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Old 04-24-2012, 06:53 AM   #1
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Join Date: Apr 2012
Location: Northeast PA
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corrwolf HB User
Struggling with dx of Psoriatic Arth or Lyme

HI. Am a homeschooling mom loving the Lord and her husband. Was quite healthy and active till about two and half years ago. Started with right great toe pain radiating to bottom of foot. Other initial symptoms were numb hands at night and soon after calf and upper arm pain. Was to ALL different specialists individually diagnosing nonsense after nonsense. (wear orthotics, do stretching exercises, etc etc). A few months later we began a journey of adoption with two little boys 10 months apart so my migrating pains took a back seat. Then in spring of last year (2011) things flared up again with migrating joint, muscle and tendon pain. Would fly from one place to the other in seconds. But then i contracted Parvo B19 virus (blood test confirmed) and had locking pain in thumb and ankle. That resolved and went back to migratory pain. Went to a Rheumy in fall, diagnosed with early psoriatic arthritis due to 10 year history of psoriasis in scalp. NO psoriasis anywhere else on body ever, and scalp kept under control with tea tree oil shampoo (natural). Refused narcotic etc as pain more nuisance at this point due to anxiety of unknown etiology in my mind. Started to look at lyme disease beginning of 2012. Bloodwork is negative always for RF, ESR never elevated, ANA was positive after Parvo, but since negative. All conventional tests for lyme negative, as well as co-infections.
Have lower end WBC count and anemic (ferritin 10!) Going to LLMD in two weeks but concerned is just an expensive second opinion and that i am just not accepting of the fact that i may have a lifelong degenerative disease such as psoriatic arthritis. A compassionate and wise with lyme MD "locked in the system that is not lyme literate" did prescribe Doxy 200mg twice a day for the meantime. No herxing that i could see for past two weeks on such.
Another thought i have is that because i am a fiend with juicing green and orange and taking natural anti-inflammatory supplements that i may be holding either the arthritis or lyme at bay, and preventing a definitive diagnosis? One strange symptom also worth mentioning is left sided abdominal pain that at least once was awful. It seems that the first time something hurts (neck, side, back) is the worst and after that it just stands in line for the migratory pains.

Thanks for reading the rambling account....
In Christ thankfully

UPDATE

Went to a LLMD. Explained symtoms, did the most complete exam i've ever had (i've had alot!). He has seen thousands of patients, and over last number of years specialized in Lyme.
He called my case "so classic it's boring". It was meant in a kind tone. I am still "struggling" with lack of definitive blood indication since Psoriatic Arthritis will not produce anyting right now and we are waiting on results from IGENEX for now.
Appreciate any feedback on experience with seronegative RA or Psoriatic arthritis diagnosis that turned out to be LYME>
THANKS!

Last edited by corrwolf; 05-09-2012 at 05:18 PM. Reason: update

 
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