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Old 04-11-2006, 10:48 AM   #1
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Shingles Pain?

Hello,
My boyfriend who is only 24 was diagnosed with shingles on the right side of his neck about two weeks ago. One week into the shingles he developed horrible pain in his left shoulder/chest area. He has been to the ER and his doctor had an EKG done and they said it is not his heart. The doctors will not really give him a straight answer as to if it could be related to the shingles even though it is on the opposite side of his out break. Has anyone experienced horrible nerve pain on the opposite side of the shingles out break. Any information would be helpful...I feel so bad for him and just want his pain to go away.

Thanks.

 
Old 04-11-2006, 01:27 PM   #2
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Re: Shingles Pain?

My friend just had those! She had bad pain in her chest right under her left boob and the doctor said it was that. Not sure where her breakouts were though - it could have been in that area, but according to her doctor shingles can lay dormant in various parts of the body and cause pain even if no shingles appear there. She said the doctor told her the pain can last for a while, several weeks.

Last edited by Sunlover; 04-11-2006 at 01:27 PM.

 
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Old 04-13-2006, 05:53 AM   #3
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Re: Shingles Pain?

it all depends on just what nerve root the chicken pox virus was lying dormant in as to how it will actually show itself.it is indeed highly possible for your boyfriend shingles erruptions to be on the opposite side of the painful area that comes along with it.it has to do with the actual area that the affected nerve root innervates(the dermatomes?)google dermatomes and you will run across the "dermatome man"at some point?this is just a diagram of the different areas(according to the spinal cord nerves)that actually shade in the entire area of just where any given nerve root innervates.the chicken pox virus could possibly lying upon or in the nerve roots on both sides,which would cause the symptoms to be bilateral in nature like his are.if for some reason(although this is how I found the site)you cannot locate the "man" this way,just google spinal cord injuries and it will also show the same derma dude.

the dermatomes will definitely give you a much clearer picture of the painful areas along with just where those erruptions are.just look at the part of the neck where the erruptions are and then the whole shaded in area that it innervates.this will kind of rule out the other areas and can pinpoint just a bit better where this may actually comming from,give or take maybe up or down one dermatome since the erruptions will 'usually' appear directly over the affected nerve root,it is not always the case.but this will kind of tell you a bit more than you know now and can also be printed off and shown to his doc(referring to the dermatomes?)so he can see where the pain is in relation to the dermatome.also getting lidoderm patches to place over the erruptions and the affected/painful areas will help alot as it does numb or tone down the pain.there are other meds that his doc can Rx to ease the shingles suffering.I know it can get pretty intense in some people.he has every right to good pain control as this is a very painful condition.

while the pain could possibly be stemming from something else,I would say given where his erruptions are located and where he is actually having the pain,it is most likely the shingles.He really does need to follow up with his doc.at least you have already ruled out the cardiac possibility.Please keep me posted on how things are going.good luck,FB
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 06-04-2006, 03:56 PM   #4
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Re: Shingles Pain?

Shingles are definately Painful! As FeelsBad said, it definately can be painful on the other side of the body than where the lesions are. Lidocaine patches as well as pain meds are usually helpful. Also very important...anybody who has never had Chicken pox should avoid direct contact with the shingles patient as they are the same virus

 
Old 06-27-2006, 11:20 PM   #5
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Re: Shingles Pain?

How come i am getting shingles more than once? I have then June 05 now have them June 06. June 06 shingles has cause me tohave neuropathy in other arease where the shingles did not come. The shingles i had for the second time the rash did not come either.

any idea?

 
Old 06-28-2006, 01:35 PM   #6
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Re: Shingles Pain?

Long story short, your body harbors the virus, and you can have many episodes...similiar to herpes. Once the lesions go away, it doesn't mean you don't have it anymore.Shingles is very painful and I wish you good days ahead. Cactuslily. Sorry I can't write more, but my hands aren't working well. good luck

 
Old 06-28-2006, 02:20 PM   #7
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Re: Shingles Pain?

Thanks for you reply. My question is why when i had this 2nd bout of shingles why did it make my nerves twitch so much in my feet arms hands legs toes finger. Why do i have pain there right now. Is this shingles related to me it is because i have never experienced so much twitch in other areas at the same time. Now i am trying to recover i feel like its getting better and i hope my fingers dont hurt anymore or feet or toes or elbows burning etc.

shingles was on my back.
no rash.

