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Board: Anemia 04-03-2015, 07:28 PM
Replies: 2
Views: 1,635
Posted By worrywort
Re: How fast does your ferritin drop?

Yep!! Mine drops like that, it's at 21 right now and I feel like death!!!!
Board: Anemia 02-13-2015, 09:43 PM
Replies: 1
Views: 718
Posted By worrywort
Re: Iron Issue, ferritin Q's ?

I wish I could be more help but I don't think that the swelling issues are from the iron but I can vouch for joint pain and fatigue!!! My ferritin started at a 4 and now is 30�� it takes time and I...
Board: Anemia 01-26-2015, 09:39 AM
Replies: 4
Views: 1,692
Posted By worrywort
Re: Low Iron Symptoms??

Lol! I have anxiety also so it fits! I worry about everything and this low ferritin and iron thing has me going crazy!!!! How is everything going?
Board: Anemia 01-20-2015, 09:58 AM
Replies: 4
Views: 1,692
Posted By worrywort
Re: Low Iron Symptoms??

Yes to everything!!! My arms would ache whe. Washing my hair! It's a little better now, my ferritin was actually negative! It is up to 21 now and I am still struggling with symptoms! Eat eggs and hot...
Board: Anemia 12-31-2014, 01:13 PM
Replies: 2
Views: 1,699
Posted By worrywort
Re: How long does it take to get ferritin levels up?

I take that daily and it has taken 8 months to get to 21! It's a long haul! I am supposed to take 2 now but it is upsetting my stomach so gonna do 1 and 1\2. I got the nature made brand because it is...
Board: Anemia 12-26-2014, 03:03 PM
Replies: 9
Views: 2,347
Posted By worrywort
Re: Can someone help decipher these blood test numbers?

I really feel that when I cut out gluten for 1 month that my iron absorption increased! Maybe worth a try for you? I think I am sensitive to it even though I am negative for celiac.
Board: Anemia 12-22-2014, 10:45 AM
Replies: 9
Views: 2,347
Posted By worrywort
Re: Can someone help decipher these blood test numbers?

You must feel awful!!!! My ferritin was negative at one point. Are you eating a diet high in iron? I Started eating cream of wheat or cream of rice in the morning with a hard boiled egg and I think...
Board: Anemia 12-12-2014, 01:35 PM
Replies: 1
Views: 953
Posted By worrywort
Re: My hemoglobin and hematocrit went up but my ferritin went down?

I have a lot of the same issues. Try cream of rice its gluten free and gentle on the stomach and lots of iron. I take nature made tablets and they are super tiny. I also have an issue with large...
Board: Anemia 12-08-2014, 10:30 AM
Replies: 10
Views: 2,926
Posted By worrywort
Re: For those who have dizziness/balance issues..

I Have had my wisdom teeth for years, I am 36. I Get aweful headaches but not due to my teeth... Yours could be realted but not sure about the dizziness. I get aweful anxiety from it and have to take...
Board: Anemia 12-08-2014, 08:30 AM
Replies: 10
Views: 2,926
Posted By worrywort
Re: For those who have dizziness/balance issues..

My ferritin is 23 now and I have been dealing with this for over a year. I Need to get another hematologist because he doesn't connect the dizzy and hair loss to ferritin. I Hate when it happens in...
Board: Anemia 12-07-2014, 03:16 PM
Replies: 10
Views: 2,926
Posted By worrywort
Re: For those who have dizziness/balance issues..

My spells feels like I am rocking and sometimes spinning or as you described just feels like your brain need a second. Usually when it's brain related you have other symptoms,I just saw a neurologist...
Board: Anemia 12-07-2014, 03:07 PM
Replies: 0
Views: 523
Posted By worrywort
Low ferritin still but iron coming up!

Ok so I just had labs taken and my iron is 97 range from 37-145 it was previously 57 my saturation is 30 previously 16 and my tibc is 325 .. My ferritin is 23 and was 31 but started out at 4. Why in...
Board: Anemia 11-26-2014, 12:03 PM
Replies: 14
Views: 1,973
Posted By worrywort
Re: Anemia, Weird RBC Morphology, Fatigue/Heart Issues. Just Iron or More?

