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Old 06-23-2009, 02:38 PM   #1
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22 Venous Leakage

I've been reading this among other boards for some time now, and having read the trials and tribulations of a few brave souls, I thought I`d finally throw my hat in the ring.

Although I certainly don`t enjoy reading about people going through the same pain I am it does offer a level of comfort to know I`m not suffering alone, so I figured I`d post my story if at the very least for the sake of consensus.

I haven`t had ED my whole life. I used to have great erections. Unfortunately, some time in high school, I started to notice that my erections were getting worse and worse (not as firm, hard to maintain).

Naturally, at my age, nearly all of my research led me to believe that my ED was a mental disorder. And so, for several years I suffered through repeated attempts to have sex with numerous women to much embarrassment and frustration, convincing myself with every subsequent failure that I must have somehow let myself down mentally and that the next time I`d be, calmer?

Finally, after years of this silly process with no results, I simply gave up.

Fortunately! About 3 months after my subconscious decision to stop pursuing women or sex, I noticed a burning sensation while urinating. I went to my GP for the standard tests, assuming I'd gotten an STD during one of my numerous attempts. However, all of the tests came back negative. And so, my GP sent me on to a urologist, unsure what was ailing me.

The urologist diagnosed me with having "Chronic Prostatitis." I had the so-called nonbacterial form (there are several forms). Which is to say, the form where the cause is completely unknown, and the efficacy of treatment is as solid as the understanding of the disease itself (non-existent). The symptoms, I was told, are: Painful ejactulation, burning during urination and DUN DUN DUN Erectile Dysfunction.

?Relieved? I asked for some remedies regarding the ED.

I was prescribed Viagra, Cialis and Levitra, yielding no success with any of them!

I went back after my failure and requested injection therapy. The urologist flat out refused to prescribe me the medicine because of my age, as it would "Damage my erectile tissue." What erecitle tissue? I thought.

He subsequently referred me to another urologist working out of the university hospital. However, this urologist disagreed that my chronic prostatitis was causing the ED (turns out there is much disagreement). Regardless, he scheduled me for a penile doppler which I attended.

With the injection I was actually able to achieve an erection, however only with a high dose (The same dose they give men in their 60s). Also, the erection was strange, in that it was only at about 60% for the first hour (yes, the first hour), then achieved about 90% at an hour and a half, then refused to go away for another hour and a half despite running it under cold water. It seemed a little erratic to say the least.

This urologist reviewed the results and said that I had a venous leak, and didn't seem to think it was related to my prostatitis.

So, I'm to be prescribed some prostaglandins during my next visit to the urologist in about two weeks. That's the beginning of my story and we'll see how the injections work, I'll keep updating as progress and setbacks are made. I'm open to any questions or comments.



As for my background. I'm 22, in excellent shape and I bodybuild as well as rockclimb, so there shouldn't be any health issues.

Regarding the quality of my erections -- I can maintain with reasonable stimulation while lying down, constant stimulation while sitting, and no hope in hell while standing. Also, I am able to achieve a full erection directly before climax for some reason.

Thanks for Reading,
Ethan.

Last edited by Ethan54; 06-23-2009 at 02:40 PM.

 
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Old 06-23-2009, 04:35 PM   #2
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Re: 22 Venous Leakage

Hey Ethan,

Thanks for the post and sharing your story. From experience, I know it's not at all easy to talk about ED, much less while in your teens and 20's! Ya certainly have my respect.

Gotta say, that yours is a definitely a new story to my ears, and perhaps yet another fine testament to just how little science really understands "erectile anything." The part about seeing a doctor initially and just being given the usual viacialitra...made me laugh out loud; such mirrors mine and probably a bazillion other men's experiences. "Whatever's wrong with ya down there, the answer has to be in one of them pills, right?" lol - Doctors, what're ya gonna do?

I'll first put up my usual disclaimer that I'm certainly no doctor (rather just forwarding what I've read/experienced, and absolutely not what's gospel), but from what I understand of venous leakage (and with all respect to your doctor), your symptoms don't seem to fit the descriptions. There are absolutely different forms, severeties and locations for venous leakage, but all seem to share the commonality that one cannot maintain an erection for any "functional" length of time (and of course owing to the outward flow of blood, etc). If the usual shots gave you a hard-on that lasted for hours, and that hard-on was sufficiently rigid (at least for the majority of that time) that you could have had intercourse, it would seem to me there are no holes in your proverbial dam. While I'm the first to say that mine is probably one of the more extreme cases (since birth, always been, blah blah.), full syringes at the "max" dose (or so said the uro) brought me maybe 60% or so "up," and then almost immediate failure.