Any anwswers would help.
thanks

 
Old 07-16-2006, 06:40 AM   #8
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Unhappy Re: Facial shingles --7th day

I'm in my 7th day of facial shingles! It has been an experience I wouldn't wish on anyone. It's so common among folks over 60 ( that's the group I'm in) but I sure hoped I'd luck out on this one. They first thought I had 'temporal arteritis' which is more serious than shingles, but the rash occurred on the third day and that was good, or they would have scheduled me for a 'temporal artery' biopsy for the other. I'm on Valtrex 1000 mg. 3 x's a day (antiviral medication), and 300 mg. of Neurontin ( for the healing of the nerve endings). I also have Bacitracin ointment for the eye and Xibrom drops for in between the other. My eye is giving me the most problem, feeling like something is in it and at times very painful, and I had to see a corneal specialist on Friday. He said so far the inflammation is only on the while portion and he thinks everything else looks good. My face has been covered and very sore and burning pain down my neck, shoulder and arm ranges from mild to not so mild from time to time. Ice packs have been a god-send. I have to see my eye doctor again in 7 days. I really do hope this doesn't come back!!
yanksgirl

 
Old 07-16-2006, 09:28 AM   #9
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Re: Shingles Pain?

Quote:
Originally Posted by cactuslily
Long story short, your body harbors the virus, and you can have many episodes...similiar to herpes. Once the lesions go away, it doesn't mean you don't have it anymore.Shingles is very painful and I wish you good days ahead. Cactuslily. Sorry I can't write more, but my hands aren't working well. good luck

Why is your hands not working well? Where did you have phn. I am told that you only get shingles once there after it is PHN when there is no rash the pain is called PHN not shingles again. Now if the blisters appear again then yes you have shingles again.

 
Old 07-17-2006, 05:48 AM   #10
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Re: Shingles Pain?

shimz,just what is phn?are you referring to peripheral neuropathy?this may be whats actually taking place with you.when you had this last erruption,did you also have the blisters?and just where did the blisters form at the first attack?

there are many different forms of neuropathy with a huge list of possible causes.maybe since your body has experienced shingles it could have triggered some other type of neuropathey as well.when you are dealing with nerves and pain,honestly,as I am slowly finding out now over time,anything is indeed possible with this kind of crap.

you should maybe seek out the expertise of a neurologist who can really look into this a bit deeper with you and evaluate all of your symptoms along with a good hands on eval.your type of neuro pain and symptoms are just so diverse and cover areas that no actual individual dermatome would include.unless you somehow(i don't even know if this is actually even possible)had the chiken pox virus end up on more than one actual nerve root.like I aid,I have no clue as to whther or not this could even happen but this is why you need to see a neuro.he or she would be able to at least give you some answers.your particlar case,just does not sound like a normal bout of shingles,you know what I mean?the presentation is just all wrong.

just make a neuro appt and please let us know how you are doing with this.good luck,marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 07-17-2006, 06:15 AM   #11
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Re: Shingles Pain?

PHN post herpetic neuralgia this is what I have once you have shingles and the pain lingers or comes back its called PHN

Peripherial neuropathy is different. PHN is just pain in the area of where the shingles once were.

When you get shingles for the first time chances are you have the blisters

The 2nd time and thereafter you do not get the blisters. Well it is rare to get the blisters again. Instead you get all the other symptoms of shingles execpt the visual. Well that is what happened. I thought i got shingles again but I was told it is just PHN at the same time i had something new come to another neuropathy my limbs etc hurt it sounds like peripheral neuropathy from what I have read but I have not been diagnosed with it.

This is my only illness PHN and the cause of ths first outbreak was stress

 
Old 07-17-2006, 06:18 AM   #12
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Re: Shingles Pain?

I am 27 so I guess i just got to stressed and then ended up with it and now i am suffering from another neuropathy that was triggered this 2nd time. I am running a bunch of test waiting on my last 2 mri's and an emg. After that if it shows negative I will just live with it. I refuse to digest to many meds. Last year when i had shingles my doc gave me so many meds that I now have acid reflux from those meds. Just shows meds just cause other thing to occur. If i have to take something i will take tylenol. I also have lidoderm patches but its kind of hard to wear them on your fingers and toes

 
Old 07-18-2006, 05:19 AM   #13
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Re: Shingles Pain?

shimz,sounds like you are doing all the right things at this point,i sure hope you can get some solid answers here.it IS always possible to have more than one condition or another type of neuropathy going on at the same time.when you get a whole bunch of really confusing symptoms this is usually what ends up being found out in the end.you just never know whats going to pop up inside your body next ya know?

I just wanted to mention to you that they DO make a lido gel that comes in a tube?it isn't quite as effective as the lido patch,but it does help in some cases.just a thought.good luck with the tests and please keep us posted.Marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 07-18-2006, 08:54 AM   #14
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Re: Shingles Pain?

Feelbad:
Ok here are the details from start to finish.

For the past 4 years "before I ever had shingles" I had a tingling sensation first in my arm just once a day and slowly it built up more and more and more. It never did hurt. A year BEFORE I had shingles 04 those tingling sensations seem to start getting on my nerves. It still didnt not hurt but it was going on much more. I complained to the GP and of course they didn't believe me or something. Then they sent me over to a neuro to just have an EMG. The results came back clear and then I was off my way. He slurred and said everything is fine there is not nerve damage.With this I figured my nerves problems are stil accute. Ah and who knows and left it at that since it was not truly hurting me and I had no idea what neuropathy even was.

