgia 10-02-2013, 12:04 PM
Replies: 3
Views: 555
Posted By Agenda
Re: Hello!

Hi livelovehope, welcome to the board. I too have neuropathy in my hands And feet. I have no dexterity problems. I have mentioned the neuropathy to my rhuematologist on many occasions and he said...
Board: Fibromyalgia 09-25-2013, 11:42 AM
Replies: 16
Views: 8,382
Posted By Agenda
Re: Achy legs and hips fibromyalgia

Benadam,

I have had these shots in my shoulders and hips and found then very effective while they lasted. I would not consider them very painful, more stinging than pain and over very quickly....
Board: Fibromyalgia 09-25-2013, 11:36 AM
Replies: 19
Views: 2,107
Posted By Agenda
Re: Cannot handle this much pain.

HI Benadam5498, I have pain in exactly the same areas as you described, thankfully I do not have the nausea.

I have the heated blanket and it is a godsend well worth the money. I have just...
Board: Fibromyalgia 09-25-2013, 11:35 AM
Replies: 19
Views: 2,107
Posted By Agenda
Re: Cannot handle this much pain.

HI Benadam5498, I have pain in exactly the same areas as you described, thankfully I do not have the nausea.

I have the heated blanket and it is a godsend well worth the money. I have just...
Board: Fibromyalgia 09-19-2013, 04:42 PM
Replies: 16
Views: 8,382
Posted By Agenda
Re: Achy legs and hips fibromyalgia

Hi Deedi, thankfully I do not get the nausea but I can totally relate to the hip pain and achy legs. I have always thought the achy legs was restless leg syndrome bit I am not certain.

Best wishes
Board: Fibromyalgia 09-19-2013, 12:50 PM
Replies: 1
Views: 420
Posted By Agenda
Cymbalta anyone?

Hi

After a really bad couple of months pain wise went back to my doctor who has prescribed me cymbalta 30mgs daily. Hoping to get some feedback from people here regarding their experience with...
Board: Fibromyalgia 09-17-2013, 12:34 PM
Replies: 19
Views: 2,107
Posted By Agenda
Re: Cannot handle this much pain.

Hi thesweetlife, you may very well be right about the anemia. I have been severely anaemic in the past. It never occurred to me that it could be related, I am going to go to GP tomorrow and request...
Board: Fibromyalgia 09-16-2013, 02:55 PM
Replies: 5
Views: 987
Posted By Agenda
Re: Fibro or something else?

Ask to be tested. This is your life and your health, it will give you a certain amount of peace of mind. In saying that autoimmune disorders can be hard to diagnoise

As for feeling like a...
Board: Fibromyalgia 09-16-2013, 02:44 PM
Replies: 19
Views: 2,107
Posted By Agenda
Re: Cannot handle this much pain.

Thanks everyone for your kind words. I have a very understanding husband but he has to work and I have 6 kids so its a struggle. I use all the tricks heat massage exercise pain meds and am usually...
Board: Fibromyalgia 09-15-2013, 03:41 PM
Replies: 19
Views: 2,107
Posted By Agenda
Cannot handle this much pain.

Hi all,

I am at rock bottom pain wise, my pain is so severe lately that I do not feel like I can stand it much longer. Everything is such an effort, I made dinner for my family today and that was...
Board: Fibromyalgia 08-26-2013, 08:40 AM
Replies: 7
Views: 902
Posted By Agenda
Re: Shingles with Fibro

Hi, I had shingles in April and still have some lingering pain and burning. Although it is slowly getting better. My doctor said this is normal that it can take up to a year.
Board: Fibromyalgia 08-24-2013, 03:20 PM
Replies: 5
Views: 4,344
Posted By Agenda
Numbness and tingling in tongue.

Hi everyone,

I have not posted in a while. Today I have a new symptom numbness and tingling in my tongue and lips I have it about 6 hours. I have been suffering from really bad flares lately and...
Board: Fibromyalgia 10-29-2012, 02:50 PM
Replies: 5
Views: 657
Posted By Agenda
Re: New diagnosis need some info

Hi, I have often been in tears with the pain in my hands and feet.
Board: Fibromyalgia 10-15-2012, 07:30 AM
Replies: 3
Views: 646
Posted By Agenda
Re: So frustrating !!!

No it is not bad of you. I agree 100% with everything you have said. I too am totally fed up with this invisible condition, and would much rather I had an obvious disability so I would not have to...
Board: Digestive Disorders 10-07-2012, 02:57 AM
Replies: 15
Views: 3,445
Posted By Agenda
Re: Going to ER tomorrow but I'm curious if anyone else has had these problems?