Now that said, there could be any of a number of other physiological reasons as to why you're having trouble maintaining (so to speak). Over the course of my many, many (many) visits, uros have told me of cases of unhealthy erectile tissue, bacterias, strains or other injuries...bunches of guesses that could often be corrected by anything from changes in diet to restorative surgery. As usual then, the only advice or comment I would forward is to keep having tests done, and to keep looking for similar folks with similar issues as yours, and to try to find an explanation and ultimately (whether you find a cause or no) a solution that works.

lol - Now I'm sure all of that must sound vague and dark, but if my own guess is correct (and nothins' leaking), then a solution might be far easier than you think!

Last edited by caddyman23; 06-23-2009 at 04:40 PM.

 
Old 06-25-2009, 10:41 PM   #3
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Re: 22 Venous Leakage

I'm glad you said that, because I'm not wholly convinced that I'm suffering from a venous leak either. I think it must be somehow related to my prostatitis, however, the best information I've been able to find is a few studies reporting that men with prostatitis frequently also suffer from ED. But they are only statistical reports, with no information or even speculation as to why this is or possible treatments.

Although, I should note that when I say "maintain," I mean to keep in a state other than totally flaccid. I can't get above 60%, and its extremely tenuous the entire time (requires perfect posture, technique, would be impossible for normal intercourse). Directly before orgasm it seems to jump to about 90%, but it only lasts a few seconds and I've seen this reported many times by people with similar troubles.

Do you remember some of the things your doctors suggested? I can't seem to find much information on other causes, especially the kind you'd suggested (Diseased tissue, etc.) I'd happily research any ideas you have from doctors if you can remember them. The only thing my urologist told me was, "arterial inflow looks good." Great. Thanks. You've been an enormous help doc.

I guess I feel I have to move quickly on this because I'll be starting injection therapy in a week, and from what I've read it is only effective for about 10 years, and the end result is often moderate/severe fibrosis. Although, fibrosis can even occur in the short term! So I was wondering if I'd be better off opting for an implant initially, rather than to have 10 years of injections and ending up with a penis in a very compromised and fibrotic state. I don't want to have to undergo aggresive or ruinous excisions, grafts etc in my early 30s. I want to have as much longevity as possible before the surgeon frowns and proceeds to hack of my johnson with a meat cleaver!

One more question -- how do you find urologists? I know the US is a much more open market medical system, so webpages and adverts flashing credentials are easy to stumble upon but I can't find anything for Canada. I'm sure there are talented and specialized urologists in Canada but my googles haven't produced anything. I would like to know if my current urologist is competent in the particulars of my case.

Thanks Again,
Ethan.

Last edited by Ethan54; 06-25-2009 at 10:51 PM.

 
Old 07-02-2009, 02:00 AM   #4
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Re: 22 Venous Leakage

Update!:

Saw my urologist today! I questioned him pretty thoroughly as to how sure he was I had a venous leak. He seemed very confident. I did some research on him and he is a very respected urologist and actually holds a position at one of the only elective, pay for service surgery institutions in Canada. He is also one fo the few doctors that performs venous ligation surgery. He has been practicing for close to 30 years and I can say I am now very confident in his ablities and diagnoses.

He is reluctant to start me on injections and instead has prescribed me more PDE5 inhibitors(Viagra, etc.), which didn't work before, but this time he has prescribed a penis ring as well. He seems to have some hope that if I use the drugs in combination with the ring that I can possibly "retrain" my vein valves to shut more adequately. He wants me to try this for 6 months at least, and if I don't have any results I am to schedule an appointment wherein we can discuss ligation type surgery.

On ligation surgery: I have researched and read many articles related to the surgery and have a few questions/concerns if anyone has the knowledge to assist me --

It seems there are different methods: Ligation, removal and/or embolization. Sometimes they seem to used in conjunction, or by themselves. I can't determine whether the different techniques mark a positive progression in techniqiue or if they're just the preference of the surgeon performing the procedure. If anyone can comment on this I would appreciate it.

