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Old 09-18-2010, 12:00 PM   #1
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Venous Leak

I've been diagnosed a venous leak and I have had to break up with a girl I was really into because I am ashamed of this curse and I am afraid that she won't understand and tell everyone, just like most women do. I am destroyed phisically and mentally. I have started a cure withcloridate trazodone but it doesn't work for me; and judjing by the experience of all the members here, probably all the cialis, viagra, levitra and so on won't work.

I'd like to know how it feels having a penile implant. Does the person you have sex with spot the implant? Does it give you a 'true' erection or it feels a bit gummy?
I have noticed in a video demonstration that when the penis is erect, it stands horizontally and not in diagonal position as it should be.

When you have occasional sex, do you manage to pump without being noticed?

Thank you for understanding and being there.

Last edited by Mod-S4; 09-19-2010 at 04:00 AM. Reason: Posts moved. Reference to other thread deleted. Please do not revive old threads. Thanks.

 
Old 09-18-2010, 12:11 PM   #2
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Re: Venous Leak Cure Anyone?

Unexpressed

Can i ask you how bad your ED is?
Can you still have erections and maintain them with stimulation?

I wouldn't immediately skip to an implant. Implant is the last option. First try Viagra, Cialis, Levitra or shots.

 
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Old 09-18-2010, 12:29 PM   #3
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Re: Venous Leak Cure Anyone?

I have weak erections in the morning and I cant' keep the erection for more than ten seconds. I don't have full erections even with masturbation or if a girl works me hard...

 
Old 09-18-2010, 01:03 PM   #4
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Re: Venous Leak Cure Anyone?

I experience a very floppy feeling when erect. It seems full but it's not 'hard'. I can maintain this floppy erection with constant stimulation, but quickly loose it when switching to another position or when stimulation stops.

There are doctors who tie off leaking veins. But this operation is no definite cure: it only has a 30-50 % long term success rate. There is one provision: they have to be able to 'visualize' the leaking vein(s). You should get a cavernosogram done.

I myself was diagnozed with venous leakage when i had my ultrasound done. Ultrasound showed venous leakage. But then i had a cavernosogram done and it did not confirm my venous leakage. No leaking veins were visualized. Because the uro was convinced the cavernosogram overruled the ultrasound, he did not think i have venous leakage. But i am still convinced i do have it.

We have one big bad luck my man, venous leakage is a very rare condition. My family doctor told me that within sixteen years of practice he haven't had one patient where venous leakage was confirmed as a cause of ED. Since most men are helped with Viagra or Cialis, these pills 'bring in' the big money and because venous leakage is that rare, why would 'they' (the medical world) invest in searching a definite cure for the problem?

Last edited by Pete29; 09-18-2010 at 01:25 PM.

 
Old 09-18-2010, 01:38 PM   #5
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Re: Venous Leak Cure Anyone?

Pete

I understand...What kind of therapy do you follow? How do you deal with your ED? Do you have a girlfriend? I only have one-night approaches because I don't want that people I know is aware of this secret. It's just hell on heart my friend. I struggle every day trying to be calm, to live life as I've always done but I don't get it. I'm waiting for the testosterone results, hoping that maybe my veins can be repaired or at least strenghtened by the hormonal therapy. I'll keep you informed of my situation's news.

 
Old 09-18-2010, 02:25 PM   #6
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Re: Venous Leak Cure Anyone?

Quote:
Originally Posted by Unexpressed View Post
Pete

I understand...What kind of therapy do you follow? How do you deal with your ED? Do you have a girlfriend? I only have one-night approaches because I don't want that people I know is aware of this secret. It's just hell on heart my friend. I struggle every day trying to be calm, to live life as I've always done but I don't get it. I'm waiting for the testosterone results, hoping that maybe my veins can be repaired or at least strenghtened by the hormonal therapy. I'll keep you informed of my situation's news.
Well, i recently have bought myself a racing bike. Physical exercise helps me calm my mind. I don't have a girlfriend. For the moment i don't need one. But i hope that one day i'll meet this very understanding girl who takes me the way i am. The condition maybe has one 'benefit'. It sounds a bit corny but
when you meet someone special and they do not leave you for it, the chances are big it's 'real love'.