It might be worth getting a test for diabetes, the constant thirst is one of the symptoms.
Board: Fibromyalgia 10-01-2012, 09:45 AM
Replies: 3
Views: 658
Posted By Agenda
Re: Good Day All

You are not inferior you are unwell. In my book an inferior mom is one who is able to do things with her kids and does not bother to do them. Any posts I have ever seen on this site tells me we are...
Board: Anemia 10-01-2012, 07:43 AM
Replies: 1
Views: 831
Posted By Agenda
Help needed with lab results

I have anemia and am receiving iron injections as oral iron was not working. Just received copy of lab results unsure what they mean

Ferritin 6, I understand this one
Hgb 10, also understand...
Board: Fibromyalgia 09-30-2012, 01:05 PM
Replies: 4
Views: 890
Posted By Agenda
Need help before I see rhuemy

Hi, going to see rheumy again on wedensday and need your help. I accept I have fibro but have always felt something else was going on. My previous rheumy felt I had undifferenciated connective...
Board: Fibromyalgia 09-26-2012, 05:19 AM
Replies: 2
Views: 956
Posted By Agenda
Re: Does anyone else have this symptom?

I have something similar but it starts in my chest and upper back then goes to my arms and neck but never lower body. All my muscle go into spasm, my doc has prescribed Valium for the spasm and this...
Board: Fibromyalgia 09-24-2012, 11:42 AM
Replies: 3
Views: 856
Posted By Agenda
Re: New at this- Would like guidance

Hi Elmbabies3 and welcome to the board,nortriptyline is an anti depressant. It is also used off label for pain relief for cancer pain and arthritis to name a few. I am on amytriptiline which is also...
Board: Fibromyalgia 09-24-2012, 11:31 AM
Replies: 3
Views: 765
Posted By Agenda
Re: Problem...

Hi, I cannot answer the medication question if you have other conditions your doctor will have to answer that. However, fire the doctor if he did not treat you well. We are sick and need to be...
Board: Fibromyalgia 09-24-2012, 11:25 AM
Replies: 2
Views: 849
Posted By Agenda
Re: FM symptoms...could I have FM?

Hi, welcome to the board. You have come to the right place we all know what it is like to have symptoms but no definite diagnosis for ages. You could have more than one thing going on like a lot of...
Board: Lupus 09-21-2012, 06:00 AM
Replies: 2
Views: 1,166
Posted By Agenda
Re: Possible lupus negative blood tests.

Thanks for your reply vee, they can find no cause for my anemia. I have had all the tests done colonoscopy,endoscopy and gynae all negative. Iron tablets made no difference to my levels hgb 10...
Board: Anemia 09-21-2012, 05:24 AM
Replies: 9
Views: 1,840
Posted By Agenda
Re: where the heck is my iron going?

I am a similar story to you, the iron tablets did not do anything. I was on the same dosages you were. I am now on iron injections once a week for 5 weeks, hopefully this will work.
Board: Fibromyalgia 09-21-2012, 05:12 AM
Replies: 4
Views: 1,032
Posted By Agenda
Re: My face is hot

I have the flushed face as well, and I have also suffered from whiplash. I have never heard of a connection until I read lehcar's post. It would be interesting to hear if you have had whiplash as...
Board: Relationship Health 09-20-2012, 03:28 PM
Replies: 12
Views: 1,596
Posted By Agenda
Re: I am paying for everything

Get rid of him he is of no use to you. There will be some one else out there for you who will treat you the way you deserve, do not waste any more of your life and money on this man.
Board: Blood and Blood Vessel 09-20-2012, 03:22 PM
Replies: 5
itp
Views: 1,005
Posted By Agenda
Re: itp

I was the same as Midwest1, steroids made a huge improvement although I was put on 80mg a day initially. Mauve you need to go back to doctor and explain how you are feeling.
Board: Lupus 09-20-2012, 01:51 PM
Replies: 2
Views: 1,166
Posted By Agenda
Possible lupus negative blood tests.

Hi, I have fibro and osteoarthritis but also something else that my rheumy is still trying to figure out. I have symptoms of an autoimmune illness for the last 8 years and am getting nowhere in...
Board: Addiction & Recovery 09-20-2012, 01:39 PM
Replies: 7
Views: 1,358
Posted By Agenda
Re: Dry for one month!

Well done on you first month, that is an incredible achievement you should feel very proud of yourself. I cannot imagine how difficult it must be, the bes of luck for the future.
Showing results 1 to 50 of 342

 







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