Next, as for side effects: On some studies I've read they've reported possible shortening as a side effect -- however, this doesn't seem to appear on most modern clinicals, and the majority report no side effects at all. I can't seem to find whether or not this is something which occured during the infancy of the procedure and has been resolved or if it is dependent on the surgeon, technique, individual etc.

Thanks for reading again,
Ethan

 
Old 12-02-2009, 09:04 PM   #5
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Re: 22 Venous Leakage

yo ethan im going thru the same thing as you. I saw the urologist and of course since i was young and in good shape, he said it was all in my head, gave me some viagra and said stop drinkin and smokin pot. I have not touched pot in a month and i cut down on my drinking and the problem is the same. this has caused major anxiety to me and after failing with sex with 2 girls in the past 3 months i am feeling humiliated. i think i might have venous leakage because i have been researching many things and even though I do have some symptoms of Peyronie's, no curve is present and this is the only thing besides my minor back pain that could be causing this. sometimes ill be able to get a halfass erection and after i ejaculate, my penis shrivels like a baby in under a minute. That never used to happen. I am going to go to my regular doctor next week to see if hell run some tests. I have never been this low in my life and I know for sure it is not in my head. 4 months ago, I could perform like a stud and now I can't get it up? Doesn't seem right to me... This shouldn't happen to a young college kid in their sexual prime. Its driving me nuts. Let me know what your results are and I'll keep you up to date on my problem

Last edited by Mod-S4; 12-02-2009 at 09:22 PM. Reason: language/terminology

 
Old 01-22-2010, 08:36 PM   #6
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redfurd HB User
Re: 22 Venous Leakage

Just curious if you ever found out anything more on your condition because this same problem seems to be occuring with me and i also just turned 22.

 
Old 01-25-2010, 12:47 PM   #7
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Thumbs down Re: 22 Venous Leakage

I am amazed at how many younger guys have this problem. I also suspect I have some venous leak. I can get an erection but sometimes it's poor quality others times it's pretty rock hard but I can't maintain an erection for that long without manual stimulation and the glands don't engorge fully or that well either. Typically most doctors and uroligists think young guys don't have serious ED problems and it is "all in our heads" which could be to true to a degree. I know myself though I am very calm and still don't very good erections so I know this is mainly a physical problem. The problem is there is NO real cure for venous leaks and I am certain this is what I have. I am thinking about seeing another uroligist to get some tests done but even if they find something like a venous leak very little can be done to fix the issue. It's depressing to say the least I am 25 years old myself and I don't see much point trying to sex or a girlfriend when I have ED and a strong possibility of venous leakage. I guess I am too proud but I do feel less of a man because of my erection quality.

Last edited by XFiles84; 01-25-2010 at 12:49 PM.

 
Old 01-26-2010, 03:58 AM   #8
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Re: 22 Venous Leakage

Quote:
Originally Posted by XFiles84 View Post
I am amazed at how many younger guys have this problem. I also suspect I have some venous leak. I can get an erection but sometimes it's poor quality others times it's pretty rock hard but I can't maintain an erection for that long without manual stimulation and the glands don't engorge fully or that well either. Typically most doctors and uroligists think young guys don't have serious ED problems and it is "all in our heads" which could be to true to a degree. I know myself though I am very calm and still don't very good erections so I know this is mainly a physical problem. The problem is there is NO real cure for venous leaks and I am certain this is what I have. I am thinking about seeing another uroligist to get some tests done but even if they find something like a venous leak very little can be done to fix the issue. It's depressing to say the least I am 25 years old myself and I don't see much point trying to sex or a girlfriend when I have ED and a strong possibility of venous leakage. I guess I am too proud but I do feel less of a man because of my erection quality.
Ok so i post the other day that i figured that i was having the same problem but now i really dont think that i am cause it seems like after an intense work out at the gym really seems to help and also i went to the hypontist the other day.... being hypnotised was a very good experience for me cause im kinda a cronic worrier every since 2 decembers ago my gf at the time give me clymida and never told me for six months untill right before x-mas... needless to say i didn't stay with her.... anyways i got treated for it but since i had the clymida for so long i ended up developing epidimytis, it is very painful... and i had no idea what it was i would spend hours on the internet research always figuring the worst thinking that i had nut cancer, or aids cause i had swollen neck glands, i even went to one ******* doc that told me it was in my head the first one so i put of the suffering for another month till it was unberable. Still thinking the worst in the back of my head the whole time... finally when i found out what it was it took 2 treatments of some heavy duty antibiotics was finally cured after 3 months of suffering... i thought but the thing was i still suffered from reaccurring pain. even now adays but not as bad....