Sounds like your on the right path!! Hope all your work ups come back great!
Board: Anemia 11-22-2014, 02:32 PM
Replies: 14
Views: 1,973
Posted By worrywort
Re: Anemia, Weird RBC Morphology, Fatigue/Heart Issues. Just Iron or More?

Sometimes you can have sensitivities to gluten.. Maybe try cutting it out. I have ibs and have absorbtion issues. My ferritin was negative at one point and I felt like death. Take it easy and please...
Board: Anemia 11-22-2014, 02:26 PM
Replies: 2
Views: 674
Posted By worrywort
Re: Headaches?

Headaches in general are a symptom of Anemia. If you skip a meal maybe it is due to low blood sugar?
Board: Anemia 11-10-2014, 07:35 PM
Replies: 8
Views: 2,774
Posted By worrywort
Re: Low Ferritin, Normal Haemoglobin

I am so glad I read this!!! Please read about TE (hair loss) low ferritin causes TE. I have lost a significant amount of hair. My ferritin was a 4 now it's at 31. I pray for HAIR!! I still suffer...
Board: Anemia 11-03-2014, 10:27 AM
Replies: 1
Views: 1,756
Posted By worrywort
Re: Could dizziness be from Low Iron Saturation ONLY? (non anemic iron deficiency)

Your ferritin is low also. Are you still dizzy? I am also dizzy all the time :( optimal ferritin is about 80
Board: Anemia 11-02-2014, 12:12 PM
Replies: 1
Views: 798
Posted By worrywort
Re: low ferritin

I think you should see a new doctor. You have to take iron to get your ferritin back up. I am not familiar with b12 though. It is essential to have ferritin. I hope you get answers soon, it's so...
Board: Anemia 10-28-2014, 12:19 PM
Replies: 5
Views: 2,097
Posted By worrywort
Re: Anemic, but WHY?

Hi, I have been struggling with low ferritin for a long time. Mine is currently 30, took forever to get to that though. I just take oral iron. My hematologist tested me for celiac, lupus and other...
Board: Anemia 10-20-2014, 09:36 AM
Replies: 3
Views: 1,870
Posted By worrywort
Re: CBC Normal, Ferritin 30, Feel like I am dying :(

I have been taking the oral for 6 months and it took that long to get it to 31. I have stomach issues andall the tthings I should be eating are the very things hard on my stomach. I am doingtthe best...
Board: Anemia 10-19-2014, 03:53 PM
Replies: 3
Views: 1,870
Posted By worrywort
Re: CBC Normal, Ferritin 30, Feel like I am dying :(

Hi, I am 36, my ferritin was 8 previously and now 30.. I still feel like hell. I am not doing the infusion though. I am taking oral iron. I have every symptom you describe. I know how you are...
Board: Anemia 10-05-2014, 08:43 AM
Replies: 13
Views: 4,703
Posted By worrywort
Re: Please does anyone have these symptoms?

I feel just like you are describing, it is important to get follow up labs to see where your at and check your ferritin level as well. I do hope you feel better and please keep me posted. Your not...
Board: Anemia 09-11-2014, 03:07 PM
Replies: 13
Views: 4,703
Posted By worrywort
Re: Please does anyone have these symptoms?

I feel exactly the same, I was actually thinking of going to the er today because of this feeling :(
Board: Anemia 09-04-2014, 07:02 PM
Replies: 13
Views: 4,703
Posted By worrywort
Re: Please does anyone have these symptoms?

I know what you mean.. Just today I avoided the store because of my spaced out brain fog. Soo annoying. I have convinced myself I am dying. I am losing my hair!! Yes I have heavy periods and I am...
Board: Anemia 09-04-2014, 10:08 AM
Replies: 13
Views: 4,703
Posted By worrywort
Re: Please does anyone have these symptoms?

I just teared up reading this :( I got my ferritin results backand and was hoping for a large improvement but it was only 13. I do feel like I have some terminal illnes . It's just awful and I can't...
Board: Depression 08-28-2014, 01:12 PM
Replies: 2
Views: 1,800
Posted By worrywort
Re: At my wits end, so just venting I guess.

