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Old 01-04-2006, 09:15 PM   #1
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Rock29 HB User
I have a major problem with ejaculation and I'm really desparate, please help!

I'm new to these forums, but I hope you'll respond with any suggestions you might have for me anyway. Well, here's my story:

I've been through a lot in the last 3 years, but I'll try to keep my story as brief as possible. I had surgery for a left varicocele in May 2003. I had recurring pain in the testes afterwards, as well as minor soreness in the penis. I went to see my urologist many times after the surgery, and he said to just wait and see. I went to see another urologist about a year after the first surgery to see what he thought. He ordered an ultrasound and it turned out I still had the varicocele. I foolishly decided to go through with the surgery yet again in August 2004. After this surgery, the pain in my testes remained the same, and the pain in my penis continued to worsen, particularly after ejaculation. I stopped masturbating for 3 months, but the pain still came back.

I noticed a thin band of tissue running through the corpus cavernosum in the left side of my penis, as well as another similar in the dorsal vein running across the top. The urologist that did the second surgery was giving me the same deal as the first, the just wait and see approach. So, I went to another urologist. He diagnosed me with peyronie's disease and put me on Potaba, 500 mg, twice a day, about an eighth of the normal dose. I'm still taking it, even though I doubt it's doing anything, as it's been almost a year.

The pain continued to worsen after that, still mainly after ejaculation, and my erections now hurt for a day or two afterwards and it is hard to walk long distances without pain if I have ejaculated recently. The thin band of tissue running through the left side also increased in size over time, but it doesn't seem to expand if I refrain from ejaculation. I can get close to ejaculation and if I stop, there is no pain afterwards. The pain is only intense and unbearable from about an hour after ejaculation to anywhere from a few hours to a day or so, and it slowly subsides over a few days. The pain only occurs if the muscles involved with ejaculation are activated. I've studied some anatomy but I really don't understand the muscular system of that area, but I believe it may be the root of the problem. Also, I have noticed many superficial veins showing themselves on the surface of my penis after ejaculation, and they don't go away, they just keep building on top of one another. Also, the pain is worst in the dorsal vein area, so my best guess is that the problem is vascular in nature. The pain is best described as an intense dull soreness, and it kind of feels as though the flow of blood may be obstructed. At this point however, I really don't think I have peyronie's disease, as my penis isn't bent during erection, and the hard tissue isn't organized into a bead as in most peyronie's cases.

I did a lot of research on Peyronie's and similar conditions, and over the summer of 2005, I stumbled upon a web site dedicated to the treatment of peyronie's disease, send me a PM if you are interested in it, so I don't violate the terms of this board. Since I found the site, I've been using vitamin E, Vitamin C, Sulfur, Quercetin, L-Carnitine, Nattokinase, and Fibrozym (an enzyme complex containing serrapeptase). I've also more recently started practicing Nei Gung and Kegel exercises. In September and October, I started seeing different specialists to try and get another point of view, including a Naturopath doctor, a vascular surgeon, and visceral manipulation therapist. There has been an improvement in the scar tissue of the initial varicocelectomy incisions, but nothing as far as the penile pain goes.

I recently took a trip to Baltimore to see a urologist there. He told me everything I've been doing probably won't help, and that I should just ejaculate as much as possible and endure the pain, and my symptoms will go away. I am worried about trying this, and I'm afraid I will make the problem far worse and beyond repair if it isn't already. I haven't ejaculated in 2 months as of this post, and my erections are a bit stronger than 2 months ago, but that's about it.

After seeing 9 urologists and several other specialists, and doing a lot of independent research, I haven't found out what is wrong with me. The closest things I have found are Peyronie's disease, Fibrosis, thrombosis, and phlebitis. I'm 21 now, I'm scared as hell, and I don't know where to turn. If anyone here has any suggestions, no matter how farfetched, I would really like to hear them. Obviously I won't regard anything as official medical advice, but I would still like to hear if anyone else has ever encountered this problem or has any theories on what might be happening. I appreciate any suggestions, thanks in advance.

 
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Old 01-05-2006, 07:36 AM   #2
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tommy124 HB Usertommy124 HB Usertommy124 HB Usertommy124 HB Usertommy124 HB User
Re: I have a major problem with ejaculation and I'm really desparate, please help!

You are a courageous man. I wish you the best of luck with this.

 
Old 01-05-2006, 08:58 AM   #3
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CancerDad HB User
Re: I have a major problem with ejaculation and I'm really desparate, please help!

Rock:
As painful as it is, I would tend to agree with the last specialist... use it as much as you can. I think what's happening is you have developed scar tissue and adhesions due to the surgeries, and when you don't use, you aren't pulling on the adhesions which have attached all over causing pain... especially to some nerves which control ejaculatory function, etc. So, when you don't for a while, you feel better, because you are NOT pulling on the nerves.

Yet when you do ejaculate, you still experience pain, and will until you break up some of that scar tissue and adhesions. I think the last expert must be thinking the same thing... the more you use it, the more you will free things up and clear it out. What damage do you think you are doing? Besides having to endure the pain? BTW, I don't think you mentioned if the pain got at ALL better with use. (it might be helpful to keep a journal using a scale of 1-10 for pain so you can flip back and see if you are slowly getting better). It's my feeling that this pain is something you are going to have to get through in order to restore function without pain. The fact that your erections are stronger are a good sign... your vasculature has healed a bit. I think now is the time to start working it to get it stronger. Of course, if it gets excrutiating, I would stop and see that last specialist again. Just remember, there are so many factors occurring to make you have an erection and ejaculate, not to mention the surgeries which no question, caused some injury. But things are functional, and it's my guess that it's nerve related, probably caused by adhesions pulling on the nerves.

Good Luck,
CancerDad

PS... if it was still related to the varicocele, then you would have pain upon gaining an erection, which you don't have... so, I think the only way to go is to keep going with it.

PPS massage while not erect may also help (until you can't because you're aroused!) to help break some of the adhesions while you have more of a chance to knead things around. Good Luck ~CD
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