anyways back to the problem at hand i found that talking to alot of people really seems to help for me... the hypno basically told me that erections are perfectly normal function not to worry about it so much cause worrying causes more anixeity then causing the ed to accur more often... it really helped with my worrying and internet researching, plus i also found it to be really rewarding just because it was really relaxing.... i don't know if i cured me or anything yet cause i only did it two days ago plus i went to the doc to the same day not an acutal uroligist cause here in canada you cant go to direct to the uroligist. but the doc told me not to worry so much and give my body a break... lol but that wasn't the case last night i was always kinda a cronic masturbator and i am getting backin to working out. which i did yesterday hence i was having pretty good erections.... anyway all i really wanted to say was that i found the hypnotist really rewarding experience... cause it stoped my worrying and searching on the internet for hours at a time which actually led me to this website and many others... but this is the only one that i acutally posted on thought... i hope that this posts helps others out there. ed is not fun

 
Old 02-25-2010, 11:06 AM   #9
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Ethan54 HB User
Re: 22 Venous Leakage

Hola everyone,

It's been 6 months(okay more than) and I've come to report to my favorite social club! I've been on the Dr. recommended "Penile ring and PDE5" diet for the past while and unfortunately and expectantly I am reporting NO results. It seems those veins didn't "retrain" themselves after all--

I have booked another appointment and will be in my urologist's office in about 3 weeks. After celebrating(mourning) my 23rd birthday flaccid and girl-less as per usual fashion I have decided to request prostaglandins/injectables during my visit and inquire about surgery, which sounds more appealing every day.

I'll keep you all informed -- if anyone actually reads this!

 
Old 02-25-2010, 11:44 PM   #10
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XFiles84 HB User
Re: 22 Venous Leakage

Quote:
Originally Posted by Ethan54 View Post
Hola everyone,

It's been 6 months(okay more than) and I've come to report to my favorite social club! I've been on the Dr. recommended "Penile ring and PDE5" diet for the past while and unfortunately and expectantly I am reporting NO results. It seems those veins didn't "retrain" themselves after all--

I have booked another appointment and will be in my urologist's office in about 3 weeks. After celebrating(mourning) my 23rd birthday flaccid and girl-less as per usual fashion I have decided to request prostaglandins/injectables during my visit and inquire about surgery, which sounds more appealing every day.

I'll keep you all informed -- if anyone actually reads this!
Hi thanks for the update. Like I have said previously I am in the same situtation, I am 25 years old I have had ED and erections problems since my early twenties. I would say my ED is mild I get decent, good erections other times though they are quite weak. The head (glands) especially don't fill up very well and while I do get a full erection often I just can't really hold it for very long at all without stimulation. I have found doing kegels works my erection was much harder almost like steel my erection also lasted longer but it's not a real fix to the problem. I think one of the worst things about my situation is I am a virgin with ED and I am convinced I have venous leakage I am pretty sure of that. I will try and see a urologist soon.

I know your pain and frustration, I see women I like and want to get with but I don't think I can bring myself to try having sex and admit I have ED. I try not to let this get me down though. What surgery are considering?

Cheers

 
Old 02-26-2010, 06:20 PM   #11
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Re: 22 Venous Leakage

Are you guys doing venous litigation or venous leak embolization? I spoken to 2 people and one of them did the venous ligation and the other one did the embolization.

Does anyone have problems getting an erection or maintaining it while standing up? The only way i can get and maintain an erection is by sitting on a chair and squeezing my legs towards my penis and testicles in order to get and maintain an erection. The moment i unsqueeze it, i lose my erection completely.

 
Old 03-14-2010, 11:41 AM   #12
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Re: 22 Venous Leakage

Quote:
Originally Posted by XFiles84 View Post
Hi thanks for the update. Like I have said previously I am in the same situtation, I am 25 years old I have had ED and erections problems since my early twenties. I would say my ED is mild I get decent, good erections other times though they are quite weak. The head (glands) especially don't fill up very well and while I do get a full erection often I just can't really hold it for very long at all without stimulation. I have found doing kegels works my erection was much harder almost like steel my erection also lasted longer but it's not a real fix to the problem. I think one of the worst things about my situation is I am a virgin with ED and I am convinced I have venous leakage I am pretty sure of that. I will try and see a urologist soon.