You know what... Don't give up!! Keep trying. Your are worth it. I feel like giving up also at times but I have to look beyond and know my self worth. I don't have friends either and my Family...
Board: Digestive Disorders 08-17-2014, 08:23 PM
Replies: 1
Views: 1,196
Posted By worrywort
Re: Scared I have colorectal cancer.

Please don't worry yourself to death about having cancer. I had bleeding and bloating and, I have had 3 colonoscopys and I have been diagnosed with IBS. I understand your worried. Just try to relax...
Board: Irritable Bowel Syndrome (IBS) 08-15-2014, 04:21 PM
Replies: 7
Views: 4,254
Posted By worrywort
Re: IBS taking over my life - very depressed!

I am on the same boat... I have terrible bloating and pain at times though, now being one of those times. Have you had tests done at all? Sometimes cutting gluten can help regardless of being...
Board: Anemia 08-09-2014, 08:12 AM
Replies: 12
Views: 2,802
Posted By worrywort
Re: continue supplement? ferritin up to 54

Oh and maybe repeat the c diff! I have never had one but my issues started after food poisoning! Yuck
Board: Anemia 08-09-2014, 08:10 AM
Replies: 12
Views: 2,802
Posted By worrywort
Re: continue supplement? ferritin up to 54

I have had 3 colonoscopys! Always negative but the ct scan showed inflammation.. I have had every test done but I am convinced I have crohns. My stomach is a mess and I don't think I absorb...
Board: Anemia 08-07-2014, 09:12 PM
Replies: 12
Views: 2,802
Posted By worrywort
Re: continue supplement? ferritin up to 54

We sound like twins!! I also have pain in my lower right quad! Everything is negative! Going in for another pelvic u/s. I have ibs :( I am thinking of getting the ablation for the bleeding. I feel...
Board: Anemia 08-07-2014, 09:29 AM
Replies: 12
Views: 2,802
Posted By worrywort
Re: continue supplement? ferritin up to 54

I have been tested for all sorts of stuff and even had a colonoscopy to check for GI bleed. I am 36. Heavy bleeding is an issue for me... I declined to have the iron infusions and was told I need to...
Board: Anemia 08-06-2014, 12:50 PM
Replies: 12
Views: 2,802
Posted By worrywort
Re: continue supplement? ferritin up to 54

I have read that 80-100 is good. Continue to get your levels checked thoug .
Board: Anemia 08-06-2014, 12:47 PM
Replies: 12
Views: 2,802
Posted By worrywort
Re: continue supplement? ferritin up to 54

I have a ferritin of 10... It takes a long time. About a year. I have all the same symptoms and the ddoctor isn't convinced it is my ferritin. I believe it is!!
Board: Digestive Disorders 07-31-2014, 04:22 PM
Replies: 18
Views: 2,326
Posted By worrywort
Re: Lifelong GI problems, suddenly unmanageable

I tested negative for hp, I was certain I had celiac but that was negative also. I think I am gonna need an anti depressant because it truly takes away from enjoying life. Thanks for the well wishes,...
Board: Digestive Disorders 07-28-2014, 07:38 PM
Replies: 18
Views: 2,326
Posted By worrywort
Re: Lifelong GI problems, suddenly unmanageable

Solofelix, hello! I have been having really bad issues before my last scope almost 2 years ago! :( I have not gone gluten free yet, I really want to try. All I take now is a probiotic. I hope you...
Board: Digestive Disorders 07-24-2014, 12:41 PM
Replies: 18
Views: 2,326
Posted By worrywort
Re: Lifelong GI problems, suddenly unmanageable

Thank you!!! Keep your head up! Let me know
if you find something that works. Try a probiotic also. The one I take is called pb8
Board: Digestive Disorders 07-23-2014, 09:28 PM
Replies: 18
Views: 2,326
Posted By worrywort
Re: Lifelong GI problems, suddenly unmanageable

I am having another endoscopy in a couple weeks, I will refuse a colonoscopy considering I have had 3 already. Did you have contrast with your ct scan? I know it is always good to hear that it's...
Board: Digestive Disorders 07-22-2014, 10:54 AM
Replies: 18
Views: 2,326
Posted By worrywort
Re: Lifelong GI problems, suddenly unmanageable