Then June 05 I get the shingles on my left back wrapped under my left breast. " At this time when I got the shingles all that tingling in my hands etc that I had for years seemed to stop" All the pain was now in my shingles. I had the blisters and it was severe. I went in to the doctor a week late because I had no idea what it was. I thought I had a bug in my back and that is when I went in. She said it was a severe case and gave me so much meds. All those meds she gave me in turn left me with acid reflux, a polyp that was removed and inflamation. I am now on priolesec due to her meds she gave me.

It took a while for the shingles to heals a month and i was still in pain after a month I still felt it some in my back and I came in to see her and she said you have PHN. I didn't really think to much of it afterwards because it was getting better.

It was weird everything was getting better i no longer hand tingling sensations in my arms limbs etc the burning in my back got less and less and by january i had no pain in my shingles area what so ever. So I figured it was completely over.

Then came May 06 my foot felt like it was on fire a couple times out of no where it just occured. I didn't think too much of it and then i caught myself rubbing my head on the side because i felt a sharp tingling pain. That happened couple of times to. This is the month that I was having my upper enscopy for my acid reflux. I went in to the gasterologist office and I remember the PA asking me questions "Do you feel burning" and I said yes and she said where and I said in my chest or maybe its in my shingles.

I do not know why I said that in my shingles??? Shingles were gone and over for me. In any case I should have known it was already bothering me again but I didn't realise that. When you have acid reflux and shingles in around the same area under left breast I guess the burning you would think was all acid reflux or par acid part shingles. I dont know but that is how I answered. I was also focused on my shingles to because that was the reason I had acid reflux the meds that I took from it.

So my endscopy was set to be on June 23. Well here comes June 6 and I am sitting at my comp finding my self looking up things on shingles and nerves etc. I just then realized what am I doing ..... I realized I was researching it up because my back was burning again. So then I thought to myself no maybe its just me thinking it is burning a bit. So I waited. The 7th it felt the same a little more but no blisters had formed. At this time I thought I had to have the blisters again in order for it to be shingles. I also found that my hands were sore which seemed odd. By the 8th my shirt was hurting me on my back my hands and feet started aching toso I had to go to the doctor for meds. This disease was back!

They say that if you get shingles your rarely get them twice? The 2nd time around when there is no blisters it is PHN. PN is different from PHN. PHN = Post Herpetic Nuralgia. So what I had was PHN in the same area. I kept saying I got shingles again in my back in the same place. Well i really don't know what it was but probably was PHN since it was pain and in the same area with no blisters. On the 7th or 8th I made a neurologist appt. right away!

So I go in and get meds from another GP whom gave me a shot of kenalog and valtrex. He ordered and MRI on my brain and c spine. Which came out clear. Meanwhile I was waiting on my neuro apt which was still weeks away.

Valtrex was for 7days after 7days I didn't have anything else. The valtrex seemed to help right away for those 7days it seemed like things were getting better and I thought it was just the PHNand that it was already clearing up with the meds.

Well as the meds wore off my hands and feet bothered me more and I started to have severe nerve electric shock like twitches inside my body. NOTHING VISUAL. It started with lots of twitching pains in my arms knees legss feet thighs hands. Soon iI guess wearing off and itwas like radiating electric shocks. Well I had no meds just dealt with it because I knew I had to go for an upper endoscopy so I wanted my stomach clear and off of any meds. The day I had my endoscopy wasn't to bad becaues they gave me and ivy and that helped calm my nerves. Once it wore off my pains were still bothering me but less.

So finally I go to the Neuro by then its allready calmed down a lot but still bothering and hurting. Its not the same every day and its no longer constant pain in certain areas. Its random areas. The neuro said I think it is anxiety. Okay I waited a whole month of course I am going to have some anxiety but that was most certainly not the answer. He gave me patches for my back and lyrica samples.

I had samples of the patches of lidoderm that helped then I got refill which is just sitting here because my pain in my back where th shingles were is not as bad as this other twitching.

Anyway I went back to the gp and she gaveme antidepressants again and said get off lyrica. Basically I am sick of it all I am not on any meds. I'm tired of people shoving pills in my hands without any kind of answer or even them helping me understand any of it. If they aren't sure that is fine they don't need to waste my time. I dont need antidepressants they dont work for me and I refuse to have a pill alter my behaviour or turn me into a zombie. I need to know what I have before i keep on digesting. So as of now I am on nothing. If it gets bad or bothers me i will take tylenol . Lyrica will make your gain weight and sleep half the day and that is not my purpose in life so I am not letting some pill control me like that without knowing what is wrong with me.

I have had 4 mri 2 were fine the other 2 i neverheard back from so i figure they are fine to. I have an emg left will get that done and then if all comes back clear then I guess I wait until it gets worse and find another doc

Last edited by Shimz; 07-18-2006 at 08:58 AM.

 
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