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Shoulder / Rotator Cuff Problems Message Board
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Old 04-21-2011, 09:48 PM   #1
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20+ dislocations, possible nerve damage, and moving abroad.

Hello to everyone here, I'd be happy for any response or advice anyone has as my left shoulder has always been an anomaly to me. I dislocated it initially about ten years ago and had rotator cuff surgery a few years later. I've been on and off taking the rehab seriously ever since the first dislocation and it would pop out a few times a year, I'd need a few days to recover, and that was that. However I haven't had a dislocation in almost three years, which could likely be a result of me being more careful and favoring it like a gimp at times.
But around a year and a half ago this random pain I had never had before crippled me and I was essentially debilitated for about two weeks. It has never been that bad consistently since that happened, though it gives me various levels of discomfort/pain every day. I had an MRI done but apparently nothing showed up so I still have no idea happened. I spoke to a doctor of a friend of mine (not ortho) who said it sounded like nerve damage from my description. It came out of no where though since it was the longest I had gone without dislocating it, and all pain I had ever felt before was a direct result of a dislocation, or obviously following that horrendous surgery I wish had never been done.
I didn't want to see an ortho because it was expensive and they get the reputation as 'boys who like to use their toys' sometimes, but another doctor mentioned I see a physiologist.
When I try to rehab hard it can result in tremendous pain, when I do nothing it can be even worse. It's difficult to find a middle ground and I still have no idea what changed a year and a half ago. I would put my dislocation at over 20 times, which is a lot, so we obviously have some problems here.
Anyway, I plan to see a specialist but I'm moving to Korea in about a month and I don't trust doctors there. What kind of specialist should I see? Does this sound like nerve or tissue damage or anything anyone here has experienced or may know about? As a disclaimer, I never take pain medications, ever, but, strangely enough, the thing that supplies the most arthritic pain these days is smoking marijuana. I didn't touch it for at least 7 years, and not until after the random killer pain incident a year and a half ago, but maybe it's worth mentioning. I turn 27 this weekend so whatever problems I've had to this point will only likely get worse until I figure out what is wrong and how to fix it. Any insight or advice? Physiologist, Orthopedist, physical therapist? I appreciate any feedback in advance and apologize for the long-winded post.

Last edited by Jfromtheway; 04-21-2011 at 09:52 PM. Reason: title error

 
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Old 05-15-2011, 10:25 PM   #2
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Thumbs down Re: 20+ dislocations, possible nerve damage, and moving abroad.

Hi there- I feel your pain. I have posted on here regarding my shoulder issues. I had my 22nd dislocation about a week prior to shoulder surgery which was on April 26/11. I had my 23rd dislocation the night of my surgery. To say that one wasn't painful is an understatement. They all hurt-but a dislocation after surgery is something I never want to go through again. It didn't stop there-through the night my arm-neck-chest swelled up red/hot and ever so painful. It's been 2 weeks nothing other than resetting my shoulder was done after the surgery. During surgery my Dr anchored one teeny piece of tendon to my shoulder that's all there was. That one & only piece of tendon is destroyed now & I have nothing left to attach. He also removed a piece of bone that was within the capsule which I had felt for at least 8 months prior. I was told we would wait until the immense swelling and tissue healing is done they would have to consider bone-grafting.

I had my first appointment post-op and I left there feeling like they were not going to do anything more-if it dislocates again I will have to go to emergency and have it reset- I just can't believe it. I have so much nerve damage and because I am double jointed when my shoulder dislocates it heads under my shoulder and travels down the inside of my arm in a nerve damaged tunnel that all these dislocations have created like a ditch down to my elbow. If it sounds like a nightmare-it is a nightmare. I sure hope you have a successful operation with a good caring surgeon. Best of luck to you.

Last edited by ebrena; 05-15-2011 at 10:31 PM. Reason: added and corrected wording

 
Old 05-16-2011, 12:07 AM   #3
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Re: 20+ dislocations, possible nerve damage, and moving abroad.

Ouch, thanks for your response, that sounds excruciating. It's rough having such massive damage in an important joint like this. My surgery was about eight years ago though and my post-operation dislocations have thankfully not affected anything structurally, as far as I know, and have popped back in quickly.

Since this has been bumped, I would like to plead with anyone who may have information of use to me. I've been told that what I have been experiencing is likely NOT nerve damage, but tissue damage, as I haven't felt a radiation of pain elsewhere in my neck or further down my arm.

Does anyone know the protocol for dealing with tissue damage in the shoulder post-rotator cuff surgery? Or does anyone have advice on specialists who deal best with joint-related tissue damage? Is an orthopedic surgeon still my best bet? I would greatly appreciate any response. Thank you.

 
Old 05-16-2011, 10:41 AM   #4
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Re: 20+ dislocations, possible nerve damage, and moving abroad.

Quote:
Originally Posted by Jfromtheway View Post
Ouch, thanks for your response, that sounds excruciating. It's rough having such massive damage in an important joint like this. My surgery was about eight years ago though and my post-operation dislocations have thankfully not affected anything structurally, as far as I know, and have popped back in quickly.

Since this has been bumped, I would like to plead with anyone who may have information of use to me. I've been told that what I have been experiencing is likely NOT nerve damage, but tissue damage, as I haven't felt a radiation of pain elsewhere in my neck or further down my arm.

Does anyone know the protocol for dealing with tissue damage in the shoulder post-rotator cuff surgery? Or does anyone have advice on specialists who deal best with joint-related tissue damage? Is an orthopedic surgeon still my best bet? I would greatly appreciate any response. Thank you.
I would think an orthopedic surgeon is your only bet.
James

Last edited by james079; 05-16-2011 at 04:23 PM. Reason: spelling bad

 
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