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Old 01-30-2004, 11:56 PM   #1
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Nothing has worked

I am 22 years old and I found out that I have Endometriosis when I was 19. My boyfriend has been very supportive about the whole thing, even though we don't really have sex that often. I had a Laporoscopy to remove the problem, but my doctor said that the majority of it was so microscopic that she couldn't get rid of it all. I was put on birth control pills to help with it returning but because it wasn't all removed it still hurt. I stopped taking my pills because they were making me sick, and then I got pregnant. My doctor informed me that during pregnancy your ovaries are not working (obviously) so I should not experience pain, but if I did, it would be as bad. Yeah right, it was the same pain level as before. After having my daughter I discussed birth control with my doctor again, and I chose to get the patch. I was on the patch for about 4 months and was still having pain so I went back to the doctors, and she told me about a shot called Lupron Depo. The shot is used for people who have Endometriosis when nothing else has worked. I chose that because I didn't really have any other option other than getting my tubes tied, and I really didn't want to do that. I really wish that someone could help me out. I am so overly frustrated. But not only that, I feel really bad for my b/f because he's been nothing but supportive with me, and when we do have sex, I have to tell him "slow down, wait, stop" and I say OWE the whole time. He even knows now to just ejaculate instead of hold back so that we can both do it at the same time. But how can I enjoy something that's ****** killing me?? I just wish that I could snap my fingers and make this all go away so that I can be a better sex partner to him instead of a lump.

I know some people may say to try a different position.......yeah, that doesn't work either. He has a large penis, but that also doesn't matter because my ex-boyfriend was, I guess you could say average, and it still hurt.

 
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Old 01-31-2004, 10:04 AM   #2
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I totally don't have this problem, so my suggetion won't be anything from experience, but you're obviously having chronic pain, why can't your Dr give you just some plain old painkillers? I know it won't cure the cause, but it might at least let you enjoy your time w/ your boyfriend...

 
Old 02-02-2004, 10:46 PM   #3
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Re: Nothing has worked

Quote:
Originally Posted by Thisby
I totally don't have this problem, so my suggetion won't be anything from experience, but you're obviously having chronic pain, why can't your Dr give you just some plain old painkillers? I know it won't cure the cause, but it might at least let you enjoy your time w/ your boyfriend...
Thank-you for your suggestion. Maybe I will try that for the time being. It's just a real pain in the butt, ya know. Some people that know about my situation think it's a big joke because I don't like sex anymore, I have to tell them this, for example...........think of it this way, your not going to stab yourself with a knife on purpose right? because you know it's going to hurt. That's the same way I feel about sex! I know it's going hurt, so I don't want to do it!

 
Old 02-03-2004, 04:12 AM   #4
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Re: Nothing has worked

Hi there,

I have had endometriosis for years, and I have stage 4 (the worse that it gets) which of course has been causing a lot of pain. I had a laparoscopy in 1999 but it did not help much with the pain. At that time the GYN told to take Ortho Cyclen on a continous basis (take 1 pill a day for 3 months-skipping the placebo-and then have a period ) so that I would have a period every 3 months instead of every month. I still had severe pain when I had my period, and in my case Naproxeen Sodium 500mg (painkiller is what helped me the most).
However, around fall 2003 the pain got to a point that I could not take it anymore. It was so severe that I had to take codeine and percocet (narcotic painkillers) until I had surgery. So, I got another laparoscopy in december 2003. This time, I had a surgeon who is a laparoscopy specialist and has a lot of experience removing endometriosis. After this laparoscopy some Doctors wanted me to take the Lupron shot. I refused to since I could only take it for a period of time and that does not make sense. It is not a good treatment for endo in my opinion. I went to see another Gyn that has a lot of exoerience with endo patients, and she agreed that Lupron is not a good option for endo. So I started taking the BCP Alesse (again on a continous basis). This has the same formulation as Loette. Alesse is the name used here in the USA, and Loette is the name used in Europe. When I first started taking Alesse (Loette) I had nausea, and acne. These side effects stoped after 3 months. Most docotrs recommned that you take a birth control pill at least for 3 months in order to let your body get adjusted to it. After this period you can decided whether or not it is working for you.
I have been using Alesse for more that a year(since I had my second lap.), and I have been pain free except when I have my priod which is every 3 months. During my period I take naproxeen sodium 500mg or Bextra (made by pfizer and it does not have a generic yet), and they both help.
However, Alesse has made me sooooooooo moody. I have been having mood swings all the time. I could not take this anymore, and went to see my doctor today. She said that I have to be on a pill with a low dosage of estrogen, so my other option would be Lo-Estrin 1/20 Fe(norethindrone acetate/ethinyl estradiol w/ferrous fumarate oral). She gave me a prescription for it and I am going to give it a try for 3 months.
Regarding your question about painful intercourse, I agree with the previous posters about using a lubricant, and a lubricated condom. You may be allergic to latex. Or you may be allergic to the spermicide nonoxynol-9 that some condoms contain. When I use these I get that same burning sensation that you described. In the past I used to just take a painkiller before having intercourse. I hope this helps you somehow, and if you have more questions feel free to ask.

 
Old 02-05-2004, 11:35 PM   #5
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Re: Nothing has worked

WOW. Thank you. That was very nice of you to spend that much time explaning something to someone you don't know. I think I am going to get a second opinion about the whole thing and I will def bring up some of the things you mentioned. I am just so sick of this all. I think that people are confused about one thing though. The pain that I have durring intercourse is not from the condom or spermicide, it doesn't bother or burn my vaginal walls. The pain is inside, right at or slightly above my hair line. My doctor said it's because that's where the Endo is located, since it is where your uterus is located. So, that when I have intercourse the only pain I feel is inside my lower stomach area. It feels as if I am being stabbed with a knife. Not pretty.

 
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