I know your pain and frustration, I see women I like and want to get with but I don't think I can bring myself to try having sex and admit I have ED. I try not to let this get me down though. What surgery are considering?

Cheers
I am considering venous ligation/embolization surgery -- although the reports I have read are mixed. I am still trying to read up on it as much as possible and get the best possible perspective. It doesn't seem to be very strongly recommended/effective, but having read the reports I think it has a lot to do with poor patient selection -- such as men in their 50s, 60s, 70s, some with diabetes, etc.

If that fails, as in I decide against it, or have the surgery with poor results I will very likely start looking seriously into a penile implant.

Quote:
Originally Posted by westell1 View Post
Are you guys doing venous litigation or venous leak embolization? I spoken to 2 people and one of them did the venous ligation and the other one did the embolization.

Does anyone have problems getting an erection or maintaining it while standing up? The only way i can get and maintain an erection is by sitting on a chair and squeezing my legs towards my penis and testicles in order to get and maintain an erection. The moment i unsqueeze it, i lose my erection completely.
How old were the people you spoke to -- and what were their results?

I have the same sitting/standing problem with my erections. I can sort of (big sort of) maintain an erection while sitting and under constant stimulation but am absolutely hopeless if standing. Lying down sometimes (big sometimes) I can maintain one without constant stimulation, although the quality is really bad.

Last edited by Ethan54; 03-14-2010 at 11:45 AM.

 
Old 04-20-2010, 03:56 AM   #13
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Re: 22 Venous Leakage

hey guys,
i am quite sure im a victim of venous leakage too, my symptoms are quite similar to yours. cant maintain an erection for too long, need to keep stimulating it in order to maintain an erection..been like this for years...almost impossible to have intercourse...also i need to stimulate myself a lot jus to get erection.

this sunday im goin to do the doppler thingy though im quite positive i know the result.

the only hope i c is that 1 symptoms which is a symptom of tight foreskin.
yeah im uncircumcised....for me its very strange if my skin is pulled back and my glan touched(head) cant seem to get my skin back on front once i have an erection...so my only hope id if i cut my foreskin and then see if things work out. did anybody else have these symptoms?

my penis head is very sensitive....my theory is if i get circumcision and my glans become desensitized then maybe i am able ot maintain my erection and the fear is out of my head?

also one other thing for all d guys who did a doppler did u do it in erect state or flaccid state....i did it in flaccid so far and the results were normal..will keep u posted with my erect state.

peace
aj

 
Old 04-21-2010, 05:20 AM   #14
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Listen

Ethan sorry to hear about your situation my friend. I'm 19 now and I can say I have a problem. I know the embarrassment that comes with having ED. I can honestly say I have passed up at least 4 girls in the bedroom one by one. I will try my hardest to get an erection and it just doesn't happen for me. Sometimes I have tried getting oral sex which results in a "soft erection" and its just too soft for intercourse. When I can get what I would call a 85% erection it goes away within seconds. I can literally watch it go down with each pulsating movement. I think i was 17 when I saw the urologist for the first time. I was prescribed viagra with no effect, levitra with no effect, i took and injection finally and obtained a full erection however, after about 30 mins it got really painful, i look back and laugh at it now but its not funny. I had to rush back to the doctor because it got so painful luckily it went away once i reached the doctors office. Ever since then I've almost given up. Why did my erection hurt so bad? Is there a cause of painful erections? Perhaps my body refuses to get an erection because it knows its about to be painful? Damn this is a messed up problem. I would rather be missing a finger. Seriously.

 
Old 04-22-2010, 04:47 AM   #15
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Re: Listen

Quote:
Originally Posted by stillyoung View Post
Damn this is a messed up problem. I would rather be missing a finger. Seriously.

One good advice: no matter what happens, don't let it get to you.
Don't let it become a obsession, because i know where you can go from there.
I can tell from my experience: you can fall deep, very deep. I know it's a difficult problem to live with. But when you are too bussy with it, you'll suffer more and more and you won't be any step closer to a cure.

 
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