I am so sorry about what your going through. I also have nausea :( I have made the decision to cut gluten and sugar and see if that helps. I am curious about your test result . Mine came back.....
Board: Hypochondria 07-10-2014, 03:15 PM
Replies: 1
Views: 6,463
Posted By worrywort
Re: Leukemia and lymphoma worries

Hi hun, I am 35 and have dealt with anxiety and health anxiety for about 12 yrs. I can tell you that anxiety and stress can cause some crazy symptoms!!! I encourage you to get some treatment, maybe...
Board: Irritable Bowel Syndrome (IBS) 07-09-2014, 08:53 AM
Replies: 12
Views: 3,468
Posted By worrywort
Re: variety of illnesses, now IBS different than before

I am on the same boat.. What's worse is having family talk bad about you because you avoid certain situations. I have 2 young kids. Its truly life altering. I am so you have to deal with it also, I...
Board: Irritable Bowel Syndrome (IBS) 07-02-2014, 06:48 PM
Replies: 5
Views: 2,235
Posted By worrywort
Re: IBS Diagnosis and I don't believe it

All I can say is, I feel your pain! Ct also showed inflammation in my lower left side of my intestine. They were not concerned. Also had a small bowel follow through, it was negative for crohnes. I...
Board: Irritable Bowel Syndrome (IBS) 06-21-2014, 03:48 PM
Replies: 13
Views: 2,022
Posted By worrywort
Re: Functional disease?!

I have had two laporoscopys and do not have spots of endometriosis but I have been told I have it because of my heavy periods. Fibroids have been ruled out as well. Definitely don't have pelvic...
Board: Irritable Bowel Syndrome (IBS) 06-21-2014, 08:35 AM
Replies: 13
Views: 2,022
Posted By worrywort
Re: Functional disease?!

Yes, I have had a second and third opinion. I don't want anymore tests since Ihave had so many already and they are so unpleasant. 3 scopes on someone who is 35 is a bit much and I will not subject...
Board: Irritable Bowel Syndrome (IBS) 06-16-2014, 09:40 AM
Replies: 2
Views: 849
Posted By worrywort
Re: Totally confused

I hear ya!!! I have been told anxiety also, and although I am anxious I would feel much better if my stomach wasn't so crazy!!! My life has greatly suffered from this!!! My ct scan actually showed...
Board: Leukemia 06-12-2014, 08:17 PM
Replies: 0
Views: 3,873
Posted By worrywort
What does this mean

My blood test showed rbc neucleated??? Confused. It should be 0 but mine was 0.1. I am sick with worry because I haven't felt good and all that has showed is mild anemia and low ferritin. Can anyone...
Board: Anemia 06-09-2014, 03:56 PM
Replies: 2
Views: 1,730
Posted By worrywort
Re: Help with my blood results?

I think that the above is excellent advise!! I have trouble swollowing large pills so the garden of life works good because you can open the capsules, I also take a ferrous sulphate iron by nature's...
Board: Anemia 06-08-2014, 03:57 PM
Replies: 7
Views: 6,850
Posted By worrywort
Re: Symptoms with low ferritin but borderline normal Hemoglobin

I am on the same boat! My hemoglobin is an 11 and my ferritin is a 6 :( I feel like death, I am taking oral iron now.. Am going to see the hemotologist this week. I can'thelp but think I have...
Board: Irritable Bowel Syndrome (IBS) 06-06-2014, 05:50 PM
Replies: 3
Views: 1,382
Posted By worrywort
Re: Calcified Nodule Cyst – CT Scan and Ultrasound + More

Read up on ibs, it causes pain in lower left side a lot of the time. I had that issue pretty bad that it almost sent me to the er. I have had 3 colonoscopys! It sucks to not have answers. My advice...
Board: Irritable Bowel Syndrome (IBS) 06-06-2014, 07:38 AM
Replies: 13
Views: 2,022
Posted By worrywort
Re: Functional disease?!

I had a blood test for allergies, my scopes all come out normal except for a small hiatal herniaand acid reflux.. I rarely have symptoms of reflux. I will not take pills for that regardless of...
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