A selective amount of my friends do know about my condition. Sometimes you have to talk about it. When you only keep it for yourself and there is no chance to ventilate, it's a lot tougher to handle. I am also taking some antidepressants to keep my mind calm as well.

It's living day by day and there are a lot of tough moments. Sometimes when i lying in my bed alone, i start thinking why it has to be 'me'. But then i think of people who are dying of cancer or are paralysed for instance. Although ED is no joke, they face challenges that are a lot tougher than ours.

But it's true, life with ED can never be compared with life without ED.

Last edited by Pete29; 09-18-2010 at 02:44 PM.

 
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Old 10-21-2010, 09:13 AM   #7
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Re: Venous Leak Cure Anyone?

Hi everyone,
I have some news on my clinic situation that may be interesting for you.
I've done the blood examination test and prolactine is 134, far far higher than the normal value. My urologist says that, probably, mi venous leak is linked also to this.
But to be sure that it isn't a false due to a stress/reaction of my body induced by the needle, I have to repeat the test trice.
I have already told you that trazodone chloridrate isn't working for me to have erections. Today I have tried half of a cialis 20 mg pill and tried masturbation after 30 minutes. My erection was hardrock and I was able to keep it up for long time.
It seems like things are getting better for me now and I'm hoping I'll come out of this hell. I'll post the news update after the new test matches.

 
Old 10-21-2010, 11:58 AM   #8
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Re: Venous Leak Cure Anyone?

Quote:
Originally Posted by Unexpressed View Post
Hi everyone,
I have some news on my clinic situation that may be interesting for you.
I've done the blood examination test and prolactine is 134, far far higher than the normal value. My urologist says that, probably, mi venous leak is linked also to this.
But to be sure that it isn't a false due to a stress/reaction of my body induced by the needle, I have to repeat the test trice.
I have already told you that trazodone chloridrate isn't working for me to have erections. Today I have tried half of a cialis 20 mg pill and tried masturbation after 30 minutes. My erection was hardrock and I was able to keep it up for long time.
It seems like things are getting better for me now and I'm hoping I'll come out of this hell. I'll post the news update after the new test matches.

I don't think you've got venous leakage. With VL you will not get hard with 10 mg Cialis and stay hard.

Last edited by Pete29; 10-21-2010 at 11:59 AM.

 
Old 10-22-2010, 08:47 AM   #9
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Re: Venous Leak Cure Anyone?

The ecodoppler showed the presence of this venous insufficiency and the urologist confirmed it, though it's a 'borderline situation'. Plus he has an explaination for the effectiveness of cialis. He says that it doubles the amount of blood pumped in the penis by the artery in the penis, so the leak of the valves is balanced by this continuous blood squeezing. It does make sense.
The problem is that a pill doesn't fix the trouble, its action is limited to hide the disfunction, but the monkey is still on my shoulder. I really hope that with the prolactine cure, if it is the effective cause of VL, I can really get rid of this nightmare.
I'll be back with news, when it's time.
Hugs to everyone.

 
Old 10-24-2010, 09:27 AM   #10
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Re: Venous Leak

Well, the unexeceptable part of venous leakage is that in my opinion, no research is done to find a cure. I can understand there maybe is no cure at the moment. But all these urologists seem so lame about it. Because it's a problem only a minority of men has to deal with, there simply is no 'funding' or research.

 
Old 10-28-2010, 01:34 PM   #11
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Re: Venous Leak

Yesterday i had an appointment with a so called 'ED specialist'. He told me venous leakage did nog exist and his research has proved this. For the rest he just told me to take Viagra (where i have heard this before).

