It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Share Your Pain Management Story Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 08-24-2010, 03:54 PM   #1
Newbie
(female)
 
Join Date: Aug 2010
Location: New York, New York, USA
Posts: 1
maddie012 HB User
My pain story

Hey. (: I'm maddie, I'm almost 15. I have meiges syndrome, which is the fancy term for having both blecpharospasm and oromandibular dystonia. Basically: my eyes are always blinking, hard, and my tongue, lips, and jaw are always doing something awkward, even when I sleep. I have a very strong face. (; This can hurt a lot though, especially my eyes. It makes it especially painful to talk and eat, I'm going to get a g-tube soon. We've tried botox and oral balfocen, and nothing has worked. So I'm just on heavy painkillers... oh, the life.

 
The following user gives a hug of support to maddie012:
louisef1 (11-23-2010)
Closed Thread

Tags
blecpharospasm, dystonia, early childhood dystonia, meiges syndrome, oromandibular dystonia



Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



Thedomina (2), Administrator (2), junebugzz (2), gmak (2), QOD (1), sjhw1119 (1), katlin09 (1), msnova74 (1), Karendg71291 (1), ctrue (1)

Site Wide Totals

teteri66 (968), janewhite1 (822), MSJayhawk (758), Apollo123 (723), sammy64 (656), Titchou (630), Gabriel (618), BlueSkies14 (610), midwest1 (584), SpineAZ (520)



All times are GMT -7. The time now is 09:42 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2013 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!