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Old 06-04-2004, 02:11 PM   #6
shue
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Join Date: Jan 2004
Location: Texas
Posts: 175
Re: What can I expect for my child? SID and autism

Tenenx? I have never heard of this. What were his sleep or lack thereof, symptoms before the meds? We struggle with no sleep so much. I am at my breaking point.
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Old 06-04-2004, 09:46 PM   #7
BetsyAnn
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Join Date: Feb 2004
Posts: 612
Re: What can I expect for my child? SID and autism

Tenenx? I have never heard ** this. What were his sleep or lack ***re**, symptoms before *** meds? We struggle with no sleep so much. I am at my breaking point.

Tenex is actually a blood pressure medicine. The generic name is Guanfacine. It is very similar to Clonidine. Although it's primary use is for high blood pressure, docotors also prescribe it as a sleep aide and in the managment of adhd symptoms and in treatment of behavioral issues in autism.
My son was on an extremely low dose, .5 mg

From day one my son never slept well. He had a hard time falling asleep. He was a very light sleeper, just poking a head in his room to check on him would wake him. We functioned alright while he was in his crib. Luckily he was pretty easy going. So even when he would wake up he would usually play in his crib, get bored after awhile and go back to sleep. We usually only have to get up with him once or twice a night, which was managable.

Once he learned to climb out of the crib our lives changed. The only way I could get him to go to sleep was to forcibly hold him on my lap and rock him for 45 min. to an hour while he screamed and fought and finally colapsed. It was horrible. I felt like I was torturing him. I just wanted to cry along with him. He rarely stayed asleep for more than an hour at a time. And once he woke up he was alert, energetic, and ready for the day. If we let him stay up he was happy and pleasant. To get him to sleep we had to go through the rocking ordeal all over. If my husband or I slept with him in our bed we discovered he would stay asleep for two and sometimes three hours, but he climbed on our heads the whole time.

The first few nights on the Tenex he slept like the proverbial baby. Once he started to catch up on his sleep he didn't sleep as well, but still it was such an inprovement that we were at least able to function. When he was taking the Tenex his sleep seemed fitful. He would toss and turn and climb on our heads all night. He would not stay in his bed. He would stay in our bed with either my husband or myself. He would wake several times during the night but it was fairly easy to coax him back to sleep.

A little boy in my son's toddler group also started taking Tenex. He actually had better results. He slept soundly without waking in the middle of the night and his sleep was restful. It also did not have a sedating effect on him the next day.

I did not think that my son had any abdominal distress because he generally was pleasant and did not ever seem to be in pain. In retrospect I think that his climbing on our heads helped his stomache feel better. He was just not ever content in bed unless his stomache was pressing on one of our hard heads. While on the Tenex he was very sleepy but still not sleeping peacefully. Going casein free has pretty much solved his sleep issues. My entire family was very resistant to the idea of having a milk free home. After my son started sleeping so soundly they were all on board.

Shue, have the weighted blankets made any difference in your daughters sleep?

Sorry this is so lenghty. I get long winded when I relive my traumas.
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Old 06-05-2004, 03:43 PM   #8
MomwithMS
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Join Date: Jun 2004
Location: Oklahoma
Posts: 128
Re: What can I expect for my child? SID and autism

Wow THanks for all the info.

The therapist from the JD McCarty center called our pediatrician last week about putting her on clonadine. I'm guessing we'll try it next.

Weighted blankets? Where do you get those?
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Old 06-06-2004, 12:15 AM   #9
alltheanswers
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Join Date: Apr 2004
Posts: 35
Re: What can I expect for my child? SID and autism

My daughter has been taking Clonidine for a few years now. We also tried Tenex as well but we couldn't get her to swallow the tablets. For some reason, the Clonidine tablets taste better as she has no problem chewing it. The clonidine has worked great! She goes to sleep in about 1.5 hours. She's up to .6 mg per evening now (she's 9 years old so the higher dosage was required). W/o this, she would and could stay up all night or would not go to sleep until well after 2 am.

My daughter never did drink milk so I guess that's a good thing. She rarely has dairy products except one spoon of pudding that I give her with her meds which has a little milk in it. I'm thinking about putng her on the CF/GF diet pretty soon after I've finished conducting this other experiment first.

Good luck with the new meds. Hopefully it works out for her and you can get your sanity back so that you can try other things and eventually get her off the meds. That's my ultimate goal.
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Old 06-09-2004, 06:29 AM   #10
U. Thomas
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Join Date: Jun 2004
Location: UK
Posts: 16
Re: What can I expect for my child? SID and autism

Hi,

I don't understand this need for medication. I have autistic children in Uk and never used medication for them or even been offered, nor has any other parent I know.

The sleepless/crying stage lasted for many many years its only recently stopped since I repainted the whole bedroom an aqua bluey/greeney colour - including wood and radiator. Suddenly the house is quiet at nights. It might work for you too. I hope so.
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