 
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Old 10-28-2010, 05:32 PM   #12
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Re: Venous Leak

There are some papers suggesting that for certain patients venous leak can be improved/cured with TRT:

“Testosterone undecanoate restores erectile function in a subset of patients with venous leakage: A series of case reports”, Author(s): Yassin AA, Saad F, Traish A, JOURNAL OF SEXUAL MEDICINE, Volume: 3, Issue: 4, Pages: 727-735, Published: JUL 2006

“Dramatic improvement of penile venous leakage upon testosterone administration. A case report and review of literature”, Author(s): Yassin AA, Saad F, ANDROLOGIA, Volume: 38, Issue: 1, Pages: 34-37, Published: FEB 2006

“Testosterone Improves Erectile Function in Hypogonadal Patients With Venous Leakage”, Author(s): Kurbatov D, Kuznetsky J, Traish A, JOURNAL OF ANDROLOGY, Volume: 29, Issue: 6, Pages: 630-637, Published: NOV-DEC 2008

Another paper tells what exactly happens with tissue with leaky veins:
http://www.biomedcentral.com/1471-2490/7/14
Apparently, it is not as simple as one may naively think that ‘leaky veins’ means a ‘hole’ or not properly working valve in vein. In reality it affects fiber structure of penis tissue. No wonder the surgery is not very effective in this case.

Earlier article found statistical correlation between leaky veins and higher estradiol level, i.e. higher compare to men with ED but not leaky veins:

“Increased estradiol levels in venous occlusive disorder: a possible functional mechanism of venous leakage”, INTERNATIONAL JOURNAL OF IMPOTENCE RESEARCH, Volume: 17, Issue: 3, Pages: 239-242, Published: MAY-JUN 2005

 
Old 04-06-2011, 04:31 AM   #13
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Hello everyone,
how are you doing? Hope you are fine and I wish that VL doesn't trouble you too much.
Unfortunately I have bad news for my case. In fact, in opposition to what I was hoping, my ED is not prolactine dipendent.
As you know I already have tried chloridrate trazodone and it didn't work.
Cialis improves the situation but it doesn't fix my problem totally and going on with time it wil become less and less useful.
Caverjet injections are the most useful tool I'm using, but I have them only once every two/three weeks because there is the risk of phybrosis formation.
So I have managed to find my new balance by using all this medical treatments and keeping the arousal high.
I know it sounds obvious, stupid or weird, but if your libido is low, erections will get worse. So I try hard to be happy and to be flirty and charming with women. I have noticed that If I kiss a girl that excites me a lot, my penis becomes hard, it's bent towards the floor but it is hard, and this means that with a bit of stimulation it will be oriented 40/45 degrees towards the ceiling in the natural position it used to have once.
I have ten to twenty seconds before the erection fades away, so I have the time to switch position during sex with a reasonable probability of not being noticed. With this I want to tell you that I spent last month being worried and I hardly had an even floppy erection during that time. This means that morale is fundamental to have our sex life back.
Other man can afford being weak or depressed, we cannot.
But if we are brave enough to face the risk of failure and we keep being enough hungry of life, we can make it.
For this motivation, tomorrow I will date a beautiful girl I've picked up and I don't f****n care about VL, I WILL MAKE IT.
I decided to post this mad elucubration because I've thought It could be useful to us EDers and that it can give a little of hope.
Anyway my urologist said that apart from the caverjet/via/cialis, the only effective solution is prothesis implantation.
So I've decided that I will go on with cialis and caverjet until my penis makes it alone and I will take in consideration the implant surgery only after having evalued well the 'selective venous ligation surgery'.
That's all folks, I give you a big hug and I wish you don't give up.
For what concerns you, wish me the best luck for tomorrow
See you soon.

'Stay hungry, stay foolish' Steve Jobs

Last edited by Unexpressed; 04-06-2011 at 04:34 AM.

 
Old 05-13-2011, 06:15 AM   #14
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Re: Venous Leak

Hi everyone,

I am new to this board and I am happy to finally encounter other people suffering from the same condition. All your post have been very encouraging as I always felt very lonely and frustrated by this.
I will describe my experience on my next post and hopefully it will be useful to you too.

See you soon!

 
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