help for vestibular disorder, head pressure

caseymarie · 08-21-2004, 02:07 AM

hey everyone!
I have been dealing with a vestibular disorder for about 8 months now. I now know it is not vertigo, but I suffer from similar symptoms. I have this constant pressure in my head, sometimes for severe that all I can do is lay in my bed. I suffer from "spells" which happen and I have to sit down or lay down because my head gets foggy and hazy. I also have ear popping and ear pain sometimes. I have seen a ENT doctor, and now I see a physical therapist who gave me excersises to do to strenghen my ability. I guess I just feel helpless, the excersizes do not help, and I live with constant pressure. I dont feel like myself anymore. I forget what it is like to have fun and go out in public and feel normal. Does anyone feel like this?? I know everyone has there own problems, but I really am having a hard time dealing. I guess I just dont want to feel like the only one who deals witht his anymore. Thanks!

caseymarie · 08-23-2004, 06:25 PM

anyone????

februarygirl · 08-23-2004, 08:58 PM

I can't believe I am reading your post because I have been getting the same thing for a year now!!! I was finally diagnosed with vestibular migraine about a year ago. The pressure is sooooo intense on the top and back of my head. My ears feel like I am taking off on an airplane and they won't pop. I also get facial numbness sometimes when it gets really, really bad. My neuro gave me Axert to abort the migraine which I took yesterday because the pressure was so bad. She wants me to take Diamox which is a diuretic as a preventive (which I have not taken yet). [ removed ]

By the way, I am a 44 yr old female, mother of two!

Nancy

OhioRocker · 08-23-2004, 10:14 PM

Hey Nancy,
Sorry to jump in here, but I've been on 500mg of Diamox for about 5 months. What did your doc mean by it being a preventive?

februarygirl · 08-25-2004, 10:44 AM

My neuro wants to treat the vestibular and migraine at one time. That is exactly what she told me. Don't quite understand it though. I had a bad week and had to take Axert to try to abort the migraines. She has put me on a 6 day course of Methpredinosonol (sp?) to stop the cycle of the migraines. I am hoping this will not throw off my balance even more but I do hope it helps to stop the pressure in my head and ears.